I wanted more info on the triple negative and any successful treatments there are out there. I was diagnosed last year in May and completed chemo & radiation. I did have to take a break from chemo due to a flare up of hep b. I completed radiation while on a break from chemo and completed chemo in april. Had a mastectomy in which they found a new tumor in my armpit. Had a PET scan done which showed metastasis in the spine, femur, pelvic bone, sternum, liver. I don't understand why chemo or radiation did not do its job! The doctor is telling me to fly to the mainland to get a second opinion and possible treatment. What now?
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Q: I want to know more about "Triple Negative." Found out that I am er/pr neg as well as her2 neg.
Answers (4)
7/22/09 10:13pm
Sharla, I'm sorry treatment didn't work well for you - triple-negative breast cancer is a tough one. As you've discovered, chemo and radiaiton don't always work, and they're the first/best line of defense. If I were you, I'd ask about the drug Avastin - it's just recently been approved for treating triple-negative breast cancer, especially advanced cases such as yours. Please ask your oncologist about this. And stay in touch here - we can help you through this. Good luck - PJH
8/20/09 10:57am
check out the Triple Negative Breast Cancer Foundation's webiste - there is information there that may answer some of your questions and concerns. I was diagnosed with triple negative in Oct. 2007, had mastectomy in Dec. '07, followed with chemo and radiation. Doing well - no meds as of yet for the triple negative -
11/13/09 5:14pm
I was diagnosed with DCIS nuclear grade 3. I had a masectomy in Oct and the pathology report state ER/PR negitive and HER2 is positive. Is additional treatment needed?
2/11/10 9:58am
Sharla, I was diagnosed triple neg in Aug 2009. (I had ER, PR+ in 2002, so this was a new Primary) Had bilateral mastectomy and only one round of Chemo due to complications. No radiation due to the fact I had it in 2002 and can not have it in the same area twice. I am now doing the extremely low fat diet recommended by my Oncologist. ( book "The Spectrum" by Dr. Dean Ornish) The benefits of following this diet for TNBC recurrance are potentially amazing! My percentages were even better than doing the chemo. (42% compared to 33%) Read the book, follow the plan and hopefully it will help. I know you can get it at Barnes and Noble website for $7.98 right now. Good Luck! 
Kim
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By Sharla— Last Modified: 12/25/10, First Published: 07/22/09
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I did ask my oncologist about this and he states that Avastin is used in conjunction with other chemotherapy treatments. Is there any way that I can get my hands on something now while I feel like I'm in limbo?