Detoxification

Stacy Community Member April 03, 2007
  • There comes a time in your disease when you just have to take a stand. It may not be what is recommended by your doctor, but you know in your heart that it is something you have to do for yourself.


    Having said that, I am now going to tell you about my experience with going off of opiate medication. Please bear in mind that this was my personal decision and not medically recommended by my doctor. I am not recommending anyone try this; I just wanted to share my experience.

     I have been on some type of opiate medication since 1999. I started long-acting opiates in 2003, beginning with Oxycontin and oxycodone for breakthrough, and trying Methadone, Duragesic, and Kadian (morphine sulfate extended release) at some point. I was recently on a trial for Fentora for a year and a half, which is a short-acting fentanyl medication that is being approved for chronic non-cancer pain. 


    December 2006 was a particularly hard month for me. My friends were all preparing for the holidays and making big plans for the new year. I, however, was going to the doctor and living my life in what I thought was a rut. In December, I began a search for some place that would allow me to medically detox off of my pain medication. My biggest concern was that because of the amount of medication I was on, perhaps my pain was not as high as my tolerance was. I also had concerns that maybe these medications just weren't working for me anymore. I felt that the only way to find out was to just... get off of everything.

    I could not find a place geared towards pain patients. All I could find were places that were geared towards addiction with the twelve step process deeply entrenched in their daily routines, with zero tolerance towards taking ANY medication at all the minute you enter the program, and once you were out. I felt like I had no options, so I picked the best place I could find. They detox patients with a "narcotic cocktail"—lowering the dosage every 4 hours over 10 days until you are "drug free." You are then expected to go on to a 30 day rehabilitation program. My main goal was not to rehabilitate, but to find out whether or not I could live and function on a day to day basis with less (or no) medication. 

    I left for the facility on December 26th for a 10 day stay. The first three days were okay, but I didn't know that I was pretty sedated, at least under their rules. My mother and I developed a code. We both knew it wasn't going to be a cake walk, but we had heard horror stories about other facilities and wanted to make sure that if I ever reached the point that I couldn't handle it anymore, all I had to do was say the code word and she would get me out. Fortunately, I never used it... but thinking back on it, I should have. I voluntarily put myself through what I describe as hell, and all I really had to do was say the word. After the first three days the dosages started lowering to the point that I would get severe withdrawal symptoms in between the 4 hours. I had trouble sleeping, in fact I'm not sure that I did after a while. I was also in there with patients who were suffering from a different kind of addiction. My problem, if you could call it that, was that I took medication for my pain, whereas they seemed to have taken pain medication as recreation.


  • Finding someone who was a patient or who worked there that was sympathetic to my needs was nearly impossible. At first, they all thought that I was lying. It wasn't until later when I was curled up in the fetal position in "my chair" that they realized that I truly was a pain patient, not an "addict."  People were nicer to me after that, but they still couldn't help me. They still pushed a "drug free" life and maintained that it would be the "best" for me.

    I was appalled at the misunderstanding that even the medical profession has of the chronic pain patient.

    We are not addicts, we are suffering, and we deserve to be treated as such.

    I have not shared this story in a public forum until now. I wanted to make sure that when I wrote it, I could write it from a more objective viewpoint. I ended up staying 14 days because my withdrawal symptoms were so severe. I stayed because I honestly thought that they understood.


    Now, I'm not so sure they did. It didn't work.

    It has now been four months since my detoxification experience and I am back on pain medication. In fact, I'm back on the same amount that I was before I went. However, I have to say that it was worth the effort. I never would have known the true intensity of my pain had I not gone off of the medication. I now know that I am a chronic intractable pain patient… and I'm dealing with it. I'm not okay with it yet, but I am dealing with it.

    This entire experience has motivated me even further to help those of you who may be going through the same thing.  As I said, I haven't shared these issues with anyone yet and it was difficult for me.  I will go into more depth in later posts.  Meanwhile, I encourage you to share your opinions on what I went through, ask any questions, or share your own experiences.

36 Comments
  • jane doe
    Mar. 14, 2012

    there are not many. once you are injured, become a pain mgmt labeled junkie; life views you as less of a person than others. i hate it. but there it is. i cannot imagine a person deliberately destroying one's back, going through surgery, bone grafts, implants and therapy, just to get high.  ironically, the high is not there when in pain. which is...

    RHMLucky777

    Read More

    there are not many. once you are injured, become a pain mgmt labeled junkie; life views you as less of a person than others. i hate it. but there it is. i cannot imagine a person deliberately destroying one's back, going through surgery, bone grafts, implants and therapy, just to get high.  ironically, the high is not there when in pain. which is constant, some days not so bad, some horrific. we can pray, hope, curse, and bitch, but who knows what it will take to change social views and judgements; and our government's attitude toward pharmacutical lobbyists who earn huge money buying votes to get dangerous products on the market and in our bodies. when will the broken get a break?  i wish anyone in this trap the very best of luck and wish you better days.

     

     

     

     

     

     

     

     

     

     

     

    • BB
      BB
      Jul. 29, 2012
      I hear all of you, I am 66 years old , a doctor put me on fentanyl patches and suckers for peripheral neuropathy 15 years ago. I am very close to being in a wheel chair now . They keep telling me I won't be able to handle the pain without the meds but I am at the point ghat I really don't know if the meds are really helping my pain, because I am in terrible...
      RHMLucky777
      Read More
      I hear all of you, I am 66 years old , a doctor put me on fentanyl patches and suckers for peripheral neuropathy 15 years ago. I am very close to being in a wheel chair now . They keep telling me I won't be able to handle the pain without the meds but I am at the point ghat I really don't know if the meds are really helping my pain, because I am in terrible pain with them and I definitely know my body is totally addicted to the meds. I have tried to not take them but that doesn't last. I am so scared I don't know what to do. I'm hate something having such control of me. I'm scared of winding up in a nursing home on this stuff and someone not seeing that I get it properly. I am scared of having a heart attack trying to go off of it at my age. I am on 75 mg fentnyl patch every other day and 4 to5 600 mg actiq suckers a day.. I have heard that you can go somewhere in las Vegas and be put to sleep to be detoxed. Does anyone know anything about this place? I live in Tennessee , perhaps there is a place closer. I'm sorry if I am sounding like a whiner but I just found this website and realize there are so many of other people like me and perhaps I'm not such a freak. God bless all of you having problems with pain and medications. You are in my prayers along with myself. If you have any suggestions for me they will be appreciated. It has been a blessing to be able to tell this to someone.
    • Going through tortur
      Aug. 12, 2012

      I have been on dilaudid and norcco and xannax foe over thee yrs. 4x a day. Yhey aregetting less effective and I ran out early. Iwas afraid to ask dr. to up meds, so I tried coke. did not work and had to go to ER. They did a drug screen and foun the coke and no opiats. My Dr. accused me of selling my meds to get cocain. And has pulled me off all my meds. Er...

      RHMLucky777

      Read More

      I have been on dilaudid and norcco and xannax foe over thee yrs. 4x a day. Yhey aregetting less effective and I ran out early. Iwas afraid to ask dr. to up meds, so I tried coke. did not work and had to go to ER. They did a drug screen and foun the coke and no opiats. My Dr. accused me of selling my meds to get cocain. And has pulled me off all my meds. Er said I was having a panic attack because I was out of my meds. I spent the night in hospital and problems went away.  Without my xanaxx And pain meds it is sure to happen again. I am in crazey pain my right foot i swollen. And I,d rather be daed than go through this pain. This come from my general practitioner who only perscribes my anxiety pills xannax. He sAID HE WOULD PASS ALONG THE INFO TO MY neurologist woho perscribes my pain meds. I hjave a wife  and son and it kills me for my son to see me go through this pain he is only 6 yrs old.I see him tommorow if he takes my meds I can' live in this kind of pain. What can i do this torture.

  • Ny B.
    Dec. 15, 2011

    Wow Stacy Bless You (not sure if you're the religious type or not but had to say Bless You). You shared  just enough to get my taste buds worked up... ;)

    I too am a pain patient, who suffers from soooo much pain. I was born with sickle cell anemia and had my first pain crisis as a baby (needed an i,v, in my head) have been hospitalized (including...

    RHMLucky777

    Read More

    Wow Stacy Bless You (not sure if you're the religious type or not but had to say Bless You). You shared  just enough to get my taste buds worked up... ;)

    I too am a pain patient, who suffers from soooo much pain. I was born with sickle cell anemia and had my first pain crisis as a baby (needed an i,v, in my head) have been hospitalized (including E.R. trips) over 1000 times and remembering having to carry pain meds to school with me once I entered High School, I'm now 32 so this is definitely going to be a huge struggling process for me. 

    I went cold turkey from my meds about 3 years ago and after getting over the initial hump (first three weeks) I started to feel so much better, then I got sick again! I know this is a severe chronic illness, however there has got to be a way to manage my pain without taking several narcotics or switching them every few years. 

    My question is have you found a way to manage/maintain your pain without the narcotics at all or at least at bare minimum. I'd love to chat so if we could exchange email addresses or something that would be great! Heck i'm sending this from the E.R now....

    Thanks for sharing, Ny

  • LYNNDIE
    Aug. 26, 2010

    I TOO HAVE A TERRIBLE PROBLEM WITH PAIN....FYBROMYALGIA....I TRIED THE MEDICATION FOR THIS (LYCRIA) AND IT CAUSED LIVER PROBLEMS AND DEPRESSION AND LOTS OF OTHER SIDE EFFECTS SO I HAVE  TO HAVE PAIN MEDS FOR MY PROBLEM OR I CAN'T FUNCTION AS A PERSON WHO LOVES TO WORK IN MY FIELD, I TAKE CARE OF A SICK MOTHER, A SICK HUSBAND AND IT IS A MUST FOR ME...

    RHMLucky777

    Read More

    I TOO HAVE A TERRIBLE PROBLEM WITH PAIN....FYBROMYALGIA....I TRIED THE MEDICATION FOR THIS (LYCRIA) AND IT CAUSED LIVER PROBLEMS AND DEPRESSION AND LOTS OF OTHER SIDE EFFECTS SO I HAVE  TO HAVE PAIN MEDS FOR MY PROBLEM OR I CAN'T FUNCTION AS A PERSON WHO LOVES TO WORK IN MY FIELD, I TAKE CARE OF A SICK MOTHER, A SICK HUSBAND AND IT IS A MUST FOR ME AS I AM SOOOOOOOO DEPENDED ON. 

    YES, PEOPLE HAVE TO UNDERSTAND THERE ARE PEOPLE WHO ARE NOT ADDICTS BUT HAVE TO HAVE PAIN MEDS IN THE RIGHT DOSE TO FUNCTION!

    I CAN ONLY TAKE LORECET....NOTHING ELSE...NO OXICOTION, NO LORETABS, NOT VICODION AS THEY ALL MAKE ME SICK TO MY STOMACH.

    THANKFULLY I HAVE A LADY DR. WHO UNDERSTANDS MY PROBLEMS AND DOESN'T THINK I'M A DRUGGIE AS HER MOM ALSO SUFFERS LIKE I DO.

    PLEASE KEEP IN MIND THERE ARE SICK PEOPLE WHO NEED THEIR MEDS AND ARE NOT JUST USING TO GET HIGH...IN FACT...I DO NOT GET ANY FEELING AT ALL FROM THIS MEDICATION I JUST DON'T HURT!

  • Anonymous
    Anonymous
    Feb. 09, 2010

    I READ YOUR ARTICLE AND I FEEL YOUR PAIN. MY 18 YEAR OLD DAUGHTER HAD AN ACCIDENT AT SCHOOL AND SHE HIT HER HEAD ON A CONCRETE PLANTER AND THEN FELL FACE FIRST TO THE GROUND AND HIT HER HEAD ON THE CONCRETE. THAT WAS OCTOBER 2008. SINCE THEN SHE HAS HAD A MIGRAINE IN ONE FORM OR ANOTHER. ALL THE MEDS SHE HAS BEEN PUT ON HAVE EITHER MADE HER SICK AND SHE HAD...

    RHMLucky777

    Read More

    I READ YOUR ARTICLE AND I FEEL YOUR PAIN. MY 18 YEAR OLD DAUGHTER HAD AN ACCIDENT AT SCHOOL AND SHE HIT HER HEAD ON A CONCRETE PLANTER AND THEN FELL FACE FIRST TO THE GROUND AND HIT HER HEAD ON THE CONCRETE. THAT WAS OCTOBER 2008. SINCE THEN SHE HAS HAD A MIGRAINE IN ONE FORM OR ANOTHER. ALL THE MEDS SHE HAS BEEN PUT ON HAVE EITHER MADE HER SICK AND SHE HAD TO BE TAKEN OFF BECAUSE OF THE SIDE EFFECTS, OR THE DOCTOR WILL LEAVE HER ON IT FOR 6 MONTHS OR SO AND THEN DECIDE SHE NEEDS TO COME OFF THEM BECAUSE THEY ARE ADDICTIVE. NOTHING IS GIVEN TO HER WHILE SHE DETOXES AND SO THE HEADACHE IS MORE SEVERE. WE WERE TOLD TODAY TO COME OFF ONE OF HER MEDS BECAUSE IT IS A CONTROLLED SUBSTANCE AND SHE IS TAKING TOO MANY OF THEM. THE DOCS ARE MORE CONCERNED ABOUT HER BEING HOOKED ON THEM THAN THEY ARE TRYING TO TREAT THE REASON SHE WAS PUT ON THEM IN THE FIRST PLACE. SHE HAS HAD A CT, MRI, MRA, MRV, AND ALL HAVE COME BACK NORMAL. YET THE HEADACHES CONTINUE. HERE LATELY HER SENSE OF SMELL HAS INTENSIFIED AND SHE COVERS HER NOSE AND MOUTH AT ODORS I AND EVERYONE AROUND HER DO NOT DETECT. SHE CAN BE FINE ONE MINUTE AND THEN SHE WILL SHAKE HER HEAD AND SHUT HER EYES AND TELL YOU HER HEADACHE JUST INTENSIFIED AND IT FEELS LIKE SHE HAS BEEN HIT WITH A BRICK. AND SHE CAN NOW FORCAST THE WEATHER BECAUSE IF A STORM OR A FRONT IS ABOUT TO GO THROUGH OUR AREA, SHE CAN TELL YOU TWO DAYS IN ADVANCE BECAUSE HER HEADACHES G-R-E-A-T-L-Y INTENSIFY. THEN THERE ARE THE DAYS WHERE HER HEAD ACHES SO BAD THAT SHE HAS A BLANK STARE, PUPILS ARE ABOUT THE SIZE OF THE END OF A PEN, SHE IS LETHARGIC AND ALL SHE DOES IS LAY DOWN AND COVER UP.....FOR HOURS....DAYS IF THEY ARE BAD ENOUGH. WE HAVE BEEN THROUGH 5 DOCOTRS NOW AND HAVE AN APPT WITH ANOTHER NEUROLOGIST NEXT MONTH. SHE IS A SENIOR IN HIGH SCHOOL AND WANTS TO ENJOY HER YEAR AND MAKE PLANS FOR COLLEGE BUT HER HEADACHES ARE ROBBING HER OF HER LIFE. MANY TIMES SHE MISSES FAMILY ACTIVITES BECAUSE SHE SIMPLY DOES NOT FEEL LIKE DOING ANYTHING BUT BEING IN A DARK ROOM AND BE STILL AND QUIET. I UNDERSTAND YOUR FRUSTRATION WITH YOUR PAIN. I HAVE EVEN SEEN A NEUROLOGIST STAND AND FLIP THROUGH HER CHART OVER AND OVER WHICH TOLD ME HE DID NOT KNOW WHAT ELSE TO DO WITH HER. WE HAVE TRIED COUNSELING AND MOUTH GUARDS TO KEEP HER FROM GRINDING HER TEETH AND NOTHING HAS HELPED.  SO WHAT DO YOU DO WHEN LIFE HURTS, YOU TURN TO MEDICINE FOR HELP, SOMETHING IS GIVEN TO HELP YOU COPE WITH PAIN, AND THEN THEY COME BACK 6 MONTHS OR SO AND TELL YOU THAT YOU NEED TO DETOX? FRUSTRATED. HOW DO YOU STOP THE CYCLE?  I HOPE YOUR CONDITION IMPROVES. MY DAUGHTER HAS DECIDED SHE IS A MYSTERY DIAGNOSIS.  TAKE CARE.

  • Anonymous
    deb cark
    Feb. 03, 2010

    hang in there swetie! i'm right where your at,looking for a medial detox and a  pain management program-i am on disability and so my only insurance is medicade-which sucks! hardly no-one ccepts it! my email address is debsn56@aol.com

    good luck and write anytime just for support'

    thanks for your honesty.........

    debbie

    • CJ
      CJ
      Mar. 06, 2010

      Hi Deb:

       

      I continue to have difficulty finding my way around this website. I sent you an email since you were kind enough to supply it for support for the other pain/med. agonizer. When you see an email with the subject pertaining to pain, please don't delet it as it is from someone who is suffering with the same issues of pain, med. dependency, and a...

      RHMLucky777

      Read More

      Hi Deb:

       

      I continue to have difficulty finding my way around this website. I sent you an email since you were kind enough to supply it for support for the other pain/med. agonizer. When you see an email with the subject pertaining to pain, please don't delet it as it is from someone who is suffering with the same issues of pain, med. dependency, and a medical profession that is clueless about our population. PLEASE stay in touch. Two heads are better than one and additional support can conquer worlds!!!!

      I wish you and everyone that is enduring this horrible cycle of pain, pain meds, withdrawal, etc. to strive for inner peace.......body, mind, and spirit. I send healing love to all of you.

      CJ

  • Anonymous
    KARI
    Nov. 11, 2009

      I am just like you. i to have been on pain meds since 1998. I feel like if i go through a withdraw without help. I will have a heart attack. I am 55 yrs old and really want to get off this medicine. I am on medicade.and i have not found anyone that takes it. I don'T have money to pay a Doctor.Now. it seem like this pain manger clinic is trying to...

    RHMLucky777

    Read More

      I am just like you. i to have been on pain meds since 1998. I feel like if i go through a withdraw without help. I will have a heart attack. I am 55 yrs old and really want to get off this medicine. I am on medicade.and i have not found anyone that takes it. I don'T have money to pay a Doctor.Now. it seem like this pain manger clinic is trying to stop this medicine. I pray i don't die from this. I TRULLY NEED HELP.

  • Anonymous
    Pat
    Nov. 08, 2009

    Great info!!! I am currently in a similar position. have been on these meds for 10 years and pain is still there. need to know what is really wrong and stop just covering the problem. I feel your pain. and I to am going to try to get off and see what is what.

    thanks again

    Pat

  • Anonymous
    miserable
    Nov. 07, 2009

    Hi my name is mike and i am also going through a rough patch in my life.I have a herneated disk at L5S1 thats contacting all the nerves that run from my back down to my big toe. excrusiating pain, like someone is dumping gas on a fire inside my legs.I started on norcos 2 years ago. A year later  i was up to 14 to 18 a day just to manage. finally it was...

    RHMLucky777

    Read More

    Hi my name is mike and i am also going through a rough patch in my life.I have a herneated disk at L5S1 thats contacting all the nerves that run from my back down to my big toe. excrusiating pain, like someone is dumping gas on a fire inside my legs.I started on norcos 2 years ago. A year later  i was up to 14 to 18 a day just to manage. finally it was like nothing was working.I got aggrevated and flushed what medicine i had left and decided to go through hell. and let me tell you hell was the nicest way i could describe it. i was off the meds for 5 weeks and couldnt bare it anymore, everyday was a job just to see if i could make it a whole day without just giving up on evrything.So i decided to go back to my pain management dr. who is very understanding in what i am going through. ive since then been put on oxycodone 10mgs. 5 times a day, no good. then avinza 60mgs. then methodone 10 mgs. 4 times a day which made me sick as hell. Then he tried me on oxycontin 20mgs. 4 times a day. This is still only taking my pain away about 30%. So then attempted the duragesic patch 50mcgs.  every 2 days. that didnt help as much as the oc's did. so i have now been on opana 20mgs. 3 times a day and 10 mgs. oxycodone immediate release 3 times a day for about 3 days. I am still only getting about 40% relief sometimes less. I cant figure out why such strong medicines are not relieving the pain. I have never abused my medication, maybe somedays i would take 4 instead of 3 but other than that i stick to the way i am supposed to take it. I am running out of options on medicines to take.If anybody can help in anyway i would be much appreciative.

  • Anonymous
    mmollo42
    Oct. 28, 2009

    i my self am in pain 5 years its hard to find doctors who under stand what we are going through chronic pain has no cure so i do understand i really wish that they would make a medication that would last longer .....thank for your story . and good luck.. michael

  • rawn takacs
    Oct. 11, 2009

    Here is a list of meds that I can remember having been prescribed by numerous pain mgmt. doctors.  Lyrica, Nurotin, Gabpreton, anti seizures and anti convulsants, nitorglycerin patches, lidocaine patches, lora tab, oxycoti, dilaudid, numerous creams and ointments, acupuncture, spinal blocks, spinal cord stimulator, nerve decompression surgery, b 12 injections,...

    RHMLucky777

    Read More

    Here is a list of meds that I can remember having been prescribed by numerous pain mgmt. doctors.  Lyrica, Nurotin, Gabpreton, anti seizures and anti convulsants, nitorglycerin patches, lidocaine patches, lora tab, oxycoti, dilaudid, numerous creams and ointments, acupuncture, spinal blocks, spinal cord stimulator, nerve decompression surgery, b 12 injections, vitamins such as benfotiamine, alpha lopiac, xanax for a couple of hours of sleep.  All of this and none of them worked, still in severe pain 24/7.  Numerous ER visits to recieve dilaudid shots, after about 25 visits, my GP prescribed self injections 2mg 1 cc every 4 hrs and now recently increased the dosage 4mg 1cc every 4 hrs.  Still do not get full relief. One Dr. has suggested Prialt (snail venom) in a pump but I have been told the side effects are horrendous. Are there any other suggestions out there from anyone with Dibetic Neuropathy?????  Please Help!

    • rawn takacs
      Oct. 11, 2009

      Also have been on fentyl patches and 1200 mic. fentyl lollipops for break through pain. They do seem to help but can't take them too often.

      Would like to try detox but after reading your story I will think twice about it, I too have been treated like a drug seeker and don't need that mental anguish on top of the pain. 

      Any eperiences out there with the...

      RHMLucky777

      Read More

      Also have been on fentyl patches and 1200 mic. fentyl lollipops for break through pain. They do seem to help but can't take them too often.

      Would like to try detox but after reading your story I will think twice about it, I too have been treated like a drug seeker and don't need that mental anguish on top of the pain. 

      Any eperiences out there with the Prialt??

  • Anonymous
    mgibgis
    Jun. 22, 2009

    I have been on Dilauhdid's and such for about 3 years, I often run out towards the end of my months and go through bad times, I have some friends that also are on pain meds, IE Percocet, Vicodin, etc i get a few from them to get by, this past week has been helll though as they havent had any to spare either and I know I can not go back to my DR for a cpl more...

    RHMLucky777

    Read More

    I have been on Dilauhdid's and such for about 3 years, I often run out towards the end of my months and go through bad times, I have some friends that also are on pain meds, IE Percocet, Vicodin, etc i get a few from them to get by, this past week has been helll though as they havent had any to spare either and I know I can not go back to my DR for a cpl more days. i have gone to Urgent Care places whome give me vicodin 5's which are a tease as appose to what I take so i have to take like 4-6 of them at a time and they will on RX me 20 - 30 at a time...not sure what to do...I do have PAIN real PAIN but I need my pills more than just in pain times, I need it inbetween to get rid of withdrawls . I have 4 children and They dont take daddy dont feel right as an answer....what should I do??? Do I ask for more meds to make it through the month? I get 180 4mg Dilauhdid a month. do I ask for 120 8mgs to do it??? or what shall I do...I hate taking it just for the withdrawl but I NEED it for the pain as well...its like a catch 22....I jsut went to urgent care today at 4pm and they gave me 20 5mg Hydrocodone. it is midnight and I have 10 left and cant get to DR till Tues....10 more will not last till then what do I do? What do I tell my DR... I dont want hime to think I am an addict as i do need it for the pain as well as withdrawl,, I do NOT sell it, but just dont know what to say or how to say it!!

  • Anonymous
    Anonymous
    Apr. 25, 2009

    I had a car accident in 2001 and have been on paid meds since.  My body seems to be screaming for more pain meds and I feel like I have withdrawal all the time.  My husband thinks its menopause (I'm 55).  I have been on the same dosage for over a year and I think these systems are withdrawal.  I am feeling more and more like I am jumping...

    RHMLucky777

    Read More

    I had a car accident in 2001 and have been on paid meds since.  My body seems to be screaming for more pain meds and I feel like I have withdrawal all the time.  My husband thinks its menopause (I'm 55).  I have been on the same dosage for over a year and I think these systems are withdrawal.  I am feeling more and more like I am jumping out of my skin.  I can't sleep at night.  I'm going more than 6 hours between getting a pain med.

     

    I don't know how much I'll feel my pain, but anything is preferable than losing my mind.  I may have to be in a wheelchair, but I'll have my mind back.  I am getting more and more like there is no use for living, even though I'm not suicidal. 

     

    Can anyone help me.  Can I wean myself off these things.  I'm taking 4 x a day Oxycodone 10/650, 4 x a day roxicet 15 mg, and 1 mg of Xanax, 2 x a day Soma.  When I miss or am late with a pill, withdrawal comes later in a nasty way.

     

    Please give any suggestions.  I can't afford a professional detox program.  I don't have insurance.

    • Stacy
      Apr. 25, 2009

      Are you seeing a pain management specialist? They would be able to help you with all of this.  Of course I am not a doctor, but there is one thing that sticks out about your medication.  Have you tried any long acting medications?  Is there a reason that all of your meds (roxicet, oxycodone) are short acting?  Long acting medications last...

      RHMLucky777

      Read More

      Are you seeing a pain management specialist? They would be able to help you with all of this.  Of course I am not a doctor, but there is one thing that sticks out about your medication.  Have you tried any long acting medications?  Is there a reason that all of your meds (roxicet, oxycodone) are short acting?  Long acting medications last over 8 hours and sometimes even longer depending on what medication you are on (for example, the fentanyl patch is worn for 72 hours).  Maybe you could bring this up with your physician?  It seems like it may help with the withdrawal symptoms AND you will not be in excruciating pain or be forced to be in a wheelchair.

      There are options here BESIDES detox. Either way, DO NOT wean yourself off the medication without talking to your doctor. If it were me, though, I would first talk to the doc about long acting meds BEFORE mentioning detoxing.

      Hope this helps!

      Sincerely,

       Stacy

       

       

    • Anonymous
      Anonymous
      Apr. 25, 2009

      Thank you for your reply Stacy.  I haven't talked to my pain mgmt dr because I was afraid he would just give me more of the same meds.  He is really not a specialist, he's a retired gynocologist.   I didn't know anything about the long-acting meds.  I am afraid what the meds are doing to my mind though, and I am afraid.  Do you...

      RHMLucky777

      Read More

      Thank you for your reply Stacy.  I haven't talked to my pain mgmt dr because I was afraid he would just give me more of the same meds.  He is really not a specialist, he's a retired gynocologist.   I didn't know anything about the long-acting meds.  I am afraid what the meds are doing to my mind though, and I am afraid.  Do you know anything about this?  I guess I'm worried I will end up mentally in a mess.  The meds seem to ruin my moods.  And I have paranoia issues now.

       

      I appreciate your help!

       

      Thanks

  • Anonymous
    Terrinmwcokla
    Feb. 27, 2009

    Stacy,

    Your story scares the heck out of me. I've been in chronic pain mgmt for right at 20 yrs..have fibromyalgia,cages and screws in my back, brusitis in my left hip, nerve damage in my back and left leg. I have been disabled forever and on ss dis..seeing pain mgmt drs for so many years I've lost count. I take such extremely high doses of morphine, norco,vicadin,lyrica...

    RHMLucky777

    Read More

    Stacy,

    Your story scares the heck out of me. I've been in chronic pain mgmt for right at 20 yrs..have fibromyalgia,cages and screws in my back, brusitis in my left hip, nerve damage in my back and left leg. I have been disabled forever and on ss dis..seeing pain mgmt drs for so many years I've lost count. I take such extremely high doses of morphine, norco,vicadin,lyrica ,clonopin and all of my bipolar meds for disability with that illness which stays pretty stable considering I spend the majority of my life in bed. I've recently had four surgeries since dec 2nd.. first for a cyst on ovary that was larger than my ovary,then dnc, then oblation and last week a full hysterectomy due to two forms of endometriosis. My drs tell me that I will be dead in a year if I keep up with the pain meds at the higher and higher doses I require to be controlled to even go to the grocery store or be out of bed and that I need to detox. I called the program my pain mgmt dr uses in okc and of course they are not sympathetic to the pain problems and assume I am an addict and will not even give me a thing for my pain nor will they give me all my bipolar meds while there for at least 28 days. I see my pain mgmt dr tues and was going to ask for immediate admittance but I'm horribly scared. Does anyone know of any other program other than st anthony hospital in okcs smart program? I've already been told I'll need pain mgmt for the rest of my life. I'd love to lower the doses. I am not sure I could do anything but cry uncontrollably if I do this program which now my fiance and family are all terrified I will die if I don't. My respirations went close to null in hospital on meds I require for any relief at all. And I already have sleep apnea. I'm scared and need help please if anyone has any suggestions. I'm 42 in April of this year...too young to live like this. Help please. Terri

  • Anonymous
    Anonymous
    Oct. 12, 2008

    I too have had the same problem.  You are treated as a drug addict.  In my case, my upper vertebra collasped after my surgery and I knew something was wrong.  I kept asking them to take an x-ray or MRI and they finally took and x-ray an told me nothing was wrong.  I quit the program after two weeks and was "blacklisted" by doctors. ...

    RHMLucky777

    Read More

    I too have had the same problem.  You are treated as a drug addict.  In my case, my upper vertebra collasped after my surgery and I knew something was wrong.  I kept asking them to take an x-ray or MRI and they finally took and x-ray an told me nothing was wrong.  I quit the program after two weeks and was "blacklisted" by doctors.  I did find one within a month. However, the excercises they made me do could have contributed to making me worse since it was later proved by a neurosurgeon that indeed my vertabra had collasped three weeks after my first surgery.

     

    Although I am totally disabled, this makes me want to start a business that caters to just the kind of people we are.  I think it would be very successfull.  What do you think?

  • Anonymous
    cstew
    Oct. 02, 2008

    My mother has been on pain medication for chronic pain for over 10 years, she is currentlly taking 150 mg of duragesic patc one 100mg and one 50 mg, and she also takes a break through medication I think it is oxycodone 30 mg instant relief. Well recently her attending physician resigned from is postion with the medical group he was with and one...

    RHMLucky777

    Read More

    My mother has been on pain medication for chronic pain for over 10 years, she is currentlly taking 150 mg of duragesic patc one 100mg and one 50 mg, and she also takes a break through medication I think it is oxycodone 30 mg instant relief. Well recently her attending physician resigned from is postion with the medical group he was with and one of the other doctors took over as her primary physician and will no longer see her as a patient and wrote some pretty horrible things in her records, which is going to delay her in getting a doctor before her perscriptions run out.  She is now trying to detox herself and I know I'm on the outside looking in but she seems to have completely lost her mind, not to metion the horrific pain I can see that she is in,

    she is not thinking clearly at all, extremly paranoid,thinks everyone is out to get her. The worst part about she is doing this alone and doesn't seem to reallize what it is doing to her.  I am very scared for her and don't know what to do, she refuses any outside help. Do you have any advise.

  • Anonymous
    paul katz
    Feb. 10, 2008

    I have been in chronic pain with my back for about 8 years, and on meds almost the entire time, vidocin, norco.  My pain meds really jumped up about 4 years ago and in June 04 I had my first of three major back surgeries.  After my last fusion (a redo because the first one failed), things got out of control pain wise and all my doctor would do is...

    RHMLucky777

    Read More

    I have been in chronic pain with my back for about 8 years, and on meds almost the entire time, vidocin, norco.  My pain meds really jumped up about 4 years ago and in June 04 I had my first of three major back surgeries.  After my last fusion (a redo because the first one failed), things got out of control pain wise and all my doctor would do is up my dosage of the oxy.  This was not acceptable. 

     

    I kept pressing doctors as to why I was having some much problem.  Finally, I had what is called a Rhizotomy which means they burn off the pain nerves to the facet joints which are a partial problem of the pain.  Of course the nerves at some point grow back and you need to redo the procedure.

     

    The procedure was successful enough for me to go down from 120mg extended release (ER) oxy with 2 5mg immediate release (IR) bumps per day to just 3, to just 3 5mg IR.  I have been able to do this is just about a little over two weeks, and am still having withdrawals, but not as bad, but still a drag.  I take valium and soma to help me sleep and relaxed during the worst of the withdrawal.

     

    What scares me is that I am not sufficiently pain free to go without any oxy, and I know that it is just an upward spiral because your body continually needs more to maintain. 

     

    I don't want a spinal stimulator or a pain pump.  I just hope I can handle the rest of the withdrawals and take the 5mg IR only once or twice a day--don't know if realisitic. 

     

    The only pat on my back I can give myself is I have been dedicated to both rehab (I am a past athlete--marathon and triathlon) and exercise while going through withdrawals.  I alwasys feel funny at the gym wearing heavy warm clothes while everyone else is in shorts, but I am having withdrawals and having cold chills. 

     

    I also have concern of letting down my wife who has been an absolute angel--she stayed with me thru all three surgeries in which I was hospitalized for a full week and is the greatest.  I have told her I would die for her, so I can live for her, which at times I have not wanted to do.

     

    I know I am babbling, but it just feels good to get this off my chest with someone who has gone with withdrawals and still has the problem of chronic pain.

     

    Thanks for listening (reading).

     

    Paul 

  • Anonymous
    Anonymous
    Jun. 05, 2007
    Stacy?? I'm looking for some advice on detoxification. Is this an appropriate place? Is this publically broadcasted?
    • Stacy
      Jun. 05, 2007
      Hi Anonymous,
      Yes, this is public. Feel free to contact me at healthcentralstacy@gmail.com or start a thread on the message board if you have any questions :)
    • Sissy
      Oct. 12, 2012

      I was born with partial clubfeet and would scream & cry . Back in the early to mid 50's when I was born they did nothing other than say do exercises. Which my mother said she did. I really don't think she did as she had an seventh grade education and was sick and pregnant, one month after I was born. I took asprin over and over again my entire life until...

      RHMLucky777

      Read More

      I was born with partial clubfeet and would scream & cry . Back in the early to mid 50's when I was born they did nothing other than say do exercises. Which my mother said she did. I really don't think she did as she had an seventh grade education and was sick and pregnant, one month after I was born. I took asprin over and over again my entire life until I developed Barretts Espphgus and hemmrorgaging out of my skin and having to have silver nitrate to stop the bleeding. I

       

      I decided to work for a chiropractor to see if he could stop the pain in my left hip and feet. I now have severe neuoraphy in my left leg with blood clots. Back in 1997 I was bleeding so much and my religion refuses blood transfusion.

       

      My MD put me on hydrocodone 10 mg now fast forward to today and I am so constipated all the time and am on a 75 mg fentyl patch every 3 days and endocet for break through pain . I can take up to 4 a day. I have been on this same dosage for 4 years.

       

      I only want to quit because of the contipation issues. I have tried everything known to man. Either medication for the contipation under or over works and then I am in so much stomach pain that I take enough donnatal which is phenobarbital to knock me out

       

      Is there any rapid detox places in the Daytona, Ormond or Port Orange area's?

      I don't have a mother to help me out and a husband who has had a stroke. I do have insurance. Can anyone help?

  • Anonymous
    Philip
    May. 21, 2007
    I was never on as many painkillers as you before and after I had my below-knee-amputation. However, my experiences are similar in so much as I couldn't wait to get myself off the tablets.

    Luckily, I didn't suffer at all when I reduced the doses (eventually to nil).

    It makes me wonder why I didn't take the time to try earlier.

    Take care,

    Philip
    www.disabilityblog.org...
    RHMLucky777
    Read More
    I was never on as many painkillers as you before and after I had my below-knee-amputation. However, my experiences are similar in so much as I couldn't wait to get myself off the tablets.

    Luckily, I didn't suffer at all when I reduced the doses (eventually to nil).

    It makes me wonder why I didn't take the time to try earlier.

    Take care,

    Philip
    www.disabilityblog.org
    www.disabled-help.org
  • Anonymous
    Anonymous
    May. 15, 2007

    In reading your post I felt like you were telling my story. I too have chronic pain but have veered "off course" with my meds. I checked myself into awell regarded hospital drug treatment program to see what my pain "baseline" was and it turned into a nightmare. I was Marchman acted meaning the DR's could keep me there as long as they wanted even though...

    RHMLucky777

    Read More

    In reading your post I felt like you were telling my story. I too have chronic pain but have veered "off course" with my meds. I checked myself into awell regarded hospital drug treatment program to see what my pain "baseline" was and it turned into a nightmare. I was Marchman acted meaning the DR's could keep me there as long as they wanted even though I came in voluntarily and the only way I got released was by calling my insurance company and theling them not to pay the hospital as I was being held aginst my will (total lockdown with a attendant constantly watching me). Unfortunately I'm now back in the same boat with the med's but am scheduled for a very major&complicated surgery to address the major cause of my pain. I plan to try and get off the meds after that assuming the underlying cause of the pain has been addressed. I live in central florida if anyone can refer me to a humane detox program. I already know and am well grounded in the 12 step program. My phone is (727_237-3817 if you have ant tips. I'm about to try and detox at home tomorrow as I've once again run out of meds early.

    • Anonymous
      rbruffy
      Sep. 24, 2007

      Hi, you have probably already had your surgery and so this has been taken care of... however, if not. This is my sob storyCry. Before my last surgery I was on very high doses of meds. I had waited two years for sugical approval and spent that literally walking around looking at the floor Embarassed. The surgeon was uncomfortable with the doses that I was on, and my pain...

      RHMLucky777

      Read More

      Hi, you have probably already had your surgery and so this has been taken care of... however, if not. This is my sob storyCry. Before my last surgery I was on very high doses of meds. I had waited two years for sugical approval and spent that literally walking around looking at the floor Embarassed. The surgeon was uncomfortable with the doses that I was on, and my pain med dos thought it would be a good opportunity to address the high tolerance issue. I was on Fentanyl patches, 200mcg every 2 days, 20mg Norco 3-4 times a day, and Actiq 800mcg 4 times a day. That was for the pain Cheesy... there was also Baclofen for spasm, occasional Valium and Provigil to help me stay awake during the day, not that I really slept much, but when I did it was at inappropriate times. So the docs decided to do what is called a rapid detox on my a couple of days after my surgery. They kept me asleep and on the ventilator and then 48 hours after surgery removed all the narcotic medications and put me on the detox pain meds, I think sublimaze but that may not be the right name... They kept me asleep for another 3 days. The good news is, I never had one withdrawal symptom. This is where it turns into a sob story... They woke me up... Grin. Seriously, think waking up after major surgery on asprin. By the time they finally started getting the pain under control, the doc started weaning, and that was the epidural. I think they really wanted to keep me in the hospital a couple more days, butm my dad night the last Sunday night I was there and they let me go the next day, I had been trying to get them to let me go home for several days... Anyways, I was allergic to the med they sent me home on, they made it a little differently, but kept me on it. It made my head feel funny, but didn't do much for pain. I had to stay on it for 6 weeks for the detox to be considered successful. To say those six weeks were miserable would be an understatement. But, that was just the tip of the iceberg. The case manager decided that I was detoxed for addiction rather that for tolerance, and spent the next year either objecting to anything the doc ordered, or just outright refused to approval of payment. I'm not really sure what she was saying behind my back. I do agree with the fact that if all went as it should have, my pain should have decreased significantly after surgery. About 6 months post-op my left leg went away, not sure where, but it spends more time gone than with me. My right leg was numb since surgery... Actually numbness and tingling was part of my pre-op symptoms, but this was alot worse. Not to mention, my neck has been bothering me alot. It took an EMG to show that I was really having nerve problems for anyone to start acting like they believed me when I said I was having pain. When I went for the repeat EMG the insurance company made me show ID to prove I was me. I could imagine what someone would charge me to take that miserable test for me. An MRI on my neck showed 3 more bad discs there. Oh, I didn't mention, I had a 6 level fusion of my Lumbar spine. The rods came loose, which which eventually caused the lowest cage to crush, although that didn't happen until after surgery had been ordered. I am guessing that if it had been approved right away, instead of 2 years later, my recovery would have been alot easier, not to mention that I was on less than half the meds at that time. Unfortuanately, the pain is still way to high. But I am on much less medication. The sad thing is that if you go through a detox, it is like adding a lable to your medical file that says addict. Your doctors may know that that is not what they ordered it for, but who listens to them anyways...

        NOne the less, if you are intent on going through a detox for whatever reason, I would recommend the rapid detox. I would not really recommend doing it attached to a surgery if you can help it. Seperate from surgery, they would admit you to the hopital for a few days, put you to sleep, intubate you. They then reverse the narcotics, flush you with fluids and keep you asleep for 72 hours, when you wake up all of the worst withdrawal symptoms have already passed. I hope this helps with your question... And good luck.

    • rawn takacs
      Oct. 11, 2009

      I was just reading your post and was recently referred to the Marchman clinic by Dr Malik in Daytona Beach after I went to see him about a pain pump.  He didn't say anything about it being a detox clinic for drug addicts he just said here is a number, call it and they may help you, then come back for the pain pump.  didn't explain at all to me what...

      RHMLucky777

      Read More

      I was just reading your post and was recently referred to the Marchman clinic by Dr Malik in Daytona Beach after I went to see him about a pain pump.  He didn't say anything about it being a detox clinic for drug addicts he just said here is a number, call it and they may help you, then come back for the pain pump.  didn't explain at all to me what this place was, just said to call.  Treated me like I was a drug addict not a person dependant on meds for my chonic pain.  I called the place, the clinical worker seemed to understand my pain problem more than the Dr. and did not think this place was for me, they generally work with drug addicts not pain management. I am a diabetic with severe neuropathy of both feet and here is a bit of what I have gone through in the last 2 years with about 25% reduction overall, that means I stay at about a 5-6 on good days and a 8-9 on bad. I am so sorry you had to go through that kind of abuse just to try to get help from the medical profession.

      Here is a list of meds that I can remember having been prescribed by numerous pain mgmt. doctors.  Lyrica, Nurotin, Gabpreton, anti seizures and anti convulsants, nitorglycerin patches, lidocaine patches, lora tab, oxycoti, dilaudid, numerous creams and ointments, acupuncture, spinal blocks, spinal cord stimulator, nerve decompression surgery, b 12 injections, vitamins such as benfotiamine, alpha lopiac, 2mg xanax to get 3-4 hours of rest everyday. , still in severe pain 24/7.  Numerous ER visits to recieve dilaudid shots, after about 25 visits, my GP prescribed self injections 2mg 1 cc every 4 hrs and now recently increased the dosage 4mg 1cc every 4 hrs.  Still do not get full relief. One Dr. has suggested Prialt (snail venom) in a pump but I have been told the side effects are horrendous. Are there any other suggestions out there from anyone with Dibetic Neuropathy?????  Please Help!

  • Anonymous
    Anonymous
    May. 05, 2007

    Stacy,

    I went through my own de-tox back in Sept, 2005 to see if my pain tolerance was just too high and I really didn't need that much in the way of narcotic meds.  I was in a hospital and they de-toxed me with shots, 2 times a day for 6 days, which were vitamins, then I took vitamins by mouth and they are the ones that put me on a drug cocktail...

    RHMLucky777

    Read More

    Stacy,

    I went through my own de-tox back in Sept, 2005 to see if my pain tolerance was just too high and I really didn't need that much in the way of narcotic meds.  I was in a hospital and they de-toxed me with shots, 2 times a day for 6 days, which were vitamins, then I took vitamins by mouth and they are the ones that put me on a drug cocktail for the pain I was having.  But, the first 2 days there, I didn't get any medication at all. They wanted to see if I was reallly in pain or just wanting the drugs because I could have been a drug addict.  After 48 hours, I was in a fetal position also, and crying constantly because of the chronic jaw pain I was having.  The Doctor came in and knew there was really a problem.  So, he decided to put me on the drug coctail to de-tox me and try and make me comfortable, plus all the vitamins. I started taking Neurontin, Clonopin, both for nerve pain, and Zoloft.  I later went off of the Zoloft on my own because I was more depressed on it than off of it.   I started feeling a little better by the 4th day, but knew that the meds he had me on wasn't enough.  I stayed 2 more days and then went home.  (A total of 8 days).  I stuck to the meds he had me on until I couldn't stand it anymore, about 4 months.  And then my Neurologist put me back on a narcotic medication for breakthrough pain, if that's what it's called.  So, I know how you feel.  And de-tox was awful for me too. 

    I just wanted to share this with you because it sounds like you and I are wrestling with the same things in our minds. 

    Thanks for listening!!

    Ally

     

     

  • MaggieMay78
    Apr. 12, 2007

    Stacy,

     

    Wow, I had no idea that you went through this, and I'm so glad you shared your experience. Sadly, however, I am not surprised that the medical "professionals" weren't understanding of your chronic pain.  Aaarrggh...but anyway, I understand why you did this...you had to see what your pain was like WITHOUT the meds. Now you know for...

    RHMLucky777

    Read More

    Stacy,

     

    Wow, I had no idea that you went through this, and I'm so glad you shared your experience. Sadly, however, I am not surprised that the medical "professionals" weren't understanding of your chronic pain.  Aaarrggh...but anyway, I understand why you did this...you had to see what your pain was like WITHOUT the meds. Now you know for sure...and it sounds like you made the right decision in going back on the meds! I know it's hard to accept chronic, intractable pain...but at least now you know you're not taking the meds unnecessarily.  I hope you are feeling at least somewhat better after being back on them!!!

     

    Meg

  • Stacy
    Apr. 05, 2007
    Thank you, everyone, for your thoughtful replies. 
    Thanks, Nicole for your comments (they were awesome and made me smile, knowing that others thought I did the right thing helps me too) letting me know the change you saw in me when I got back.  I will be writing about that in a post soon. ;)
     I definitely understand if any of you are in this same...
    RHMLucky777
    Read More
    Thank you, everyone, for your thoughtful replies. 
    Thanks, Nicole for your comments (they were awesome and made me smile, knowing that others thought I did the right thing helps me too) letting me know the change you saw in me when I got back.  I will be writing about that in a post soon. ;)
     I definitely understand if any of you are in this same position, wondering about the medications and if you need them.  Take my advice, it is much better to do this through your doctor than it is by yourself, lol!!!!!
    Anyway thank you again, I really appreciate your comments.
    :)

  • Anonymous
    Anonymous
    Apr. 04, 2007

    I often have wondered at what level my pain would be if I didnt take my meds. Thank you for your story. I have loin pain haemutria syndrome and would like not to take anything but I know that isnt going to happen but I still have to learn to manage my pain this is where I am having trouble.

  • Angi Harrover
    Apr. 03, 2007
    I am sorry you are back on the same ammount of meds hun. But I wish you well. I wish I could get off but I am now struggling on wither or not I should up my patches to 75mcg. As my mid back pain has gotten overwelming.

    Angi
  • Bekah
    Apr. 03, 2007
    Sue is right Stacy. You really are an inspiriation to all of us here!

    I must say that I am very proud that you were able to put yourself through the program and come out of it an amazing person.

    Personally I cannot relate to your situatio as I haven't gone through a detox program but hats off to you for giving it a try!

    I can't imagine what hell it must...
    RHMLucky777
    Read More
    Sue is right Stacy. You really are an inspiriation to all of us here!

    I must say that I am very proud that you were able to put yourself through the program and come out of it an amazing person.

    Personally I cannot relate to your situatio as I haven't gone through a detox program but hats off to you for giving it a try!

    I can't imagine what hell it must have been to go through it all.

    Thank you for sharing your experience with us.

    Hugs,

    Bekah
  • Anonymous
    Sue
    Apr. 03, 2007

    Stacy....thank you for sharing your experience.  You are such an inspiration.

     

    Sue