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Thursday, July, 24, 2008

Living with Quiggles: Trying to Pass as Normal

by  Cheryle Gartley
Monday, February 18, 2008
Cheryle Gartley
Cheryle Gartley
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Cheryle Gartley is the co-founder of Label Me Not, a new initiative...

Cheryle Gartley

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Individuals who are managing stigma by trying to pass often face special timing issues and therefore live "on a leash" so to speak, a phrase which refers to the fact that people stay close to the place (usually home) where they can refurbish their disguise or simply rest up from having to wear it. Therefore they can only move a certain distance from this sanctuary without losing control over the information that they are trying to keep hidden. An example of living on a leash is someone with a colostomy who may schedule time away from home for travel and social contacts in relation to when they schedule their daily irrigation.

 

Another passing strategy is to either conceal or reject the signs that have come to be stigma symbols. For instance an individual with declining eyesight who avoids using bifocals; or someone with hearing loss who refuses a hearing aid because these "tools" might suggest old age and the accompanying stigma of aging. In another effort to pass some people may chose what they consider the lesser of two evils, or in this case the lesser of two stigmas. For instance, a hearing impaired person might purposely give others the impression she is a daydreamer, absent minded, or simply easily bored - more content to be stigmatized for this attribute than to have to "confess" to deafness.

 

As if these costs aren't high enough, avoiding stigma by passing often drags another person into the challenge, using up their time, energy, and when you get right down to it, often a large part of their life. A wife of a person with a colostomy may be asked to remain home and "on call" to answer the telephone or the door bell so that irrigation might continue uninterrupted; or the husband of a woman who wishes to pass as someone with normal hearing might be asked to stay glued to her side at a party in order to unobtrusively give her clues in order to keep the conversation ball aloft and her hearing difficulties hidden. Thus passing is not always just between the person trying to manage stigma and strangers, but unfortunately may draw others into the endeavor.

 

In just this brief overview, it seems obvious that the cost of passing is tremendously high - it sure does make one wonder at the compulsive need all of us seem to have, whether stigmatized or not, to be considered "normal". The subject of passing and appearing normal makes me think back to the small central Illinois farming community I grew up in. The people were salt of the earth types; however it was a place from which, like most teenagers, I was dying to escape. Now I'm beginning to have a new respect for the people and one of the local favorite expressions, which I considered rather lame at the time when my father used it constantly: "To each his own said the farmer as he kissed the cow." Can anyone tell me, why can't we say "hurray for the differences" like this quaint expression implies and mean it rather than stigmatize it? Maybe we should all go kiss a cow and give the idea of celebrating the differences some serious thought - in addition to puzzling a heck of a lot of cows.

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I have a questions about my mother who has alzheimers ,at times she wiil see herself in a mirror

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