Monday, February 13, 2012

The 10 Secrets of Thriving Chronic Pain Patients

Written by

Stacy

Stacy

Mon, November 12, 2007

Additional Posts

View all Posts »

1. Do what you love -- a lot.
If you don't have something, get something. Try new things, you never know, you might find a hidden talent. Take a class, volunteer. Like children? Find a school and read to the kids. Like animals? Volunteer at the Humane Society. Find something that makes you happy and makes you feel useful and wanted. It helps to take the focus off of yourself.

2. Make sure you keep those you love close.
Relationships are hard work, and even more so with a chronic illness. Try to put yourself in your family, friends, and significant other's shoes. They too are effected by your illness. They feel guilty when they can't help when you are feeling awful. It is important when you do feel good to include those around you.

3. You don't have to stop dreaming when you become ill, you just may need to tweak those dreams a little.
Don't stop making plans for the future.

4. Continue researching and asking questions about your illness.
New technology and science is advancing everyday. The more knowledgeable you are, the more secure you will feel with your doctors, your treatments, and ultimately, your prognosis. Knowledge is empowering, and doing the best you can to educate yourself will help you feel more secure with your chronic prognosis.

5. Slow down when you need to.
Ever notice how people say, "I'm so busy!!!"? Well, what's so great about that?? Whatever happened to stopping to smell the roses? Respecting your body's limitations and boundaries is a big part of managing your condition. There is nothing wrong with taking a step backward in order to go forward again.

6. Sometimes the "pity party" is a comforting place to be.
Just don't call it your home.

7. Remember what you have gone through and help others.
Very few things are as therapeutic as helping other people get through rough times in their lives. Being able to actually use what you have learned to help others is immensely satisfying.  (Why not share something you're learned now by creating a sharepost?)

8. Don't be afraid to reach out for help.
I think you will be very surprised at the number of people who are there for you. Remember, it is not a sign of weakness.

9. It is okay to take medication when you need it.
Do you think people with diabetes feel guilty when they take their insulin?

10. Chronic pain is real.
It is not "all in your head," and it's not just going to "go away."
You deserve to be heard and to be taken seriously!

In talking to people who thrive with chronic illness and/or pain, I have found that there is a major difference between resignation and acceptance. Remember, my normal may not be your normal. Normal is different for every person.

Negative energy creates negative results. With positivity, it is possible to thrive with a chronic illness.
11/16/07 7:52pm

    Wow Stacy, haven't heard from you in a while & this was a great post.  Thank you for taking the time to share these good reminders for us all.  Hope all is going well for you.

sincerely,

~kat

11/17/07 2:34am

Thanks Kat :)

Yes, I took a little break to get settled here in San Francisco. I did write another SharePost a couple days ago about the past year for me and what life is like after TMJ replacements.  You can find a list of my SharePosts below this post or in my profile.  Hope you are doing well! :)

11/16/07 8:34pm
Stacy, this is such an excellent post. It is a kind of process a pain person goes through while they are learning to live with this type of chronic illness. I've found that my reseach, communication and study of pain and how to live and cope with it, has actually become one of my treatments in and of itself. I can spend hours reading and searching and really concentrating on new ways to cope and find that I have learned to tune the pain out to some degree while doing my searching. So I think you actually can use the time spent as a treatment of sorts. Thank you for the great post, I've never really put it in perspective as you have and I appreciate the information Betty
11/17/07 2:35am

Thank you so much for your kind words! :) 

 

Yes, anything that is distracting is good! If a chronic pain patient can find something that they love to do enough that they can lose hours while doing it, that's great!

 

Whatever keeps you going and keeps you positive is worth it.

:)

stacy 

11/17/07 12:20pm
I'd like to feel I'm "thriving" most days.... and these are the things that keep me going. Great post Stacy!! Thanks!
11/17/07 5:53pm

Nic,

I'm SO incredibly proud of you! You don't have to think you are thriving... You most definitely ARE!   Don't think twice about that... you are a role model for all of us who want to be successful wives, mothers, friends, sisters, and daughters with chronic pain.  

  In my eyes, you are a perfect example of how to thrive with a chronic illness.  This SharePost was inspired by people like you. 

So, pat yourself on the back.... you deserve it!

Love,

 Stacy 

11/17/07 5:01pm

I WOULD LOVE TO.

but that is next to impossible

Drs deflect me

I get a rx for pain meds and get

nothing else.

no advise,

pain clinics refuse to allow me

treatment?

I dont understand that?

they know nothing about me

and have no records

i have done nothing wrong..

when i relocated to NJ from

Az.

the dr refused to fill my rx,so then

I had to

""dr shop" or face withdrwal and suffering even more for what reason?

just to suffer even more and go back on meds?

I dont understand what is wrong here in reguards to me?? any idea?

i am open for any comments.

linda

11/17/07 5:56pm

Hi Linda,

 I would love to help you come up with a plan. I wrote you a private message, and would love to talk with you more about how to get your healthcare back on track.  

Also, just FYI, I have a SharePost in the works about how to be a "smart patient" and get the care that you need (and deserve). I have a book recommendation/review for this subject as well.  Hopefully it will help people in your situation.. because unfortunately, there are way too many out there.

Anyway... let me know when you would like to talk and I'll be available!

Sincerely,

 Stacy 

11/18/07 2:13am

Linda

It just infurates me to see some one such as yourself suffer so badly with no help.  There just has to be something that we could come up with that would help you.

Stacy has a great deal of experience with all pain and she also has experience with relocation and finding doctors that can help you.

I hope the two of you can come up with some positive results for your healthcare.

As a person with pain, you have the right to have your pain thoroughly assessed and promptly treated.

Please let me know if I can help search or find anything for you.

Betty

Anonymous
M. Baker
11/24/07 10:33pm
I have been in chronic pain since 1999 when I fell off of a ladder and herniated a disc, thus had to have surgery 6 months later,,that was the time my life changed in a way that I would have never thought.  I agree so much with the importance of practicing these 10 Secrets in your life or you won't be able to have a happy productive life.  I also have an auto immune disorder,,sometimes I want to scream I am to young for all of this!!  There is not a moment that goes by that I am not reminded that I am in chronic pain.  Through all of this, I have gone thru a divorce, after almost 41 years, but, I have looked on the bright side of everything, not always easy, but, this makes you look forward to that next day.  I work part-time at an elementary school, help with my three grandchildren and I don't always stick to my limitations or try to ignore the pain, which is a no-no.  But, some people are just stubborn with pain and I guess that is me, I am not going to let it get the best of me.  I am under the care of a pain mangement Dr. and try to do what Stacy Stone has said.  So thank you for saying what I try to do each and every day.  M. Baker
Anonymous
Denise
12/26/08 11:31am

How do you stop being so negative when ther is nothing noone can do for you with chronic noises in your jaw?

3/ 6/09 9:51pm

Stacy, excellent advice. Thanks for the reminder...it's hard to think or do anything when the pain seems to rule your life. Posting these items on the frig will help me when those "negative" moments arise.

Anonymous
Tala
6/18/09 11:57pm

What a wonderful way to look at life !!

And to think the realization came to me only recently.

Due to prolonged delay in our mail order,  I went through full detox aka sheer hell.

Having fibromyalgia,

TMJ,

protruding discs C1 through C7,

spinal stenosis, 

pinched nerves in neck,

chronic fatigue,

restless legs,

sleep apnea,

chronic sinusitius,

r-shoulder-hip-wrist-ankle dysplaisia,

very sore tender spots on top of my head,

clothes feel like they burn my skin,

my body core heat feels like a searing inferno, this is something I've yet to get diagnosed.

My ANA levels are over 300.

So you see it was one very difficult time period for me and I had no idea that anyone would care, much less want to listen to me talk about what a mess I'm in, totally non functioning without my medications , someone that truely needs strong medication in order to function on a daily basis without abusing them.                                                                                                                                                                                                            

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (9574) >

Health Centers