Dear Phyllis,
Thank you for tackling this difficult problem. Lymphedema can be very stubborn and hard to control. I had a flare-up in my hand in 2006 that my therapist was able to control after several appointments. Since that time my lymphedema has remained mild. But everyone is different. I am so glad the pump works well for you. And Flexi-Touch is another good option. I tested out both at the National Lymphedema Network conference last September and was impressed with the comfort level and lack of noise of these devices. We all have to do what works for us.
Jan Hasak
Lymphedema Patient-Advocate for the NLN
www.janhasak.com
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Dear Ms. Johnson, I was so happy to see your article regarding Lymphedema. I have finally found someone who could share my story. I have the same problem with Lymphedema as you do. I have the Flexitouch machine and you are so correct when you say how much better it is using this. I have always had big upper arms and when I get swelling, they get even larger. This means that I haveto have my compression sleeves custom made. These compression sleeves are very expensive (glove $150.00; sleeve $300.00). Since I have to wear my compression sleeve daily, I have to replace them at least twice a year. When I have the money, I pay up front and file for reimbursement, unfortunately I can't always afford it. Thank you again for your article.
Becky, the rehab clinic where I go has a grant from the Komen Foundation to help people who can't afford a sleeve. They will only pay for one a year, so most people still have to come up with the money for a second one if they wear it daily. Still every little bit helps. This grant is local, but there might be something similar where you live. I'm glad the Flexi-touch is working well for you.
Thank you for this information. I will check into it. I'm grateful for all the help. Have a great day!