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Thanks
Bekah
Friday, March 30, 2007 at 10:58 PM -
Terrible
Anonymous
Monday, April 02, 2007 at 11:55 AM -
Zelnorm
Dianna Lazan
Monday, April 02, 2007 at 09:03 PM -
staying on the medication
Stacy Stone
Monday, April 02, 2007 at 09:16 PMI am extremely glad that at the very least the company is allowing some patients to stay on the medication if they have had limited success with other meds/treatments.. but I wonder... what does this entail? I will try to find out. Dianna, it sounds like you could really benefit from this information. Has your doctor told you anything yet?
Hope you are all doing ok!
re: staying on the medication
Dianna Lazan
Wednesday, May 30, 2007 at 04:27 PMMy gastroenterologist refuses to place me in the Emergency Access Program for Zelnorm. They put me on Amitiza, which has horrible side effects of nausea and headaches. I am a headache patient that has gone through 14 surgeries and millions of painful injections, wiping out all our savings to treat the headaches, only to be placed on a medicine that causes them. This is a quality-of-life issue that should be my choice. I really like my gastroenterologist, but it looks like I will have to change doctors if I have to. I view birth control pills as more dangerous than the medications of mine that the FDA has pulled off the market. Cafergot is another one that was pulled, the only medication effective for my migraines with aura. I have contacted the pharmaceutical company for Zelnorm, and they said I have to have my doctor contact them. I am so frustrated, especially because the Amitiza does not work as well and with significant side effects. I see you suffer from headaches to, so you can relate. I also have TMJ among several other painful conditions. Good luck to you. -
what!!!
Anonymous
Friday, April 20, 2007 at 01:14 PM -
Zelnorm
Althea
Saturday, April 21, 2007 at 09:18 PMInteresting. I'v been taking this med for over 2 years and THOUGHT I loved it. It is the only thing that "worked". I was Dx'd with some heart issues last year. A first, because I'v never had any problems before. I don't think I even mentioned to the cardiologist I was taking Zelnorm. I want to find out what EXACTLY are the heart problems caused by Zelnorm. Where do I turn now?
re: Zelnorm
Dianna Lazan
Wednesday, May 30, 2007 at 04:31 PMWhile I did develop severe hypertension "out of the blue" last year, since being taken off Zelnorm, my blood pressure has not dropped one bit; therefore, give me my Zelnorm back!!! My cardiologist still has not said anything about this medication. I hope somebody on the FDA suffers from this horrible disorder and does something to get this back on the market. My stomach is so distended that I cannot even leave the house, and I am reduced to wearing my pajamas, as clothes are too uncomfortable. -
I almost cried when my doctor told me...
tinkerbell
Saturday, May 26, 2007 at 12:54 PMI was seeing my doctor to ask for an increase in pain meds for my chronic jaw pain and she told me I had to stop taking my Zelnorm for IBS. I could have cried, it is the only thing that has ever worked for my IBS! She did not have any alternative for me other than fibre and fluids. If any other forms of this type of medicine become available let me know so I can check on its approval in Canada. Back to painful constipation...
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I have IBS and will DEFINITELY be staying away from Zelnorm!
Hugs,
Bekah