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Sunday, November, 22, 2009
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Featured ContentPJ Hamel On NPR!

All SharePosts Relating To "inflammatory breast cancer"

EXPERT
Phyllis Johnson

Phyllis Johnson

(Profile)
Inflammatory Breast Cancer Survivor
posted 10/22/2009, comments (0)

IBC Research Foundation: Kitchen Table Activists

October 16, 2009 the IBC Research Foundation in cooperation with the Milburn Foundation awarded a grant to Diane Palmieri, Ph.D. to study how inflammatory breast cancer (IBC) can metastasize to the brain.  Dr. Palmieri, who is a National Cancer Institute staff scientist, is working with mouse models to understand how IBC... Read moreChevron
EXPERT
Phyllis Johnson

Phyllis Johnson

(Profile)
Inflammatory Breast Cancer Survivor
posted 10/03/2009, comments (10)

Tears and Rainbows: Ginny Mason, Cancer Advocate

  Ginny Mason was only forty years old when sharp, shooting pains started in her breast.  She thought the pains must be part of premenopausal changes.  Then she noticed her bra didn't fit right.  No it couldn't be swelling; maybe her bra was just old and stretched out.  "You try to justify things because you don't want to... Read moreChevron
EXPERT
Phyllis Johnson

Phyllis Johnson

(Profile)
Inflammatory Breast Cancer Survivor
posted 09/22/2009, comments (2)

"It's the Kind that Black Women Get": IBC and the African American Community

"My friend died of breast cancer.  She wouldn't get any treatment.  It was that kind that black women get."   I had just met Bea, and in the course of our getting-to-know-each-other chat, she had mentioned that her husband was a one-year survivor of an aggressive cancer.  So I shared my story about being an eleven-year... Read moreChevron
EXPERT
Phyllis Johnson

Phyllis Johnson

(Profile)
Inflammatory Breast Cancer Survivor
posted 06/16/2009, comments (2)

Breakthrough in IBC Research Offers Promise

"Oh, yes. I've heard of IBC. It's that new type of breast cancer," people sometimes say to me. I can understand their reaction. When I was diagnosed in 1998, I had never heard of inflammatory breast cancer. Lately this most deadly form of breast cancer is getting more media attention, so people tend to assume if they have just now heard of IBC, it... Read moreChevron
dawnjxn

dawnjxn

(Profile)
Not working; was a remedial English teacher at community college
posted 03/04/2009, comments (4)

Are you out there?

I am a white, 56 year old, female with IBC, stage III B, node positive, up to 5, and triple negative. I just finished 3 rounds of FEC that I started in January when I was diagnosed. I will start taxotere next with something else, but not sure what, yet. If you have been there with this, please advise what you did and what has helped you. I'm... Read moreChevron
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