"Can't You Hear Me "- I wrote this shortly after my diagnosis of RSD and in a deep depression

jerryhesch

9/20/07 10:25pm

brutal and honest, a truth we all know by having been there and remarkably some of us on the other side of it now (other side-now symptoms controlled).

I always pause past cemeteries cause i know how some got there, and only by grace that one was averted.

I hope this is not your current story, if so please reach out.

Debra

9/25/07 3:11am

Word for word, pain for pain, pill for pill! I always tell my kids (5 from 34 to 17, 1 left at home) that I would never do anything to hurt myself... It's just that on those really bad days when I'm all alone that the pain & depression really get to me.

God Bless,

Deb

Cathy

3/ 8/09 3:50am

You sound exactly like I feel alot of the time.No one listens no one cares.Pain is something they cant see so the cant comprehend what we go through.I just wish I could trade lives with them for one day to get them to understand what Im going through.there is days I think I just cant do this anymore,but somehow Ive got through it .....so far that is.

Mattsmon

3/27/09 6:14pm

You certainly pinpointed the problem.

At first, everyone is sympathetic....they help you, they talk in those very soft tones. "What can I get you; what can I do to make it better?" After a while, however, life goes on. It goes on for us all, even those who remain in pain for whatever reason. I can't believe how a person can feel so, so, so bad and it not show up on a test somewhere?? I understand we are all different, but I still don't understand WHY the terrible, life sucking pain we live with cannot be identified in the body.

I read in a recent Science magazine that the future will be all about SPECIFIC pain control for only YOUR body.......all you would do is look into a machine, it would identify you by the iris of your eye, and then they would disperse medicine specifically for your body alone. Wouldn't that be incredible? It's amazing how far science has come in some areas, but how very ignorant it remains in others.

You are right. Wouldn't it be interesting to switch bodies one day with a friend who is 100% healthy in every day?? I'm sure that would open some eyes. Just because you don't have the obvious sign of injury/disease such as a broken arm, does not mean that your pain is any different. A broken arm can be fixed. Everybody wants to sign the cast, but after awhile no body wants to hear about the kind of pain YOU have, that unfortunately is not broadcasted by visual props.

I hope you hang in there; everyone on this site DOES acknowledge your pain, and your right to have it properly treated!

God Bless

Matts'mom

Mattsmon

3/27/09 6:16pm

You certainly pinpointed the problem.

At first, everyone is sympathetic....they help you, they talk in those very soft tones. "What can I get you; what can I do to make it better?" After a while, however, life goes on. It goes on for us all, even those who remain in pain for whatever reason. I can't believe how a person can feel so, so, so bad and it not show up on a test somewhere?? I understand we are all different, but I still don't understand WHY the terrible, life sucking pain we live with cannot be identified in the body.

I read in a recent Science magazine that the future will be all about SPECIFIC pain control for only YOUR body.......all you would do is look into a machine, it would identify you by the iris of your eye, and then they would disperse medicine specifically for your body alone. Wouldn't that be incredible? It's amazing how far science has come in some areas, but how very ignorant it remains in others.

You are right. Wouldn't it be interesting to switch bodies one day with a friend who is 100% healthy in every day?? I'm sure that would open some eyes. Just because you don't have the obvious sign of injury/disease such as a broken arm, does not mean that your pain is any different. A broken arm can be fixed. Everybody wants to sign the cast, but after awhile no body wants to hear about the kind of pain YOU have, that unfortunately is not broadcasted by visual props.

I hope you hang in there; everyone on this site DOES acknowledge your pain, and your right to have it properly treated!

God Bless

Matts'mom

Cathy

3/30/09 1:35am

Bless you Mats Mom,I am so glad that there is people out there that understand my pain.Not that I want anyone to suffer the evil pain that I have but just knowing there is someone that does understands means alot.I pray everyday that there will be a medicalbreak through soon for all of us with RSD.The last four days has been sooooo bad for me I often wonder how I have made through the day.I am so sick of the narcotics they shove at you when you go to the doctors.I dont want the pills I just want them to fix me to find the reason for the pain.How hard can that be.Thanks for replying,It meant alot to me,Cathy

sudsblueii

3/28/09 5:35am

I, too, fell into a deep depression after my diagnosisi of RSD. learning to cope with the pain is one thing, but having no-one to talk to is quiet another. My spouse, who was always there for me after each surgery, for all other issues such as my DDD and severe stenosis was tired of hearing about it. after a huge arguement,and a huge crying session i decided not to say anything more regarding my pain and or anything related to my conditions. so, this left me with no outlet to vent all the emotions and thoughts going on inside my head. its a lonely place and i dont feel like i have a spouse any more just a roomate and i sit and watch the world around go by. i 'm just waiting, going thru the motions, so to speak, there is no life when there is no quality, just waiting to die.

"Can't You Hear Me "- I wrote this shortly after my diagnosis of RSD and in a deep depression

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