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Wednesday, July 15, 2009 Natalie asks

Q: I have idc grade 3 with er/pr and HER2 negative (triple neg.) Need Information.

I have idc grade 3 with er/pr and HER2 negative (triple neg.)  I had a lumpectomy on my right breast/lymph nodes were cancer free. I am 48 yrs. old, should i only have radiation or radiation and chemo.?

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Answers (1)
PJ Hamel, Health Guide
7/15/09 6:33pm

Natalie, that's good news, no cancer in your lymph nodes. However, I believe with triple negative cancers, the usual protocol is chemo. Since long-term hormone therapy won't work for you, they want to be sure to knock out as many cancer cells as possible right at the start. What does your doctor recommend for you? PJH

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7/15/09 6:38pm

Surgeon is setting up apts. with radiologist and oncologist next week. He recommended 4 IV chemo. treatments/do not know what drugs to be used yet, then 6 weeks radiation on area of lumpectomy.

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PJ Hamel, Health Guide
7/15/09 6:40pm

That sounds right, Natalie - I'd go for it. Good luck, and stay in touch here - we can help. PJH

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7/16/09 11:11am

Does this mean I may have cancer somewhere else in my body? Will I have to have a Ct scan or other testes to see if there is cancer in my body? Who (dr/oncologist) will tell me this?

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PJ Hamel, Health Guide
7/16/09 1:02pm

Since yournodes were clear, it's very unlikely the cancer has spread outside your breast. But they like to do chemo anyway, just to make absolutely sure. Different hospitals approach the pre-treatment routine different ways; I did, in fact, have a positive lymph node, but they didn't bother to give me a full body scan, or anything else; just chemo. So - wait and see. Yes,your oncologist will discuss this all with you fully. it really helps ify you have someone to come with you and take notes; the amount of informaiton loaded onto you can get pretty daunting during those first few visits... Natalie, you're going to find out that you're stronger than you ever imagined. Trust me; you'll get through this! Millions of us have. We're with you. PJH

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7/19/09 5:52pm

I went to the oncologist on Friday the 17th. She wants me to take a standard 12 weeks of chemo/1 treatment every 3 weeks. Then ANOTHER 12 weeks of Chemo/1 each week. (Imprexia- sorry for the spelling)Then Radiation for 6 weeks. I REALLY dont think I can take 24 weeks of chemo. Why so much?? Please help me make a decision is it my right to say I only want the standard 12 week chemo and then radiation or do I have to take the next 12 weeks of chemo?

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PJ Hamel, Health Guide
7/19/09 6:01pm

Again, Natalie, triple negative breast cancer demands a "one-shot" approach - best to knock it out right at the beginning, because there's no preventing a recurrence later on via hormone therapy. Why prejudge yourself? It all sounds awful now, it's true; but I'm betting you'd find you're stronger than you think - much stronger.

 

That said, of course it's your right to refuse any and all treatment. Would the full course have more chance of preventing a recurrence? I'd guess so, otherwise they wouldn't recommend it. But if you're someone who feels comfortable taking a chance on less treatment, and not get down on yourself if you have a recurrence later - then simply tell the doctor how much and what kind of treatment you'd like.

 

If it were me (and it was me, 8 years ago), I'd go for the most aggressive treatment possible, for the best possible result. But that's what was good for ME. It's your body, and you need to do what's best for YOU. Good luck - PJH

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7/18/10 9:43pm

I have the same grade 3 and am triple negative.  I had a lumpectomy and have had my first treatment.  I will have 6 different chemos for 6 months of treatment - 2 treatments every 4 weeks.  I feel great now 2 weeks later and am ready to fight.  My friend said I am very brave and she is proud of me.  It may sound silly but makes me feel good.  My husband is by my side but does not fully understand how I am feeling.  I wish you good luck and we will get through this together.  Natalie you can do it - I am 60 years old and this will be over the end of the year and then I will have radiation before leaving for a holiday to celebrate.  I know it will get harder but am ready to do it with people who love and support me.

BLH

 

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By Natalie— Last Modified: 03/12/11, First Published: 07/15/09