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Monday, January 03, 2011 stepaheda asks

Q: Hole in left breast after Reconstruction?

MY question: Should there be a hole not healed with grafting Material coming through ozzening after Breast Reconstruction?  It has been a little over a year since I completed my breast reconstruction for a double Mastectomy (cancer was in the right breast) chose to have double because after biopsy there was earily signs of cancer cells in the left. However, the problem is that the doctor remover too much fat/skin from the left breast which left the skin very thin which caused the expanders to come through the skin causing a whole. When I report this to him he acted as if I was making it up, but once he was able to see it with his own eyes, he acted surprised. But assured me that he could repair it on the final treatment. So he arranged to use lab skin grafts to reinfource the hole,and build it up with fat from my side/back. I have to tell you I was a bit concern about this, but he assured me that he had used it before. Well, it has been over a year now, and there is a very small hole that just will not heal right near the nipple that he created. And you can see and feel the reinforced grafting trying to come throught the skin. What should I do? And is this normal to take so long to try to heal? Before you say speak with your doctor, I have to tell you I have. And the last words he said to me is you have to except that it is never going to be normail like it was before. I have excepted that, but I just don't think there should be a ozzening hole in my left breast a year after treament. Any information will be greatly appreciated!

Stepaheda

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Answers (1)
PJ Hamel, Health Guide
1/ 3/11 3:04pm

Stepaheda, I agree with you. is it possible to see a different surgeon, for a second opinion? If you're uncomfortable going back to the first surgeron for a referral, I'd suggest you meet with one of the social workers at the hospital. They should be able to help you figure out how to get someone else to look at this. You're right - "not looking the same" is one thing, an open wound is something quite different!

 

Nice to see you here again, though I'm sorry for the reason why... PJH

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1/ 4/11 1:05pm

Thank You PJ, And Happy New YearLaughing

I agree with you, I will make arrangement to speak with another doctor. There were so many mistaken with the P/S and the Surgeron who removed the cancer, that my family and I do not want me to go back to them. I will keep you up to date with the out come. Other than that all is well. I hope all is well with you and your family also.

Stepaheda

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PJ Hamel, Health Guide
1/ 4/11 2:53pm

All's well here, Stepaheda. I wish you the best as you re-start this whole process with a new surgeon... Blessings- PJH

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1/13/11 10:00am

 

Hi Pj,

Just a bit of an update to my little sistuation. I did contact my Oncologist and he called in an antibiotic untill I could be seen my the P/S that he recommends. But I also sent pictures to the P/S office that did the work, the nurse and I had become friends. She contacted me today and said that it was the grore-tex that was coming through and it would need to be replaced. Question: does this mean more surgery or what? Now I think Oh why did I every say anything?

Stepaheda, but now seem like a stepbackInnocent

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PJ Hamel, Health Guide
1/13/11 6:03pm

Stepaheda, don't get too down - you're still going to be "stepaheda" with whatever you have done going forward! You want this situation resolved, right? I'd guess it might mean MINOR surgery; like, in and out with a local anesthetic, I'd hope. Because you totally want this resolved; you don't want to go through life with a hole next to your nipple. So, while it feels like a step back - keep moving forward, knowing that every positive action you take is another step towards your goal: a fully healed breast. Sending you healing energy, my friend- PJH

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1/15/11 10:36pm

Hi PJ,

Thank you for those encouraging words, I'm trying to keep my head up and a positive out look.

 

I have made an appointment with a P/S this coming Wednesday nite after work. Also, my original P/S would like for me to come in, I thought it would be best to at least inform his office of the situation. They are showing great concern. However, I have a question: Who cover the cost of this? Is this still part of the orginal reconstruction cover by the first Ins.Company? Because it just doesn't seem right for my new employee Ins, to have to cover something that was not done correctly the first time around. How does that work, if you have to go back more than once for treatment after reconsturtion surgery? Want to have a better understanding before I call on Monday.

 

Any information will be greatly apprecitated.Laughing

Stepaheda

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PJ Hamel, Health Guide
1/16/11 9:15am

Stepaheda, I'm not at all an insurance expert. The best I can tell you is read the following, and perhaps print it out in case you have to bring it up to the insurance company. I'm sorry, I just wouldn't know how to approach this - other than to ask to speak to whoever is the insurance "expert" at the place you're being treated...

The Federal Women’s Health and Cancer Rights Act of 1998 states “Under WHCRA, group health plans, insurance companies and health maintenance organizations (HMOs) offering mastectomy coverage must also provide coverage for reconstructive surgery in a manner determined in consultation with the attending physician and the patient.  Coverage includes reconstruction of the breast on which the mastectomy was performed, surgery and reconstruction of the other breast to produce a symmetrical appearance, and prostheses and treatment of physical complications at all stages of the mastectomy, including lymphedemas.”

 

Hope this helps - And, I mistakenly deleted your comment below while trying to reformat this one - sorry, Stepaheda! PJH

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1/16/11 9:34am

No worries PJ,

I'm just trying to stay grounded. I find every since the doctors office said I had to come in for a bit of repair, my emoitions have been up and down. Is this normal or am I over reacting?

 

SteapheadFrown

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PJ Hamel, Health Guide
1/16/11 11:19am

You're not over-reacting at all, Stepaheda. Your emotions are real, and they're yours; you have every right to feel however you feel. Realize that fear and anxiety are just that - emotions. Those, and worry, don't change your situation one bit. So know that you're entitled to these emotions - no guilt - validate them, then try to let them go... Take care, friend. PJH

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1/17/11 9:26am

Thank You PJ,

 

Namaste,

StepahedaSmile

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By stepaheda— Last Modified: 01/17/11, First Published: 01/03/11