Arm exercise does make my lymphedema worse, but I've learned to wear my compression sleeve to the gym. When I do that I don't have problems. I have flare ups when i do too much repetitive activity with my affected hand or arm, which unfortunately includes typing, a big part of my job. I've learned that it's much easier to prevent a swelling than get it back under control. It's also important to see a certified lymphedema therapist. There are so many advances in the field that regular PT's usually don't know the best techniques.
To Cressida, I was worried when I had to have surgery on my affected arm, but it turned out fine.
Phyllis
I was walking with a fellow Vixen who was carrying bags on both arms, and she told me that the new finding are exactly that: carry on!
You are the ROCK.
XO
Marisa
I did weight training 2x week B.C.(before cancer) having started - to wart off osteoporisis and found it very empowering; I stopped after bilateral mastectomy & lymth nodes removed on one side for fear of getting lymphodemia. I'm very encouraged by what I am reading and now plan on resuming. My question - should I get wrap or use compression bandages during lifting to minimize my risk, and can I gradually work back up to heavy weights?
PJ, what advice do you have for patients who have had both breasts removed regarding blood draws and/or taking blood pressure? I had sentinal lymph nodes removed on both sides. That increases my risk for lymphedema to 40%. Will I increase my risk even more every time I have one of these procedures done? Should I offer my ankle?!
Gosh, I really don't know... if you just had sentinel node, and no further nodes out, you really should be OK using your arms for blood pressure/blood draws. If you had more, then yeah, you might want to ask them to take it somewhere else, but as for blood pressure, I think you have to use your arm. Either one of those, though, isn't a HUGE risk; there's more problem with things like repetitive motion, or working to exhaustion. Best advice would be to talk to someone - physical therapist who's a lymphedema specialist, preferably - who REALLY knows the answer for women wuch as yourself with a bi-mastectomy. Good luck - hope you don't get it - though if you do, well, you deal with it, just like the rest of this stuff we deal with, eh? Mine comes and goes... but it's usually not an issue. Cheers! PJH
Thanks for the tips regarding Lymphedema. I have Lymphedema in my dominant arm/hand because of the need to remove many, many lymph nodes during my mastectomy. It was scary at first, now I'd say it is more annoying than traumatic. I wear compression class 2 sleeves, class 3 gloves and class 2 gauntlets AT ALL TIMES (except showering or sleeping--which I do in my trusy blue Reid Sleeve). As a middle school teacher, I wasn't sure what to expect, but three years and counting (yeah!), the kids are great. Manual lymph drainage, as well as laser therapy has helped through my Lymphedema Specialist. Here in Florida, the heat is probably the hardest part of wearing compression garments. I'm toying with the idea of the Lymphediva fashion sleeves...but, I am still looking for fashions that I can wear that are loose-fitting, light-weight and not low-cut (port scar & bra inserts tend to be noticeable in low cut tops. Ideas?
Oh dear! Oh dear! The good news with the bad! How many more woes are in store for us women with breast cancer? I never thought cellulitis could be life threatenening.As for avoiding medical procedures,does that include breast reconstruction as well? Perhaps an electric razor or cream/spray would be best for removing underarm hair.PJ please help.
Yours dejectedly
Cressida