I have Complex Regionnal Pain Syndrome.  It is a rare, incurable disease with a variety of symptoms including severe nerve pain (which often spreads beyond the initial site of the  injury.)  Because it is a newly recognized illness and treatment is elusive, the usual medical codes required for insurance payment (based on common, acceptable treatment are not well defined.)

 For example, both my feet/lower legs swell, redden, and ache if I do not put on compression hose first thing in the morning. My insurance will only allow two pairs of these quite costly socks per year which are not nearly enough.   

My illness is exacerbated by stress.   Each time I have to deal with an insurance denial  for a medicine or treatment I get an episode of "screaming'' feet.  

Any ideas for getting the insurance company to understand my varied medical needs (due to the CRPS) which are frequently not (yet) listed in their approved codes.