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Q: What do you do if you have IBC and are triple negative?
There is no follow-up treatment like Herceptin or the hormonal treatments for triple negative breast cancer patients, including IBC patients. Since I was diagnosed with IBC before Herceptin was approved for Stage IIIB patients, I was in the same situation you are. I had 8 treatments of two different kinds of chemo, mastectomy, and radiation treatments. I haven't had any follow-up treatment, and fortunately, I haven't needed any. It's been 11 years, and I'm doing OK. So the short answer to your question is you take the prescribed treatment and then hope for the best.
There is no follow-up treatment like Herceptin or the hormonal treatments for triple negative breast cancer patients, including IBC patients. Since I was diagnosed with IBC before Herceptin was approved for Stage IIIB patients, I was in the same situation you are. I had 8 treatments of two different kinds of chemo, mastectomy, and radiation treatments. I haven't had any follow-up treatment, and fortunately, I haven't needed any. It's been 11 years, and I'm doing OK. So the short answer to your question is you take the prescribed treatment and then hope for the best.
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