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Reflections on Surgeries gone by and Radiation Continues...blegh!

By Peglove Wednesday, July 07, 2010

O, my. How tender, my booby!

 

Ouchy. Ouchy. Everything from my chest up to my neck and from my sternum to my armpit...the window of radiation area-- is brownish-red, and hot and itchy!

 

I take some Aleve, then put lots of udder creme on it...and a little cortizone creme at night. Now I am taking half of a darvocet to ease the pain at night so I can sleep. I am also sleepy...really sleepy and tired. And I fell.

 

I was having some wine on the 4th and I was tired. I missed a step and took a tumble on my back porch. I have two scraped knees, bruised elbows, hands and abrasions on the heels of my hands. I woke up in so much pain! The booby took a little hit too, so I was simply messed up. I hate falling. It happens less and less as you leave childhood, then it seems to happen more and more as you get older. So my bruises are healing now, a bit, they look dark black and blue with funky spots of purple. 

 

I don't make any small talk at rads. I don't like it. It is also a really fast procedure--I'm in, and out in about 20 minutes. So no time to make new cancer friends, and that's fine. I rather enjoy writing to you.

 

Now I am on number 20 of 30 rads. I am doing "well", they say....but don't feel well. I am just exhausted all the time. I am still having chemo pain as well. My joints are stiff and hurty and my muscles sometimes just don't want to go anywhere. I had to cancel everything I had on Tuesday due to my pain and fall injuries. But my spirits are up, despite all of this because my hair is growing back!!!

 

Active treatment is almost over, and I have a check-up MRI and Mammo in September---it will be one year since I first heard of BCN, and first heard "breast cancer" and my name attached to it. I feel a milestone is approaching. I also am still in contact with my support group friends that are a little ahead of me to see how they are and what to expect for myself. One friend still has muscle stiffness and joint stiffness from chemo, and so I was relieved to know that I wasn't being a big baby---but actually still feeling some effects.

 

And many others are now choosing what hormone drugs to take, and what to do about side effects. So I am still in the loop and in the know! I love to know, you know!?

 

I know some ladies that did not want to know anything about what their treatment would be-- they just closed their eyes and gritted their teeth and that worked for them. But the opposite is true for me. I researched so much about the different treatments for different stages of BC, and I really felt prepared to make choices for my treatment path. Everyone has a different path. And it is so true what Phyllis and PJ Hamle have said to me, "Decide, and don't look back."

 

So many, "would have, could have, should have's" can make me crazy. I took my time with deciding things, talked them over with people that went through similar instances, and still took time to research it again. I would not be rushed into anything after the "gurney incident." I wrote a post about it.

7/ 7/10 8:54pm

I kind of did what you did, just went ahead, trusted the surgeon and her advice and trusted my primary doc's recommendation of her, and then did the "don't look back".  Took a while to get to surgery what with an MRI to check the other breast, something suspicious found with MRI guided biopsy, so by the time surgery happened a month or so had gone by.  Then after one surgery for two lumpectomies had to have another surgery due to margins weren't clean on the original tumor, oh boy what fun.  So healing from that then another surgery to put the chemo port line in, so by the time I started chemo I was ready.  Felt the same for radiation, "let's get this going".  Me too for rads, awful itching, burning, both sides, trouble sleeping, fatigue, udder cream up the yazoo, 2.5 cortizone cream also slathered, being told what you're feeling in terms of fatigue etc. could be effects of chemo.  But it's over now and I'm in the routine of 3 month checkups with oncologist.  First mamogram was ok and blood work so far shows no tumor markers.  Livin for today!  Here's to you and all of us who have or are going thru this and for all the wonderful ladies ahead of us who blazed the trail so we could get better treatment.

PJ Hamel, Health Guide
7/ 8/10 12:38am

Peg, with these posts, you continue to pay it forward - you've moved above treeline, and are able to send messages back to those behind you on the path. Just like we were sending you messages, when you first started up this mountain. Now, you're reaching the top. You'll look down and back, and it will all be behind you. And you'll be ready to start on this next part of your life. Till then - one day at a time, with each day bringing you closer to the final treatment. Oh - and don't forget the Jean's Cream! Be well - PJH

7/ 8/10 8:01am

YellI wish you didn't have to have radiation! I still don't even know if I will need it, won't know until surgery. I am hoping not!!! I saw my surgeon yesterday and she says I am responding very well to chemo, especially since I had so many masses. I see a plastic surgeon @ the end of the month. Next MRI in September, then hopefully the surgery. My a-hole of an oncologist really hasn't been communicating w/ my surgeon, she might request I see someone else since I don't ask him questions anymore because he doesn't answer them!

I totally agree with you about knowledge of your cancer. Doing my own research has given me some control over this, but still think, "am I making the right decision". Nor do I like thinking "shoulda woulda coulda" down the road...totally agree w/ you!

 

Hey and don't feel so bad about falling, I'm constantly bumping into things but the other night I fell off my couch when trying to get up bruising and swelling my ankle, as well as, my elbow. Come'om, the couch!! Maybe falling and losing balance (wine or not) should be added to the cancer symptom list!!!

 

I am truly grateful to be able to communicate w/ you. I saw a counselor, but i wasn't really feeling it. I had a couple of women call me, but as they left messages they were crying so I didn't call them back...just wasn't the right time.

Breast support group was cancelled last week so I haven't attended that either.

Thanks Laura

 

7/ 8/10 5:57pm

Thanks Laura!

 

off the couch? boo!

 

Well, def. look into a new oncologist. You will be having lots of appts. with her/him, so it is so important to like the person. But I have heard that onco's are just kind of cold, scientific, and a "strange breed" from my other docs. So I decided to go with the onco that knew his stuff, and he doesn't have to be nice to me. I can get that other places for now. He is just not interested in my complaints because he has heard it all...and he doesn't have a great bedside manner...but he certainly know his stuff. So I just deal.

 

Good luck with the rest of the three chemos you have to go! Half way there!

 

Peg.

7/ 8/10 7:34pm

Hang in there, Peg. Radiation is frustrating. It's lonely, boring treatment, and, I think, more unpleasant than chemo. I remember how sore my neck was at the end of my treatment. It didn't really seem to make it more acceptable when they explained that it's because there's less padding there. The cracking, weeping burn still hurt as much. And such a lovely name - moist desquamation.

 

One thing I did discover at that stage was that honey really helped the healing and was quite soothing. Here in Australia you can buy a product called Medihoney, made from Manuka honey, although my onco said at the time that any honey would do. One weekend, when I couldn't move my neck, I put on some honey and covered it with cling film (sounds kinky, doesn't it?), and it did the job. That's something you can keep in mind for later.

 

In the meantime, keep your skin as moist as possible. It will help it to hold up better against the radiation. Keep counting down and the end will come. At our clinic, there was a tradition for people to leave chocolates in the lockers of all the patients on the last day. I thought that was a really nice way to celebrate. Find some way to reward yourself for having the guts to get through it. You are a member of the sisterhood within the sisterhood, and we're all there with you. You will get to the point where you close your eyes and focus on your body (I think of this as scanning myself) and be conscious of how good good health feels.

 

As for your onco, why don't you tell him calmly that you think a true healer cares for the whole person, not just the body that happens to be afflicted with a cancer? If these messages are sent again and again, maybe they will finally get through and you can have the satisfaction of knowing you've helped to make it a bit better for another sister. In my view, doctors who don't do this are mere technicians. Luckily for me, I have had two amazing doctors who have treated me with sensitivity, patience, kindness and respect. You could try having a little dig at his ego.

 

Thinking of you and empathising like mad across the mile from Oz.

 

Sue

7/10/10 2:48pm

Hey Sue,

 

So glad you are well. Hoping for the end of this to come quickly. And I have no energy to tackle my onco's ego issues. I just know he is the best at what he does and if 1 out of 5 docs is not a warm one, that's fine by me.

 

Here's to the boobies!!!

Anonymous
LouLou
7/ 9/10 4:14pm

Ohhhhhhh!  Today has been 9 days since my very last chemo treatment.  I am still suffering from those side effects and I start radiation on Monday.  I am so tired and after reading your post I'm scared of having bad side effects from the radiation; however, I bet nothing can be worse than chemo and if I have already battled that i'm hoping radiation is a piece of cake!  I was diagnosed with stage III breast cancer....started with really aggresive chemo, then surgery, them more chemo, and now radiation.  Peglove...bless you...you are almost done! 

 

 

Phyllis Johnson, Health Guide
7/ 9/10 6:36pm

Lou Lou, keep in mind that everyone's experience with treatments is different.  I wouldn't say that my radiation was a piece of cake, but it was definitely easier than chemo for me.  Most people I talk to say the same, but every now and then I run into a person who breezed through chemo and has a terrible time with radiation.  Try to take it one day at a time.  I hope radiation does turn out to be a piece of cake for you!

7/ 9/10 11:43pm

Lou Lou, I didn't have too difficult of a time with radiation. I worked all day and had treatment after. I did rest when I could.  Goodluck

7/10/10 2:46pm

It's true, most people have a not too bad time.

 

I am almost finished and they say the last leg of rads is the hardest because the skin is kind of beaten up. I thought it would be easier because I have olive skin and more melanin, but my boobies never see the light of day, so they are pale! But do not worry yourself with others' side effects.

 

Anyway, it is what we have to do, and in the long run, going to keep us alive--and tons better than cancer!

 

So hang in there, buddies! I am taking pain relievers and drinking lots of water.

 

Peglove!

7/10/10 9:55pm

Peglove,

Glad to hear it is almost over.  It is a tough time, I was happy to be over with it.  It has been four years.

 

maryclaire 

7/22/10 2:16am

Awesomeness!!!!

 

One more your, you're in the clear!

 

Woohoo! I am so jealous!

7/11/10 12:38am

Dear Peglove, I am a 2 years & 4 mos. BC survivor.  I never journalized my journey because that was how I coped with all of this.  As long as I didn't see it on paper, I didn't haveto think about it.  I've been reading some of your entries and I know that we can relate.  Just know that hopefully the chemo and radiation affects ease up and sometimes go away.

I had my last radiation treatment in January 2009.  My radiation oncologist suggested RadiaPlex Gel to help the radiation area.  If you would like to order you some, the telephone number is 1-800-232-5512.  This gel/cream really helped me.  It soothes the burning feeling.  I hope it helps.  God bless you and keep the faith!

7/14/10 3:32pm

I read sme info about this gel. It is always a first to ask your doctor what is safe to put on your skin. Whatever is on your skin gets radiated too, and you don't want any weird ingredients that are used as preservatives to get activated on your skin.

 

I also did some research on the "Jean's Cream" everyone talks about. The best thing to put on your skin is 100% aloe vera...straight from the plant. 

 

I have one outside and harvest it, cut it open, scrape it with a spoon and keep what I will use for bout two days in a ziplock bag. I made a little hole in the corner to make it easy to squish through.

 

There is really no need to buy any expensive creams. The docs at radiation wil give you what you need for free, and nature will give you the best stuff under the sun, free of charge!

 

Peglove.

7/12/10 3:13pm

Hey there Peggie! It was great to see you the other day. You are so brave to take this head on! Strength will carry you through this! When my father was ill with prostate cancer, his outlook on life was good. He was told that he should "prepare" his life. His cancer was really advanced. He refused to give into his cancer. Remaining positive, which I know was hard for him at times, he turned around and lived his life in ways he never did before. He fought it in his way. Lived life to the fullest. Tasting foods he normally wouldn't have, enjoying differerent music (even my own heavy metal/punk loudness), socializing openly with people that normally annoyed him. Because of this, we were blessed with 7 years with a man that was the most loving, gentle, and charming soul that one would ever meet. I see you sharing in common what my father had. Strength, love of life, and strong inter-personal relationships with the circle of friends that all love you and think of you often and how you are doing (me too). YOu have a fighters soul. May you have much love, peace, support and strength, in every aspect of your life. I pray our lives cross paths again soon. Bye for now.      

7/14/10 3:35pm

Thank you for taking time to write me on here, Ernest! You are such a great friend, and I look forward to having a long lunch with you so you can tell me more of your wonderful adventures in life! I am meditating on all your endeavors to come forth and true.

 

Peg.

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By Peglove— Last Modified: 03/14/12, First Published: 07/07/10