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MRI READ....decisions, decisions....

By Peglove Tuesday, September 22, 2009
Hi All, This is so funny. So we get there, and the doc says, "Did you also have an MRI of your spine? You also have back problems?" I said, "no, as far as I know, they just did a breast MRI..." Turns out, there was a report with a spinal MRI that showed all these protruding old lady vertebrea...and it had my name on it...THE WRONG REPORT!!! Still have breast cancer though....So we found out the MRI says there is no involvement of the lymph nodes, but to be very sure, they will take out what is called the "Sentinel node" which is the very first lymph nodes closest to the tumor. IF the cancer were to spread, this is where they would go first..so once they check it, AND IF IT"S CLEAR of cancer...we will just have to do: Lumpectomy + Radiation, and a little Chemo. NO RADICAL MASTECTOMY NECESSARY. Whhooopie! I feel like I just won the lottery of cancers! THIS IS IF the sentinel node is cancer free. So we're not in the clear yet, dudes. IF FOR SOME crazy reason the sentinel has cancer...then, we would do more node screening, and if THEY show more cancer, then we would have to go for the ONE mastectomy + chemo. I also took a genetic test today, if that test comes out positive for the breast cancer gene...we will have to think about the bilateral mastectomy situation, just to be sure that I can live a long life cancer free. BUT AS OF NOW, this is a great prognosis! The best you can have, if you have to have one at all. MY next appointment is OCTOBER 5, and they will tell me what the genetic test says, and then we will proceed with the lumpectomy and lymph node test within a couple of weeks. It ain't nothin', but it's not the end of the world. Now, the doc leaves it up to me to decide if I want to get a lumpectomy or a mastectomy saying, "most women feel they will be healthier with the mastectomy...but percentage-wise, there is no indication that with your size tumor you will live longer if you have that procedure..." SO then why is it a choice? To keep or not to keep my boobs? I want to keep them, but not if it's going to hurt my health in the long run... So how can I be sure my choice is a good one when the doc won't give me a strong answer...what if they don't get it all? What if, what if what if's..... What do women do when faced with this giant decision? Any voices out there in a similar place?
Radiologists and Physicists, My new best friends!
PJ Hamel, Health Guide
9/22/09 2:03pm

Hi Peg - Good news, indeed. Think positively - I'll bet that sentinel node is cancer-free!

Please read our post on choosing between lumpectomy and mastectomy - I think it'll help you out. I say, why not start with a lumpectomy? You can always go back and take off more later, but you surely can't go and put some back... And I believe the doctor is right - I seem to recall those studies that show lumpectomy with radiation is just as effective as mastectomy, survival-wise. The reason some women choose mastectomy anyway is because they are REALLY scared and simply believe they'd feel better with the breast gone... despite the statistics. Congrats - again - on your good news! PJH

Phyllis Johnson, Health Guide
9/22/09 6:34pm

Glad your spine is OK. Wink I once showed up at a new radiologist's office with Phyllis Johnson's old mammogram films.  It was immediately obvious when they put up my film's next to "my films" that something dramatic had happened.  They didn't match at all!  Wrong Phyllis Johnson!

One reason some women choose mastectomy is that they either have a very strong fear of radiation, or they don't want to make the time commitment to daily trips for radiation.  They want it all over right away.

If you choose the lumpectomy option, the pathologist's report will show whether the surgery removed the entire tumor; and, as PJ says, they can always go back and take more if they find out they missed some.

9/25/09 1:02pm
Unbelieveable! The film said I had broken bones, osteoperosis and protruding discs all over the place. My doctor was saying, "You look good for you back being broken!" I thought she was making some sort of joke about cancer... That is really scary! Was a clerical error...darned clerks! I feel good about the lumpectomy, but at the same time, I hear about non-clean margins and second surgeries needed...ugh. It all just makes me want to vomit and i'm not even taking chemo yet. Healthy vibes sending out to all... Thank you for writing to me throught this crazy mess. You Gals are the only one's I can say things too. Everyone else is just talkin' and saying nothin', boy. ***HUGS***
Phyllis Johnson, Health Guide
9/28/09 6:02am

Glad to be hear to listen any time.  People do make mistakes with records, but not too often.  It is important that we, the patients, always make sure that we follow up and ask questions to make sure that labs have been sent, paperwork filed and so forth.  We shouldn't have to do that when we are already feeling sick, but they are our records, and no one else has at much at stake in their proper filing as we do. 

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By Peglove— Last Modified: 12/26/10, First Published: 09/22/09