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ChronicPainConnection.com

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Thursday, November, 12, 2009
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Can anyone help me?what should I do?

Liberty
Liberty
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Liberty is Living with Chronic Pain.Physically and Mentally.Ive been to hell and back,and got the scars AND the tshirt to prove it . Living with pain for 22years,and Im only 35.Welcome to my HELL.
My life in a nut-shell....hell.

Wow,where do I begin.Been suffering with Chronic Pain since I was...

Liberty

Sunday, July 05, 2009
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HI, I have a question for YOU.I hope you can help,or give me some sort of advice.I am a disabled former Personal Support Worker (Health Care Aide).,I had to give it up,when my disabilities got too painful,and Im now on Long-term Disability.Permanently.

I have MANY health problems.Chronic pain, in my legs,from numerous LIMB LENGTHENING OPERATIONS when I was a teenager.Im 35 now.I was the first in Canada for my form of dwarfism,to have the operations.Im Hypochondroplasia Dwarf.I was basically a "guinea-pig",for my Doctors.Not knowing when the operations finished,it made me 8inches taller...but it would make me disabled,and have severe chronic pain for the rest of my life.I tried living a normal life,but my pain took over,and i am now on long-term Disability.I also,less than 1yr ago,got diagnosed with LUNG DISEASE,  pulmonary SARCOIDOSIS.SO PAINFUL.Drs tell me it isnt...but since I had this disease begin,in Oct 08,Its nothing but pain.Breathing,and night/sleeping,have to sleep sitting up.I feel like my chest is crushing,feels like fluid in my lungs,chest/back.NO ONE believes my lung pain.Its killin me.(suicide is considered on a daily basis).

I have been on opiods for about 2-3yrs now...Ive started at the lowest,weakest and have gotten to where I am now.I am on Hydromorphone 8mg, about 8/day.(2tab-4xday),Hydromorph Contin 3/day, and Oxycocet, 5-325/ 4-6day....and I am in SO MUCH PAIN STILL! I am no longer getting ANY relief for my pain from my meds,and I go to a PAIN CLINIC,see a specialist..I had a good Dr,but he retired,.and now this new Dr  just writes me the same script every month... he dosent want to change or help me.(my last visit,he recommended I move to dry UTAH,(Im in Ontario,Canada)..my meds arent working like they used to,or should.My body is used to them,from being on them for a few years.I havent been offered any other help or options or medications...I sometimes feel it is MY fault,maybe they dont believe my pain.Im hurting NOW MORE THAN EVER.I cant live like this.I consider suicide on a daily basis...thats bad.I want new meds,or something...I cant live in SO much pain anymore.My meds are only making the edge of my pain,1st thing in the morning,easier.The rest of the day,as time goes on,the pain gets worse,til night when I cry,and cant walk (arthritis),or breathe (Lung Disease).This isnt "LIVING" this is "LIVING HELL" Please tell me what you think......... thankyou.    jane

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