Thursday, February 16, 2012
Just Diagnosed with Cancer? Chat with Experts

Dear hair....

Written by

Racuh

Racuh

Mon, October 05, 2009

Additional Posts

View all Posts »

When I was fist introduced to the wondrous world of cancer the first chemo I received was adriamycin. From experience most BC patients get this super fun drug and have given it the nick name... red devil. I think thats a fairly apropos description of the stuff. That big red bag of awesome made my hair fall out at 2 weeks on the dot. Great massive clumps of fur came out with little to no effort. It was pretty traumatic and shocking. I'm not sure which was worse the hair loss or the projectile vomiting the horrific body aches or dead taste buds. Total hair loss is a trip. I hated it. I bought wigs... very nice ones and even today people at work haven't noticed that I've been sick. I consider this an awesome thing.

 

Some women like to go commando proudly displaying a bald head to the world... saying "yeah, I got the cancer what are you lookin' at" Others wear pretty head scarves and big earrings. I prefer to look like nothing is wrong. I've found that I really hate pitty and I really don't want to be treated like a sick person. Lets face it... people are freaked out by sick people- I am, and I have now BEEN a sick person. 

 

I only had two rounds of the red devil before I was tossed into surgery. When the pathology reports came back in that my removed tumor showed "negligible necrosis" I was pretty upset. Having just gone through one of the more nasty chemos to find that my tumor was chemo resistant really sucked. You expect something that toxic to beat the crap out of cancer and when it doesn't what hope do you have left? After I healed from the mastectomy I had 36 rounds of radiation. My skin resembled cooked bacon and I was particularly grateful that the mastectomy left my chest numb. The only parts of radiation burn I suffered was in my armpit. THAT I most definitely felt. 

 

Now that my tumor is out and I've had radiation clean up and a scar boost I was left with a hard decision. My oncologist asked me to do 6 months of Taxol... to be given weekly. I get the stuff 3 weeks in a row and get a week off for my blood cells to recover. 6 months... that seems like forever- 24 rounds of a toxic agent. The hard part of the decision was this: Since the last chemotherapy did not work... and there is no longer a tumor to measure how well the chemo is working... I feel that I am given Taxol blindly with no way to know if its helping or harming. Thats a scary thought to me. It's like a crap shoot. Oncology is about as refined as russian roulette. And then you wait. Wait to live, or wait to die. That's what my life has become. 

 

I digress. So, I have done 3 weeks of Taxol, and I just finished my week off for good behavior. My oncologist thought I might be able to keep my hair but it turns out that was wishful thinking. I was so excited when I went past the 2 week mark and nary a hair had dropped from my head. It took 3 weeks. So my hair is very very thin now, I look like an old man with mange. It hasn't completely fallen out yet though. The hair loss from taxol is not like it was with Adrimycin total and complete. It's taking its sweet time. Torturing me slowly instead of just falling out. It's depressing. The first time it fell out with Adria it was a shock and scary and horrible... this time is just sort of like... alright, guess my hair is falling out, better go buy some more hats. It's not any easier the second time you lose your hair. I am just more resigned to it I suppose. Life needs a fast forward button. I hate "treatment". 

10/ 5/09 6:57am

So, it's had its fun being curly. Maybe it'll come back the way it was originally, which would be nice, huh? And maybe it'll start growing back before you're done with the taxol. I've heard of this happening, too. Sending you healing energy from NH, Tracey - PJ

10/ 5/09 11:30pm

I love readin your posts! In some sort of way the humor helps a bit. I feel the same way you are in your postings so I can def relate!!!!! My lashes are starting to come in slowly but surley I see them pokin through. My hair is also starting to come in but I look like a man with a 5 o clock shadow!!! Neat and o so attractive! :) Well Hope your treatments are doing well. I have four left to go on my weekly taxol then comes the PET scan to see if Im cancer free!!!! I hope so! :) Ill ttyl

 

Nicole

Anonymous
Still Fighting
10/16/09 10:25am

I am starting to loose my  eyelashes, and I was wondering if when you did, did you

wear false eyelashes???  I don't like the way my eyes are starting to look. 

10/29/09 12:19pm

I love reading your posts - they always leave me laughing.  Not at you !  Just with you.  I tried to do my "therapy" by laughing my way through.  Instead of waiting for my hair to fall out, at the first sign (and it was 2 weeks after that first treatment), I went to a barber friend and had it all shaved off.  It was going on "my terms".  I had already bought 4 wigs.  One looked pretty much like my own hair, the others were my new "alter egos".  I did not have "red devil" and am very grateful.  I applaud you and wish you all good health and stamina.

I remember the day my "private hair" came out and I almost died laughing because I didn't expect it and found it all in the tub after a bath. 

Eye lashes were the last to go and they waited until 6 weeks after my last chemo - you can imagine my shock - I was sure at that point that they would be spared.  I opted for eyeliner - was not in the mood to try to put on "false eyelashes".  They grew back quickly, but then my chemo was over and I was doing radiation.  I got the new drug "Latisse" and now they are fabulous!

My hair came back curly and so far I have opted to keep it short and natural.  It is just so easy to put some "stuff" in it and just let it curl.  Am still tired sometimes, so don't want to spend time drying my hair and trying to pull it straight.

All my prayers and good wishes to you!

 

10/29/09 12:36pm

This cancer stuff sure sucks. Ah well, such is life right?! Thanks for reading- and liking- my posts!

 

Yeah, the hair on my naughty bits came out first. I however thought this was awesome since I had already spent a small fortune with laser hair removal treatments on my nether regions. I now have an awesome bikini line. Ha...! unfortunately I have no boobs, other hair, and I am now to chunky to enjoy being in a skimpy bathing suit to show off my stelar bikini line. Damn!

 

Last night my doctor called in a perscription for a water pill. I was getting suuuuper puffy from either the steriods or Taxol. I couldn't see my knuckles anymore and bending my toes felt like my skin was going to pop. Sooooo.... I took one and I now have knuckles, ankles and I can actually move around now. YAY. I didn't realize how MUCH water I was retaining. I must have peed a gallon of water through the night. I feel like I've been wrung out in a plesant way and back to looking like a human and less like a bloated citrus fruit.

 

I send good vibes to you lady ma'am. I hope you have a fantastic day.

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (6484) >