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Thursday, January 07, 2010 JC asks

Q: Any encouragement out there? Breast cancer, possible mets to spine.

Its been a little while since I posted. Had lumpectomy Aug 31. Swelling finally almost gone (& haven't had radiation yet)! Had 4 rounds of Chemo.  Before the 3rd one, I broke my back.  It took them 6 weeks to figure out it was broken-meanwhile I'm walking around with it. Now I'm off Vicodin, and they put me in a brace to stabilize my back.  The MRI looks awful!!  The marrow of 2 vertebrae are a different color-I saw it on the computer!!  Radiologists feel it is probably cancer or multiple myeloma!!!  I went to UCSF a few days ago and saw a wonderful Dr.  They plan to do a Needle Biopsy to figure out what is going on.  The difference between our local Dr and SF Dr is incredible!  We got home, and my husband remarked, "It seems like the local Drs are kind of back-woodsy!"  (The local one suggested we "IGNORE" what's going on in my back, and he would treat me with hormone therapy along with radiation to my breast--as no matter what's going on with my back, the treatment would be the same!!!!   NO WAY!!  I'm not going to ignore cancer!!! I want to know what it is, so we can treat it aggressively.  Meanwhile, I'm in limbo!!  Don't have a date yet for the biopsy, but he wants it within 2-3 wks.  He feels it very unlikely what is in my back is breast cancer mets, as it is so soon after the discovery of bc, & mine is slow-growing.  I'm just hoping and praying it is not any form of cancer.  Hopefully, it is treatable!!  If not, I may not be here very much longer!!!!  Its scary, but it definitely has brought me back to my relationship with God!!  I know He is watching over me.  However, I'd like to postpone heaven, as I have so much to live for!! 

   Here, I thought my biggest hurdle was getting thru Radiaion of my breast!!  Now I've got bigger problems that make that other seem so very small!!  We can't take anything for granted.  Nobody is promised tomorrow!!

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Answers (2)
Phyllis Johnson, Health Guide
1/ 8/10 6:05am

Wow!  I'm sorry you've had such a chain of problems.  It's good you've got a doctor now who is going to find out exactly what is going on.  I hope that you get good news on the bone front.  If it turns out that the back problems are related to bone mets, you need to know that they are highly treatable and that many women live a long time with them.  I even have a friend with bone mets who has been fine for ten years now with no sign of cancer activity.  I believe they treated her bones mets with a combination of chemo and radiation.  I'm sending you my best wishes that it isn't more cancer.

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1/ 8/10 8:42pm

Thanks for your support.  It means a lot.  And it helps to have a place to vent! Hopefully by next week we will have a date scheduled for the biopsy!

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PJ Hamel, Health Guide
1/ 8/10 7:30am

Hold onto that thought that your new doctor doesn't believe this is bone mets - the MRI could be showing residual issues from you breaking your back. And indeed, it would seem unusual for a slow-growing cancer, caught early, to be showing mets already... So, best of luck - hope the tests come back negative... which would be positive! Smile PJH

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1/ 8/10 8:46pm

Truly, I do wish it to be "only" affects from my fractures (did I mention that I have 3 fractured vertebrae?).  Its gratifying to know I have so many people praying for me.

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1/14/10 8:28pm

Here is an update on my condition:  Good news!!  The Radiologist at UCSF looked at the MRI of my back and said she saw NO EVIDENCE OF CANCER IN MY BACK!!!!!  Praise God!!  She said I have an osteoporotic fracture and apparently this is why my MRI shows the marrow as looking different--from the injury!!  They plan to repeat the MRI next month to see how my back is healing. 

   All of this anguish would have been prevented if the local Radiologists knew how to properly read MRIs!!!!  I plan to receive as much treatment and follow-up at UCSF as I feel necessary.  This includes a consult with one of their Breast Cancer Surgeons.  My local surgeon when he did my Lumpectomy, gave me a 1mm margin, and this doesn't make me feel safe!

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PJ Hamel, Health Guide
1/15/10 7:33am

Hallelujah, JC! Thanks for sharing this news. Yes, there IS a difference between community hospitals and Comprehensive Cancer Centers (UCSF is a CCC), especially with more complicated cases such as yours. In fact, my current post details these differences. I'm so glad you were able to find top-notch doctors, and that you received  good news. Cheers! PJH

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By JC— Last Modified: 12/25/10, First Published: 01/07/10