chronic pain and pump

kitty Community Member March 30, 2009
  • I just located this site a week ago, am in the process of being scheduled for a morphine pump after being in pain management since 1997 and after 4 spinal surgeries, which involved a fusion in the cervical area, and most of the lumbar back. Needless to say, both fusion surgeries had complications, that can not be fixed, the cervical fusion actually left a small pin hole in my neck under the plate, and one level did not fuse. IF they try to fix it, they said i will not survive the surgery, i'll bleed out in 2 minutes. As of now, I take 320 mg.of morphine dailey, including muscle relaxers and pill for depression. Depression you say, well after feeling as if i've lost the last 10 years of my life, and having a family and couple friends who really don't understand Pain 24 hours a day and the effect it has on your life, i'd imagine most chronic pain patients deal w/depression. Oh, did I mention thru all this my husband 25years, best friend, and someone i cared for for 24 years died? I've remarried, but he's not dealing with well w/ a pain patient. He did for the first couple of years, but now says i marriend him because I needed someone's help, and i'm still in love w/a dead man. True.......Enought about myself, I've really enjoyed reading everyone's posts, thank yu, they have helped. But, I do have a couple of questions I have not run accross. First, i'll just put it out there, SEX, how does the pump effect this (not that i'm sexually active, i'm actually on the verge of a divorce), but i'm hoping to still have a life before i'm too old, so, how does it, or will it effect a sex life? And, how long should you wait before you have sex after the procedure? Could it tear out the tube, leaving a needle floating around your spinal canal? Which is anothe thing, i've read where some had the tube come loose, can't that needle break thru anything important in the spine causing all sorts of complications? Second, my Pain management team natually has a doctor who does these procedures, but my primary doctor wants to send me to a neurologist to have the procedure done, does anyone have any thoughts on this. Also, i'm kinda small, but do have some meat on my tummy, how much will the pump expand out, and what will it look like? i've looked everywhere on line, seen pictures of the inside of the body and what it details and looks like exray wise, but can anyone direct me to a site showing the outside of the body and what it looks like sticking out 1/2 of an inch i'm told by my doctor? Maybe this sounds vain to ask, but i'd just like to know. thank you for any answers anyone has to give, oh, and what kind of recovery time am I looking at, 6 weeks is what my doctor said. Guess that's a stupid question when i've been down the last 5 years. Going out to lunch can put me in bed for 3 to 4 days. My pain averages 6 to 8 on non active days, doing anything increases it for the next few. But,i'm sure everyone know's how that is. I've avoided the pump because i've just had so many surgerie's in the last 10 years (8) and that does not include all the testing w/needles and all the steroid injections 3 times a year. But, now i figure i have nothing to loose, if this doesn't help, I give up. So, if anyone can give me just those few answers, i'd really appreciate it, and thank you again, kitty,,,,,,,
3 Comments
  • Karen Lee Richards
    Health Guide
    Apr. 04, 2009

    Hi Kitty,

     

    Welcome to ChronicPainConnection!  I'm sorry to hear of all you've been through the past several years.  We have a wonderful group of people here to offer you support and encouragement. 

     

    The very best place to get answers to your questions about pain pumps is on our forum.  There is an excellent ongoing thread entitled...

    RHMLucky777

    Read More

    Hi Kitty,

     

    Welcome to ChronicPainConnection!  I'm sorry to hear of all you've been through the past several years.  We have a wonderful group of people here to offer you support and encouragement. 

     

    The very best place to get answers to your questions about pain pumps is on our forum.  There is an excellent ongoing thread entitled “Willing to share experience with intrathecal morphine pump implant” that was started and is maintained by Bob Englebardt.  It's a pretty long thread, but rest assured your post will be read and answered.  If you don’t find an answer to your question already there, just click on the last page and post your question.  (If I were you, I'd just copy this Sharepost and paste it into the forum so you don't have to rewrite it.)  Here's a link to the section of the forum you'll need: 
    http://forums.healthcentral.com/discussion/chronic-pain/forums/a/tpc/f/7251032/m/8491036

    (Note:  If you've never been to the forum before, you'll have to register separately from your registration here on ChronicPainConnection.  You can, however, use the same e-mail address and password if you like to make it easier to remember.)

     

    I hope you'll become a regular part of our little community.

     

    Karen

  • badbackytoo
    May. 30, 2009
    I thought i had it bad. I too, had a failed neck fusion in 03 at c-5-6-7 front and back, w/11 screws and 4 metal plates and the fusion in the back failed did not fuse and later found out that doc put in the wrong size metal plates in back and have to come out but not going through that again not on your life, these docs all just want to make some dough offa...
    RHMLucky777
    Read More
    I thought i had it bad. I too, had a failed neck fusion in 03 at c-5-6-7 front and back, w/11 screws and 4 metal plates and the fusion in the back failed did not fuse and later found out that doc put in the wrong size metal plates in back and have to come out but not going through that again not on your life, these docs all just want to make some dough offa me for more ops. i thought about having the spinal pump but then i thought with my luck something will go wrong as it always does, so for now at aged 53 after being divorced over all this husband dont want an old lady who can not do all that is goin on, i am resigned to living alone, this way no body tells me what to do or whento get up as i cant sleep anyways. so at least i got some money enough to buy me my own home and acar. but am scared to drive around much one more idiot to hit me, the docs all say i am done in for permanently, as in dead. so i have fibro, myofacia pain, two pins in the left shoulder for rotator cuff op, and right liiac crest op for back of neck op and that op on my hip still hurts bad, never healed right from it. take too many meds to write down and still in pain 24/7. docs tell me that op has shaved off 12 years of my life, that neck fusion nearly bleed to death an took 5 pints of blood. had a lamenectomy-spinal process gone in back of neck, in front a corpectomy and foraminotomny. later learned that doc who did the neck op did 140 other unecessary ops and was whistle blown by an anesthologist who worked with her in the OR and DOH nearly took her liscense away, could not sue the doc as too many already did before me and now she doesnt have any more ins. DOH dismissed my claim against her for doin a wrongful op. they are all in cahoots i think. so here i sit in terrible pain the pm doc doles out the vicodin in small amounts as if that helps me which it dont but they like to do eppi;s and cant take anymore of them as they runied my immune system with the depo medrol crap. not a happy camper but feel for ya seriously!
  • kitty
    Apr. 20, 2009
    I just located this site a week ago, am in the process of being scheduled for a morphine pump after being in pain management since 1997 and after 4 spinal surgeries, which involved a fusion in the cervical area, and most of the lumbar back. Needless to say, both fusion surgeries had complications, that can not be fixed, the cervical fusion actually left a...
    RHMLucky777
    Read More
    I just located this site a week ago, am in the process of being scheduled for a morphine pump after being in pain management since 1997 and after 4 spinal surgeries, which involved a fusion in the cervical area, and most of the lumbar back. Needless to say, both fusion surgeries had complications, that can not be fixed, the cervical fusion actually left a small pin hole in my neck under the plate, and one level did not fuse. IF they try to fix it, they said i will not survive the surgery, i'll bleed out in 2 minutes. As of now, I take 320 mg.of morphine dailey, including muscle relaxers and pill for depression. Depression you say, well after feeling as if i've lost the last 10 years of my life, and having a family and couple friends who really don't understand Pain 24 hours a day and the effect it has on your life, i'd imagine most chronic pain patients deal w/depression. Oh, did I mention thru all this my husband 25years, best friend, and someone i cared for for 24 years died? I've remarried, but he's not dealing with well w/ a pain patient. He did for the first couple of years, but now says i marriend him because I needed someone's help, and i'm still in love w/a dead man. True.......Enought about myself, I've really enjoyed reading everyone's posts, thank yu, they have helped. But, I do have a couple of questions I have not run accross. First, i'll just put it out there, SEX, how does the pump effect this (not that i'm sexually active, i'm actually on the verge of a divorce), but i'm hoping to still have a life before i'm too old, so, how does it, or will it effect a sex life? And, how long should you wait before you have sex after the procedure? Could it tear out the tube, leaving a needle floating around your spinal canal? Which is anothe thing, i've read where some had the tube come loose, can't that needle break thru anything important in the spine causing all sorts of complications? Second, my Pain management team natually has a doctor who does these procedures, but my primary doctor wants to send me to a neurologist to have the procedure done, does anyone have any thoughts on this. Also, i'm kinda small, but do have some meat on my tummy, how much will the pump expand out, and what will it look like? i've looked everywhere on line, seen pictures of the inside of the body and what it details and looks like exray wise, but can anyone direct me to a site showing the outside of the body and what it looks like sticking out 1/2 of an inch i'm told by my doctor? Maybe this sounds vain to ask, but i'd just like to know. thank you for any answers anyone has to give, oh, and what kind of recovery time am I looking at, 6 weeks is what my doctor said. Guess that's a stupid question when i've been down the last 5 years. Going out to lunch can put me in bed for 3 to 4 days. My pain averages 6 to 8 on non active days, doing anything increases it for the next few. But,i'm sure everyone know's how that is. I've avoided the pump because i've just had so many surgerie's in the last 10 years (8) and that does not include all the testing w/needles and all the steroid injections 3 times a year. But, now i figure i have nothing to loose, if this doesn't help, I give up. So, if anyone can give me just those few answers, i'd really appreciate it, and thank you again, kitty,,,,,,,
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