I know that everyone is different but I think that is outrageous that a doctor
woud tell you that you will be fine in three days. This is major sugery and not
a procedure such as having a tooth removed. On April 1, 2010 I had a bilateral
mastectomy with senitnel nodes removed on both sides.
I feel that I have been let down by the medical community. No one has been
truthful with me in regards to the pain that can be experienced post op. The
surgeon prior to my biopsy told me that he "was not impressed by the area that
he felt on my breast. Well after the biopsy was performed he was surprised that I had breast cancer.
I am 2 months out from surgery and I havin pain that cannot be
controlled by Dilaudid. I was sent home on this after being hospitalized for
3 days after surgery. I was given morpine after the surgery and had it stopped
the next day.
I have had pain everyday since surgery and I can not get anyone from the
surgeons office, oncology or phyical therapy to take me seriously. It feels
under my arm pits (12 lymph nodes removed on the left and 3 on the right) as if there are steel hoops under them. My chest is tight and the pain goes around to
my back. (NO this is not heart related).
I just wish that someone would have told me just how painful this can be
instead of painting a picture of yes, you should have some pain but that you
should be back to normal in 6 weeks. Well I am not back to normal and I
am waiting for my referral to pain management to come through.
My experience with the medical communiy is that they have a fixed time limit
as to when you should feel better. I am scheduled to start chemotx tomorrow
and I pray to God that I wll be able to go through it as I have had constant
pain from day one and have not experinced one night where I have been able
to seep through the night due to pain.
I have learned that there is a conditon such as post mastectomy syndrome.
There have been some cases where women have experienced pain from their
mastectomies for over 2 years.
I do not think that a surgeon should try to scare a patient by giving them
surgical horrow stories . But they should be more forth coming with
logically presented information to let the patient know that yes your recovery
period may go smooth but that also you may have a difficult time. And for those
like me who have constant pain to be taken seriously
One more thing. I was told today that I may experience bone pain as a result
of chemo and that it will be treated with motrin. Bone pain, bone pain and you
will treat it with motrin. I mean what is this a headache. I just cannot believe
Has anyone else experienced a lack of pain control?
I pray God's healing power and presence over everyone,