PJ,
I was glad to see your response to mtn waters, stating that you can validate any patient's feelings of not wanting reconstruction. I was just a little surprised you didn't mention it in your original article. My friend's wife just went through a mastectomy and wanted nothing to do with reconstruction. She simply did not want anything foreign put into her body. I can certainly understand this desire and as you mentioned, respect any wish that a patient might have regarding the issue. I think women should definitely not feel pressured by the media or anyone else.
Best Wishes,
Ricky
I absolutely believe every women should not only be told about reconstructive surgery but should be referred to one as soon as she finds out she has breast cancer prior to surgery. You can not make an informed decison about reconstruction if you only see a plastic surgeon after the fact. I had a lumpectomy in 2001 with radiation. My breast surgeon convinced me that if I had that surgery I would have less than a 4% chance of the cancer coming back. In 2003 it came back as stage 2 same breast & I had had a mamogram less than 6 months prior to finding this lump. I demanded a double mastectomy & immediate reconstructive surgery. Even though I had many reconstructive surgeries due to complications I believe that was due to my breast surgeon, not my plastic surgeon I would not change the decision I made to have the procedures done. Now it is 2008 & I am still cancer free. I live a very happy & full life. I only wanted to try to be back to normal as much as possible after the chemo hell. Going through the reconstruction process gave me something to look forward to.
I also wonder why more women don't have reconstruction done. The things they can do these days are nothing short of a miracle.
Vickie Hime
Paris, Texas
PJ
I am very blessed to have 5 years out & I inted to have many more. I am also blessed to have health insurance. I understood that there is a law that requires the insurance companies to pay for plastic surgery until you get semetry. I could be wrong but I think this is a federal law. The thing that bothered me the most was seiing that just one chemo treatment was $5,000. I really wondered what happens to women who don't have insurance. Do they have to die? Do they not get radiation or chemo that has saved my life? Can someone please let me know their experience on that subject. It seems with all the breast cancer programs there are we should have one somewhere that doesn't leave out one person from getting treatment they need for breast cancer.
Sincerely
Vickie
Vickie, my understanding is that women won't be denied life-saving treatment if they don't have health insurance; the government steps in via Medicaid, or hospitals foot the bill. I'm not sure about plastic surgery, though - to what extent that's paid for. I recall, as you said, something about guaranteed payment for certain types of plastic surgery after mastectomy or lumpectomy... but can't remember the details.
You've got a great attitude - keep it up! Cheers- PJH
While I can only speak for myself and from my own experience, I may understand why some women opt out of breast reconstruction. I think at first, the fright and shock of cancer just makes the patient's immediate response one of "get as much of the cancer out of me as possible." Therefore, reconstruction at that stage isn't as high a priority as getting healthy and getting treated to eliminate as much cancer as possible. Later, I think that more bilaterial mastectomy patients may decline reconstruction altogether because it isn't life saving surgery and they are at least symmetrical, so they may feel it would be better to just go on with life, rather than submit to more surgeries. For unilateral patients, I would expect more of them will desire reconstruction in order to achieve some sort of symmetry. However, delayed reconstructions are difficult for someone who has gone through the fear and lengths to treat the cancer. Left on their own to find a surgeon that they will be comfortable with to perform the surgery is a daunting task. There are plenty of plastic surgeons out there who make a pretty penny doing breast enlargements and lifts. For the cancer survivor, being herded through routines like exams and videos and forms, in a setting that obviously caters to the cosmetic surgeries, is a very uncomfortable and cold experience. It is actually almost insulting. As if having/being treated for cancer wasn't bad/hard/scary enough. I think we need more surgeons who specialize in reconstruction or who have compassion dealing with cancer/reconstruction patients.
I have heard of people requiring multiple lumpectomies to get a clean margin. One such person decided on reconstructive surgery after the fact. She said if she had to do it over, she would have had the plastic surgeon in earlier.
Is reconstructive surgery covered for a lumpectomy or just a mastectomy? Does it matter if it is done (if possible) at the time of the surgery or after?
Abby, here's the way the law's written; it sound slike it only covers mastectomy, infortunately. But do check it out with the social workers at your hospital they should be able to tell you for sure.
The federal Women’s Health and Cancer Rights Act of 1998 says: “Under WHCRA, group health plans, insurance companies and health maintenance organizations (HMOs) offering mastectomy coverage must also provide coverage for reconstructive surgery in a manner determined in consultation with the attending physician and the patient. Coverage includes reconstruction of the breast on which the mastectomy was performed, surgery and reconstruction of the other breast to produce a symmetrical appearance, and prostheses and treatment of physical complications at all stages of the mastectomy, including lymphedemas.”
Good luck - PJH
Breast Reconstruction: Just Do It
http://www.healthcentral.com/breast-cancer/c/4564/8429/reconstructio/