My copy of Impact arrived last week. Impact is a newsletter about the fund-raising events at Dana-Farber Cancer Institute in Boston, Massachusetts. I’m interested in what happens at Dana-Farber because I know people who work there, but I must admit that I usually just skim the contents, which are geared to announcing... Read more
"Oh, yes. I've heard of IBC. It's that new type of breast cancer," people sometimes say to me. I can understand their reaction. When I was diagnosed in 1998, I had never heard of inflammatory breast cancer. Lately this most deadly form of breast cancer is getting more media attention, so people tend to assume if they have just now heard of IBC, it... Read more
In a group, everyone has a role—the planner, the comedian, the peacemaker. It just sort of happens, and we rarely even think about our own role in a group. In my cancer support groups, one of my roles is “the person who tells people to call hospice.”
It’s a strange role, and I’m not sure... Read more
Writing your way through breast cancer can mean keeping personal notes, journaling, and communicating with friends and family through blogs or e-mails. Maybe you’ve even written some poems about your experience. At some point though you will probably need to connect to other people who share your cancer... Read more
When Sarah Park, our producer here at HealthCentral, asked me if I would be interested in writing a post about a trial of lapatinib (trade name Tykerb in the US and Tyverb in Europe) for inflammatory breast cancer (IBC) patients, I jumped at the chance. I’ve been reading about this drug for several years now on the mailing list at... Read more
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