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Tuesday, November, 24, 2009
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Living with Quiggles: Tilting at Windmills?

Cheryle Gartley
Cheryle Gartley
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Cheryle Gartley is the co-founder of Label Me Not, a new initiative...

Cheryle Gartley

Monday, August 18, 2008
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If I quit writing these articles or lecturing about defeating stigma (when yes, I could be spending my weekends shopping or at the art museum, or doing any of the things on my went nuts "to do" list ), and if you turn away without making a vow to help defeat the stigma in healthcare that caused this death, then who will speak for a little 14 year old girl whose only crime was being born with a Quiggle who died because her mother was EMBARRASSED?  We really do have to ask ourselves, who are we if we don't stand up against this atrocity.


We have come to see the day when stigma is not just a social hardship, stigma has killed.   Last week a mother, embarrassed by a daughter with a Quiggle, was charged with murder and ordered held without bail.  Although part of the greatness America is built upon is the principle of innocence until proven guilty, I'm sure you'll agree with me, there are times when this principle is difficult to abide by. 

I can only hope as this case goes to trial that hundreds of Quiggle-holders from Philadelphia will pack both the court room and the hallways of justice, and even spill out into the streets surrounding the courthouse.  We need to turn on the national news and see the media squeezing past wall to wall wheelchairs, guide dogs, and other mobility aids so that they can't miss or fail to report for the entire world to see that someone in America cares about the death of a little girl who no one would stand up for when she was alive. 

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