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Elizabeth Edwards: Missed Mammograms and a World of Hurt

By PJ Hamel, Health Guide Tuesday, April 10, 2007
It’s with aching regret that I recently read an online report in which Elizabeth Edwards detailed her initial breast cancer diagnosis. Edwards, the wife of Presidential candidate John Edwards, said that her tumor was 9 centimeters at the time of her diagnosis 3 years ago; her cancer has since r...
Fast FAQs on Types of Breast Cancer
Anonymous
Sarah
4/10/07 5:11pm

Judith Rosenthal Schwartz makes a great point about the limitations of mammography in detecting breast cancer in women with dense breast.

http://www.healthcentral.com/breast-cancer/c/6788/8450/breast-cancer/

Anonymous
Estelle S
5/20/07 4:47pm
I too am in the same boat. Only difference is that I did have annual mammograms and because I have dense breasts, it never showed up. My only clue was a retracted right nipple. I had a mastectomy and it was only then that two more cancers were discovered that did not show up on 14 mammograms or an ultrasound, so I don't think Mrs. Edwards should "beat hereself up".
PJ Hamel, Health Guide
5/20/07 6:15pm
Estelle, no one should be beating themselves up. We're human, and we do the best we can... PJH
Anonymous
Monique Myrick
9/ 9/07 7:07am
My own Mom died @ 51 with metatasis of breast cancer SO I'm passionate about any possible helps. Trained as a clinical microbiologist, I have to have science based evidence of efficacy. I'd love to share information I've gathered concerning breast cancer, early detection, and possible helps.
PJ Hamel, Health Guide
9/ 9/07 9:05am

Monique, this community is always interested in new voices, and your training as a microbiologist would give an interesting perspective here. Share away! - PJH

Anonymous
In control of my cancer
10/25/07 12:12am
Annual mammograms? I had them, almost every year for 10 years and guess what? They didn't find my tumor until it was about 4 cm in size! I've subsequently learned that a thermogram would have picked it up MUCH sooner. Why? because I have "dense fibrocystic breasts" which often shields tumors from mammorgrams. Also, thermograms pick up heat patterns from the extra blood supply to tumors way back when tumors start to develop, years before a mammogram can see it! I just had a lumpectomy and was told I needed more chemo followed by radiation. What ever for? Did that help Elizabeth Edwards? She has new tumors...could they have been caused by radiation treatments? I'd love to know. With so many people suffering permanent damage from chemo (neuropathy, etc), burns and new cancer from radiation, I'm taking my chances with thermograms, MRIs, cesium chloride, laetrile, Vitamin C (like 50 g IVs), a no-sugar diet (because cancer loves sugar), lots of organic vegies and LOTS ANd LOTS of stress-free physical exercise to keep the lymph flowing, endorphins pumping and my spirits high!
PJ Hamel, Health Guide
10/25/07 7:55am
It's true, thermography (and tomography) are gaining in acceptance. Perhaps they would have been better for you. And good for you for doing the research, for advocating for yourself. But mammography is still the gold standard for the MAJORITY of women, which is why it's still the most relied-upon method of early breast cancer detection. Best of luck with your treatment– PJH
Anonymous
Desperately Seeking Answers
2/17/09 2:27pm

I love this post.  I must admit that I am afraid to partake in 100 % non conventional treatment, but I am also skeptical of western science.  I too had a mammogram 18 months before a diagnosis of 2.8 cm. tumor.  There was another area of cancer in the same breast that was detected via a MRI and then a biopsy for confirmation.  After mastectomy a third area of cancer was discovered via the pathology tests.  The two other areas of cancer missed by mammography.  I also have dense breast tissue and it seems that mammograms either don't pick up tumors or it picks up tumors in an advanced stage for certain patients (especially those with dense breast tissue).  I think what we are trying to say here is that one test or treatment does not work for everyone and don't put us all in the same category.  Study everything out on your own.  Question doctors, cancer web sites, and research.  Go with your gut, it is usually right.  No one knows your body better than you.  I also highly recommend going to teaching hospitals to locate a doctor and perhaps one that believes in supporting your immune system in whatever way possible during the ravaging affects of the toxic drugs you may be taking. 

 

I wish western science would study the things that you posted, what are they afraid of..?  It seems that we focus on treating the symptoms of cancer and not the cause or prevention via immunizations, and other areas that may be showing some promise. And when they do find something it is always a drug being pushed by a pharmacuetical company.  If there is no money to be made or the concept could actually "cure" cancer the research is dropped or never initiated in the first place.  Desperately seeking answers while keeping the blood in the brain flowing. Lynda

PJ Hamel, Health Guide
2/17/09 2:44pm

Lynda, MRIs wouldbe suitable for you, I think - they're often recommended now for women with dense breasts, given on an alternating schedule (every 6 months, say) with mammograms.

 

As for Western medicine - thank goodness Dr. Mehmet Oz and other highly regarded Western scientists also understand the value of Eastern medicine. It's not all or nothing here in America, luckily; if you search, you can find all kinds of modalities being employed.

 

Good luck to you - and thanks for connecting. PJH

Anonymous
Lynda
2/17/09 4:05pm

PJH, I was diagnosed with Stage IIIC breast cancer Dec. 12th, 08-no metasteses as of yet (CT, bone scan, PET/CT scan, all negative).  I am still waiting on the results of a brain MRI.  When I lay down or get up from laying down I feel dizzy.  I had 24 of 24 lymph nodes positive.  I also have some shortness of breath.  Do you have an idea of what can be causing these symptoms? 

 

Re: Lymphodema, I had my mastectomy 01/12/09 and when I use my arm, even for minor house chores, I get swelling in my chest and upper arm.  Is it too soon for me to be using the arm?  Can I excersise the arm without doing any harm to it or causing lymphedema, or should I wait for more healing?  I know many in the medical field do not consider this a debilitating condition, but it is.  I can tell from the swelling and discomfort that I have experienced and I have not been diagnosed.  My doc says they don't diagnose until 3 months out.  Any help in these matters would be appreciated and thank you for your quick response.  Lynda 

Anonymous
Lynda
2/17/09 4:15pm

PJH, I was diagnosed with Stage IIIC breast cancer Dec. 12th, 08-no metasteses as of yet (CT, bone scan, PET/CT scan, all negative).  I am still waiting on the results of a brain MRI.  When I lay down or get up from laying down I feel dizzy.  I had 24 of 24 lymph nodes positive.  I also have some shortness of breath.  Do you have an idea of what can be causing these symptoms? 

 

Re: Lymphodema, I had my mastectomy 01/12/09 and when I use my arm, even for minor house chores, I get swelling in my chest and upper arm.  Is it too soon for me to be using the arm?  Can I excersise the arm without doing any harm to it or causing lymphedema, or should I wait for more healing?  I know many in the medical field do not consider this a debilitating condition, but it is.  I can tell from the swelling and discomfort that I have experienced and I have not been diagnosed.  My doc says they don't diagnose until 3 months out.  Any help in these matters would be appreciated and thank you for your quick response.  Lynda 

Anonymous
Lynda
2/17/09 4:16pm

PJH, I was diagnosed with Stage IIIC breast cancer Dec. 12th, 08-no metasteses as of yet (CT, bone scan, PET/CT scan, all negative).  I am still waiting on the results of a brain MRI.  When I lay down or get up from laying down I feel dizzy.  I had 24 of 24 lymph nodes positive.  I also have some shortness of breath.  Do you have an idea of what can be causing these symptoms? 

 

Re: Lymphodema, I had my mastectomy 01/12/09 and when I use my arm, even for minor house chores, I get swelling in my chest and upper arm.  Is it too soon for me to be using the arm?  Can I excersise the arm without doing any harm to it or causing lymphedema, or should I wait for more healing?  I know many in the medical field do not consider this a debilitating condition, but it is.  I can tell from the swelling and discomfort that I have experienced and I have not been diagnosed.  My doc says they don't diagnose until 3 months out.  Any help in these matters would be appreciated and thank you for your quick response.  Lynda 

PJ Hamel, Health Guide
2/17/09 4:47pm

Lynda, sorry, I'm not a doctor. I just can't provide you with any help here, beyond saying, please speak to your doctor about any discomfort or bothersome symptoms you're having. Ask your hospital or cancer center if they have a lymphedema specialist in the PT department; good hospitals these days have one. See if you can get an appointment, because a specialist can assess your situation, and tell you what to do/what not to do at this point in your treatment. In the meantime, we have a whole series of posts on lymphedema here; start with this overview, and go from there. Hope this helps - PJH

Anonymous
Lynda
2/17/09 5:01pm

I will keep trying and emphasizing the importance to my health care pros. 

 

Thank You, Lynda

By PJ Hamel, Health Guide— Last Modified: 06/09/11, First Published: 04/10/07