How to Fine Accurate Breast Cancer Information on the Internet

Phyllis Johnson Health Guide September 12, 2010
  •   A few years ago our daughter Sara called me.  Diane, the mother of one of her friends, had just been diagnosed with inflammatory breast cancer, and Sara wanted to know if I would call and talk to her about my experience.  Over the course of the next year Diane and I developed a...

5 Comments
  • PJ Hamel
    Health Guide
    Sep. 13, 2010

    Thanks for reminding and/or informing so many readers that you CANNOT believe everything you read about breast cancer - in newspapers, magazines, books, or on the Web. As you say, your best bet for reliable information is sites like the American Cancer Society, the National Institutes of Health, and well-known medical institutions such as the Mayo Clinic. What...

    RHMLucky777

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    Thanks for reminding and/or informing so many readers that you CANNOT believe everything you read about breast cancer - in newspapers, magazines, books, or on the Web. As you say, your best bet for reliable information is sites like the American Cancer Society, the National Institutes of Health, and well-known medical institutions such as the Mayo Clinic. What makes HealthCentral stand out from many other other sites is a woman's ability to ask a question and have it answered quickly; within 24 hours, and usually much faster. Also, we pride ourselves on taking complex medical information, and making it understandable to "normal" women. Both good reasons to visit here! PJH

    • Phyllis Johnson
      Health Guide
      Sep. 13, 2010

      Thanks for mentioning National Institutes of Health.  They are another one of my trusted sources, but as you point out, neither they or the other big, reliable websites have a question feature like Health Central or the ability to build a community with reader shareposts.  Checking more than one source is a good idea.

  • deborah t
    Sep. 20, 2010

    HELLO I WAS DIAGNOSED IN MAY W L BREAST INFILTRATING DUCTAL CARCINOMA GRADE 2 NUCLEI(WHATEVER THAT MEANS) BOTH TUMORS ARE ER AND PR NEG BOTH HER2 POS OVER-EXPRESSION THE 3RD TUMOR IS TOO SCANT TO DETERMINE

     

    PART 2 SAME BREAST IBC  VISUALLY OBVIOUS NO SKIN BIOPSY

    I HAVE MY LAST CHEMO #6 TOMORROW FOLLOWED W MASTECTOMY, REMOVING ALL LYMPH NODES STAGE...

    RHMLucky777

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    HELLO I WAS DIAGNOSED IN MAY W L BREAST INFILTRATING DUCTAL CARCINOMA GRADE 2 NUCLEI(WHATEVER THAT MEANS) BOTH TUMORS ARE ER AND PR NEG BOTH HER2 POS OVER-EXPRESSION THE 3RD TUMOR IS TOO SCANT TO DETERMINE

     

    PART 2 SAME BREAST IBC  VISUALLY OBVIOUS NO SKIN BIOPSY

    I HAVE MY LAST CHEMO #6 TOMORROW FOLLOWED W MASTECTOMY, REMOVING ALL LYMPH NODES STAGE 3 ON OCT 27TH FOLLLOWED W RADIATION THEN WAIT 1-2 YR FOR RECONSTRUCTION

     

    I AM TERRIFIED OVER THIS IBC

    SUPPOSEDLY I AM BEING TREATED BY THE #1 ONCOLOGIST   I KNOW MY SURGEON IS THE BEST

     

     THE TREATMENT IS TAXOL CYTOXAN HERCEPTIN   CONTINUING THE HERCEPTIN EVERY 3 WKS FOR A YR W 3MONTH CARDIAC  ECHO'S

     

    BEFORE MY SURG THEY ARE REPEATING MAMMOGRAM,ULTRASOUND AND MRI

     

    THE SWELLING REDNESS DIMPLING AND ITCHING ALL IMPROVED GREATLY AFTER 1 CHEMO TX

     

    I KNOW THIS IS A LOT OF STUFF BUT YOU SEEM TO HAVE A LOT OF INFO

     

    I LIVE IN SO CALIF AND AM GOING TO SCRIPPS IN LA JOLLA

    DRS ARE BERNSTEIN ONCOLOGIST/DR. HYDE SURGEON/DR. MEFFORD RADIATION ONCOLOGIST

     

    WOULD YOU SUGGEST ANOTHER OPINION THIS LATE IN THE TREATMENT?

     

    THANK YOU SO MUCH FOR TAKING YOUR TIME TO READ ALL OF  THIS AND HOPEFULLY RESPOND W SOME HOPEFUL NEWS

     

    SINCERELY

    DEB T

     

     

    • Phyllis Johnson
      Health Guide
      Sep. 21, 2010

      Deb, your tumor profile is very similar to mine--ER neg and Her2neu pos.  I know that it is scary when the cancer symptoms are right out there on the skin of your breast where they are so very visible.  It is great news that your symptoms improved with the chemo.  When I got to surgery, the swelling had gone down although the redness was still...

      RHMLucky777

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      Deb, your tumor profile is very similar to mine--ER neg and Her2neu pos.  I know that it is scary when the cancer symptoms are right out there on the skin of your breast where they are so very visible.  It is great news that your symptoms improved with the chemo.  When I got to surgery, the swelling had gone down although the redness was still there. If there is any good side to having IBC it is being able to actually see progress from the chemo.

      I couldn't comment on your particular doctors.  You are being treated at a well-known, respected institutution, and your local doctors and friends would know more about the reputations of your doctors than I would here in the East.  The treatment you have received so far sounds pretty standard.  Many IBC patients also receive Adriamycin or one of it cousins, but your doctors may want to see what the next pathology report says before they consider other chemo drugs.  Because Herceptin and Adriamycin both can be hard on the heart, they probably want to give the Herceptin a chance to work first.  It doesn't sound like you need a second opinion at this time.

      I'd suggest you see what the pathology report shows.  If there are questions about the best treatment plan because of some unusual finding at that time, then ask for a second opinion to help you decide what to do next.  When I was in treatment 12 years ago, my doctors and I agreed that with IBC, it is best to hit it hard with the most aggressive treatment from the very beginning.  The TCH combo you are getting is definitely in that category.

      I wish you the best as you finish up chemo and move on to surgery and radiation.  You can get through this and hopefully will be among the increasing number of long-term IBC survivors.  Keep in touch and let us know how things go.

       

  • PJ Hamel
    Health Guide
    Sep. 13, 2010

    Thanks for reminding and/or informing so many readers that you CANNOT believe everything you read about breast cancer - in newspapers, magazines, books, or on the Web. As you say, your best bet for reliable information is sites like the American Cancer Society, the National Institutes of Health, and well-known medical institutions such as the Mayo Clinic. What...

    RHMLucky777

    Read More

    Thanks for reminding and/or informing so many readers that you CANNOT believe everything you read about breast cancer - in newspapers, magazines, books, or on the Web. As you say, your best bet for reliable information is sites like the American Cancer Society, the National Institutes of Health, and well-known medical institutions such as the Mayo Clinic. What makes HealthCentral stand out from many other other sites is a woman's ability to ask a question and have it answered quickly; within 24 hours, and usually much faster. Also, we pride ourselves on taking complex medical information, and making it understandable to "normal" women. Both good reasons to visit here! PJH