I am one of those who recently told my breast cancer surgeon that it is time for "the surgery."  My twin was diagnosed with stage II breast cancer when we were 31, Mom less than a year later (both doing great).  I have had two lumpectomies (benign), microcalcifications, biopsied and tested to death (mammograms, mri's, ultrasounds).  Luckily, I have been seeing this surgeon for 8 years and he is very supportive and understands why I want the surgery.  It wasn't an easy decision (8 years of discussion with my surgeon and my other doctor), but I think it's best for my future health as well as my stress level.  My husband thinks it's best for me, and so far, no one who knows me or my family history (dad's side too) thinks this is a bad decision.  Do I have doubts, of course, but as I told my doctor, I can't do anything about pancreatic, liver, colon cancer, or being hit by a bus, but I can do something about my chances of getting breast cancer, and if I  don't, how much worse will I feel when I do have breast cancer knowing I may have been able to prevent it.

I tested positive for the Breast Cancer Gene after my mother and aunt both were diagnosed with breast cancer.  (They were also positive for the gene).   I am 38 with two boys aged 4 and 9.  Having the surgery wasn't even a question in my mind.  I knew I had to have it done to be around to see them grow up.  I had the surgery on Monday, Aug 10 with nipple sparing reconstruction.  Yes, there is pain and discomfort and the drains are not fun-to say the least.  But it has taken my likelyhood of developing breast cancer from 90% down to 2% which is lower than the general population.   I had an excellent breast surgeon and plastic surgeon and my results are amazing!  He not only gave me a breast lift, he added just a bit to my size.   The incision was made from the nipple down so from my view looking down, they look perfect, I can see no stiches.  Because I had the surgery done preventitively, it was pretty much the same as having a boob job!  Things are drastically different when cancer is present and radiation has damaged the skin, not to mention the effects of chemo and the removal of the lymph nodes.  I plan to go back to work on Monday for a few hours a day the first week, but by the next week I expect to be quiet back to my normal routine.  My message is this: if there is anyone out there contemplating the genetic testing or the surgery I would whole-heartedly recommend it.  Your life and peace of mind are worth it. 

Sarah

Laura Zigman

8/16/09 1:33pm

Hi Sarah,

 

Thanks so much for sharing your story and glad to hear you had such a positive experience:  clear decision making, great surgeon, (relatively) easy recovery.  I would have made the same decision as you, for what it's worth, and I'm glad you'll have some much-earned peace of mine with the huge risk reduction.  Stay in touch and let us all know how you continue to do!  -- Laura