Discussion of a future treatment after double mastectomy
Hi everybody,
Thank you PJ Hamell and Angi for your input, they were very helpful for me. I saw my Family Doctor today and he is referring me to another oncologist for a second opinion and for the genetic counselling as well. I have the feeling that I need to take Tamoxifen since I am premenopausal and I have my periods coming every month and quite regular. Since my CA was ER+(80%) and PR+(90%), I had doubts that my oncologist advised me not to have the hormonal therapy. His argument was that my tumor was grade 1, N0M0 and that I had double mastectomy. He gave me some statistics that if I didn't have any further treatment my chances of cancer relapse in the next 10 years would be 18%, if I had only hormonal therapy -chances of a relapse-11%, if I had chemo- 8%, if I had both-chances of a relapce-5%. I looked at these numbers and told him that 18% was prety scary to me and didn't convince me of proceeding without treatment. He said that Tamoxifen had side effects, like DVT and endometrial CA and because I had double mastectomy he would not recommend to have this treatment. So, now I have to wait for the second opinion appointment since for the next two weeks there would be nobody available because of holidays. But its totaly OK with me. I wouldn't have any treatment anyway untill mid January. I was told that I need to recover after my surgery for at least two months.
I wish everyone Happy Holidays and stay healthy! Natalie.
Hi Natalie - Sounds like you're carrying on with a good attitude - congratulations! You definitely need a second opinion. With a double mastectomy, no nodes involved, and low-grade cancer, those quoted recurrence statistics sound incredibly high. So I'm glad you're getting another opinion. In the meantime - enjoy your holidays! PJH
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Hi Natalie!
I'm glad to hear that you and your doctor discussed things further and now you have a better understanding of your risks. The numbers do seems high to me as well, but in all honesty I sometimes think it's all a crap shoot.
I can't honestly say whether or not you need some type of treatment or another, but I can say that you deserve to know and fully understand all of your options and risks - and that you should not only be informed about all these things, but that you should be included in your treatment. Doctors have become so accustomed to not explaining things to people, that we often don't know what we've gotten ourselves into. I think it's better for you to know and decided if you want to gamble your future on 18%.
Good luck with your second opinion - I hope it all goes very well for you!
Angi
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