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Friday, August, 08, 2008

Working with an Oncologist - Advice from an Inflammatory Breast Cancer Survivor

by  Phyllis Johnson
Wednesday, February 27, 2008
Phyllis Johnson
Phyllis Johnson
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Inflammatory Breast Cancer Survivor

Phyllis Johnson grew up in Silver Spring, Maryland. Parents o...

Phyllis Johnson

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"I feel my oncologist just drops me like a hot potato when the symptom isn't cancer related," wrote a woman on a support website I belong to. I've had three oncologists with three distinct personalities. After working with them and talking to lots of cancer patients I've...

  1. Untitled Comment
    Marilyn 'Mare' Kirschenbaum
    Wednesday, February 27, 2008 at 02:54 PM

     Dearest Phyllis,

     

    As always another fine article .. I look forward to your messages!  What caught my attention after reading what you wrote was " You can expect that your doctor will fight for your life. If your doc tells you nothing can be done, find another doctor. I've known many women who are alive five and ten years later because they found a doctor who was willing to try a new aggressive treatment after their first oncologist offered them no hope and no treatment." Being in the IBC world, we are all certainly aware of many physicians telling their patients to get their papers in order AND the finest of the doctors will welcome people getting another opinion. Mare

    Marilyn 'Mare' Kirschenbaum

    Inflammatory Breast Cancer Foundation

    www.Eraseibc.com 


    reply
    re: Untitled Comment
    Phyllis Johnson
    Monday, March 03, 2008 at 04:37 AM

    Thanks for your comments, Mare.  One of the ironic twists in finding the doctor who will fight for our lives is that sometimes it ends up being the patient who has to persuade the doctor that she is ready to stop treatment.  But, now that I've been on the inside of the cancer treatment process, I'd rather a doctor err on the side of doggedly pursuing treatment than deciding for someone else that it is time to stop.  My best to you.  I appreciate all you are doing in the IBC advocacy world.

    Phyllis 

     

     


    reply

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