Are there any support groups for corticobasal degeneration?
12/11/08
CBD (corticobasal degeneration - sometimes called corticobasal syndrome) is a type of dementia but a rather rare one. Therefore I am having trouble finding support groups for my parents.
Sunday, February 22, 2009
Have you had any luck finding support groups? My Mom was diagnosed with PSP but her symptoms are are like CBD. I would like to be able to talk to someone who is going through this.
Connie
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re: Are there any support groups for corticobasal degeneration?
Denise Melton
Saturday, July 18, 2009 at 04:52 PM
Denise Melton
Saturday, July 18, 2009 at 04:52 PM
re: re: Are there any support groups for corticobasal degeneration?
Connie
Sunday, July 19, 2009 at 08:38 AM
Connie
Sunday, July 19, 2009 at 08:38 AM
How old is your husband? They had my Mom start taking Q10 30mg a day - She had been on Sinnemet but it made her sleep all the time and she had a hard time carrying on a conversation. One thing that has helped my Mom is water walking - her neurologist thought she should be in a wheel chair last August - so far she is just using a walker (wheelchair for longer distances)
Hi Connie:
My husband was just diagnosed with CBD. I am also looking for a caregivers website. I so desparetly want to talk to other people to see what they are experiencing if any medications are working, etc. I am looking into Lithium studies.