Thursday, May 31, 2012
Just Diagnosed with Cancer? Chat with Experts

Bilateral Mastectomy, whats to come?

By LindsayMichelle Saturday, December 03, 2011

This is my first time on any sites or forums since I have been diagnosed... Im 24 and was diagnosed with IDC breast cancer. I was diagnosed back in june and after many months of bad care I finally have a new team of Dr's and a surgery date set of 12-13-11. I am having a bilateral Mastectomy and will have expanders put in the same day and Im just curious if any of you can give me your feedback based on ur own experiences or even maybe some helpful hints for the aftercare. I hate the thought of not being able to take care of myself. :/

12/ 4/11 5:17am

So sorry you have to go thru this. I think a good place to start is to try to get people to help you with meals, as you will find it is hard to move your arms up and down for a bit. I wish I  had this website before 

 

www.takethemameal.com

 

maybe a firend can help you coordinate with fam and friends. So glad you are getting better care now.

 

Take care, hugs,

 

peglove.

PJ Hamel, Health Guide
12/ 4/11 6:38am

Lindsay, I echo Peg's sentiments - it really stinks that you're having to go through this at such a young age. You might take a look at Jeannette Vagnozzi's posts on this site, as she writes about her experience as a younger breast cancer survivor. Our mastectomy insider tips will no doubt prove useful, and you may want to look at our series on implants.

 

Bottom line - you'll want to put aside your feelings about asking for help, and both ask, and accept help during this surgery process. Don't worry, it won't last long; you'll soon be able to cope for yourself, physically. But emotionally, it's going to help having a strong group of loviing friends and family around you. Don't be afraid to admit your fears or needs. People are genuinely nice, and want to help; think of this as you giving them the opportunity.

 

Best of luck to you as you go through treatment. And please come back here anytime, for support, or just to vent; we're here for you. PJH

Phyllis Johnson, Health Guide
12/ 4/11 7:32am

I echo Peg and PJ's advice about asking for help.  You will have to have someone drive you for as long as there is still some anesthesia in your system, probably several days.  If your situation is such that you can't have someone stay with you, then do some home preparation before you go to the hospital.  The main issue is going to be lifting your arms.  Have some loose clothes that button in the front so that you don't have to lift your arms so high to get dressed.  Make some meals ahead to put in the freezer, or stock up on frozen dinners.  Take supplies off your high shelves and put them in easy reach on a counter.  It's hard to predict exactly how long you will need help.  It may be less than a week, but it will probably be longer.

I'm sorry that you didn't have excellent medical care from the beginning.  Breast cancer is bad enough; breast cancer at 24 is even worse.  Now that you have doctors you trust, you can move on through the next steps in the process of getting well.  There is every reason to believe that by this time next year you will be feeling great.

12/ 4/11 6:08pm

I really do appreciate the response you all have given me and I will put my wall down and take the help. I do have a great group of friends and family to help and i think its silly not to take it. Its so sad to think of my journey ahead. I was diagnosed in june at stage 0 and sadly my surgical oncologist never made me the priority. From my first appt I told him I wanted both removed because of my age I just didnt want to think of having to go through anything like this again and I knew it would decrease my chances of having it on my left side if it was removed aswell. In september I started bleeding from my left breast (blood from my right breast was a symptom Id been having for years and Drs diagnosed me with mastitus even though Id never had kids, finally after begging for "nipple exploration" a 3 cm tumor was found) so I told my oncologist that I wanted to try and set a surgery date asap... If i had it my way I would have had it immediately after being told I had cancer. I was happy to finally have a surgery date of 10-31-11 but unfortunately 5 days before my surgery the Dr's assistant called me to tell me he was dropping me as a patient because he did not want to work with the plastic surgeon my HMO assigned. I was so upset, here I am 24 years old, I have worked with this Dr for almost 5 months and 5 days before my surgery he cancels it and not even an "I am sorry" Now instead of bleeding from one breast I am bleeding from 2. Instead of the possibility of having no chemo I am looking at anywhere from 3-7 treatments. After 1 month of fighting for a new surgical oncologist I was approved but its just so stressful. I work for my insurance company and deal with member and provider issues all the time and never have I had a member in my situation.  I am so ready to have this surgery because cancer is so expensive and iv been on disability since july 1st but at the same time Im dreading it. I have been so strong for everyone else, to ensure that they dont stress to much about me that Iv convinced myself into believing my own strength but the truth is im terrified. I will never be the person I was. Im so sick of all the hardships and stress but I know this is just the beginning.  I am pretty possitive i will be looking to all of you for strenght and comfort. Its hard because my whole life I have been the strong one, the one who took care of everyone and never showed emotion and even now I have not cried or shown my fears, im to busy comforting others to even allow them to comfort me. :/ I appreciate all your advise. It means more to me then you all know.

Phyllis Johnson, Health Guide
12/ 5/11 6:20am

I'm sorry that you have had such a tough time so far.  I well remember the need to be independent when I was in my twenties, and it sounds like you have taken the role of the "strong" person among your relatives and friends.  To get through this, you will need someone you can vent to and rely on.  We are here for the venting and are glad to listen. 

Try to find someone who can go with you to medical appointments.  It really helps to have a second set of listening ears and someone who can ask follow-up questions when you are too busy processing new information to know what to ask.  Also find someone whose shoulder you can cry on (figuratively or literally).  This may or may not be the same person who goes with you to appointments.  Make a list of your friends and family and think of what each can do to help you through this.  Some will be good for a ride to the doctor or a casserole.  Others will be good for emotional support.  Friends your age probably have little life experience in dealing with serious illness, so you will need to let them know what you need.  You might think about older relatives or work colleagues who can help too.  No one can be strong all of the time, but you will find the strength to get through this.

By LindsayMichelle— Last Modified: 12/05/11, First Published: 12/03/11