What are the sides effects of TCH

Hello and thanks for the information.  The same here. Just had my second treatment thrusday and this one hit me pretty hard with the fatigue.  Traveling the weekend from VA to Jax then to MS today, Monday didn't help either and then to come home to a dirty house, made things worse.  I had the same symptoms with the first one.  Wasn't too bad, made myself take naps during the day to help me make it throughout the rest of the day.  My doctor prescribed me Nexum and it works better for the week or so and then I go back to my Prisolec.  constipation, we need help for that one.  The first treatment I had diarahee for three days straight nothing yet, usually Tues-Wed-Thurs after week one is the worse one but we will see this week.  And what is IBC? Please keep in contact so I can know how your last two goes.

Mary

Hi Mary,

Inflammatory Breast Caner -rare and agressive and always stage IIIB or IV at time of diagnosis. I am estrogen negative but HER2 positive and stage IV (metastisized to L4 on the right side-lower back). I will need herceptin every three weeks for the rest of my life. -The chemo side affects are not so bad and manageable with rest. I take dulcolax forseveral days chemo week and zantac or tums dual action for the hearburn. I had great news today-my follow up PET/CT shows all lymph nodes clear, L4 clear and the left breast good improvement. Best news I have had yet. 2 more chemos to go, then surgery and radiation. Best!

Kate

That is great news.  Congrads.  I was only diagnoised with early stage I with all my lymph nodes neg.  Just estrogren postitive, HER2 positive, so that is why I have to include the herceptin.  Good luck and God Speed.

Hello,

I had my 3rd chemo treatment yesterday, Thursday and everything went well.  I have a question, I have been experencing some throat pain, like muscle spam, but no sore throat.  Did you experience anything like this with your treatment.  My doctor doesn't know what is causing it but it kept me up all night even with pain pills. 

Mary

I don't know what causes it, but I have the same tightness in my throat, like it's closing, which gives me more anxiety about the whole thing!  I have some strange feeling it's the neulasta after the chemo...I was dx in may with idc, stage 3, 11/21 nodes positive, triple(er,pr, her2) positive.

Hello,

How often are you receiving your herceptin, my new doctor wants me to get it weekly between my chemo treatments until my last chemo treatment on 24 sept then I will start with the herceptin alone with getting it every 3 weeks.  He said that the books requires me to get it weekly until i finish up my chemo but i think that is too much on my heart, any advice.

Mary

I get taxotere, carboplatin and herceptin every three weeks -nothing in between. I have been told that I will get the herceptin every three weeks forever -guess because I am stage 4 at dx.  You probably have had a MUGA scan for your heart - I did- and I don't know when it will be repeated but have been told to expect it.  I was a regular exerciser before this happened but only occasional since (too tired chemo week and then I have been traveling when I feel well). When I do exercise, I have not noticed any problems- I can still do aerobics for an hour without a problem-walk 5 miles as often as I can and weight lift here and there.  I was never really worried about my heart since I was a regular exercise person for years ( instructor at our local YMCA too until this cancer). 

I haven't heard about anyone getting weekly between chemo. Have you joined ibc.org? You can ask the question there and get tons of answers quickly. It's been a good source of support and information for me.

Best,
Kate

I also receive the same thing every three weeks for 6 treatments/3 more to go but the doctor wants to do the herceptin weekly until I finish up the chemo and then every three weeks until June 10.  Good luck and thanks

Mary