In June, I was diagonsed with Invasive Lobular Carcinoma at age 43. My cancer is HER2 negative but Estrogen and progesterone positive. I had a biateral mastectomy. My tumor was 8+cm in my right breast and I had a no lymph node invasion! yahoo. Following surgery, I had 4 AC treatments every other week, followed by taxol treatments every week for twelve weeks. I am completing my 32nd consecutive radiation treatment on Wednesday, March 17! As I prepare to enter the world of, "Ok, your treatments are over, go live a normal life!", I am growing increasingly anxious! Specifically, since lobular carcinoma is difficult to detect..... how will I know if it returns somewhere other than the small amount of breast tissue I have on my left side.? What kinds of symptoms have other patients with recurrences experienced?
My second question is, " Tamoxifin has some side effects that I am very apprehensive about! 5 years of menopause symptoms is enough to make my head spin! What are the studies that compare use of Tamoxifin to not using it as far as recurrence? My doctor tells me my rate of cancer returning is 8% less if I take it!





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Hi Phyllis
That's very encouraging - as your original reply was very nearly three years ago I trust you are still keeping well?
My wife Sue was diagnosed with invasive lobular cancer in June 2010, had a mastectomy in August followed by 6 chemo. cycles ending Jan. 2011. It hadn't spread to the lymph nodes and the margins were declared good. She has recently completed breast reconstruction but is worried about the cancer spreading to the good breast, so any reassurance you can give her will be very much appreciated.
Can you do this by emailing her at
sueryall4@gmail.com
Many thanks
John Ryall