When is too much medication

mawmawfarmer Community Member February 15, 2008
  • When do you know if you are taking too much medication? Until Tuesday of this week I was on the Fentanal Patch 75mg., Avinza 30 mg. two time per day and Percocet as needed for break through pain; to my dismay no pain relief. After my visit with my pain management doctor he placed me on OpanaEr 40 mg. Two times per day and still take the Fentanal Patch. I also had the first of a series of three blocks on Wed. I understand that I still will be in some pain, I still work a full time job as well as take care of paraplegic husband. My family is concerned that I am on too much medication. I am not goofy acting and still do my job working for 3 attorneys at a large law firm. Anyone like my family think that I am on too much medication and am an accident waiting to happen. Any thoughts or information would greatly be appreciated. Johnnie
46 Comments
  • Anonymous
    Anonymous
    Apr. 12, 2008
    I've been on a higher dosage of Fentanyl for about nine years, plus Percocet for BT pain, plus Trazadone and Lyrica.  I have had no trouble functioning.  My mental capacity has not been diminished.  I do not feel drowsy and have had no problem with respiratory depression.  People can take quite large amounts of narcotic medication...
    RHMLucky777
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    I've been on a higher dosage of Fentanyl for about nine years, plus Percocet for BT pain, plus Trazadone and Lyrica.  I have had no trouble functioning.  My mental capacity has not been diminished.  I do not feel drowsy and have had no problem with respiratory depression.  People can take quite large amounts of narcotic medication safely, as long as the dosages are gradually increased.
    • Anonymous
      PAINFUL LIFE
      Jul. 24, 2009

      I WOULD LIKE TO SHARE MY STORY WITH EVERYONE. I AM 32 YEARS OLD, AND HAVE BEEN LIVING WITH CHRONIC BACK PAIN SINCE I WAS 19 YEARS! I WEAR A DURAGESIC PAIN PATCH (50MG, CHANGE EVERY TWO DAYS.) AT THE AGE 25, I HAD MY FIRST BACK SURGERY. I HAD A HERNIATED DISC ON MY RIGHT SIDE, THAT PINCHED MY MAIN NERVE, ALL THE WAY DOWN MY LEG! A YEAR LATER, I WAS EXPERIENCING...

      RHMLucky777

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      I WOULD LIKE TO SHARE MY STORY WITH EVERYONE. I AM 32 YEARS OLD, AND HAVE BEEN LIVING WITH CHRONIC BACK PAIN SINCE I WAS 19 YEARS! I WEAR A DURAGESIC PAIN PATCH (50MG, CHANGE EVERY TWO DAYS.) AT THE AGE 25, I HAD MY FIRST BACK SURGERY. I HAD A HERNIATED DISC ON MY RIGHT SIDE, THAT PINCHED MY MAIN NERVE, ALL THE WAY DOWN MY LEG! A YEAR LATER, I WAS EXPERIENCING THE SAME PAIN, BUT ON MY LEFT SIDE. COME TO FIND OUT, I HAD A SLIPPED DISC THAT RUPTURED. SO, THEN I HAD MY SECOND BACK SURGERY! NEITHER SURGERIES WORKED! FROM THERE, IT'S BEEN NOTHING BUT HORRIBLE CHRONIC PAIN!! THE WORST PAIN A PERSON COULD EVER FEEL! I HAVE PINCED NERVES I HAVE TO DEAL WITH FOR THE REST OF MY LIFE! RECENTLY, I'VE HAD TO DEAL WITH A NEW PINCHED NERVE (ON MY LEFT SIDE) THAT RUNS FROM MY LOWER BACK, ALL THE WAY DOWN MY LEG, INTO MY ANCKLE AND FOOT! COME TO FIND OUT, I HAVE ANOTHER HERNIATED DISC, ON MY LEFT SIDE (L5-S1), I DO BELIEVE. I REFUSE TO HAVE A 3RD BACK SURGERY! I HAVE DETEIRATED (HOW EVER YOU SPELL IT) SO MUCH FROM MY LAST TWO SURGERIES, IT'S NOT FUNNY! PLUS, THAT'S THE DISC I HAD SURGERY ON THE SECOND TIME!  I HAVE TRIED EVERY MEDICATION AND PAIN INJECTION YOU CAN IMAGINE! NOTHING CAME CLOSE TO HELPING ME! NOT EVEN OXYCONTIN w/ OCYCODONE! THEN MY WONDERFUL DOCTOR I HAVE NOW, HAD ME TRY THE DUREGESIC PAIN PATCH, AND I HAVE TO SAY IT WORKS MIRACLES! I AM SO THANKFUL FOR THE DOCTOR I HAVE NOW, BECAUSE AFTER MY SURGEON WAS DONE WITH ME, HE TOSSED ME OFF, AND FROM THERE, IT BECAME A REPEATED CYCLE WITH DIFFERENT DOCTORS! NO DOCTOR WANTED ANYTHING TO DO WITH ME AND MY BACK PROBLEMS! I TRUELY BELIEVE GOD SENT ME THE DOCTOR I HAVE NOW. CHRONIC BACK PAIN HAS LITERALLY STRIPPED ME FROM MY LIFE! IT TAKES EVERYTHING YOU ONCE HAD AND COULD DO IN LIFE, AWAY FROM YOU! I'VE BEEN WEARING MY PAIN PATCH FOR SIX YEARS NOW, AND IT HAS GIVEN ME MY LIFE BACK! I CAN WALK, SIT, STAND UP AND DO DISHES (BEFORE I HAD TO SIT ON A STOOL, AND IT STILL HURT), DRIVE, ECT...... I CAN DO JUST ABOUT ANYTHING. I STILL HAVE TO BE CAREFULL OF COURSE, AND I DO HAVE BREAK-THROUGH PAIN. I HAVE VICIDON FOR THE BREAK-THROUGH PAIN, BUT DON'T TAKE IT VERY MUCH. NORMALY I'LL GET INTO A HOT SHOWER, OR GET ON MY HEATING PAD FIRST, BEFORE I'LL TAKE A PAIN PILL. GETTING UP IN THE MORNING IS STILL VERY PAINFUL AT TIMES. I PUT MY PAIN PATCH ON IN THE MORNING, AND TAKE IT OFF AROUND 7 OR 8PM. I JUST PUT IT BACK ON THE PLASTIC PIECE, AND PUT THE OTHER TWO PLASTIC PEICES ON IT, AND PUT IT BACK INTO THE PACKAGE IT CAME IN. I USE MEDICAL TAPE TO PUT IT BACK ON IF IT'S NOT STICKY. I DON'T KNOW ABOUT EVERYONE ELSE THAT WEARS THE DURAGESIC PATCH, BUT IT SEEMS TO ME THE MEDICATION RUNS OUT BY THE SECOND DAY, AND YOU END UP IN PAIN. SO THAT'S WHY I WEAR IT FOR THE DAY, AND TAKE IT OFF AT NIGHT. AT NIGHT, IT SEEMS TO ME THAT'S WHEN THE MEDICATION REALLY GETS INTO YOUR BODY, AND I HAVE A HARD TIME WAKING UP IN THE MORNING. SO THE METHOD ON HOW I WEAR MY PATCH CONSERVES ON THE MEDICATION, AND IS ALOT EASIER TO WAKE UP IN THE MORNING! AS FAR AS BEING JUDGED FOR WEARING THIS PAIN PATCH, MOST PEOPLE ARE IN THIS DAY IN AGE! ONE REASON IS BECAUSE SO MANY PEOPLE HAVE ABUSED THE SYSTEM! PEOPLE LIKE US, WHO TRUELY NEED THE MEDICATION, AND AREN'T ABUSING IT, STILL GET JUDGED, OR LOOKED AT AS A "JUNKY!" NO ONE CAN TRULY UNDERSTAND CHRONIC PAIN, UNLESS THEY HAVE EXPERIENCED IT THEMSELVES! SO WHO ARE THEY TO JUDGE YOU! DON'T YOU JUST LOVE DOCTORS OR PEOPLE THAT SAY, "OH, IT'S ALL IN YOUR HEAD", ABOUT YOUR PAIN! EVERYONE IS DIFFERENT, HAS DIFFERENT PAIN, AND CAN DEAL WITH PAIN IN DIFFERENT WAYS. BUT, WHEN YOU HAVE CHRONIC PAIN THAT IS CONSTANT, DOESN'T GO AWAY OR LET UP, AND HAVE TO DEAL WITH IT EVERY DAY OF YOUR LIFE, WHAT ELSE ARE YOU SUPPOSE TO DO? I DON'T CARE WHO YOU ARE, IF YOUR LIVING WITH CHRONIC PAIN, AND HAVE TRIED EVERYTHING ELSE, AND NOTHING WORKS, OF COURSE YOUR GONNA GO WITH SOMETHING THAT DOES WORK. FOR ME, IT'S THE DURAGESIC PAIN PATCH! MY THOUGHTS AND PRAYERS GO OUT TO EVERYONE THAT IS IN THE SAME POSITION AS ME! THERE IS NO FUN IN LIFE, WHEN YOU HAVE TO LIVE WITH EVERY DAY CHRONIC PAIN!

  • Anonymous
    Deb
    Apr. 04, 2008
    I have been on 350mcg Fentenyl, Dilaudid, Valium, Merinol, Fentenyl Nasal Spray...I work 12  to 14 hrs a week. I am so proud that I can work even a little bit. I work these hours over 4 day's a week so about 3 hrs a day. All I do is answer the phone. I know I am on alot of medicine, but I have had blood serum testing done, so if and I did get in an...
    RHMLucky777
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    I have been on 350mcg Fentenyl, Dilaudid, Valium, Merinol, Fentenyl Nasal Spray...I work 12  to 14 hrs a week. I am so proud that I can work even a little bit. I work these hours over 4 day's a week so about 3 hrs a day. All I do is answer the phone. I know I am on alot of medicine, but I have had blood serum testing done, so if and I did get in an accident it proves I am not impaired. I was rear ended found 100 percent not at fault. I have severe back problems after the accident I received a neck injury and have almost daily migraines. The person who hit me had no insurance, so now I had to get an attonery and it's been since Oct 2006. I just wanted to pipe in and say if you are truly in pain and you have no side effect's as far as funtioning you are not on too many med's. I am greatful to my caring pain Dr. I do have to come home from work and lay down right away cause it's very hard to get ready for work go to work nd try and put on a happy face. I have met some wonderful people at work who are very supportive of me. I have to use a cane and I am 46 year's old. I am happy to have my little job and be able to work just a little bit. Hope everyone has a low pain day.
  • Sean
    Mar. 27, 2008

    Went and saw pain doctor yesterday and asked him the same question! the doctor told me it depends on the medication,but I can expand on that based on my experiences with almost All types of narcotics. I have been on narcotics for many years,sometimes a change in the type of narcotic is necessary due to tolerance of certain drug and the dose you are on....

    RHMLucky777

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    Went and saw pain doctor yesterday and asked him the same question! the doctor told me it depends on the medication,but I can expand on that based on my experiences with almost All types of narcotics. I have been on narcotics for many years,sometimes a change in the type of narcotic is necessary due to tolerance of certain drug and the dose you are on.

     

    Example: I was on the biggest fentanyl patch (I think it was 150mcg,maybe higher),along with 10mg. Percocets up to 8x daily for breakthrough pain. That was HIS dosage limits on these medications. It probably varies with doctors but I know my doctor is very liberal with regards to medication and pain.

     

    Example2: I was on Oxycontin 80mg. 4x daily,with 5/325mg percocet 8x daily

     

    Example3:What I currently take now is Mscontin 130mg. 3x daily, oxycodone 15mg. 4x daily. I was once taking Mscontin 200mg. tabs 3x daily with the 15mg oxycodones 4x daily.

     

           I always have 10mg.valium available for when spasms are especially difficult.

     

     

    I asked him what happens if the pain meds. stop working even at these high dosages. He told me the implant that pumps the medicine right where needed is an option,along with or including a spinal cord stimulator. I'd go with the stimulator first because if it does NOT help,you can still take pain meds.,NOT SO with the pump implant(or at least in any doseage hat ould probably be effective). I'm only 39 so i am probably going to have these things put into me at some point. It's good to know there are options out there.

        It looks like your doctor is trying to releive your pain with the smalest doses possible. This is a good thing.although you don't think so while your in pain! I think it's important to be on the LOWEST dosage so the pain releif potential is there for the future if need be. I know what it's like to be UNDERTREATED and it's not a good situation at all to be in. If you switch doctors they think you are "doctor shopping"or "narcotic seeking". I found my current doctor by doing just that. My primary care was not treating my pain(only 2 --5mg. percocets per day). A pain clinic sent me to a physiatrist who also gave me a prescription. Now I have 2 different doctors prescribing pain medications. When i was found out my primary care doctor "dropped" me(I signed a agreement). The physiatrist however recognized that I did what I did for pain releif,NOT to abuse the medications prescribed. He spoke to my "x" doctor who ended up still being my primary after all this(just no more narcotics from him!). I ended up leaving him eventually-why would i wan't a doctor who won't help me?  Anyway what I wan't to stress is DO NOT do what I did. I was lucky they both didn't dump me! Be honest with your current doctor. If he or she won't help,have them refer you somewhere. If they are one of those doctors that was like my old PCP and they won't refer you,g to the emergency room! THEY WILL refer you somewhere. The main thing is honesty with your doctors and YOURSELF!

      I hopes this helps you.

                                  Sean 

    • Sean
      Mar. 27, 2008

      I forgot about the methadone  200mg.--3x daily!

       

    • mawmawfarmer
      Aug. 03, 2009

      Sean, just an update. I now have a medtronic pain pump placed in my left stomach area. While it has been only about 4 weeks in I can already tell a difference. I still have some pain but I can live with it. I have percocet to take if needed but am off all other pain drugs. I can see clearly now. My face is not flushed or swollen as before. I am doing better...

      RHMLucky777

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      Sean, just an update. I now have a medtronic pain pump placed in my left stomach area. While it has been only about 4 weeks in I can already tell a difference. I still have some pain but I can live with it. I have percocet to take if needed but am off all other pain drugs. I can see clearly now. My face is not flushed or swollen as before. I am doing better and better every day. I detoxed myself off of all of the oxycotin, oxycodone, fentanal,  which was a bugger but it was well worth it. Will I have some problems with the pump probably but right now I am doing so much better. Husband said last night that it was good to get his wife back. Just wanted to let you know what is currently going on. J

  • Anonymous
    RAVEN
    Feb. 23, 2008

    WackoDEAR JOHN, THOUGH YOU FEEL YOU ARE NOT TAKING TO MANY MEDS, YOU ARE.  ON JAN5,2005 I FELL ONMY BACK AND RUPTURED 4 DISKS, SCIATICA, INCONTINES, RLS, FOLLOWED. LIKE A TICK ON YOUR BACK.  I HAVE HAD SHOTS HERE THERE AND EVERYWHERE,. PILLS, AMBIEN FOR SLEEP, SOMA, OXYC.,TRAMADOL, LIDCAINE PATCHES, TOPAMX, CYMBALTA, PROMETIZINE,NEXIUM, TRICOR. ZETIA,...

    RHMLucky777

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    WackoDEAR JOHN, THOUGH YOU FEEL YOU ARE NOT TAKING TO MANY MEDS, YOU ARE.  ON JAN5,2005 I FELL ONMY BACK AND RUPTURED 4 DISKS, SCIATICA, INCONTINES, RLS, FOLLOWED. LIKE A TICK ON YOUR BACK.  I HAVE HAD SHOTS HERE THERE AND EVERYWHERE,. PILLS, AMBIEN FOR SLEEP, SOMA, OXYC.,TRAMADOL, LIDCAINE PATCHES, TOPAMX, CYMBALTA, PROMETIZINE,NEXIUM, TRICOR. ZETIA, ON AND ON AND ON  AND ON.   I HAD IT ON DEC 25, WHEN I HAD MY SECOND SET OF SERIOUS SUICIDAL THOUGHTS, I STOPPED COLD TURKEY. I MEAN INA ICE LAKECOLD.  IT IS NOT FEB 29, AND I FEEL GOOD.  I AM PRACTICING THE MIND BODY THOUGHT BY DR SARNA, DO I NEED SOMETHING TO TAKE OF THE HORRIBLE 200 % OF PAIN. HELL YES

    I TRY HEAT/COLD. I TRY STRETCHING. I TRY MEDICINE BALL, I TRY PRAYER, I TRY TAKING MY MIND OFF THE PAIN AS BEST I CAN. IT TAKES LONGER BUT IT DOES WORK, THE PAIN SUBSIDES TO A DUABLE 10, I WEAR THE BACK GIRDLES, I PURCHASED 129.00 GOOD FEET SHOES FROM STORE IN COTTONWOOD HEIGHTS, UTAH. I USE A INVERTER TABLE.  IT IS SLOWLY WORKING.  BUT I FEEL BETTER WITHOUT THOSE PILLS WHICH WERE DESTRYOING MY LIVER, STOMACH, KIDNEYS, DIGESTION TRACK, WIGGING OUT MY BRAIN.

    DO YOU KNOW THAT PRIOR TO MY FALL AT WORK, I WAS HANDLING MY LUPUS, CHRONIC FATIGUE,FIBRO AND AFIBS SINCE 1999, THAT IS WHEN THEY SAID IT FLARED UP. I WAS WORKING EACH DAY, AT THE POST OFFICE, WALKING 400-500 MILES A WEEK, 12 HR DAYS.

    WHEN THIS HAPPENED, DEFICATION HIT THE ROTATION AND I WENT DOWN HILL SUICIDE LOOKED LIKE THE EASIEST WAY OUT.  BOY, I WAS WRONG, THAT WOULD BE SELFISH.  THESE DRUGS CAN MAKE YOU WANT TO DO THIS.  IT IS OT YOU  IT IS THE DRUGS INTERWORKING AGAINST YOU.  EXAMPLE, NEVER HAD TYPE 2 DIABETES, DO NOW, I AM WORKING THIS BY NOT MEDS, STRICTLY DIET AND CHROMIUM/CINNAMON SUPPLEMENTS TO HELP SUGAR.  HAD ME ON VYTORIN/ZETIA/TRICO FOR BLOOD PRESSURE HI AND LO.  STOPPED IT OMEGA 3, BVITES , ON AND ON AND ON.  BY GOD IT IS WORKING.

    I CANNOT LIE TO YOU. IT IS 230AM HERE IN SLC, UT AND I AM UP

    I HAVE LOTS OF JOINT/MUSCLE PAIN. STOMACH ACHE(IBS)(USING GINGER FOR THAT AND GREEN DRINK)SCIATICA AND BACK PAIN.

    WHAT AM I DOING FOR THIS.  SOAKING MY FEET IN EPSON SALTS, WITH RACENSCARA OIL, HYSSOP, MYRRH, OLIVE OIL AND GENTLY MASSAGING MY CALFS.  I WILL SLEEP SOON. PLU 5 MG OF AMBIEN AND CAL/MAG VITAMINS,  NEED TO MAKE SOME MILK.  I HAVE OTHER REMEDIES THAT WORK.  I AM WRITING A BOOK, BUT THIS ONE WILL BE BASED ON HUMAN EXPERIENCES.  IF YOU NEED TO CONTACT ME MY EMAIN IS RAVENHEART_860@HOTMAIL.COM, MY NAME IS RAVEN,

    YOUR FAMILY HAS A RIGHT TO WORRY, YOU SEE, WE NEVER KNOW HOW BAD WE GET.  PEOPLE WHO ARE ILL DO NOT REALIZE HOW SELFISH WE CAN BECOME.  WE DO NOT MEAN TO, IT JUST HAPPENS THE TRICK FOR YOU IS TO START JOUNALING. TRUST ME YOU WILL SEE WHAT THEY ARE SEEING.  THEY MAY NEVER TELL YOU ALL, BUT AT YOU WILL SEE WITH YOUR JOURNALING.  JOHN, ALSO WRITE DOWN WHAT YOU WANT TO DO FOR DREAM. SHORT TERM ONES AND LONG TERM ONES,  AND PRACTICE KINDNESS.   BLESSINGS TO YOU AND YOURS

    RAVEN IN UTAH

    • Terry
      Feb. 26, 2008

      Wow, Raven, that's quite an interesting approach. I've had Fibro for longer than even the drs admit as I can remember chronic aches and pains as a child that I now know were NOT normal for a 12 year old to be experiencing (they were called "growing pains" back then), but at 57, and with a firm diagnosis 7 years ago I look back and know...

      RHMLucky777

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      Wow, Raven, that's quite an interesting approach. I've had Fibro for longer than even the drs admit as I can remember chronic aches and pains as a child that I now know were NOT normal for a 12 year old to be experiencing (they were called "growing pains" back then), but at 57, and with a firm diagnosis 7 years ago I look back and know the Fibro has actually been with me for decades...it just went ballistic after a cardiac crisis in 2000. I have a great pain management doctor, but I , too, worry about the "too many drugs" stigma. I rely on alternative therapies too, (I wish my reflexologist could move in with me!) and my pain dr started me on supplements, ( vitamins e, c, B-12, zinc, folic acid, malic acid, MSN, Gluocosamine/Chondroitin, Co-enzyme Q-10, Quercetin/Bromelain, Omega 3-6-9, ImmunPlex, Reishi Mushroom, Butcher's Broom and soy, just to name the current batch) even before we talked pain meds. But what works for one just doesn't always work for others. Reading these responses to the original Post make it obvious that for every chronic pain sufferer out there, there's a different body with vastly different needs and lifestyle requirements. I had to retire from my beloved Kindergarten classrooms 3 years ago due to the Fibro and arthritis bone degeneration in my feet, so I can stay awake all night now with hot and cold packs to help control pain rather than take a pill if I'm having a bad flare, but working people and parents with kids need a good nights sleep, so breakthrough pain meds are absolute necessities for others. I recently had knee surgery, (torn cartlidge and knee cap displacement correction). Had nothing to do with my chronic pain problem, but as we all know ANY surgery has serious consequences for Fibro folks. Surgeon gave me Norco, even though I told him Vicodin doesn't last for more than about 3 hours for me. Actually most pain meds only last about 3 hours, even the "long lasting" ones, which has been my problem for years. I get some relief from a few drugs but it never lasts until the next dose is allowed, which is why I use all the alternatives to carry me over to the next dose. My Psychiatrist has me trying Lyrica and in talking to him about my fears of taking too many drugs with the added Norco, (which is just a stronger dose of Vicodin....typical surgeon's RX) he said it was apparent to him from my complaints about short term relief that my body metabolizes these meds very fast so he suggested cutting the Norco in half and taking 1/2 every 3 hour instead of a whole one every 6 hours. I tried this and it worked on the knee pain from the surgery so I revised my regular pain meds the same way, ( I had been taking  2 Darvon and 2 Talwin every 6 hours). Now I'm taking 1&1 every 3 hours and actually haven't had to use break thru meds for some time. I'm actually using less of all my meds now and I think the Lyrica may have a chance to take effect. We'll see about that..keep hoping. I quess all I'm really saying is I think we all need to remember that we're ALL SO VERY different. It's one of the things that got all of us into this situation in the first place...if our bodies acted like the majority of the populace we wouldn't have chronic pain in the first place so let's not try to make one big round hole for us square pegs to fit into. I think sharing ideas about what works for each of us is what this space is all about and as I read everyone's comments i always end up writing  down something to ask my doctor about or to look up in one of my natural healing books. Information opens more doors than it closes..... Okay, now I'm getting preachy, Sorry, folks, spent too many years keeping little rugrats entertained. oops gotta go, late for a drs appt....lol Laughter truely does drive pain away!Terry

      .  

  • Anonymous
    Anonymous
    Feb. 22, 2008
    Sometimes I think the 'concern' & judgments by family & friends as well as my boss were worse than my physical pains.  I decided that it was just too exhausting to complain or to listen to their skepticsim, second-guessing my drs or dismissing my pain experiences.  Some people just don't believe or can't...
    RHMLucky777
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    Sometimes I think the 'concern' & judgments by family & friends as well as my boss were worse than my physical pains.  I decided that it was just too exhausting to complain or to listen to their skepticsim, second-guessing my drs or dismissing my pain experiences.  Some people just don't believe or can't imagine what it is like to live w/chronic pain.  We try to live normal lives & my Rx make it so that I can.  The alternatives was never an option.  I still had to work & take care of myself & my son.  I eventually stopped talking about Rx details w/anybody.  I now keep a list of my Rx in case of emergency or were to end up in the hospital ER.  I NEVER give my Rx containers to anybody!!  I give medical personnel a list that has my drs signature on it. I always keep my Rx's under my personal control.  I store them in a locked cabinet or safe to prevent temptation or theft.   All of my meds are prescribed & reviewed by my primary physician.  I respond to inquiries w/a simple statement thanking them for their concern but that my physicians and I have established a pain management regime that works for me.  I then change the subject or tell the persistent that I don't discuss my meds w/others. 
    • Radene Marie Cook
      Feb. 25, 2008

      Bravo!  That is a brilliant strategy and amazingly, one we don't think of right away.  In this age of paparazzi, I think we feel as if we owe everyone an explanation of our very private med schedule just because we are asked.  But NO!  Not their pain, not their co-pay, not their business!  I love it.Dry

      Radene

  • mj or malia io
    Feb. 22, 2008

    aloha,

    i've asked myself that question from time to time. I'm taking 1 ms contin 60mg twice a day and i have oxycodone 5mg and 15 mg i can take 4 times a day if needed. I'm never completely pain free. I'm graduating from the university of hawaii, I work as a mentor in photography, i have  a job with a search engine on line that i work...

    RHMLucky777

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    aloha,

    i've asked myself that question from time to time. I'm taking 1 ms contin 60mg twice a day and i have oxycodone 5mg and 15 mg i can take 4 times a day if needed. I'm never completely pain free. I'm graduating from the university of hawaii, I work as a mentor in photography, i have  a job with a search engine on line that i work 20 hours a week and my days usually go from 5 a.m. till 11 pm. I don't feel any high or anything like that, i don't stumble around or slur my words, people are surprised when they learn i'm on pain medication. I also walk at least a mile a day for exercise and i swim; and as I said i still have pain. I'm not sure I'll ever be totally pain free. In my case I stick to what the doctor prescribes and no more unless i talk with my doctor, he writes my ms contin for 3 a day but i do my best to stick to 2 of them. I've been without a car for a couple weeks and i've had to walk most places i had to go, the furthest was a round trip of 8 miles that day I tood all three ms contin, but i make sure they're spaced out to every 8 hours that way i'm certain that i'm not getting too much of the medication in my system at one time I take the break through meds in between, like when i know i have to make a long walk, i take my regular meds when i get up at 5 a.m. if i leave the house and walk to work at 8 i take my breakthough and when i finish my walk i take one because the pain is really bad. i believe you would know if you're taking too much.

     You know when your break through pain starts up and you know if you're prescribed one pill for that break through pain  and you find yourself taking 2 or 3 then you're overmedicating and you should be talking to your doctor about it. I think that's the most obvious sign right there.

    i keep enough medication in my little day to day med case and i include that extra pill in case i need it when i'm away from home, but i very seldom have to take it but i know it's there if i need it. usually by the end of the month i have medication left over when i go in for my monthly check up and refills.

    Families mean well, but they aren't living in you body, they can't feel your pain. I believe we chronic pain sufferer's  need to build a strong relationship with our doctors. He sees you on a regular basis, he observes you in the office and he listens to what you say. He has the training and the knowledge of the problems you have and the medication he's prescribing for you. That's the bottom line. I truly feel that no matter how much your family cares it's you and your doctor who work as a team and family should stay out of it. I've had my family try and tell me about my pain and how it should be treated they didn't have a clue and quite frankly the did a lot of damage and caused me a lot of trauma emotionally and physically, i almost died twice because they thought my pain was imaginary. If you haven't done so please build a strong relationship with your doctor and your whole medical team if you have one. They're the professionals, families may mean well but they can cause problems without realizing it.

    mj bafile

    pop leader hawaii

  • Quidnunc
    Feb. 22, 2008

    Please listen to your body and not to your daughter.  Unless she has suffered the ravages of chronic pain, she doesn't have a clue, which is the problem with this whole debate over appropriate dosage levels. In order to bring my pain under control, I ended up taking enormous amounts of pain meds (in my opinion) but once my pain was controlled, I was...

    RHMLucky777

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    Please listen to your body and not to your daughter.  Unless she has suffered the ravages of chronic pain, she doesn't have a clue, which is the problem with this whole debate over appropriate dosage levels. In order to bring my pain under control, I ended up taking enormous amounts of pain meds (in my opinion) but once my pain was controlled, I was able to step down in terms of total amounts.  If you have an addictive personality, you will get addicted at any level of meds and you will have problems.  If you do not have an addictive personality, you will have the strength and mental ability to step down your meds as appropriate.  With an addictive personality, your mind gets involved and you crave your medication.  You begin to want it just for the sake of having a rush.  Apparently, I don't have an addictive personality because I keep wondering why my drugs have such a high street value.  They do absolutely nothing for more except reduce my pain.  I assume that is the case with you also.  Please, please, listen to your body.  If you are unable to work, are too strung out to drive and you abandon your spouse to get your next dose, then you are over-medicated.  If you continue to function as amazingly well as you are, then you have probably found the right level of meds. I am amazed at your high level of functioning.  As they used to say (and I never before found appropriate):  You go, girl.  Best of luck in balancing your meds and your pain.  It sounds like you have a thoughtful and concerned doctor.  Count your blessings.  Thousands would kill to be in your position!

     

  • Lisa
    Feb. 22, 2008

    Hi there,

    I went through the same thing. My brother came up to me at my dads birthday and said to me "lisa you are taking to much medication".  It brought tears to my eyes and I said to him, but i need this medication or the doctors would not have prescribed it. his response was this "I didn't say you didn't need the meds, i just...

    RHMLucky777

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    Hi there,

    I went through the same thing. My brother came up to me at my dads birthday and said to me "lisa you are taking to much medication".  It brought tears to my eyes and I said to him, but i need this medication or the doctors would not have prescribed it. his response was this "I didn't say you didn't need the meds, i just said you are on too much"

    What I took as a slap in the face was really just his concern for me that it is a **** shame that i have to take so much, he was hurting for me.  I am glad that this was explained to me, i took it wrong.

    In the past I have had to defend myself to my family. My dr. finally said something to me that resolved my problem he told me that "You don't have to validate yourself to anyone"! One word "validate" never could i have imagined the power this word gave me, it set me free.

    I would like to think that your dr went to school for many years to have more knowledge than your family members. Talk too them maybe they were expressing themselves wrong. Which I have found that mine do all the time, I am educating them whether then like it or not. I give them emails, books, phamplets, news programs to watch. This has made my life easier. And then I dont' have to tell them what meds i take, and neither do you. Pick your battles with them, tell them that its is between you and your dr. Ask them why do you want to know what i take? And if they are worried about addiction ask them to quit drinking their coffee, or no more alchohol, no more cigs.

    I know wher you are coming from and don't let them add stress to life.

    lisa

  • Beckie
    Feb. 22, 2008

    Your family doesn't know anything about pain management, but your doctor does. Set your boundaries with your family. Rules of engagement are, when one or more of them obtains a license to practice medicine, then they can broach the subject of your medication habits.

     

    Most people don't understand that pain meds, when taken for pain instead of recreation,...

    RHMLucky777

    Read More

    Your family doesn't know anything about pain management, but your doctor does. Set your boundaries with your family. Rules of engagement are, when one or more of them obtains a license to practice medicine, then they can broach the subject of your medication habits.

     

    Most people don't understand that pain meds, when taken for pain instead of recreation, do not make you high or happy or anything else that street drugs. Pain meds merely make the pain tolerable on most days.

     

    I had to push my family outside my boundaries because most of them suffer from psychological and/or psychiatric disorders. Those kinds of people attempt to project their ailments onto everyone around them because that is all they know. None of them are in pain.

     

    When I meet new friends, and they start in on me about the number of meds that I take, or that I should be taking something orally, I push them completely out of my circle of friends. I usually explain to them exactly what I have stated here, just before I push them away. And if they talk over me, raise their voice to me, or otherwise argue with my exhaustive experience with drugs, medicine and pain, I hang up on them or walk away leaving them with their jaws flapping in the breeze (no one to listen to them).

     

    My doctor most recently told me and another patient receiving IV infusion therapy for our diseases and our pain that neither of us was taking enough pain meds if we were suffering as much as we said. So he increased the strength of Vicodin that I take (and I can drive just fine while taking it). And he prescribed both of us migraine meds that recently have been put back on the market -- because it WORKS: Midrin capsule.

     

    From my own personal experience, I know that you feel you take too much meds. But deep down inside, you know that you are not a hypochondriac or a junkie. Keep plugging along, because you have an incredible number of responsibilities to your loved ones. And pray often that you experience long periods of time free of pain, drugged or otherwise. Sometimes that is the only thing that gets me through the day. And I don't work at all any more. I also do not have a spouse to care for. My only supportive family member died last fall.

    God Bless,

    Beckie

    • mawmawfarmer
      Feb. 22, 2008
      Hi Beckie! Thanks so much for your soooooo true comments. I feel that I am doing the best that I can holding things together and no one should question me but myself. I called my doctor yesterday about the Opana. I just did not like how it made me feel and ask him to stop it and to prescribe something else that I havent' been on in a while hopefully that...
      RHMLucky777
      Read More
      Hi Beckie! Thanks so much for your soooooo true comments. I feel that I am doing the best that I can holding things together and no one should question me but myself. I called my doctor yesterday about the Opana. I just did not like how it made me feel and ask him to stop it and to prescribe something else that I havent' been on in a while hopefully that will do the trick. I have a wonderful support system most times and I do appreciate their concern.  There is just so much stigma associated with pain medicine that most people are very afraid of it. I myself am greatful that I found the right doctor and he is helping me.  I am available anytime to talk if needed. Johnnie
    • Beckie
      Feb. 22, 2008
      You are quite welcome! I find that venting with kindred spirits sometimes works as well as my pain meds. Best of luck with your change in medications. Most of my sickly friends change their meds every 2 weeks or so. I am so sick that I historically can't change but one thing at a time, and keep after it for about 2 months. My doctors tell me that...
      RHMLucky777
      Read More
      You are quite welcome! I find that venting with kindred spirits sometimes works as well as my pain meds. Best of luck with your change in medications. Most of my sickly friends change their meds every 2 weeks or so. I am so sick that I historically can't change but one thing at a time, and keep after it for about 2 months. My doctors tell me that I am their more "challenging" patient compared to other patients with similar illnesses. And when most people get to know me, they all agree, no one understands where I get the strength to go on. And thank you for being there if I ever just want to chat -- or vent.
  • nitstreet
    Feb. 22, 2008

    i am also taking duresgesic 100mg every 38 hours so in essence i am on 200mg all the time i also take 10/325 peroset every 4-6 hours as need. i do not get full relief from my pain but this along with lyrica and prozac is the best i have found to date.. i tried opana and was unseccessful with it. is it too much medicene, i am not drugged high or any thing like...

    RHMLucky777

    Read More

    i am also taking duresgesic 100mg every 38 hours so in essence i am on 200mg all the time i also take 10/325 peroset every 4-6 hours as need. i do not get full relief from my pain but this along with lyrica and prozac is the best i have found to date.. i tried opana and was unseccessful with it. is it too much medicene, i am not drugged high or any thing like that althought sometimes i wish i were to avoid the feelings of pain,  when pain is involved there is no amount that is too much if pain is stlii present.  hope this shows you some other side of the story

  • Lotacats
    Feb. 22, 2008

    Well...if your family members took that dose they'd probably drop dead. 

     

    But your body is adjusted to it as bodies do normally to opiates.  You are certainly high functioning and that seems pretty darned good and shows it's not too much for you at all. 

     

    How you and your doctor manage things are really between you and the doc. ...

    RHMLucky777

    Read More

    Well...if your family members took that dose they'd probably drop dead. 

     

    But your body is adjusted to it as bodies do normally to opiates.  You are certainly high functioning and that seems pretty darned good and shows it's not too much for you at all. 

     

    How you and your doctor manage things are really between you and the doc.  Some painers drop tolerance thru "Drug Holidays" but that is also between the patient and the doctor.  Stopping after high dosages can be a painful proposition without doing it right.

     

    Your fortunate to tolerate them so well.

     

    Anyway..until the family members get an MD behind their names...they should be glad you are getting such good treatment from your doctor.

    • mawmawfarmer
      Feb. 22, 2008
      I am very grateful for my wonderful pain management doctor. I don't care what anyone says. He has been a god send to me. Unlike some drs. I can talk to him and he does not question me with stupid questions. He knows that I am trying to be a functioning chronic pain patient if there is any such thing. I do work a full time job and take care of my husband...
      RHMLucky777
      Read More
      I am very grateful for my wonderful pain management doctor. I don't care what anyone says. He has been a god send to me. Unlike some drs. I can talk to him and he does not question me with stupid questions. He knows that I am trying to be a functioning chronic pain patient if there is any such thing. I do work a full time job and take care of my husband some days better than most but I do feel blessed. thanks everyone for you recent comments. J
    • Lotacats
      Feb. 22, 2008

      Mine believes me as well.  It took seven years for the clinic to use a real pain med and it cut into the nerve signal itself and gave me a new lease of life. 

       

      I may have had another couple of years of work if they had but they (clinic) were soooooooo narcophobic. 

       

      With the disability I was able to get my old doctor back and he believes...

      RHMLucky777

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      Mine believes me as well.  It took seven years for the clinic to use a real pain med and it cut into the nerve signal itself and gave me a new lease of life. 

       

      I may have had another couple of years of work if they had but they (clinic) were soooooooo narcophobic. 

       

      With the disability I was able to get my old doctor back and he believes me.  Just the other day when I was seeing him he recommended more excercise and I told him I really try but it huuurrrrts so bad sometimes.

       

        He looked at me with sympathy and said "I know".

       

        Do you have any idea how beutiful that sounds?!? 

       

      No one can really understand until they've been thru what painers have been thru. 

       

      I have Fibro, really bad Osteoarthritis that's eaten a lot of spine and L3 and L4 have caved in on the nerves....the top half of my left leg is parathesic and burns and tingles and you name it...took 10 minutes to get it out of bed this morning.  We think I have Myofacial pain syndrome...what I call the "Shoulder blade beast"...that caused the disability.  Both knees gone.  It goes on but he treats my pain. 

       

      I used to be an active Reg Nurse and Substance Abuse councelor and certified in psychiatry. (Anyone who says it's all in your head is just plain lazy).  I had wild horses and regular ones and generally had an active life....I miss it. 

       

      I put a lot of energy into the computer and making t shirts n stuff.  I just learned to channel elsewhere. 

       

      Glad you can still work.  Good for you!!

    • Radene Marie Cook
      Feb. 25, 2008

      Dear MawMaw,

      First of all I think it is important to remember FOR EVERYONE TO REMEMBER, that pill counting DOES NOT WORK! Everyone reacts differently to opioids depending on condition, O. tolerence, and analgesic effect received.  If you are not mentally altered -  as in slurring your speech, looking confused (more than the average bear) - you are...

      RHMLucky777

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      Dear MawMaw,

      First of all I think it is important to remember FOR EVERYONE TO REMEMBER, that pill counting DOES NOT WORK! Everyone reacts differently to opioids depending on condition, O. tolerence, and analgesic effect received.  If you are not mentally altered -  as in slurring your speech, looking confused (more than the average bear) - you are ok.  If the pain relief outweighs any side effects - i.e. labored or slow breathing, uncontrollable itching, etc.,. -- you're fine.  In  fact, your more than fine, you are above the curve.  People don't realize, because it's not been taught by our providers, that uncontrolled pain is like rusi to the body is is a far greater danger to us than opiods which generally metabolize as endorphins and leave the body when they are through.  You can't say that about the "hospital's use this one most" Acetaminaphen which goes through your liver and plays havoc.  Also, there is NO CEILING DOSE for opioids, did you know that?  It's true and the World Health Organization knows it too and quoted such as they wrote a report on the lacklaster performance of "Pain Care in the U.S.". 

      That document, plus others since (Univ, of Wisc - "Pain and Policy Studies in the U.S" [ok that title might be paraphrased, but Google the University, you'll come to the study] have brought the plight of the pain patient to the forefront in this new century.  Bottom line -- we have had a puritanical view of the USE (notice? not ABUSE, use) opioids as risky at any cost and opted for more invasive "pain relief methods" so we can be falsley proud of keeping a "virtuous" distance from "those awful D-R-U-G-S."  That mentality doomed me to a life of severe, intractable pain with the onset of Adhesive Arachnoiditis. AA is a condition that is 100 % iotrogenic, which means, "doctor/treatment CAUSED."  All because when it was known that my pain would be chronic, I had epidural steroid Inections, nerve blocks, and yada, yada because it was thought, "Even though these proceedures are painful, potentially harmful and have a only have a 10 - 50% chance of giving relief (then only the first time), at least we're not putting you ON DRUGS!!!!" (AAhhh! Sound the alarm! Grap your torch and pitchfork! We're gettin' us a PAIN PATIENT taking more than 3 pills a day!" `cackle`cackle`cackle.  You know what I mean?

      MawMaw, uncontrolled pain can kill or incapacitate you worse than your

      pail

    • Radene Marie Cook
      Feb. 25, 2008

      (...continued)  ((OOPS! I think I bumped "enter",  And No, that's not my medication, lol.))

      So MawMaw what I was saying was that uncontrolled pain can hurt and kill you quickly because of how much stress pain puts on the body. raised resting pulse rates, high blood pressure... that's a natural reaction to your body under assault! ...

      RHMLucky777

      Read More

      (...continued)  ((OOPS! I think I bumped "enter",  And No, that's not my medication, lol.))

      So MawMaw what I was saying was that uncontrolled pain can hurt and kill you quickly because of how much stress pain puts on the body. raised resting pulse rates, high blood pressure... that's a natural reaction to your body under assault!  Check out "The Intractable Pain Patients' Handbook for Survival," by Dr, Forrest Tennant.  It's available for free at www.pain-topics.org.  Show it to your loved ones.  They love you and want the best for you,  but the old standards for how to treat pain have been found wanting time and again.  It's out with old prejudices and in with the OLDER - but BETTER - way to combat chronic pain.

    • Lotacats
      Feb. 25, 2008

      Oh, wow.  What a neat site.  Loving the gallery!

       

      About the uncontrolled pain.  While I was waiting those seven years to get some kind of pain relief I did reach the "I really wanna die" part.  The sensation was of being cornered with no way out and that is soooooo not me.  I always embraced life big time and even the...

      RHMLucky777

      Read More

      Oh, wow.  What a neat site.  Loving the gallery!

       

      About the uncontrolled pain.  While I was waiting those seven years to get some kind of pain relief I did reach the "I really wanna die" part.  The sensation was of being cornered with no way out and that is soooooo not me.  I always embraced life big time and even the thought of not wanting to wake up next day was really out of character but it reached that point. 

       

      The mental effects mixed with the mental effects of uncontrolled pain is really dangerous. When some of the docs who toss patients out of treatment or refuse them treatment even think of the "First do no harm" thing.  The harm is a big time thing and could cost the life of that patient.

    • Lotacats
      Feb. 25, 2008
      Mental mixed with Physical effects...where's the edit on this thing? Woot!
    • Radene Marie Cook
      Feb. 25, 2008

      Lotacats, you are too much fun! And you have a great attitude.Laugh  It's AMAZING how far a little sympathy, understanding and just a 'little' bit of actual MANAGEMENT of our pain (not "rid of" obviously, but just keeping us out of  "I wanna die" land) can do for our whole outlook.

      I pray so many in pain can be...

      RHMLucky777

      Read More

      Lotacats, you are too much fun! And you have a great attitude.Laugh  It's AMAZING how far a little sympathy, understanding and just a 'little' bit of actual MANAGEMENT of our pain (not "rid of" obviously, but just keeping us out of  "I wanna die" land) can do for our whole outlook.

      I pray so many in pain can be as fortunate as you and I have been with doctors who really WANT fo help, heal and "First, do no harm."

      It's been good to talk with you all. Best of everything, m'Dears!

      Radene

       

      P.S. I'm so glad you liked the "Pain Topics" site.  That handbook for Intractable Pain Patients is SUCH a keeper.  On a more personal note I'm glad you liked the gallery because I was honored to have three of my paintings shown there! Cool!

    • Anonymous
      nia2k2
      Jul. 31, 2009

      I too have an awesome pain dr. I am currently on oxycontin 40mg 3times a day, norco 10/325 up to 8 times daily for breakthrough and soma 350mg 3 times a day. At night I ALWAYS turn into an insomniac and have seroquel 100mg for that. From time to time I add 150mg of topomax for the nerve pain. I had a l/s fusion at l5 and s1 & suffer from a torn rotator...

      RHMLucky777

      Read More

      I too have an awesome pain dr. I am currently on oxycontin 40mg 3times a day, norco 10/325 up to 8 times daily for breakthrough and soma 350mg 3 times a day. At night I ALWAYS turn into an insomniac and have seroquel 100mg for that. From time to time I add 150mg of topomax for the nerve pain. I had a l/s fusion at l5 and s1 & suffer from a torn rotator cuff that has not responded to 2 surgeries. I hate being in chronic pain, because of the judgement mostly. There are days when I look completely normal & then others when I can't even support my weight to get out of bed. I would love to be "NORMAL" again and off all meds, but I don't see that happening. I am thankful for my doc & try my best to not worry what others think. The only time it really bothers me is if I HAVE to go to the ER for intervention with a pain flare up that just will not respond to any meds I have at home...they give me the old drug seeker look. I HATE that!

  • Anonymous
    Kate B
    Feb. 22, 2008
    Well, my experience is that concerned parties will tell you that any amount is too much. Didn't matter what dosage or med I took, I got the same reaction. So I guess if they are a bit concerned they could have a conversation with your doctor, if he is willing. I went off my pain meds because of that, got if from relatives friends and PCP's. Now I stumble...
    RHMLucky777
    Read More
    Well, my experience is that concerned parties will tell you that any amount is too much. Didn't matter what dosage or med I took, I got the same reaction. So I guess if they are a bit concerned they could have a conversation with your doctor, if he is willing. I went off my pain meds because of that, got if from relatives friends and PCP's. Now I stumble around and everyone is worried about that, that I am an accident waiting to happen. So what I would like to know is a person to do? Take the medication as directed and be thankful that people care for you but tell them that you are on the minimal amount that will allow you to work and that you are taking it as directed. Sometimes we are put in impossible situations, and there is no black and white answer. This sounds like one of them.
  • Anonymous
    Jo Anne
    Feb. 16, 2008

    To Whom It May Concern,

    I to deal with pain everyday. I have severe Chron's disease, and I have arthritus pretty bad. I walk around with pain in both hips. I am only 53 years old. I take 50mg. of Fentanal patches and also take two Vicodans every morning to cope with the pain. I only take the patches when needed. Using the patches everyday especially at that...

    RHMLucky777

    Read More

    To Whom It May Concern,

    I to deal with pain everyday. I have severe Chron's disease, and I have arthritus pretty bad. I walk around with pain in both hips. I am only 53 years old. I take 50mg. of Fentanal patches and also take two Vicodans every morning to cope with the pain. I only take the patches when needed. Using the patches everyday especially at that dose is not a good idea. Only use the patch when you are having really bad days. I would stop the percocet, and go to another pain reliver. Percocet does affect the digestive syaytem. It can do damage to the intestines. I am surprized that the doctors did not mention that. Try the Ultram or vicodan's. I was put on allot of other medications besides the pain releivers, and was sick in my stomach all the time. I quit taking those others and do not feel as ill. I went to pain management doctors and they wanted me to go on the drug that the herion uses use to quit their habbit. They said it was also used for people like us in pain everyday. Needless to say I said no to that. Some doctors just do not think of how all these medications effect our daily routines. Driving is one of them. With being on these medications and you get into an accident, you are in deep trouble. Be carefull, and think what the consequence's would be. I am trying home remedies for all the pain that I go through and also the constant diarehha that I have each day. For the doctors has used everything that they could think of to help with my problem. Nothing helped and I have all these medications sitting in my medicine chest that has no effect on me. I am going to try what I just read about the coconut macaoon cookies to help with my Chron's. I will let you know if it helped me. Good luck to you and cut down or replace the percocet. 

    • Kimberly175
      Feb. 18, 2008

      Jo Anne,

       

      You seem to have been through alot like the rest of us too. Although you have some vaild points, i think its up to each individal patient has far as what medications they should take or not. Like i said before to her, you (and everyone) knows your body best. You know what you should and shouldnt be taking all at once, and if you dont know your...

      RHMLucky777

      Read More

      Jo Anne,

       

      You seem to have been through alot like the rest of us too. Although you have some vaild points, i think its up to each individal patient has far as what medications they should take or not. Like i said before to her, you (and everyone) knows your body best. You know what you should and shouldnt be taking all at once, and if you dont know your doctor should. If you doc cant even help you, thats when you find a specialist or pain management doctor. You say how bad the percocet is for you, and as i do agree with you alittle, i still think vicodin really isnt much better. Vicodin has the codene in it, and too much codine can cause serious problems with your liver and stomach as well as the constipation from it, and the nausea sometimes. I just think its very easy to tell someone to just stop taking this and take this instead kind of thing. Everybody is different and different things work for different people. I hope im not sounding mean in this message, and i hope you know were im coming from with this email. Not here to judge or tell people what to do, infact i think its better to listen and give people feedback, but i dont think you can tell people what they should or shouldnt be taking even though i know you were just giving her advice. Im just very sensitive when it comes to meds, i dont think you should judge people by what they take b/c not everything works for everyone.

    • mawmawfarmer
      Feb. 18, 2008
      Thanks Kimberly175 for your advice. I now realize that each person is different. While I have been on the Opana now just a week, I am feeling the effects of the new medicine. While it may seem to be too much medicine to others (mainly people who do not suffer as we do from constant chronic pain) I feel that my pain management doctor has my best interest...
      RHMLucky777
      Read More
      Thanks Kimberly175 for your advice. I now realize that each person is different. While I have been on the Opana now just a week, I am feeling the effects of the new medicine. While it may seem to be too much medicine to others (mainly people who do not suffer as we do from constant chronic pain) I feel that my pain management doctor has my best interest at heart and it is I who lets him know the extent of my pain. I don't think the patches are to be used whenever you need it because it needs to be in your system continiously. j
    • Kimberly175
      Feb. 18, 2008

      Hey there! no problem for the advice. Those are just my feelings about it thats all. Not here to judge or hurt anyones feelings. My doctor prescribed me opana. It never ended up working for me. I took it for about a week at a high MG, but still no luck. My body rejects alot of meds. It either doesnt do anything at all, or it helps for about a week then doesnt....

      RHMLucky777

      Read More

      Hey there! no problem for the advice. Those are just my feelings about it thats all. Not here to judge or hurt anyones feelings. My doctor prescribed me opana. It never ended up working for me. I took it for about a week at a high MG, but still no luck. My body rejects alot of meds. It either doesnt do anything at all, or it helps for about a week then doesnt. Strange sounding im sure, but thats the way my body works i guess. I hope that the opana continues to work for you and feel free to write me anytime you want to chat, or if you need to vent....lol Oh, when you said you are feeling the effects of the meds...is that a good thing? or are you feeling the bad side effects from the meds? i just hope it works for you!!! if not, just know there is something out there that will work. Its just a matter of finding the right one. Have you ever tried a nerve stimulater? i have a TENS unit, and i love it!!!! it just clips on your pants and the sticky pads are on your back in whichever spots you want them in. It really helps!! thats what has kept me off the pain meds right now. Or at least i only use the meds when its really really bad but im able to function overall with the nerve stimulater. I definitly recommend trying it if you have certain points in your back that hurt more than others. It doesnt hurt, basically it just numbs your back up. Its great!

       

      Take care, and your in my thoughts and prayers!

      Your CPC friend, -kim

    • mawmawfarmer
      Feb. 25, 2008
      When I talked about the effects of the opana I did not like it at all.  It may work for some people but not me. Felt horrible and out of my head. Called my doc and he gave me something else . no questions asked.
    • Kimberly175
      Feb. 26, 2008

      good, im glad you got off a medication that you knew wasnt working for you. Ya, i cant remember if i told you before in my previous posts, but my doctor gave me opana too. i didnt like it at all. I didnt have any side effects like it sounds like you did, it just didnt ever work for me even after they would increase the dosage. Im glad to hear your doctor gave...

      RHMLucky777

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      good, im glad you got off a medication that you knew wasnt working for you. Ya, i cant remember if i told you before in my previous posts, but my doctor gave me opana too. i didnt like it at all. I didnt have any side effects like it sounds like you did, it just didnt ever work for me even after they would increase the dosage. Im glad to hear your doctor gave you something else to help with the pain.

      Take care, and keep me posted on how your doing if you can -Kim

    • nitstreet
      Feb. 22, 2008
      how are you able tto tkae the duragesic when needed it is a medicene that needs to be taken all the time, i would imagine you get very high from putting it on as needed
    • Anonymous
      Barbara
      May. 22, 2008

      I wanted to make a comment about the duragesic/fentanyl patches anyway, so here's as good a place as any to make it.  Unless she is using the patches incorrectly, it takes approximately 17 hours from applying the patch for the medicine to get to strength in your body from first applying it so it is NOT a good medication to use during the time when you...

      RHMLucky777

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      I wanted to make a comment about the duragesic/fentanyl patches anyway, so here's as good a place as any to make it.  Unless she is using the patches incorrectly, it takes approximately 17 hours from applying the patch for the medicine to get to strength in your body from first applying it so it is NOT a good medication to use during the time when you are having a bad day and need something to relieve pain quickly.  There may be other forms of the drug itself out there that are quicker acting,but not in the patch form and I wanted to get that cleared up before someone decided to stop using it on a regular basis and just use it as a rescue medication.  Its not to be used for rescue but as a long acting  regular pain control medication for up to 3 days per patch(my dr has me change mine every 2 days).   I am a very happy duragesic/fentanyl user of just over 2 years duration and am extremely glad that this medication is available to me!

       

      Barb

    • nitstreet
      May. 22, 2008

      i could not agree with you more... the duragesic is to bring the generel pain level to more tolerable and then something else for breakthrough pain.. i do not think i would be functioning whatsoever if i did not have the duregesic but certainly need more on certain days.   i thought i was the only one who deviates from the suggested script  my...

      RHMLucky777

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      i could not agree with you more... the duragesic is to bring the generel pain level to more tolerable and then something else for breakthrough pain.. i do not think i would be functioning whatsoever if i did not have the duregesic but certainly need more on certain days.   i thought i was the only one who deviates from the suggested script  my doc has me put one on every 36 hours so they overlap because i was finding the pain returning about half way through the onset of the patch.  i am sure you know that you need to wean coming off the patches    best of luck anita

  • Anonymous
    brian
    Feb. 16, 2008
    mawmawfarmer, avinza has worked for me in the past and would probably still work, but dr. said i needed methadone and dalada for more relief. be careful, you should be your own judge on the meds you take, not them. i feel they treat us like a gaini pig. the patch worked also, but i had a hard time keeping it on i the shower. is your pain from spinal or etc....
    RHMLucky777
    Read More
    mawmawfarmer, avinza has worked for me in the past and would probably still work, but dr. said i needed methadone and dalada for more relief. be careful, you should be your own judge on the meds you take, not them. i feel they treat us like a gaini pig. the patch worked also, but i had a hard time keeping it on i the shower. is your pain from spinal or etc. ?
    • mawmawfarmer
      Feb. 25, 2008
      Hi Brian! Mine is totally low back pain with pain in my hips, left leg, butt and you name it. I just hurt all over in my lower back. Some days are worth than others but I make due. I have a hard time keeping the patch on too. I always back it up with bandaids and it stays in place. Started putting in on the upper parts of my shoulder. Had been putting it on...
      RHMLucky777
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      Hi Brian! Mine is totally low back pain with pain in my hips, left leg, butt and you name it. I just hurt all over in my lower back. Some days are worth than others but I make due. I have a hard time keeping the patch on too. I always back it up with bandaids and it stays in place. Started putting in on the upper parts of my shoulder. Had been putting it on my arms but they got to sensitive and starting itching and breaking out. I am going on the dilaudid today with a block scheculed on Wed. so hopefully I will be feeling much better by this weekend. Glad to hear from you. J
  • Kimberly175
    Feb. 15, 2008

    Hey there! im kimberly and i just read your post about possibly being on 2 much meds. Real quick, do you mind if i ask what kind of pain you have?? you back? neck? have you had surgery in the past? did your doctor give you all this meds at once? only reason why im asking is b/c to me it doesnt sound like your taking alot, you are still working a full time job...

    RHMLucky777

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    Hey there! im kimberly and i just read your post about possibly being on 2 much meds. Real quick, do you mind if i ask what kind of pain you have?? you back? neck? have you had surgery in the past? did your doctor give you all this meds at once? only reason why im asking is b/c to me it doesnt sound like your taking alot, you are still working a full time job and it sounds like its a important job since your working with attorneys (lol) but either way, if your able to function and this stuff your taking and the patch are helping you, then isnt it worth it?? i had surgery 2 yrs ago this aug. and a little before my surgery i was on 2 different types of pain meds, and then i was givin a 3rd kind AFTER my surgery. I would hear the same things from my family members and fiance too. Everyone has said that!! i didnt know...i was just in pain so i took them! and i had to alternate between the different types out there b/c my body would reject it after a week or less of using it. I hated being on all those meds, for awhile though, that was the only way i could function. How often do you feel like you take your break through meds?? i think thats important only b/c it depends on how much your going through on a daily basis to really ask yourself if your taking too many meds. I have cut down to only 1 breakthrough medication now, so when things hurt or get really bad, i take it. Otherwise i deal. That was just my personal choice b/c i want to think about kids in the near future and i just want to get myself healthy again. Really healthy. After at one point being on 4 different types of medications i knew i had to get myself off them and i can tell day by day how much healthier im getting. Although im not saying it was easy, it was VERY hard!! its still hard at times. I think since being off them my anxiety went up a little, so i do take something for that at least every other night or so.

                  Sorry for such the long email! just wanted to tell you about my experience. I really do think anyone can say thats too much meds for you, or not (well besides your doctor) but truley, only YOU know what your body can or cannot handle. Just keep the communication open with your doctor, ask him/her what they think or what they would do in your situation. Thats really the best i can say right now. I hope i helped at least a little! Dry

    • mawmawfarmer
      Feb. 16, 2008
      Hi Kimberly i had my first back surgery on October 18, 2006 for a ruptured disc. I still had severe pain and went to get a second opinion and had a second surgery for loose bone and possible strep infection on June of 2007. They wanted to do a fusion but did not because of the possible infection. Started on pain management in December of 2006. Been on every...
      RHMLucky777
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      Hi Kimberly i had my first back surgery on October 18, 2006 for a ruptured disc. I still had severe pain and went to get a second opinion and had a second surgery for loose bone and possible strep infection on June of 2007. They wanted to do a fusion but did not because of the possible infection. Started on pain management in December of 2006. Been on every medicine that they have just havent' found the right combination. thanks for responding. Glad to talk with you anytime. Johnnie
  • Betty Boop Too
    Feb. 15, 2008

    Hello MawMaw

    It's good to see you again.

    I noticed your question, as I was thinking over my own meds this am and wondering when a person, does say WOWoa and just slow down or make additional changes to ones life.

     

    Your carring a heavey load for any pain patient and I cannot help but admire your strength.  Just taking care of your husband alone is...

    RHMLucky777

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    Hello MawMaw

    It's good to see you again.

    I noticed your question, as I was thinking over my own meds this am and wondering when a person, does say WOWoa and just slow down or make additional changes to ones life.

     

    Your carring a heavey load for any pain patient and I cannot help but admire your strength.  Just taking care of your husband alone is a really big job in itself.

     

    I'm just sure your doctor is really trying to help you to continue working as long as you want, but have you considered a lighter work load or maybe that's just not an option?

     

    I know for myself, I can take my Bt pain meds, but if I continue doing whatever caused my pain to ramp up, It will be like I did not even take anything.  So (for me) It's not always my meds not working, I have to do either another activity or lay down for a bit and help stop the cycle of the pain ramping.

    If I still worked, I know that my meds would never be enough, as every day at work, I tried to work through the pain, it just ramps higher, higher, & higher.  Till I'm in tears and unable to even think or talk to people.  Let alone finish any work. 

     

    I just don't know, maybe a lighter work load is just not a feasable option for you right now, but I think I'd maybe try to maybe change your work load a little.  Take Breaks and have some stretches that may relieve the pain, use ice paks at work on your back, they have wrap around ice pak belts and I would rely on mine alot.  In an attorney's office, you probably have to look really nice & professional all the time, so that may not be an option either.

     

    I hope you get some good replys to your question, I really think it's an interesting one.

     

    Take Care of your self and best of luck with everything

    Betty

    • mawmawfarmer
      Feb. 15, 2008
      Your right there is never enough time. I think that my doctor would never overmedicate me as he is actually proud that i am still working. I am still getting used to the opana in my system. I think with the starting of the blocks and the new medication I will be alright.  My youngest daugther who has addiction problems just doesn't want me to be in...
      RHMLucky777
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      Your right there is never enough time. I think that my doctor would never overmedicate me as he is actually proud that i am still working. I am still getting used to the opana in my system. I think with the starting of the blocks and the new medication I will be alright.  My youngest daugther who has addiction problems just doesn't want me to be in a fix like she is. My family just can't get over that I an on drugs that are normally given to cancer patients for pain. I have been following all of your posts from afar and appreciate your giving me your opinion and your right one of these days I will have to slow down. God Bless
    • Betty Boop Too
      Feb. 16, 2008

      Mawmaw

       

      You such a strong & amazing women!  I hope that your one of the lucky ones that gets to choose to stop working or slow down, instead of being forced into it.

      Your right, your doc is just trying to help you to sustain your life's activities as you wish and if he's able to do that, then your a winner in this pain journey.

       I think...

      RHMLucky777

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      Mawmaw

       

      You such a strong & amazing women!  I hope that your one of the lucky ones that gets to choose to stop working or slow down, instead of being forced into it.

      Your right, your doc is just trying to help you to sustain your life's activities as you wish and if he's able to do that, then your a winner in this pain journey.

       I think that it's understandable for our families & children to worry about us.  My sons going to school to be a pharmacist? So he watches me like a hawk.

       

      You take care, it's really nice to hear from you again

      Betty

    • mawmawfarmer
      Mar. 27, 2008
      Great News Betty! Two weeks ago one of my attorney's was reassigned to another secretary. So now I am working for the Managing Partner and an associate. I feel like I have started a new job. You cannot imagine the amount of stress that has been taken away from me. finally someone listened to me and after much prayer it happened. I am so happy about my work...
      RHMLucky777
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      Great News Betty! Two weeks ago one of my attorney's was reassigned to another secretary. So now I am working for the Managing Partner and an associate. I feel like I have started a new job. You cannot imagine the amount of stress that has been taken away from me. finally someone listened to me and after much prayer it happened. I am so happy about my work situation right now, don't get me wrong the stress is still there but a whole lot less of it. Thanks for all of your prayers!
    • Betty Boop Too
      Mar. 29, 2008

      Oh Mawmaw

      I'm so happy for you, this is an amazing turn of events in your favor.  Good for you!

      Hoping all is well with you & your family.  Have a wonderful weekend and try to get some rest.  You truely deserve to have some respite from your very busy life.

       

      Thank you for sharing your great news, my prayers are with you dear.

      Always...

      RHMLucky777

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      Oh Mawmaw

      I'm so happy for you, this is an amazing turn of events in your favor.  Good for you!

      Hoping all is well with you & your family.  Have a wonderful weekend and try to get some rest.  You truely deserve to have some respite from your very busy life.

       

      Thank you for sharing your great news, my prayers are with you dear.

      Always happy to hear from you.  Take Care

      Hugs

      Betty

    • mawmawfarmer
      Mar. 31, 2008
      Thanks Betty. I had a bad pain weekend and stayed in bed all weekend. I know that I shouldn't but I feel guilty when I have to stay in all weekend. My husband depends on me to take him out on the weekends and I feel so bad about his having to stay home not only through the week but know most weekends. We used to travel a good bit, go shopping a lot just...
      RHMLucky777
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      Thanks Betty. I had a bad pain weekend and stayed in bed all weekend. I know that I shouldn't but I feel guilty when I have to stay in all weekend. My husband depends on me to take him out on the weekends and I feel so bad about his having to stay home not only through the week but know most weekends. We used to travel a good bit, go shopping a lot just looking around. We all in the process of apply for an new wheelchair. His other one just plain wore out. He is so active and he really needs an electric wheelchair. Because of his illness, marfans syndrom he does not have the upper body strength to push hisself around. Bless his heart he does do all of the house work. He says that it is his job since I work all week. That just shows you that you can't keep a good man or woman down! He is a parplegic but does most everything we do but he just can't walk. Please everyone may I ask that you all pray that we hear something soon about his wheelchair! I know that God will provide but it seems like it takes a little longer sometimes