I want to know more about "Triple Negative." Found out that I am er/pr neg as well as her2 neg.
I wanted more info on the triple negative and any successful treatments there are out there. I was diagnosed last year in May and completed chemo & radiation. I did have to take a break from chemo due to a flare up of hep b. I completed radiation while on a break from chemo and completed chemo in april. Had a mastectomy in which they found a new tumor in my armpit. Had a PET scan done which showed metastasis in the spine, femur, pelvic bone, sternum, liver. I don't understand why chemo or radiation did not do its job! The doctor is telling me to fly to the mainland to get a second opinion and possible treatment. What now?
Sharla, I'm sorry treatment didn't work well for you - triple-negative breast cancer is a tough one. As you've discovered, chemo and radiaiton don't always work, and they're the first/best line of defense. If I were you, I'd ask about the drug Avastin - it's just recently been approved for treating triple-negative breast cancer, especially advanced cases such as yours. Please ask your oncologist about this. And stay in touch here - we can help you through this. Good luck - PJH
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Sharla
Friday, July 24, 2009 at 12:50 PM
PJ Hamel
Friday, July 24, 2009 at 12:53 PM
Sorry, I don't believe there's anything you can do immediately... I hope you're able to get another opinion, and some help. PJH
check out the Triple Negative Breast Cancer Foundation's webiste - there is information there that may answer some of your questions and concerns. I was diagnosed with triple negative in Oct. 2007, had mastectomy in Dec. '07, followed with chemo and radiation. Doing well - no meds as of yet for the triple negative -
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I was diagnosed with DCIS nuclear grade 3. I had a masectomy in Oct and the pathology report state ER/PR negitive and HER2 is positive. Is additional treatment needed?
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PJ Hamel
Friday, November 13, 2009 at 06:17 PM
Hi - Ask your oncolgist, but the usual treatment would be for you to take Herceptin for a year. Hope this helps - PJH
I did ask my oncologist about this and he states that Avastin is used in conjunction with other chemotherapy treatments. Is there any way that I can get my hands on something now while I feel like I'm in limbo?