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Decisions, decisions

By crazytherapist Wednesday, November 04, 2009

I met with the Medical oncologist today. Lots of new information. At least I know what chemo's going to be like. I know I have a year of chemo ahead of me. It could be before and after surgery if I go with a lumpectomy or after surgery only if I decide I want a mastectomy. 

 

It seems like if I decide to go with a mastectomy, it would be best to do it at Beth Israel since they do state of the art DIEP reconstruction. It's a much longer surgery than the tram flap but it doesn't involve your abdominal muscles and it looks and feels more like a natural breast (they say). Since I will be meeting with the whole breast cancer team at Beth Israel next week and the pastic surgeon there the week after, I will by then have a better idea of what the chances are for a lumpectomy to be succesful and what everyone believes would be my best option. Neither procedure makes a difference in terms of prognosis.

 

The issues with the lumpectomy are in the first place how likely will it be that I won't need additional surgery and in the second place,  given where the tumor is located, how likely will it be that it will be cosmetically succesful. I also have some concerns about the secondary effects of radiation since it's my left breast and my heart would be getting some radiation which slightly increases the risk of cardiovascular disease which is prevalent in my family.

 

If I had a mastectomy I might still have to have radiation if they found something in the lymph nodes so we are trying to figure out if we can do a sentinel lymph node biopsy ahead of time to figure out if ther's anything there. Tomorrow I will be meeting the Plastic Surgeon here to talk about the procedure he does. Next week I get my second opinion, genetic counseling, and I meet with the radiation oncologist here.  Maybe I should pitch a tent in the hospital parking lot. Will keep you posted 

Second Opinion
Anonymous
Sue P.
11/ 4/09 9:21pm

Thank you for taking the time to keep us posted.  I'm glad you have the resources to explore all your options and make a truly informed decision.  Love and Prayers, Sue P.

PJ Hamel, Health Guide
11/ 4/09 9:25pm

It's wonderful you're getting your treatment at Beth Israel - it's a member of the National Comprehensive Cancer Network, which means it's one of the top-20 cancer facilities in the country. What you describe sounds very typical - including pitching a tent at the hospital! Don't worry, once you get through this initial maelstrom, it all calms down, you get into a routine, and life normalizes - somewhat.

 

I had a TRAM flap, and am very happy with it. It looks good, and "hangs" right. If the DIEP (a newer procedure) is even better, then if you have to have reconstruction, I think you'll be very pleased with it indeed.

 

Best wishes as you start down the treatment path - PJH

Anonymous
Lesley
11/ 4/09 9:35pm

It sounds like you have a lot to think about. Just know we'll be thinking of you throughout this whole process. Good luck with everything.

Lesley

Phyllis Johnson, Health Guide
11/ 5/09 5:57am

I know two people who had DIEP reconstruction.  Although the surgery is very long, the recovery time is shorter than from TRAM flap reconstruction.  I have found that with medical decisions, it works best for me to list the pros and cons of each choice and get the best possible advice from the doctors.  Then I go with my gut about which is best for me and try not to look back and second guess myself.  My best wishes to you as you sort through your choices.  It sounds like you have a great medical team to help you.

Anonymous
Arlene
11/ 5/09 7:03pm

Sounds like you have lots of information and will be fully prepared after your next appointments. Some like to stick their heads in the sand. You are more like a charging bull. We will be with you through all of this...

 

Thank you for keeping up with your blog. It really helps all of us better understand your experience. You have people lined up waiting to help in any way they can. All you need to say is GO.

 

Love you!

Arlene

Anonymous
Jodi Roos
11/ 6/09 11:57am

Thank you so much for sharing all of this information. It is so helpful to people who care about you and your family. Hopefully, writing it and then reading the comments is helpful to you too. I am so impressed by your proactive approach to making decisions regarding treatment. You are an inspiration, you crazy therapist!!  What I really like about the blog is that I can check it six times a day and nobody can tell me to stop because I am bothering you or, as my kids say, stalking. Please feel free to speak up when you want Sisterhood to jump in! Love, Jodi

11/ 9/09 7:14am

I am pleased to heard that somethings have progressed. You are in our thoughts and prayers . We are sending from the other side of the world (DU)a big hug and all our love to you and your family. It is good to get know how things are at present , thankyou for doing this.

Love , P

Anonymous
Anonymous
11/12/09 9:50am

REad up on mushrooms and the role they play in cancers. The Reishi, Agarigus blazei and maitake are excellent and elagic acid (first studies for cancer apoptosis were with red raspberries). Look too, for colostrum. Look for pure sources when you take them and not something deluted in a filler in a capule.  Ask the cancer society for their brochure "A Closer Look At Phytochemicals". Follow this knowledge and you probably won't even have to have surgery if you give it a little time. 

11/12/09 3:15pm

umm. that's crazy. more time just helps cancer grow. disregard this message ladies. you have to see a doctor, and tumors must come out.

 

herbal meds are great on the side, but like I told my friend that swore up and down that some "vitamin" would "cure" me, I said, " I believe in chemo." end of story.

Anonymous
Anonymous
11/13/09 5:32am

My advise was given as a professional and graduate from some of the top schools in the country. Forty odd years with family members and hundreds of  patients with cancer and in University research.  Our choices determine the outcome. Clear the toxins from the body that caused this problem, eliminate stress in the life, eat the designer and functional foods. Cells can replenish in the body regardless of age.  Surgery may be necessary only if it is a stage 3 or 4 and even then follow the guidelines of the cancer society years ago "foods are our drugs of tomorrow". Example the maitake mushroom did not need FDA approval for it had proven itself for over 2000 yrs.for its medicinal properties.      

 

Anonymous
Anonymous
11/12/09 10:24pm

Well crazy therapis you sound like a women who has done her homework good for you. Check lymphnodes before you proceed if they can do it with quality accurate results.

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By crazytherapist— Last Modified: 12/23/10, First Published: 11/04/09