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One down... only 23 more to go!

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Melanie

Melanie

Fri, October 17, 2008

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One down... only 23 to go!

 

Last week was "ICK" week...

 

Monday.  Accomplish in one day what normally takes two in order to take the rest of the week off for Ick.  Medical bills wait for no man so keep on plugging along.

 

Tuesday.  After filling out five pages of medical forms, I had my suspiciously sensitive tooth checked out to see if a toothache was lying in wait to attack as soon as my immune system was on the fritz.  It was and it would have.    Said tooth had previously been given the luxury treatment.  It already sported a lovely... expensive... porcelain crown... one of many in my mouth.  I am the queen of dentistry.  So I spent three nerve shattering hours with my mouth propped open, trying not to suffocate under the purple rubber dam, while the dentist drilled and chipped and yanked away at the lovely crown.  I was supplied with a set of headphones and a romantic comedy to watch, but the zizzing of the drill obliterated the sound track so I still have no idea why the ditzy blond possessed 27 bridesmaid dresses.

 

Wednesday.  Oh goody... port-a-cath day.  Reams of forms, lovely hospital garb, four stabs to find the elusive diving vein, anesthesia, zonk!  A drill of another kind... through skin.  Ouch.  Give me ice. More Percoset pills, please.

 

Thursday.  Today was the initial foray into the intricacies of plastic surgery.  More forms.  Why can't they just laminate your medical history and scan it like a debit card?  I'd read up on reconstruction procedures ahead of time so I thought I was prepared.  I was... until the surgeon explained reconstructing two breasts also takes twice the time as one... 10-12 hours!  This is major MAJOR surgery which will take major MAJOR recovery time.  Oh dear.  It took just two hours to have the girls taken off and about 5 weeks to not feel like a pincushion anymore.  I understand why women don't have reconstruction.  The body can take just so much.  My brain will have to wrap around this for a while.  I think I will eventually have reconstruction.  I hate the cold, clammy silicon "outplants" that shift and weigh my shoulders down.  (However, they might be good to stick in the freezer and then wear them out gardening in the summer heat!)  I want cancer to be behind me... to get back some normalcy in my life... to live the life of the lucky sister.  This is for me, but it's also for Barbara, Bonnie and Brenna.  They didn't have a chance for normal.

 

Friday.  The dreaded chemo day.  My oncologist assured me I'd chosen the easiest regimen, but I still tossed and turned the night before.  Visions of my sisters kept popping up and it made me sad.  They suffered so much all those years ago.  When the hour finally came I was strangely calm.  I knew there were a lot of people praying for me because that calm certainly didn't come from within me.  It was a full house in the chemo department with nurses dashing from one beeping machine to the next so it took two hours instead of one.  Hubby sat with me reading his book as the anti-nausea medication dripped into my very tender port.  Two quick pushes of  Methotrexate and 5FU and I was done!  Okay... this was too easy.  No barfing, no chills, no dragging tail.  Of course there may be some cumulative effects as treatments pile on top of treatments, but #1 was a piece of cake.  I take Cytoxan pills at home every day and come back every Friday for 23 more weeks...161 days...until March 20, 2009 (but who's counting).  It seems like a loooong time from this end.

10/20/08 12:10am

Hi Melanie,

 

Your day-by-day play by play couldn't be better, with such honesty and reality...and great humor! Hey, you may be undergoing chemotherapy, but it certainly hasn't affected your priceless wit! HANG ON TO THAT -- your positive outlook and ability to make light of even the heaviest of things is a true gift, and one we can't thank you enough for sharing with us. Best of luck with the "23 to go," and keep writing -- you're a natural!

 

Take good care,

Maria

 

10/22/08 11:01pm

You are a very funny lady.  I love the idea you have for your fake boobies in the summertime (freezing them)  I laughed out loud.

 

I did have my surgery around the same time as you did and I started my reconstruction at the same time as the mastectomy.  I have to say, I'm glad I did it this way 1) to reduce surgery time and 2) to have all the pain at once.  I must admit that they post surgical pain wasn't all that bad, as I have previously told you.

 

My oncologist recommended chemo as well, when I thought she wouldn't, but with my recurrence so close to my first diagnosis and the findings in the pathology, she said I should definitely do it.  

 

I didn't know that there was a pill form of Cytoxan.  I am doing 4 rounds of Cytoxan and Taxotere through an IV, every three weeks.   (I had good veins, so I didn't need a port)  But I can see why you needed a port since you have to go once a week for 24 weeks.  What is the "cocktail" you are receiving, I must have missed that somewhere.  Sorry.  

 

But I must say you are a pleasant writer to read and you have an amazing attitude and I wish you well.  I'm right there with you.

 

Danielle

10/23/08 2:08am

Yep... We're neck in neck on this surgery recoup.  I'm still sore by evening and tonight I'm just plain pooped.  I think the chemo may be kicking in.  The first two treatments were really easy.  No side effects until the dragging tail tonight.  I opted to go for the longer CMF (Cytoxan, Methotrexate, 5FU) rather than the CT you're on.  When they gave me all the percentages of benefit from one to the other, it was just one percentage point difference (less) for CMF.  I'm no martyr so I gladly jumped on the CMF bandwagon.  Supposedly I won't lose my hair or much of it, but it's not a sure thing so I have wigs in the closet just in case (have to hide them from the dog...she freaks!). I have no nausea, but they did say I'd get tired as time goes by and mouth sores may happen from the 5FU.  When you have CMF the Cytoxan is in pill form instead of infusion.  I think it's to spread the dosage over time instead of all at once.  Not sure why... I take 100mg one day and 150mg on alternate days.  It's confusing... thank goodness for little old lady pill boxes!

 

WOW! You were able to have reconstruction at the same time as your surgery.  I didn't know you could do that before chemo.  I was told to wait until after chemo.  Maybe it's because mine was infiltrating ductal and aggressive?  More likely it's because I plan on doing the tram flap and chemo could interfere with healing.  Who knows.  Sometimes it a real guessing game at which doctor to believe.  I've got to work up the guts... or I should say the stomach muscles to do reconstruction!  More surgery is not appealing in any way, shape or form right about now.  The plastic surgeon said to work on stomach muscles which have to be in a whole lot better shape than my non existent ones!  I think I will go see a physical therapist to find a way to do that without killing my back in the process.  I've got a spine with a twist and a curve thanks to Dad's genes (yes, I'm the twisted sister!) and a touch of arthritis at a bunch of spots that have worn badly because of the twist.  Gettin' old ain't for sissies!

I just better come out of reconstruction looking like a super model!

 

As for my humor... it's how I deal. Wink Faith, hope and a belly laugh!  It's easier for the people I love if I can see the humor in this stupid situation.  I get weepy now and then, but not for me.  I just feel so sad that my sisters didn't have the current medical care available to them in the early 80s when they were going through this.  Mammograms didn't even exist so they weren't diagnosed at an early stage and the treatments they had back then were barbaric.  I feel guilty that I'm having a relatively easy time getting through surgery and treatments... but I may take that back after a million sit-ups and reconstruction surgery!  Becoming a super model would be easier through reincarnation!

 

Hang in there Danielle.  We're survivors!  We're the lucky ones...

Melanie

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