Thursday, May 31, 2012
Just Diagnosed with Cancer? Chat with Experts

The fourth sister...

By Melanie Saturday, August 23, 2008

 

 

Cancer was not a disease our family got.  Mom's side of the family dies of old age.  Dad's side has heart attacks or strokes, but they still live long lives.  Dad's Aunt Nellie had breast cancer, but she lived far away and it was hardly mentioned.  The family history changed when Dad's youngest sister got breast cancer and died at 48.  Another sister developed leukemia in her 60's and a third got breast cancer in her 80's.  Dad developed cancerous polyps and had a section of his colon removed.  Okay... cancer was now a disease the older relatives got, but it still didn't happen to us.  We were growing up on a farm with fresh air, eating healthy and popping vitamins.  Invincible!

 

It was quite a shock when my oldest sister, Barbara, went to the doctor to see about a persistent cough, and was given the diagnosis of stage IV ovarian cancer.  Five years later, the next oldest, Bonnie found a lump in her breast.  You reason that lightening cannot possibly strike a family again, but it did.  The youngest, Brenna, was also diagnosed with breast cancer.  Barbara died in 1985 at age 48, Brenna in 1986 at age 34 and Bonnie in 1988 at age 46.  Our family was devastated and I became an only (remaining) child in the span of 3 years and 13 days. 

 

You have to keep on living and get past the fear of "am I next"?  It wasn't easy, but I had a family to raise and aging parents to care for.  God gave me peace and strength to keep going for my two young daughters and my grieving parents. 

 

A small article appeared in our local paper in 1993 about the NSABP Breast Cancer Prevention Trial.  I called the coordinator at Fred Hutchinson Cancer Research Center in Seattle and was accepted into the trial.  16,000 women at high risk for breast cancer were recruited for the study.  I took Tamoxifen for 5 years on the program.  How did I know I was taking Tamoxifen and not the placebo? HOT FLASHES!  Not fun side affects, but I hoped the benefits outweighed the negatives.  It gave me a sense of security in that I was being proactive and doing what I could to protect myself from developing breast cancer while furthering cancer research.

 

I finished the Tamoxifen trial and thought "Great! Now the hot flashes will quit!"  NOT!  I needed a hysterectomy for horrible fibrosis.  It was logical to remove my ovaries at the same time.  So the instant menopause gave me hot flashes to heat the world!  Hormones were not an option, herbs did nothing for me... I  learned to live with them.  Clonidine helps, but I'm still a "hot chick" quite a few times a day.

 

I'm a 58 year old baby boomer so this summer was my 40th (yikes!) High School Class Reunion.  There were 45 in my graduating class.  29 of us went through all 12 grades together so we were like brothers and sisters.  Two girls in my class passed away from cancer in their 30's & 40's.  One of those also had a sister with cancer.  Another classmate is a breast cancer survivor for 9 years.  One of the boys is undergoing a second round of stem cell treatments.  Cancer has touched a high proportion of families in the small farming community where I grew up.  We are "Down-Winders" from the Hanford Nuclear Reservation.  In the late 40's and early 50's there were "green releases" of radioactive iodine.  The invisible iodine settled into the soil where we grew our own vegetables and drank the milk from the cows who ate tainted grass.  Is it just a coincidence that all three sisters  developed cancer at early ages and died within 3 years of each other?  Is it just a coincidence that cancer rates are so high in the Lincoln County area?

Phyllis Johnson, Health Guide
8/23/08 5:44pm

Melanie, I think you will find a huge difference in cancer treatment now from what your family endured in the 80's.  I had a good friend who died of breast cancer in about 1986 after years of difficult treatments, so I was very apprehensive about what to expect when I was diagnosed in 1998.  Anti-nausea meds and other changes in treatments made my experience almost a walk in the park compared with what my friend Katherine endured.

Thanks for your thoughts about how environmental factors affect public health.  I'm sorry for what your family has endured, and I hope that your experience and outcome will be much better.

8/24/08 8:08pm

Thanks for your comment Phyllis.  Yes, I'm sure treatments are so much better now.  They didn't even have mammograms back in the early 80's so my sisters' cancers was found at advanced stages.  The hardest one was my younger sister, Brenna.  She was the third to get sick and she opted not to go through traditional treatment because it had been so hard on the other two.  She went to a naturopath who basically treated her with hot and cold compresses and some herb pills.  It was really criminal.  If my parents hadn't already been through so much I would have sued him.  Get this...his name was Dr. Dick... and oh yes he was!

 

I've got lots of good people praying for me and great doctors so I'll be fine.  I just hope my daughters won't have to go through this.

8/26/08 12:19pm

Your story brought tears to my eyes. But what story doesn't make me cry. I am sorry about what your family has gone through. You sound like a very strong women, the treatments are not fun but definitly doable. I know the worry you have for your daughters, my mother had bc at 35 and I was diagnosed at 26. So I am so terrified it will hit her and even younger than me. But hopefully that will not be the case. She is young but it is still a worry you can't let go of. Good luck with surgery and treatments. Stay strong!

8/26/08 1:08pm

Thanks for your comment Tiffany.  Your family history sounds pretty scary too.  I try not to let it get me down, but it's always been in the back of my mind.  I'm just in the process of figuring out what my insurance does or doesn't cover in regard to genetic testing.  I went to the University of Washington Genetic Research Dept. back in the late 80's when the tests were just too new and inconclusive, so they discouraged me from having them at that point.  Now my daughters want to know if they've inherited the genes because they would consider prophylactic mastectomies.  That makes me very sad for them because they are 29 and 31... too young like you are to have to deal with all of this.  Their doctors have always taken their concerns about developing BC less than seriously because their aunts had BC but not their 1st degree relative.   Well now that's changed so I hope the doctors will be more vigilant.  You've got to fight for your own health!  I really wish you well and I'll send up a prayer for your family today for "the peace that passes all understanding."  Melanie

8/26/08 6:52pm

Well not sure how all insurence companies work. But my surgeon referred me to a Genetics Counselor then she requested them to pay for the test and they okayed it. I do have a mutation in the BRCA1. The counselor gave me a book called Pretty is What Changes. Don't know if you've heard of it but it was good and not to longWink Its about a writer who has the mutation in BRCA1 and decides to get a prophylactic mastectomy. You and your daughters might like to read it. I have a 20yrold sister to worry about to. Good luck, keep in touch

9/ 3/08 12:39pm

Joy just sent us the link to your blog and I just finished reading your story of how cancer has touched your family.  I guess "touched" is too gentle a word in this case.  I remember you mentioning at one time that you had a sister of two who had breast cancer but I didn't know the details and how very young they were.  I also didn't know your family actually lived downwind from Hanford either.  I feel honored that you wanted to share this with all of us.  I think it helps bring us all much closer together in knowing you even better.  

 

I want you to know, and I'm sure everyone else would echo this, that you are really a really special and incredible person.  I guess you could call it "gifted."  Or maybe we are to know you.  You are not only smart and cute but you have such a wonderful personality and quick sense of humor.  I am so glad Deanna invited you to join the garden club or I would have never gotten to know you.  I especially love the fact that I found someone else that not only loves gardening but also loves photography and computers like me.  It is almost like finding your soulmate -- well maybe second to my husband. :-) 

 

So today you are having your operation and I wish I could be there to hold your hand and make you laugh.  But I think this is a private time for your family so all of us will be here for you in spirit and support.  We look forward to you coming home and will be there to listen and talk and run errands and cook and whatever else you need.  Pedicures and hairstyling??  That's what friends are for.   Thank you for being ours.

 

With all our love,

 

Susie Egan

Anonymous
Diane Clark
9/ 4/08 4:39pm

You go girl.  You rock and I admire you so much, especially knowing the history of your family!  We are kindred spirits in this fight.  I've been there, done that, and have the (pink) T-shirts.  Next June, as I survivor I want you to join me at the Koman Race for the Cure.  We'll take Joy and our Garden Club Buddies.  Yea!

 

Looking forward to seeing you soon...

 

                                                Love,

 

                                                Diane

Anonymous
Lyn
9/ 8/08 6:17pm

I am the youngest of three girls in my family. Breast cancer WAS the last thing I thought I would ever have to deal with. I must have thought that God and i had an understanding of what I will have to deal with. i lost my son in a car accident six years ago and I am the only sister who have to deal with the fun of having diabetes. Cancer was not my worry. My Mother, aunt and uncle passed from complications of diabetes. Okay, I thought, i need to lose weight, eat better and some how change my life and I might make it. Cancer, I used to say with a releif, was not our problem. How stupid....

 

Well I had a lympectomy Jan 30, chem March thru June and Radiation in July and August, which means my entire year has been cancer infitraded. I do not complain because I know others are going thru worst, I just hate this disease and what it has done to so many people.

9/ 9/08 2:08am

Hello Lyn,

 

     I'm so sorry you've had to deal with diabetes and cancer.  Either one is tough, but both together is a really low blow.  I've got borderline type II diabetes that so far is controlled by diet.  I just spent the last year concentrating on permanently changing the way I eat, learning to incorporate exercise, doing everything I could to get healthier... and then I get cancer!  Bummer!  It didn't seem quite fair, but being in better shape has helped me take on this challenge both physically and mentally.  It's just a few days after surgery and I'm feeling pretty good.  Beating cancer won't be easy, but I know with God's help, I can do it.

   

      I hope you'll not only beat  cancer, but the diabetes too.  Changing your lifestyle to get healthy may be one of the hardest things you ever do for yourself, but it is so worth it.  YOU are worth it! 

 

Best wishes for a cancer free, diabetes free future... Melanie

 

By Melanie— Last Modified: 12/22/10, First Published: 08/23/08