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Daughter's childhood memory of Mom's battles with breast cancer

By AmyB Wednesday, July 08, 2009

My mother was first diagnosed with breast cancer when I was 10 years old (she was 40).  I didn't know she had cancer at the time, because my parents decided to tell me and my younger brother that mom was  just "sick", and would need to be in the hospital.  I remember visiting her at Georgetown Hospital after she'd had "surgery" (which I found out later was to remove a lump in her breast), but I don't ever remember having the feeling when I saw Mom that there was really anything that seriously wrong with her.  One of the defining qualities about my mother was that she always had a smile on her face, and never, ever, let anyone see the pain that I'm sure she was suffering through, either emotional or physical.  I remember she was in the hospital for at least a week, and since my dad was either working or visiting my mom, my parents arranged to have a different one of their friends pick up my brother and I from school/day care and cook our dinner and take care of us until Dad got home.  Mom had to go through radiation after she came home from the hospital, but no chemotherapy.  The most significant thing I remember about this beginning chapter of Mom's battle was that, I don't remember a lot of it, partly because I was only 9, but also partly because my parents both did such an amazing job of preventing my brother and I from realizing how serious things were, or could have been.  Later in life, I can recall conversations with my Mom where I let her know how grateful I was that she and my dad shared just enough information with us but protected us from information too complicated for us to grasp at that time.   I think she appreciated hearing that since it was a difficult decision for them to make, how much to share with a 10 and an 8 year old.

 

About 3 years later, Mom's oncologist determined that her cancer had returned, when they found another lump in her breast.  Her oncologist decided at that point to do a mastectomy, and Mom also went through chemotherapy and radiation.  I remember this second time she had cancer, she had to buy a wig (which she ended up needing, this was her first of many eventual hair losses/re-growths).  I remember her telling me when I was an adult how difficult that was for her to buy the wig.  She actually bought the wig prior to losing her hair, after being told that it's much better to do it before you actually need it - at that point it's just too hard.  I never actually discussed this with my mother, but I also wonder just how difficult it was for her to have her mastectomy.  I wonder how she felt about her femininity.  I wonder how she felt when she looked at her body in the mirror.  The cool thing though is - I think I know the answer without even having to ask her.  I'm sure it was hard, but I'm sure that both her strength as well as the incredible love my father had for her got her through it.  She never dwelled on those things she couldn't change either, she accepted them and learned to live with them. 

PJ Hamel, Health Guide
7/ 8/09 7:41pm

Amy, what a wonderful thing your parents did - dealing with your mom's cancer, while also allowing you and your brother to retain the innocence of your childhood. It must have been tempting at times to break down (especially if you were acting up), and tell you to lay off, Mom is VERY sick; yet they kept things normal for you.

 

I love how you say you didn't even have to ask your mom how she felt - about losing her breast, looking at her body. You just knew. that's the sign of a wonderful relationship.

 

Thanks for sharing your story. I look forward to the next chapter! PJH

7/21/09 10:54am

PJ, You're right, and it took my becoming an adult to fully realize what they did for me.  They were also very fortunate to have other friends and support around them to help out with caring for their young children, to allow us to be somewhat sheltered from what Mom was going through.  The wonderful thing was when I was able to form an adult real friendship with my mom and talk to her about some of these things, it was truly beautiful.

Phyllis Johnson, Health Guide
7/ 9/09 9:06am

This is so helpful to hear about the cancer experience from the child's point of view (mixed in with your adult interpretations).  One of the hardest things about being a parent with cancer is worrying about how it is affecting your child.  Your writing is a great reminder of the resilience of children.

7/21/09 10:56am

Thanks Phyllis for your support!  I am glad that my story is beneficial for you and others.  My mother was an amazing woman and I just wish I could do even more to share her strength and hope with everyone. 

7/16/09 9:29am

I was very interested in your post.  My daughter was 15 months and then 4 1/2 when I was diagnosed and underwent treatment.  I couldn't hide it from my daughter as I did do chemo and the whole run. 

 

She's 16 and I still wonder....but of course I won't be able to find out what she really thought until she's a little older when her mom is "cool" enough to talk to. ;)

 

Lisa Quintana

http://michigoose-longtermbcsurvivor.blogspot.com

7/21/09 10:59am

Hi Lisa,

 

Thanks for your comment!  So do you mind if I ask how you did handle things with your daughter?  She was so young, I'm curious when and how you did communicate it to her and how she was able to comprehend about what you were going through.  I think what my mom was able to do for us at least was find that right balance of being honest with us, but not sharing more than we needed to or could handle given our ages.  It's a difficult position, and I'm sure every situation is different.  I look forward to hearing more from you and thanks again!

Anonymous
Lisa Quintana aka Michigoose
7/21/09 11:28am

When she was little, I didn't talk to her, just said "mommy was sick" which she was very aware of, as she would often come into the bathroom with me and be with me as I vomited.  The funniest thing was when I shaved my head when my hair was falling out.  A friend came over for dinner, and we put my daughter to bed.  Then afterwards, we shaved my head.

 

The next morning when I went to get her out of her crib, she looked a me and then patted her own head...I'm still not sure if she was just checking to make sure she had hair or if she was just communicating her surprise....She was verbal and had been since 9 months, but this was a little too advanced.

 

The second time, I just told her that I was very sick and that I had cancer, but that didn't mean I was going to die.  She had gone to a lot of doctor's appointments with the first go-around and so had been living with it for a while.  I am a very straight forward person and believe(d) that I could best tell her without scaring her.  If mommy told her what was going to happen and wasn't upset or seemed overly concerned, then she wouldn't be. 

 

I did tell her that I was going to be sick for a while and that things were going to be different, and that sometimes I wouldn't be able to do things with her.  I did cut her back from 5 days in nursery school, to two as I was leary about being exposed to too many germs....

 

Telling or not telling your children is personal, and how you come to the decision is your own story.  I have talked about it on my blog: 

http://michigoose-longtermbcsurvivor.blogspot.com/

 

Lisa

7/21/09 9:58am

I can't wait to read the rest.  I too have bc diagnosed in Jan. 09. Since then I have had chemo, and three lumpectomys.  I have not told my daughter nor my family.  I just don't like gossip and want people to feel sorry for me.  I just wonder what you think, you seem ok not knowing what was going on.  Although my daughter is quite a bit older (23).  I hate to have her worry or add unneeded stress to her life. Yes, I do have a wig they just thought I got a new hair style. email me if you get a chance, very curious to your thoughts on this, or anyone who would like to express a thought on this.

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By AmyB— Last Modified: 09/20/10, First Published: 07/08/09