Thursday, May 31, 2012
Just Diagnosed with Cancer? Chat with Experts

Last But Not Least: Stay Calm.

By Peglove Sunday, May 02, 2010

 

Hi All,

 

I had my las chemo, and though it was my last, I still have to go through the effects of the chems in my body. Today was tough...feeling burned from the inside out.

 

I let my family and friends know that this was my last chemo treatment, and many of them hope that it will be "easier" but it is hard to explain that the more treatments you get, the harder it is, actually. Chemotherapy is cumulative, so all the treatments stack onto each other and work together, and work harder on your body.

 

Lately I feel the fatigue in my muscles and neck the most. I can really feel how heavy my head is, because my neck muscles are just so tired of holding my head up!  I was trapped in my blankets last night too! Because I was too weak to throw them off myself. I am so happy this part of treatment is over. There is still daily radiation ahead. I read that radiation makes you have fatigue too. But the women that have done chemo and gone on to radiation, they say that the radiation is a snap compared to chemo!

 

The only thing I must do is drive to the clinic EVERYDAY for 6 weeks....so that will be a total drag. I am a little nervous about sitting in a room with other women waiting for radiation....small talk is not my forte these days....and not really interested in talking about this whole mess AGAIN and AGAIN....

 

I am having so much heartburn, and nothing seems to quell it. I have only been taking a pain pill at night, but food is so gross and smelly. I can't get comfortable because any muscle I lay or sit on, just hurts so bad after only a few minutes.

 

I am only on Day 4 of chemo #4, so I know that the next 10 days will equally suck. But I am bouyed by the reality that I have no infusion ahead of me! I don't have to sit there for 5 hours and get more poison! And that makes me so  incredibly happy. I honestly can't believe we have gotten this far...I rememeber thinking I could never do it...and the night before my first chemo being a ball of nerves.

 

All the horror stories of chemo that never happened....infections and hospitalizations and collapsed veins and permanent heart problems....all the things I worried so much about...I was lucky that it was not my story. These stories ARE rare. Most of the time Chemo DOES go quite well....I am just so amazed and so grateful...even though I am still in the squall, it seems the eye of the storm has passed over me.

 

I can only sit and smile.

Radiation Laser Beam Ready
Anonymous
Anonymous
5/ 2/10 11:18pm

Hi:  Yah, you're in the throws of number 4, right in it, but like you said, soon no more of that.  Me too was totally nervous about chemo, thinking it would do me in especially with nausea, but no, so much easier than I had imagined.  I think I had fatigue from radiation in the last 3 weeks or so but it was hard to tell if it was residual from the chemo.  I just tried not to push myself, and for that matter, pushing doesn't work if the 'ol body doesn't want to go.  I tended to be curious about what was happening to other ladies at radiation in part to try and calm down and also to compare radiation treatment symptoms.  Talking to them helped.  Once a week a lady would come in with her care giver dog, I loved that and would sit longer than usual after treatment petting the dog.  love, Candy

PJ Hamel, Health Guide
5/ 3/10 6:05pm

Hey, aside from the driving, the hardest part of radiation is the dumb hospital gown they want you to wear. JUST SAY NO. Weat a shirt you can easily slip off when you go into the room - there's NO need to disrobe and wear a "johnny." I'm serious. Tell them "I'M NOT DOING IT AND YOU CAN'T MAKE ME. nananananapoopoo." Seriously, I'm glad you're on the last leg of chemo, and after radiation - just the drugs. YEAH - you're doing it, girl! We're with you - PJH

6/ 3/10 7:24pm

yeah!

 

I didn;t wear one and they couldn't make me! nananananapoopoo!

5/ 6/10 11:45pm

I thought I'd share my story with you. I had 4 cycles of chemo (every 21 days). The 1st round was O.K. The 2nd round I had all the symptoms, but lucky, I did not vomit or get nausea. The 3rd round was similiar but very subtle. So I thought the 4th one shouldn't be too bad. BUT instead (no more those symptoms) I was SO fatigue that I can't get up for 6 days. Literally speaking, I crawled out of bed to make my breakfast, lunch & dinner (actually I had NO appetite anyway). After each meal I am so weak, I cannot clean up the dishes. I would crawled back to bed to rest enough in order to get up again just to wash the dishes. Each meal was that way for 6 days. If they screamed there's a fire, I would not make it. I was exhausted. Finaly. on the 7th day I forced myself to go down to Chinatown to see my Herbalist. She gave me a Chinese prescription (bought 2 pkgs). I took it for 2 nights. I felt better on the 3rd day. So I went down and see her & she gave me another prescription (also bought 2 pkgs). Then I started to feel alive BUT not strong enough like before. Then again, I went to see her and had another 2 pkgs. of different prescription. After the last 2 pkgs. WOW! I GOT back my energy. I was SO happy. Then it was time for my radiation. Thank goodness I felt strong, back to my old self. I couldn't believe that I was SO fatigue and then after 6 pkgs. I was myself again. The radiation lasted about 7 weeks (went daily). After 2 weeks, I was back to work and everyone told me I look GOOD (but I lost 13 lbs.). I was 112 before the surgery but after the whole ordeal I was 99 lbs. It's been almost 2 years now and I finally gain back some. I'm 108 lbs. right now. By the coming September it'll be 2 years off treatment. I really feel fine now. In fact, my chemo doctor told me I look better than the 1st time I met him.

 

Hopefully, everything goes well with you. Good luck!!!

 

Ruby

Anonymous
Aussie
5/ 7/10 11:45am

Hi I had 4 of 3wkly cycles of a very strong chemo, fine the first lot, lost hair the 2nd lot, and starting feeling extremely tired and nausaus, diarhorrea, then constipation alternating  most of the time, not helped by being driven(impossible to drive myself at this stage) 644 kms round trip for each treatment. Relocated for the 12 of weekly less vicious but still not nice chemo combined with start of immuntheraphy. After that cycle of chemo the immuntheraphy still continued every 3wks while relocated to different city after couple of wks break for the radiation treatment, 20 treatments, (daily 5 days a week for 4 wks.. now only on the 3wkly immuntheraphy... Constant tiredness is the worst and found out others had/have same problem, as one of the others said when you have to stop you have to stop no if buts or maybes and I am person who had incredible energy so it has affected me emotionally too that I can't do what I used to. Mind you I am driving myself now for the immuntheraphy shortly after the radiation finished and after a 4th op in 7mths, the 644 kms round trip for treatment every 3wks and 644 kms round trip, (322kms each way), every 4wks for Doc review! Which generally means up on a tues have blood test on arrival treatment or doc review the wed and home on a thurs with 2nightsinbetween in a motel. Motivation helps heaps also a deep Religious Faith in Jesus Christ as my help when it I feel I can't handle things!!The gain is worth the pain as am looking fab, feeling well overall, and looking forward to the end of my treatment soon, after 18mths of it!! To those starting this journey.. hang in .. you will get through it ... you just need to believe you can... Aussie      

5/ 7/10 1:07pm

Yes, we have to be patient.

 

Aussie and Ruby describe my experience pretty well. I just assumed it would be like all the other rounds, but this one really knocked me out. And is still working on me.

 

At least it is working! I feel so fatigued, my muscles burn as if I ran a marathon and I am just getting up from a chair. I lean on walls and hold onto things like I will fall if I don't. I must look so lazy...everywhere I go, I sit down. I just am not shy, I tell people I am talking to, "Can we sit down?" Or I just go sit.

 

I don't go many places...the pharmacy! seems every other day! And I am picking up mail at my aunts while she is out of town....so that is nice because there is a pool and patio and yesterday I just sat there staring at the pool...ahh.

 

I have been in line a few times and had to give up and sit down....But mostly, I am just really aware that I am so tired, I am afraid I will pass out somewhere and wake up an hour later and my wallet gone....haha!

 

I guess even though there is no more chemo, it isn't over quite yet...so we must be patient, and just take daily steps to recovery. Monday, I will have the brain and neck MRI. So one more thing to do....and wait to "not see" anything on the report.

 

Hugs to all of you, and keep writing!!!

 

Peglove

6/ 3/10 7:23pm

By the way:

 

Nothing on the neck and brain MRI except a very healthy brain and according to the ENT, I have "beautiful vocal cords!" Heehee!

7/24/10 6:24pm

Well, as I reread this post, I realize I do have a bit of the collapsed deflated veins. When I go to get my blood work, it takes a while to get them open. But it seems to be getting better every time, so I am hopeful the veins are regenerating. 

 

The blood delivery of chemo is the root of its nature. My husband was the one to point it out to me. I said, "But where is the chemo now? When it goes inside my bloodstream, where does it go? To my boob?"

 

He said, "It goes to every cell in your body. Every organ, every tissue that uses blood. Which is pretty much your entire body and all its tissues and organs. Skin, hair, muscles...blood...everything that carries blood in you, has chemo particles in it. That is how it's going to get the cancer."

 

Oh. So in seven years, the average time the body has to regenerate its tissue, it will be gone?" I asked.

 

"Not really. Because the chemo effects the levers that separate your DNA. That's how it gets the cancer."

 

Oh. Oh.... I love science!

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By Peglove— Last Modified: 12/19/10, First Published: 05/02/10