Fibromyalgia & Body temperature

Bekah Community Member May 14, 2008
  • Just a quick question. Anyone else out there with FM find that you have trouble regulating body temperature? For me, it seems that I am always warmer. I always have the AC on in the spring & summer much lower than most people would and it drives my husband crazy. haha! He's walking around in jeans and a sweater while I'm hot and sweaty.

    I have always been a bit on the warmer side my whole life but have noticed that it is more constant since my diagnosis with FM.

    Just curious to know if anyone else out there has the same thing.

216 Comments
  • Karen Lee Richards
    Health Guide
    May. 16, 2008

    Your problem is not at all unusual.  In fact, I don't think I've ever met someone with FM who was not hypersensitive to either heat or cold or both.  More FM patients seem to be sensitive to cold, but I'm like you – I can't take heat at all.  I keep my house so cold, people tell me it feels like a refrigerator.  Many of us also have...

    RHMLucky777

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    Your problem is not at all unusual.  In fact, I don't think I've ever met someone with FM who was not hypersensitive to either heat or cold or both.  More FM patients seem to be sensitive to cold, but I'm like you – I can't take heat at all.  I keep my house so cold, people tell me it feels like a refrigerator.  Many of us also have lower "normal" body temperatures, as another member mentioned.  For example, normal for me is 96.8 – although few doctors believe it or give it any significance. 

     

    One theory as to why we have this problem relates to the thyroid.  The thyroid regulates our body temperature and a large number of people with FM are hypothyroid.  A few doctors even go so far as to say that hypothyroidism causes FM, but that is not a widely accepted theory.  Since the symptoms of hypothyroidism are very similar to the symptoms of fibromyalgia, I personally think it's possible that some people diagnosed with FM may actually have hypothyroidism.  At the very least, they are conditions that often occur together. 

     

    It's certainly worth having your thyroid tested to see if that may be part of your problem.  Now here is where things can get tricky.  The standard test that is used to test thyroid levels is the TSH (Thyroid Stimulating Hormone).  The range considered to be normal for many years has now been found to exclude a significant number of people who are actually hypothyroid.  However, labs and doctors have been slow to accept the change and are often hesitant to treat patients whose levels fall within the old norms.  Mary Shomon, who has written several books on thyroid disease, has an excellent article explaining the TSH standards and even gives you information to share with your doctor: "Does Your Doctor Know About the New TSH Lab Standards?"

     

    Thanks to the member who recommended the Chillow Pillow.  I'm definitely going to look into that. 

     

    Here's to keeping cool!

    Karen

    • Bekah
      May. 16, 2008

      Thanks for your input Karen. I'm going to mention this to my doctor the next time I see her.

      I just ordered a Chillow Pillow Laughing It should be here in a week. Looking forward to trying it out. I'll let you know how it goes.

      Have a great weekend & stay cool (hehe)

      Bekah

    • Karen Lee Richards
      Health Guide
      May. 17, 2008

      Can't wait to hear how you like your Chillow Pillow!  I may order one next week.

       

      Karen

    • Bekah
      May. 25, 2008

      Just wanted to let you know that my Chillow arrived on Friday and I LOVE IT!!! It helps keep me so nice and cool at night. It's just fab!

    • Karen Lee Richards
      Health Guide
      May. 25, 2008

      Thanks for letting me know.  Glad to hear you like it.  I'm going to have to order one – especially with summer coming.  – Karen

    • Rebel
      Feb. 11, 2011

      THE CHILLO PILLOW IS A GREAT IDEA BUT THE PROBLEM IS WHEN YOU LAY ON IT FOR 10 MIN IT GETS HOT THEN YOU ARE TURNING IT TO FIND COOL AND IT WEIGHS A TON...SAVE YOUR MONEY IT DOESN'T WORK FOR LONG. 

    • Anonymous
      yeti105
      Jun. 05, 2008

      Hey to all,thank God i read this this a.m. i thought all this awful awful sweating was from my meds.I have been dx'd w/FM x4 yrs,did not start w/the sweating until last yr.After i started taking meds for RA is when the sweating started,before that i was always cold,go figure,during this time my pain meds were being increased so i figured it was that.Then i...

      RHMLucky777

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      Hey to all,thank God i read this this a.m. i thought all this awful awful sweating was from my meds.I have been dx'd w/FM x4 yrs,did not start w/the sweating until last yr.After i started taking meds for RA is when the sweating started,before that i was always cold,go figure,during this time my pain meds were being increased so i figured it was that.Then i stopped taking the RA meds,to change to another,wow,the sweating stopped,for 3 wks.Then i started Enbrel,but the sweating came back before this time.I just have not been able to figure it out till now,i thought i was crazy.If i had just been started on the pain meds it could be explained but after yrs no.So thank you all for your "coming out".Now the other thing,TSH tests When i broke my back,(yes i have had a few bad yrs here) i had to quit working,being a nurse was not going to work w/broke back,i gained only 4 lbs in 9 mths,i was so happy.I figured that not doing anything for that amount of time i would gain a lot,then at 9 mths i started gaining 10-12#'s a month,the first mth i figured oh well i just ate too much.The 2nd mth i was getting worried.I asked for a TSH test,it came back normal,bull doo doo.Of course the doc's just accepted that it was "normal",i did not,but of course you have to convince your doc to do another test.The other test is called a "third generation TSH",it has more definitive testing on levels of the hormones oh gee my third generation said i was hypothyroid,surprise!!!!!! The other problem w/the third generation test is that after you get a "normal" TSH level w/regular testing there has to be a valid reason to do another more expensive test.My doc also forgot to write it on the order sheet thank God a friend of mine was drawing the blood and realized that he had not mark the appropriate box.By the time all this went down,decided that i am hypo i had gained 52#'s,it was too late,no matter how little i ate it just kept on coming.My daughter went hypo about the same time as i,we are train wrecks,w/our unexpected wght gain.So if you feel something is wrong please ask for the "third generation TSH",if i had been able to get around better it would not have gotten to the point that it did.Just to throw something in here 2 wks ago i had a medtronic pain pump implanted and it seems to be working very well,just had to tell someone.

    • croppled1
      Aug. 16, 2008
      Guess what I am a guy ...yup a guy with FM and Chronic Pain , you dont find many of us that even post or admit it . Everything you just told people is 100% verified in me . Big help when they finnlay figured out I had thyroid issues . I starting with just 25mcd of levothroid now I take 100. Been on it 4 years . Oh my God does it help I couldnt walk across a...
      RHMLucky777
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      Guess what I am a guy ...yup a guy with FM and Chronic Pain , you dont find many of us that even post or admit it . Everything you just told people is 100% verified in me . Big help when they finnlay figured out I had thyroid issues . I starting with just 25mcd of levothroid now I take 100. Been on it 4 years . Oh my God does it help I couldnt walk across a room before I felt so drained with fatigue and was so depressed , had nitemares just wasnt right . This started after a car accident and neck fusion ..right after the fusion within days . Always feeling to hot or cold even both like some said . I still cant take heat or cold . I am on disabillity its a full time job just to get to Doctors ..infact I dont want to go its so hard , my pain goes up on car trips , sitting in waiting room chairs and i get nauseated . Seems they cant do much . My bowels dont work anymore from all the opiates ,, other drugs and laxatives i injested over the years . It is hard to believe I will ever make progress . I even have fungus in the folds of my skin from the drug sweats and the Doctors just say live with it . Sometimes I could just strangle these so called professionals lol . You all are going through the same things..it does help to know there are others with the same issues and exchange helpful hints . Naturapathy is for real and we all gravitate there in time if your desperate you seek and find it in time . I just was switched to methadone I have been on morphine or synthetics for years for chronic pain . Its helping but OMG when this stops theres nowhere to go . Detox programs in the USA are for the birds . I never did well on amitriptalyne , nortriptaliine . I just had shingles for two years and the only way i got by besides scream and cry allot was to take Lyrica with my regular opiates . I swear part of the key to this is to keep your bowels working naturaly by making sure you drink lots of water , eat proper foods , and take in fiber daily . What helps me is honey nut cherios , Eddys fat Free ice cream , black licorice and those single serving metamucil orange flavored pouches that come in boxes of 30 . Since I have had FM , plus chronic pain and taken drugs I check more poo then Mike on Dirty Jobs to try to keep from impacting and being sicker then I have too .Then I spend the rest of the day trying to keep the spasms in my muscles under control that the meds and laxatives cause which raises pain through the roof . You should go 3 times a day most of us only go every 2 -3 if were on narcotics . At one time before I figured this out I was bleeding from fisure tears , hemoroids and going two to three weeks before ..well I wont desribe it . Well I just had to chime in thats all I do is sit by the computer and try to get by each day and stay alive . I was lonely today so I look around on the web trying to find info to help myself . Dating site for people like us ...hah be careful what you ask for but there are some for people with disabillities out there . Can you imagine two of us together with each one in pain at a different time ...that couple would go nowhere ...ah I guess you never know . I am so busy being sick I only get lonely a few hours a day , I am insane half the day and the rest of the time trying to catch up just caring for myself and watching what i did accomplish before in life dissapear . Being able to contribute to a relationship ...its overwhelming to think about . But its a good dream I guess . Planning is often better then the trip . God Bless .
    • Anonymous
      jen30921
      Aug. 21, 2008

      I just was reading some of the comments on body temp and came accross your comment and I have something I found after many years of constipation and misery that works! It might work for you and is worth a try because it is pretty cheap.  It is called Multi-Fiber and is made by Natures Secret. I got 275 tablets for $20. It is a herbal. You start with 1...

      RHMLucky777

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      I just was reading some of the comments on body temp and came accross your comment and I have something I found after many years of constipation and misery that works! It might work for you and is worth a try because it is pretty cheap.  It is called Multi-Fiber and is made by Natures Secret. I got 275 tablets for $20. It is a herbal. You start with 1 tablet and move up as needed. I usually need three to four if I'm significantly blocked. Of course, it can cause too much of a good thing and usually does but then I feel so much better afterwards it is well worth the slight discomfort of going a lot for a day. My doc isnt crazy about it but MIRIlLAX just isn't gonna do it. I agree with you keeping the toxins moving OUT is key to any kind of health for us. Hope this is something that helps you and Hang in there, and lets Thank God for the good things in our lives we do have, it does help doesn't it? Jen

    • croppled1
      Aug. 22, 2008

      I saw , read and will try it . I have to do something . I was on Duildad for pain . I suffered so much but was titrating myself down to about 4 4's a day spread out 8 times with halfs . I was given Balladana and it helped. I thought my bowels would never work . I was in pain every morning having to grab my pill in bed and wait for it to kick in just to...

      RHMLucky777

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      I saw , read and will try it . I have to do something . I was on Duildad for pain . I suffered so much but was titrating myself down to about 4 4's a day spread out 8 times with halfs . I was given Balladana and it helped. I thought my bowels would never work . I was in pain every morning having to grab my pill in bed and wait for it to kick in just to rise in misery . But after dropping down on the opiates using the balladonna and just fiber I started to get my bowel function back . Darn health care I go to the Pain Doc and tell him things are better the last two weeks then ever in years and he says BS you just want Duildad and switchs me to Methadone . I am a zombie . I couldnt take half what he dosed me on and my bowels stopped to where I am screaming in pain and again reaching for a pill to get out of bed . OTherwise besides confusion its better due to 8 hour dosing . Not as bad if you forget a few hours too you dont go into withdrawls on it . Praying I get used to these new side effects . I am going to buy some tomorrow . I drink Ensure with fiber daily . Thank God I fought for insurance to pay for 2 cans a day . It also gives 5 grams of fiber plus nutrients . MY big issue is hydration . Sometimes I just am so thirsty even though I sip water constantly . God Bless .

    • dreamer
      Dec. 04, 2008

      OMG........I saw myself in much of your response.  Wow........you are so right on everything...everything.  And yes....planning a trip is often more fun than the trip.  I make plans all the time for shopping, going out for a meal, just everyday things......end up not going.  Plus people such as doctors office think I'm a total flake cause...

      RHMLucky777

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      OMG........I saw myself in much of your response.  Wow........you are so right on everything...everything.  And yes....planning a trip is often more fun than the trip.  I make plans all the time for shopping, going out for a meal, just everyday things......end up not going.  Plus people such as doctors office think I'm a total flake cause I cancel and reschedule and cancel and reschedule all the time.  Dentist....doesn't matter.  I'm always with the good intentions but it's even too much effort to just take care of myself.  I hate to go to the doctors cause it's too much for me.  Geeez....I appreciated your response/comments. Thanks.

  • wrath of cupcakes
    May. 25, 2014

    Oh my God yes, this sounds sosimilar, I may as well have written it. My temperature swings wildly from one extreme to the other, but the "normal" for me setting is lava. While people are bundled up in layers, I'm in a tank top. It's so nice to know that I'm not alone. There are plenty of times where I feel like other people, even those close to me, don't think...

    RHMLucky777

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    Oh my God yes, this sounds sosimilar, I may as well have written it. My temperature swings wildly from one extreme to the other, but the "normal" for me setting is lava. While people are bundled up in layers, I'm in a tank top. It's so nice to know that I'm not alone. There are plenty of times where I feel like other people, even those close to me, don't think fibro is a "real" disease.

  • Anonymous
    Mel
    Mar. 25, 2014

    I can widely fluctuate between hot and cold and can't seem to get comfortable, I also get the face flushing.  It seems like my symptoms keep piling up.  I add a new one every couple of months.

  • Amalina52
    Feb. 25, 2013
    I have chronic pain and I am 61 years old. I have noticed that even though I am pass menopause, I never seem o feel cool. I wake up warm and go though the day wam. I have o keep the temp at 68-69 or I m very uncomfortable. My husband and two adult sons hate this hug I just hand them each a throw when thy one over. I wish that I could feel cool!
  • Anonymous
    KylieSabra
    May. 25, 2012

    I have the opposite problem.  Even now as I'm scanning the computer for answers, my body temp is 96.1.  It has dropped as low as 95.7 and rarely exceeds 97.  I am forever cold to the core even in summer.  I'm looking for answers.

     

  • Anonymous
    Annie Girl
    Feb. 08, 2012

    I too get so hot and skin is clammy, sweat is pouring off me all over, even if it is cold.  We turn down the heat to 60 at night  This is so embarrassing.  I do have a intollerance to heat and cold.  My poor husband has to suffer because of me.  Help.  Fibromyalgia is so terrible. I'm 66.

    Annie Girl

     

  • Donna
    Jan. 28, 2012

    I am always so much hotter and sweatier than anyone i know!

  • Anonymous
    nanna
    Sep. 23, 2010

    I am the opposit, I am always cold and the cold air drives me crazy lol. My bones always hurt so when its cold they hurt worse, not looking forward for winter.

  • T Mandinec
    Sep. 21, 2010

    There is a quilt being constructed to raise awareness for all forms of chronic pain

    go to facebook and search RSD awareness quilt

  • Anonymous
    Anonymous
    Nov. 11, 2009

    I am a 35 yr old female who has been diagnosed with FM in Sept 08. I seriously injured myself trying to do pull ups and have had nerve pain and muscle spasms and specificially my upper back and neck. since then it has debilitated me. for the past few months now, on top of my nerve pain, arthritis and muscle spasms, I have had started getting these unbearable...

    RHMLucky777

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    I am a 35 yr old female who has been diagnosed with FM in Sept 08. I seriously injured myself trying to do pull ups and have had nerve pain and muscle spasms and specificially my upper back and neck. since then it has debilitated me. for the past few months now, on top of my nerve pain, arthritis and muscle spasms, I have had started getting these unbearable burning heat like fire inside of my body that starts in my neck i feel and then affects the rest of my body. I have a history of epilepsy and live alone and can barely take care of myself to get food. I do not know if this is a progressive of FM or what for i am so sick and get stomach pains every morning. Can someone tell me if this is normal or what to do. I use a cold cloth around my neck but looking for why this is happening and what to do about it and if this is part of Fibro. Please help!!

    • Anonymous
      nannax
      Sep. 23, 2010

      Hi, I kinda have the same symptoms but now I have chronic diaria and cant eat. You can go to the symptom checker for free online. Give them your symptoms and they can tell you if that is normal or if it might be something else, I am not a doctor but i have been in pain for 4 years now and have done various test that come back normal, my doctor said I have miofasial...

      RHMLucky777

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      Hi, I kinda have the same symptoms but now I have chronic diaria and cant eat. You can go to the symptom checker for free online. Give them your symptoms and they can tell you if that is normal or if it might be something else, I am not a doctor but i have been in pain for 4 years now and have done various test that come back normal, my doctor said I have miofasial pain. He was wrong, I fired him and my new doctor ordered mri's of the my hip and shoulder which has been hurting for a long time/ mri's show I have a tear in my hip and arthritis in my shoulder. It could be what u have been diagnosed with but you should look into it before you get worse. I am still fighting the doctors to take care of me but I am a fighter. 

  • Anonymous
    maroosh
    Mar. 25, 2009

    I never knew that FM gave me the trouble of regulating my body temperature. I applied for a MS concession- not what i wanted AND WAS ACCEPTED! it was not until then i realised i couldn't control my own temprature. I thought i had a bad case of menapause. The heat... my house is a fridge 365 days a year to cope. neighbours complain - i tell them to wear a jumper....

    RHMLucky777

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    I never knew that FM gave me the trouble of regulating my body temperature. I applied for a MS concession- not what i wanted AND WAS ACCEPTED! it was not until then i realised i couldn't control my own temprature. I thought i had a bad case of menapause. The heat... my house is a fridge 365 days a year to cope. neighbours complain - i tell them to wear a jumper. I am just learning a lot of my illness "cross over".I have obstructive sleep apnea, osterarthritis, osteporosis, IBM/PM, epilepsy, and 3 blood diseases that taking drugs makes worse. still i am soooo happy to find out it is my illness, and i don't have to worry why? any more. I will try that chillow pillow and see if i can get a bandana. thanks.

    • Anonymous
      Anonymous
      Nov. 11, 2009

      have u found a solution to your problem? What type of heat problems do you have and how often do u get them?

  • Anonymous
    science kid
    Jan. 15, 2009

    gravity is a pull to the center of the earth.Surprised. force is a push or pull against a object.Undecided. hypothosis is a good guess.Yell. and i for one am made up of 65% water.Cool. and it is healthy for you to cry.Cry

  • dreamer
    Dec. 04, 2008

    Oh yesssss.  I am almost ALWAYS warm.  At night I perspire like crazy and my pillow and upper part of my body is literally wet when I wake up.  I get cold of course what with our weather changing however, being warm/hot is a way of life with me.  Not in a perspiring way i.e. underarms etc., but....always warm.  Hate it.  When...

    RHMLucky777

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    Oh yesssss.  I am almost ALWAYS warm.  At night I perspire like crazy and my pillow and upper part of my body is literally wet when I wake up.  I get cold of course what with our weather changing however, being warm/hot is a way of life with me.  Not in a perspiring way i.e. underarms etc., but....always warm.  Hate it.  When I'm applying makeup, I frequently have the fan on cause my face perspires and makeup gets messed up.

  • Sheba
    Nov. 16, 2008

    Hello,   I  have  had Fbro since 1986 along with CFS and other  lower  back problems.  I am  always  cold.  It has to be  really hot outside for me to be comfortable and  I live down in the south. A  light breeze at night and I'll wear long sleeves or have a jacket.

    When the winter  months come...

    RHMLucky777

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    Hello,   I  have  had Fbro since 1986 along with CFS and other  lower  back problems.  I am  always  cold.  It has to be  really hot outside for me to be comfortable and  I live down in the south. A  light breeze at night and I'll wear long sleeves or have a jacket.

    When the winter  months come around, I dress well for outside and try to keep warm  in my home without turning the heat ( electricity ) up. My hands are always  cold, too. My body temperature runs between 96.8 and 97.8 as  normal and 98.6 and higher when I am sick.    

    Is there anyone else  with Fibromyalgia that is cold like this and not  hot, as so many others?     Please reply.                                 

    • mayra
      Mar. 12, 2014

      yes Sheba, I was diagnosed with fm since I was 19 years old, i am 41 now and i always felt too warm even in the winter months but now i feel extremwly cold even in warm weather... I wish there was something for us to fix this problem.

       

  • sioux28110
    Nov. 13, 2008

    I am either really really cold or really really hot -- do have FM -- but shook it off as being something related to Menopause.  I am now rethinking that crazy up and down temps I experience are from FM.

     

    Good luck with the temp thing - I have a fan in the bedroom pointed at me - makes my husband crazy - but he know I need it while I sleep.

  • Stephanie
    Oct. 31, 2008

    That is me, all the time. I thought I was going through menopause in my 40"s. I had a hysterectomy at 34 so I wasn't sure about my monthly schedule. My doctor checked my hormone levels ma;ny times, but no it was fine. Now that I am experiencing real menopause, it isn't much different than before. Now I just open up the doors and windows and bear with it.

  • Cathy
    Oct. 30, 2008

    YES!!!! Finaly someone else has problems with body temperature.  I've have repeadetly asked my Dr about this and his response is "your medications".  He has always blamed the medications that I'm on.  In the warmer months my head is always drenched.  Even is the winter, I live in VA, if I start moving around I will look as if I've been in...

    RHMLucky777

    Read More

    YES!!!! Finaly someone else has problems with body temperature.  I've have repeadetly asked my Dr about this and his response is "your medications".  He has always blamed the medications that I'm on.  In the warmer months my head is always drenched.  Even is the winter, I live in VA, if I start moving around I will look as if I've been in a Sauna.  I'm always warm and sweating.  I've looked up the meds and of course the pain meds mention one of the side affects as "persperation"... So I guess it's all in how the body responds to the meds...If you look up the meds I'm sure you'll see some of the side affects is "bady warmth"...It's like a perpetual "Hot Flash".  Good luck...I tend to dress in layers that way I can take off a layer or two as I "warm up"....

    Cathy

    Aka Irishiisrsmilin

  • Cathy
    Oct. 30, 2008

    YES!!!! Finaly someone else has problems with body temperature.  I've have repeadetly asked my Dr about this and his response is "your medications".  He has always blamed the medications that I'm on.  In the warmer months my head is always drenched.  Even is the winter, I live in VA, if I start moving around I will look as if I've been in...

    RHMLucky777

    Read More

    YES!!!! Finaly someone else has problems with body temperature.  I've have repeadetly asked my Dr about this and his response is "your medications".  He has always blamed the medications that I'm on.  In the warmer months my head is always drenched.  Even is the winter, I live in VA, if I start moving around I will look as if I've been in a Sauna.  I'm always warm and sweating.  I've looked up the meds and of course the pain meds mention one of the side affects as "persperation"... So I guess it's all in how the body responds to the meds...If you look up the meds I'm sure you'll see some of the side affects is "bady warmth"...It's like a perpetual "Hot Flash".  Good luck...I tend to dress in layers that way I can take off a layer or two as I "warm up"....

    Cathy

    Aka Irishiisrsmilin

  • Cathy
    Oct. 30, 2008

    YES!!!! Finaly someone else has problems with body temperature.  I've have repeadetly asked my Dr about this and his response is "your medications".  He has always blamed the medications that I'm on.  In the warmer months my head is always drenched.  Even is the winter, I live in VA, if I start moving around I will look as if I've been in...

    RHMLucky777

    Read More

    YES!!!! Finaly someone else has problems with body temperature.  I've have repeadetly asked my Dr about this and his response is "your medications".  He has always blamed the medications that I'm on.  In the warmer months my head is always drenched.  Even is the winter, I live in VA, if I start moving around I will look as if I've been in a Sauna.  I'm always warm and sweating.  I've looked up the meds and of course the pain meds mention one of the side affects as "persperation"... So I guess it's all in how the body responds to the meds...If you look up the meds I'm sure you'll see some of the side affects is "bady warmth"...It's like a perpetual "Hot Flash".  Good luck...I tend to dress in layers that way I can take off a layer or two as I "warm up"....

    Cathy

    Aka Irishiisrsmilin

  • Cathy
    Oct. 30, 2008

    YES!!!! Finaly someone else has problems with body temperature.  I've have repeadetly asked my Dr about this and his response is "your medications".  He has always blamed the medications that I'm on.  In the warmer months my head is always drenched.  Even is the winter, I live in VA, if I start moving around I will look as if I've been in...

    RHMLucky777

    Read More

    YES!!!! Finaly someone else has problems with body temperature.  I've have repeadetly asked my Dr about this and his response is "your medications".  He has always blamed the medications that I'm on.  In the warmer months my head is always drenched.  Even is the winter, I live in VA, if I start moving around I will look as if I've been in a Sauna.  I'm always warm and sweating.  I've looked up the meds and of course the pain meds mention one of the side affects as "persperation"... So I guess it's all in how the body responds to the meds...If you look up the meds I'm sure you'll see some of the side affects is "bady warmth"...It's like a perpetual "Hot Flash".  Good luck...I tend to dress in layers that way I can take off a layer or two as I "warm up"....

    Cathy

    Aka Irishiisrsmilin

  • Cathy
    Oct. 30, 2008

    YES!!!! Finaly someone else has problems with body temperature.  I've have repeadetly asked my Dr about this and his response is "your medications".  He has always blamed the medications that I'm on.  In the warmer months my head is always drenched.  Even is the winter, I live in VA, if I start moving around I will look as if I've been in...

    RHMLucky777

    Read More

    YES!!!! Finaly someone else has problems with body temperature.  I've have repeadetly asked my Dr about this and his response is "your medications".  He has always blamed the medications that I'm on.  In the warmer months my head is always drenched.  Even is the winter, I live in VA, if I start moving around I will look as if I've been in a Sauna.  I'm always warm and sweating.  I've looked up the meds and of course the pain meds mention one of the side affects as "persperation"... So I guess it's all in how the body responds to the meds...If you look up the meds I'm sure you'll see some of the side affects is "bady warmth"...It's like a perpetual "Hot Flash".  Good luck...I tend to dress in layers that way I can take off a layer or two as I "warm up"....

    Cathy

    Aka Irishiisrsmilin

  • Pal-in-Pain
    Oct. 25, 2008

    I have RSD (somewhat related to FM) and a lot of us suffer from what is called; Hyperhydrosis. A condition that causes you to feel like you are sweating and hot all the time. Please look this up on any medical site you want. I think it can give you some clear answers on what this is.

    I had it for many years after getting RSD back in 1999. I don't recommend...

    RHMLucky777

    Read More

    I have RSD (somewhat related to FM) and a lot of us suffer from what is called; Hyperhydrosis. A condition that causes you to feel like you are sweating and hot all the time. Please look this up on any medical site you want. I think it can give you some clear answers on what this is.

    I had it for many years after getting RSD back in 1999. I don't recommend this but taking Xanax for anxiety and panic attacks have actually made it stop. I didn't know this would help or work but have discussed this with several people that have the same condition. The ones who were put on Xanax for other reasons said the Hyperhydrosis stopped or wasn't as bad. I am NOT a doctor or a nurse; just another person suffering in chronic pain.

    Now I am cold all the time. I have lost weight and I know that is part of it but also I have noticed with many RSD sufferers that are actual body temp is lower than 98.6. My temp usually runs about 94.7 to 95.9. If my temp gets to 98.9, I feel like I have a low grade fever. I do if you can understand that for many years now that my body temp is so much lower than normal.

    It is horrible to suffer from feeling like you are having hot flashes all the time. I know...

    If you are not a candidate or someone that takes Xanax for prescribed reasons, I don't recommend "trying it" as it takes a long time to actually change or stop the heat.

    Please look it up and see if that is more of what you are actually feeling and talk to your doctor about this the next time you see him/her.

    They may want to check your thyroid as they did mine but it was okay and then it was diagnosed Hyperhydrosis OR Hypohydrosis; Can't remember because of pain. LOL

    I hope this helps you and many others out there.

    Sincerely,

    Rhonda

     

    • Anonymous
      BluesGirl
      Oct. 30, 2008

      It's 48 degrees out right now and I have my windows open with a fan

      sucking in the cooler air! Laughing

       

      My body temp seems to run at about 97.1 most of the time.

       

      Didn't know others were experiencing the same thing.

       

      Glad to know I'm not nuts!  Tongue out

  • Anonymous
    Pris
    Oct. 24, 2008

    For years, its been on the warmer side.  A day or so before a major flare up though I am cold but sweating and clamy.  At least most of the time I know ahead of time that a flare is coming and try to do whatever work I have to so I can be a couch potato during major flares.  Hubby thinks I am insane too, but just grabs a jacket!  lol

  • Anonymous
    Michal Simon Ne...
    Oct. 15, 2008

    I have tried for about 3.5 years to find people that have symptoms even close to mine through many various searches using all sorts of key words to get there. I have been diagnosed with some many, many, many illnesses and have come to the conclusion: 1/3 of the medical community does not believe FM and CFS even exists; another 1/3 thinks that "something" exists...

    RHMLucky777

    Read More

    I have tried for about 3.5 years to find people that have symptoms even close to mine through many various searches using all sorts of key words to get there. I have been diagnosed with some many, many, many illnesses and have come to the conclusion: 1/3 of the medical community does not believe FM and CFS even exists; another 1/3 thinks that "something" exists but are waiting for some research or magical insight to fall into the research; and finally, another 1/3 KNOWS that there are a number of D/Os that seem to exist on this spectrum that encompasses all these complaints and more. How one describes the pain can determine whether you get appropriate medicine and care or if you are given anti-psychotics, mood stabilizers, or even a referral to find a new Doctor! We all KNOW that something is there and the symptoms are REAL! We feel and think we MUST be crazy for the medical community to just allow us to go on and suffer, in many cases and somehow exist and expected to just live our lives. Are they insane, mean, ignorant- what in the hell is the deal??

     

    In psychology there is a term called "secondary gain" which basically means (in this discussion) that if someone makes all the complaints and reports all the horrific symptoms that there MUST be something that the individual is getting or gaining from making these "claims." For instance, someone that merely wants to get a disability check or merely wants attention. Anyone reading this feel that they like the attention and $$$ enough to allow your pain and discomfort to continue? Would anyone here trade their very soul to just feel "bad" instead of desperately insane, alone, suffering pain and agony to go about life in some staggering fashion? I bet that even some of you that are not experiencing the level of pain and discomfort as others still would gladly give anything for some kind of homeostasis, right??

     

    Please do a search on the following topics/diagnoses and see what you think so that in case you happen to have the misfortune of finding yourself in the care of that 1/3 of disbelievers, or even the 1/3 of speculative folks and have not gotten someone to take you seriously. The very term FM or CFS can make some medical folks that have not been properly informed and/or trained in the research and facts give the patient the brush off without a thought! Some of you know this to be the case! Try looking and comparing these:

     

    Pan Dysautonomia

     

    Reflex Dystrophy or Complex Regional Pain Syndrome

     

    Small fiber neuropathy

     

    Poly neuropathy

     

    Wegener's Granulomatosis (God forbid, since it is awful!)

     

    I cannot say that any of these will help and a label is only a small part of the peace of mind that we seek. But, sometimes it helps just knowing that we have a name for whatever this horrible "thing" is that makes us all contemplate how life would come to this state.

     

    Call it what you will, but make sure that you are walking into the offices of the medical world with notes to make certain that you have your thoughts, symptoms, and such in order. I have in all the rounds I have made with a couple of dozen or more Doctors found that bringing documentation from the internet only helps these folks to disregard you as a bonafide chronically ill patient. Somehow, I think that it makes them unsettled and insecure about their judgment. One must possess a bunch of Ego to become a Doctor and the training only serves to put the exclamation point at the end of the sentence. I cannot figure out why this is the case, but it is. I say now at the end of this that I and my spouse are trained Psychologists and have some experience in all this. Even though you are a supposed colleague and have many years and experience of training in the human mind and physiology, it does not guarantee that you are taken seriously, What I have been told would shock many people but doubtfully anyone here.

     

    I wake many mornings feeling like I have been in the blistering cold with pain, weakness, low body temperatures, sometimes sweating to the point that I am soaked other times having a cold pallor without a bit of dampness. Putting on gloves, and 4-6 socks does nothing. I have BP that averages 275/110 and drops to 80/38 other times. Body temperature is often slightly high at 99-101 or it has been as low as 95.6 which I was told is impossible, even though my spouse and I each checked it repeatedly with two different thermometers. As others, I have digestion that shuts down and can go as long as 11 days without a BM. And the complete reverse. I have nausea to the point that I cannot even speak without gagging. I have memory impairments, cognition issues such as not finding words, mixing up words, and concentration and tangential thinking. I get a rash of bright red skin and makes people actually stop me in the grocery store to ask if I am okay? I have severe vertigo and dissiness and have fallen so many times that I am mistaken for Chevy Chase! :-0)

     

    Small fiber nerves and the autonomic nervous system have a large role in ALL of this. If you remember your Anatomy 101, the body has the Central Nervous System and the Autonomic Nervous System. Take a gander online to remind yourself of all the aspects of the Autonomic Nervous system- I think that you many of you will be amazed at the list and how it parallels our symptoms! One can have Autonomic nervous System dysfunction and/or failure.

     

    I am long winded and likely many of you skipped down and I would not blame you but I read all these entries and find some comfort in the fact that I am not alone. I would NEVER want to know that someone has any of this symptoms, but I imagine that we are all here to feel less alone in these waters adrift without destination or rutter. Godspeed to us all and hope that someone that needs it finds some element in here that will aid in there search for help! Best wishes, humpty dumpty

  • Laura
    Oct. 15, 2008

    I can share that one with you.I have FM,and yes most of the time i am very hot,and then out of no where i get real cold.I do not know if it is from the FM.  Laurie.

  • Anonymous
    Adrienne
    Oct. 09, 2008

    I used to be hot all the time like you.  Since fibro, my temperature swings all over the place!  One minute I'm freezing, the next I'm dying of heat.  Check out this poll about fibromyalgia & temperature sensitivity:

     

    Do You Run Hot, Cold, or Both?

     

    Adrienne

    • Anonymous
      Lois Laedlein
      Oct. 13, 2008

      I have had 4 saurgeries for hyperhidrosis and the sweating is worse than ever.  I have been told in passing that I have Fibromyalgia but I don't know.  I am also hot all the time and my husband is cold.

       

      People like us need some serious help.  Can't somebody tdo something?

       

      Please!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    • Anonymous
      Adrienne
      Oct. 13, 2008

      If you think you may have fibromyalgia, the best thing to is learn more about it and see if it fits.  The earlier you start treatment the better your prognosis is.

       

      Here's a good place to start: What is Fibromyalgia?

  • katsnme
    Oct. 07, 2008

    Wow . . I thought it was just me and my going through menopause.  I have to take hormone replacement or I am miserable, soaked and very cranky.  I thought my temperature rising moments were controlled, but then I noticed that I was sweating for no particular reason.  I, too, have always been on the warm side.  Normal temperature by a thermometer,...

    RHMLucky777

    Read More

    Wow . . I thought it was just me and my going through menopause.  I have to take hormone replacement or I am miserable, soaked and very cranky.  I thought my temperature rising moments were controlled, but then I noticed that I was sweating for no particular reason.  I, too, have always been on the warm side.  Normal temperature by a thermometer, but my body always felt hot to the touch.  I am constantly finding other 'symptoms' that are attribtued to the Fibromyaliga that I have had for years, but never knew the connection: IBS, tinnitus, thyroid problems, the bouts of overwhelming fatigue and weakness . . . and far too many doctors do not even believe it is a serious condition and some do not believe it is a legitimate condition.  Has anyone out there had a neurological work up in regards to their Fibro?  The AMA validated Fibro as legitimate, chronic pain condition, bit also a neuroloigcal one . . something to do with the pain receptors in the brain. Has anyone found a neurologist who has helped them in any way?

  • tabisch
    Oct. 03, 2008

    And here I was thinking it was just my meds or premature menopause. I had my son 4+ yrs ago and since then I've been suffering from FM.  I have the air on in the winter, fans constantly blowing. I was living in WI for awhile and taking my dogs out for walks in a zip up sweatshirt. Now I'm back down in TN and absolutely miserable. I never go outside. Unless...

    RHMLucky777

    Read More

    And here I was thinking it was just my meds or premature menopause. I had my son 4+ yrs ago and since then I've been suffering from FM.  I have the air on in the winter, fans constantly blowing. I was living in WI for awhile and taking my dogs out for walks in a zip up sweatshirt. Now I'm back down in TN and absolutely miserable. I never go outside. Unless it's 70 degrees or under I can't handle it. I had my thyroid checked but it was OK barely (just above underactive which makes absolutely no sense) Due to have it checked again soon. I have done so much research on autoimmune disorders and FM every doc I see hates me. I also have a HUGE problem with swelling when it's hot. Does anyone else have that problem also? I'm so fed up with docs and their blanket FM diagnosis I'm disgusted. Ever test I've had comes back OK but I still swear the FM is a symptom of something else, but the docs just haven't figured out where to look. Sorry, just venting.

  • Anonymous
    Pink Flower
    Sep. 25, 2008

    Hello.   I have the same problem you  do.  I don't know if the cause of warmer

     

    body temperature is fibromyalgia itself, or a side effect of one of the medications.

     

    I sweat a lot and am   almost always very hot.

     

     

    Pink Flower 

  • minnow
    Sep. 24, 2008

    My body temerature also changes like crazy. I will just be sitting and I will just start sweating up a storm for no reason. I never even considered that it could be the Fibro. I thought it was maybe some of the millions of medications that I am on. So you are not the only one that is like this.

  • Anonymous
    Jeffrey
    Sep. 19, 2008

    I have been Dx with fybro as well as RSD/CRPS  which is a debilitatin chronic pain condition also involving the sympathetic nervouse system. The two are very close in symptoms and even some Dr's I have seen consider the thoughts they may be related or the same thing over all. However RSD it is very common to have issues in regulating the bodies temperatures...

    RHMLucky777

    Read More

    I have been Dx with fybro as well as RSD/CRPS  which is a debilitatin chronic pain condition also involving the sympathetic nervouse system. The two are very close in symptoms and even some Dr's I have seen consider the thoughts they may be related or the same thing over all. However RSD it is very common to have issues in regulating the bodies temperatures due to the interuption of the vasuclar system being able to dialate and constrict when needed as this is the #1 way the body regulates it temp. I do have huge issues with this and heat is the worst for me though extreme cold also effects me as well. Heat is however the killer as if I get to hot and temps go even over the mid 70's I will get dizzy and go into what feels like the start of heat stroke honestly. I was wondering if it is possible that you may have RSD rather than Fybro due to your issues with body temp regulations. Also generally with RSD the heat and or cold will increase pain as well. I hope this may help some as it is from and based on my experiences with this disease over the last nine years.

    God Bless, Jeff

  • dee-dee
    Sep. 18, 2008

    SmileWink I am so happy to had from this. I too suffer with RA, EBS, FM, etc.....

    I use to be the cold one in the family. In fact my husband use to make our room so sooooo cold. But now I am hot all the time, I have the AC on in my room, plus a circular fan, now a small fan for my head and face. My husband now compliant is , he is cold. I have night and day sweats,...

    RHMLucky777

    Read More

    SmileWink I am so happy to had from this. I too suffer with RA, EBS, FM, etc.....

    I use to be the cold one in the family. In fact my husband use to make our room so sooooo cold. But now I am hot all the time, I have the AC on in my room, plus a circular fan, now a small fan for my head and face. My husband now compliant is , he is cold. I have night and day sweats, never get cool. The small rotating fan I use for my face and head does help some, Help this hot and damp from head to toe.

    I am new as of today, so not sure what I am doing, hope this helps, thanks for your article, friend in need Dee.

  • kataclysmic
    Sep. 18, 2008

    Hi there!!

     

    I must tell you that I was surprised to see this.. I thought it was just me.. but now that I have read your question, you're right...

     

    I was always cold, from the time I was a teenager up until I started having symptoms of FM... Since it took 10 years for my FM to diagnosed properly, I never thought about the weird change in body temperature...

    RHMLucky777

    Read More

    Hi there!!

     

    I must tell you that I was surprised to see this.. I thought it was just me.. but now that I have read your question, you're right...

     

    I was always cold, from the time I was a teenager up until I started having symptoms of FM... Since it took 10 years for my FM to diagnosed properly, I never thought about the weird change in body temperature that I had... So, I thought back and realized that once my symptoms started for FM, my body temperature changed also...

     

    Now I'm always having a  problem with being "overheated"... The doctors kept trying to tell me that it was early menopause.... But that didn't fit, since I didn't have one other symptom of menopause, including the obvious symptoms associated with menopause...

     

    So now that I know I have FM, and have a great doctor (who unfortunately doesn't have one other patient with FM), I realize that the body temperature thing has always been connected to my FM...

     

    Since I did really go into early menopause (they are now saying that it was brought on by my FM!! LOL) I can definately tell the difference between the "hot flashes" from menopause and the constant back and forth of overheating from my FM..

     

    I have however found that a reccommendation I got from another patient regarding the hot flash problem, has been really helpful... Not a cure by a long shot, but it has helped tremendously... She suggested I try taking Black Cohosh and Soy Isoflavins... And it has really, really helped.. Hasn't gotten rid of the sweats completely, but for the first time in probably 6 years I can finally wear makeup again!! Had to stop wearing it when the menopause hit, since between my FM and menopause, I was literally walking around with a towel to wipe off the sweat constantly..

     

    So, you are not alone!!! Since I am not a medical professional, please don't take my advice as "the word" LOL.. But I would try it for a good 2 or 3 months and see if it makes any difference for you.. And both Black Cohosh and Soy Isoflavins are easily found in any "natural" vitamin type section of your phamacy or store...

     

    I wish you good luck with finding some kind of relief of this symptom... I know what a pain in the butt it can be...

     

    Kataclysmic

  • dtimmons
    Sep. 14, 2008

    To answer your question about regulating body temperture....yes, yes, yes! I totally agree with you. I have my A/C on 65 all year around. I can't even get my friends to visit because they state that it is too cold. I stay so very hot all year round. Once I get over heated it takes me a while to cool off and while I'm overheated I become very ill feeling. It's...

    RHMLucky777

    Read More

    To answer your question about regulating body temperture....yes, yes, yes! I totally agree with you. I have my A/C on 65 all year around. I can't even get my friends to visit because they state that it is too cold. I stay so very hot all year round. Once I get over heated it takes me a while to cool off and while I'm overheated I become very ill feeling. It's terrible. It all started two years ago right after I was diginosed with Fibro. I'm in a support group with about 15 members. Not all of them have this problem but when I asked about half of them responded that they too have the same temp problems. I'm worried about how I'm going to continue paying my electric bill. It was over four hundred dollars last month (August) and I'm afraid to see what it will be this month (Sept). What are we to do? Is there anything that could help us? I also walk around  with ice packs inside my bra while I'm at home to help keep me cool. Let me know if anyone has any suggestions. I would love to hear them. Thanks for posting your comment about body temp. Now I know I'm not crazy or alone.

    Dana Timmons 39 years old mother of two

    Fibromyalgia, CFS, and possibly other medical problems

    Charlotte North Carolina

  • mscris34
    Sep. 13, 2008

    Yes I seem to have the same problem. I have had my thyroid checked because sometimes that has something to do with body temperature. Have you?

  • Anonymous
    Ernie
    Sep. 12, 2008

    Before my wife developed Fibromyalgia, she was always colder than me.  She needed sweaters when I was hot.  She slept under more blanket than I did.  Now, she constantly complains about being too hot.  She wears very light weight clothing, seldom puts covers over herself in bed.  When I'm cold, she's hot.  I think it's related...

    RHMLucky777

    Read More

    Before my wife developed Fibromyalgia, she was always colder than me.  She needed sweaters when I was hot.  She slept under more blanket than I did.  Now, she constantly complains about being too hot.  She wears very light weight clothing, seldom puts covers over herself in bed.  When I'm cold, she's hot.  I think it's related to her thyroid, but can't prove it.

  • Holly
    Sep. 12, 2008

    My poor partner feels the same way as your husband.  Some told me it was hot flashes--I said 9 years is a really long FLASH!  When we go skiing, I wear spring ski clothing and tank tops going out for dinner...I was diagnosed 11 years ago with FM, and have suffered with being too hot ALL the time.  So, you are not alone!  I am also extremely...

    RHMLucky777

    Read More

    My poor partner feels the same way as your husband.  Some told me it was hot flashes--I said 9 years is a really long FLASH!  When we go skiing, I wear spring ski clothing and tank tops going out for dinner...I was diagnosed 11 years ago with FM, and have suffered with being too hot ALL the time.  So, you are not alone!  I am also extremely sensitive to small noises, any little flashing lights, repetitive rattles.  It's like our bodies are in overdrive.  Carry little fans with you wherever you go-sometimes it helps you make it through the airplane ride or wait at the post office.  Good luck!!

  • Anonymous
    leelee53
    Sep. 10, 2008

    I am always to hot, but I am also going through the change of life and have been for over 10 years.  Soon after I was diagnosed with FMS I was put into early meopause because I had endometrous (I can't spell) I am still going through menopause today.  I found that Vitamin E and soy milk help keep my hot flashes away.  When my hot flashes are...

    RHMLucky777

    Read More

    I am always to hot, but I am also going through the change of life and have been for over 10 years.  Soon after I was diagnosed with FMS I was put into early meopause because I had endometrous (I can't spell) I am still going through menopause today.  I found that Vitamin E and soy milk help keep my hot flashes away.  When my hot flashes are at bay then I freeze because of the FMS.  It's a loose loose situation.  I pretty much stay in the air conditioning in the summer and infront of the fireplace in the winter.  You might want to have your doctor check and see if you are going into menopause or if you have a hormone imbalance.  You never know he may actually have something that can help or at least give you some information on how to cope with them.

  • Sabine
    Sep. 10, 2008

    With Fibromyalgia you run a slight temperature most of the time which can cause you to be thirsty alot because of dehydration.  My eye doctor told me also your eyes get very dry and it causes headaches.  So its a good thing to moisten your eyes a few times a day also.  So it's not just you who is hot its probibly everyone who has Fibromyalgia....

    RHMLucky777

    Read More

    With Fibromyalgia you run a slight temperature most of the time which can cause you to be thirsty alot because of dehydration.  My eye doctor told me also your eyes get very dry and it causes headaches.  So its a good thing to moisten your eyes a few times a day also.  So it's not just you who is hot its probibly everyone who has Fibromyalgia.

    SabineLaughing.

  • Anonymous
    makelkami
    Sep. 03, 2008

    I have had FM for 15 years and am on oxycontin 20 mg 4 times a day. That helps with my daily pain but doesn't help with the stiffness and swelling I get. I, too, have my air-conditioning on 68 at all times-it seems at times I still feel real hot, but the coldness does help. Its so hard to have FM-at first I thought I had MS,which is so similar.Good luck with...

    RHMLucky777

    Read More

    I have had FM for 15 years and am on oxycontin 20 mg 4 times a day. That helps with my daily pain but doesn't help with the stiffness and swelling I get. I, too, have my air-conditioning on 68 at all times-it seems at times I still feel real hot, but the coldness does help. Its so hard to have FM-at first I thought I had MS,which is so similar.Good luck with the FM, I can relate how you feel,some days are worse than others, but trust me-there is no 1 way to do things right.

  • Anonymous
    Dorene
    Sep. 02, 2008

    I have had this horrid problem for years and was beginning to think I was crazy. I hate going out shopping or anywhere in public because I start sweating and my hair becomes soaking wet and my face becomes bright red. I look like a freak! I have been having more issues in last year with horrid cronic pain in the right arm, wrist and hand with my fingers swelling...

    RHMLucky777

    Read More

    I have had this horrid problem for years and was beginning to think I was crazy. I hate going out shopping or anywhere in public because I start sweating and my hair becomes soaking wet and my face becomes bright red. I look like a freak! I have been having more issues in last year with horrid cronic pain in the right arm, wrist and hand with my fingers swelling like hotdogs then peeling. The pain is unbearable. I don't know how much longer I can continue to work because I feel so bad, but I really need the income. It is a horrible disease. The Dr's and let me assure you I have seen numerous ones have no clue why I have started to have all these other issues and are not sure what diagnosis to give me. They all agree it is an "Autoimmune disease of unknown origin" and they refer me to yet another Dr. I have developed fatty lipoma's on my back that grew huge and needed surgically removed...horribly painful, I developed kidney issues, gained weight and now the swelling of hands and now my feet. I constantly run a low grade fever and never feel rested. I am so depressed over not feeling good and hate it when the Dr. says "your depressed." Of course I am you nut, you be depressed too if you felt like crap everyday and did not have energy and constant severe pain...DUH Sealed I refuse to let this disease run my life until I have no strength left, but it really helped to read all your posts as I was beginning to doubt my own sanity here. Good luck to all of you with this disease and I pray they find some relief for us SOON!

  • Anonymous
    Hurricane
    Aug. 30, 2008

    This comment is not related to body temp but I thought it would be good info,  6 weeks ago I had blood work done and my Dr. had my vitamin D checked(vitamin D is not normally a part of routine blood work).  It was very low - 56 points and the low normal is 95.  Since then I have been taking 1400 I.U. a day and calcium and my level of pain...

    RHMLucky777

    Read More

    This comment is not related to body temp but I thought it would be good info,  6 weeks ago I had blood work done and my Dr. had my vitamin D checked(vitamin D is not normally a part of routine blood work).  It was very low - 56 points and the low normal is 95.  Since then I have been taking 1400 I.U. a day and calcium and my level of pain has drastically improved .  Anyone interested may want to ask their Dr. specifically about having their vitamin D levels checked as this is the vitamin you must have for your body to properly absorb calcium.  I have been diagnosed with FMS for 10 years and I have found that little things add up for my day-to-day control.  For the really bad days that are triggered by my nemesis I use good pain killers but it really comes down to those good days in between when life feels normal - that's what really counts. 

  • Anonymous
    Phyllis
    Aug. 29, 2008

    I have had severe sweating episodes. In the beginning I thought it was my meds. My hair has not been dry since about April. The sweating is embarrassing at times, people ask me if I am having hot flashes from menopause.( I am not according to my gyn) I always carry a washcloth or hand towel to wipe the sweat away. It is difficult to prepare a meal without dripping...

    RHMLucky777

    Read More

    I have had severe sweating episodes. In the beginning I thought it was my meds. My hair has not been dry since about April. The sweating is embarrassing at times, people ask me if I am having hot flashes from menopause.( I am not according to my gyn) I always carry a washcloth or hand towel to wipe the sweat away. It is difficult to prepare a meal without dripping all over it. I had an ice cold cloth for around my neck which only works while it is still cold.

  • Abbagayle
    Aug. 27, 2008

    I too have my temperture to regulate, I wear long sleeve shirts in the summer time, rarely wear short sleeves due to my veins so pronnounced since childbirth, at first I thought this is normal. But as years traveled on in my life I began to feel different. When Diagnosed with FM, PVD, and abnormalities, my body doesn't know the difference , most of the time...

    RHMLucky777

    Read More

    I too have my temperture to regulate, I wear long sleeve shirts in the summer time, rarely wear short sleeves due to my veins so pronnounced since childbirth, at first I thought this is normal. But as years traveled on in my life I began to feel different. When Diagnosed with FM, PVD, and abnormalities, my body doesn't know the difference , most of the time I'm cold, at night I'm so warm I can't sleep, at thats not having any sheets around me, so I was told its hormonal.

  • Anonymous
    Phoebe
    Aug. 22, 2008

     

    My thermostat is always at 60, so is my office, has always been that way, anything higher than that and I am burning.

    Phoebe

  • Morgan
    Aug. 13, 2008

       I was just diagnosed with FM & CFS. I too have noticed that my body temp changes constantly. At night I just can't get warm and during the day I get so hot that I don't think that I can stand it. Any suggestions?

                                                    ...

    RHMLucky777

    Read More

       I was just diagnosed with FM & CFS. I too have noticed that my body temp changes constantly. At night I just can't get warm and during the day I get so hot that I don't think that I can stand it. Any suggestions?

                                                     Wishes of good health . . .

                                                         Morgan

  • Anonymous
    Cindy Scott
    Aug. 11, 2008

    Yes, I have the same problem.  It started when I was diagnosed with FM 5 years ago.  I can't take the heat.  We used to go camping in a tent, but now, when I am in heated temps, it causes severe flair ups of my FM.  I keep the AC on all winter long in my home as well as my car.  My husband has the same problem as yours.  I found...

    RHMLucky777

    Read More

    Yes, I have the same problem.  It started when I was diagnosed with FM 5 years ago.  I can't take the heat.  We used to go camping in a tent, but now, when I am in heated temps, it causes severe flair ups of my FM.  I keep the AC on all winter long in my home as well as my car.  My husband has the same problem as yours.  I found a book on FM that listed sensitivity to heat as one of the symptoms of FM.  I showed it to my husband and he has been a lot more tolerant. Take care.  Cindy

  • Anonymous
    jenny5019
    Aug. 10, 2008

    hi

    im jenny jenny5019@hotmail.com  my doc has not said i have fm but i know i have as i am in so much pain 1st thing in the morning make me cry some times . and yes i never have the heating on never cold and my grand daugther lives with me and she goes mad as she is cold and im not . i can not work with fm can you as if i sit for to long im in bad apin...

    RHMLucky777

    Read More

    hi

    im jenny jenny5019@hotmail.com  my doc has not said i have fm but i know i have as i am in so much pain 1st thing in the morning make me cry some times . and yes i never have the heating on never cold and my grand daugther lives with me and she goes mad as she is cold and im not . i can not work with fm can you as if i sit for to long im in bad apin ihad to give my job up though it . i dont slep well from about 2am to 6am is about the longist time . iv had this for 4 months no pain killers help im 58 but im young at heart and its hard for me as im 35 in the head if you know what i mean i thought i was going mad thinking i was the only one with this pain .

    jenny

    • crzyinga
      Aug. 15, 2008

      You are talking about me!!!  That's exactly the problems I have, except I can't tolerate the cold.  I wear a jacket everywhere.  If I go shopping in the refrigerated section, I am hurting so bad by the time I get out I can barely walk.  First thing the morning, I'm so stiff and hurting so bad.  I have noticed I have had soaking wet...

      RHMLucky777

      Read More

      You are talking about me!!!  That's exactly the problems I have, except I can't tolerate the cold.  I wear a jacket everywhere.  If I go shopping in the refrigerated section, I am hurting so bad by the time I get out I can barely walk.  First thing the morning, I'm so stiff and hurting so bad.  I have noticed I have had soaking wet hair in the mornings from sweating, but my body is cold.  I know all of this is related to the FM.  I have had it since 1984 and am still trying to find the right combination of medications, etc. to help.  Maybe one day...

  • Anonymous
    Rhonda
    Aug. 09, 2008

    I find that I am always cold... Summer I seem to be wearing sweats and sweaters.. but there are the off days where I dont mind wearing shorts and a tank, but I think I am the opposite with you..

  • Anonymous
    Cuz
    Aug. 07, 2008

    Yup yup yup!  I am always burning up.  Hubby is freezing.  I often feel feverish - but never run a temp.  Its odd!

    Cuz

    www.reaching-out.info

     

  • browneyes39
    Aug. 07, 2008

    Yes I have problems with my body temperature to i've found out now that my temp goes way over 100 and my legs from the knees down sometimes feel like they are on fire and hurt real bad.

  • Anonymous
    Anonymous
    Aug. 05, 2008

    i have had fm for a number of years and i wonder if you have had your blood pressure monitored? i find that with the warm feeling is \due to the blood pressure rising. i also wonder if you are of menopausal age?  also i find the barometric pressure can cause irregular temperature regulation. hope this helps.

    • Bekah
      Aug. 07, 2008

      I do have my BP checked regularly and it is fine.
      Being that I am 24 I am definitely no where near menopause.

  • Anonymous
    suse
    Aug. 05, 2008

    i found a battery operated fan at walmart -- in the camping department.  they have a larger one that holds eight D batteries, it's pretty heavy.  but there is a smaller one that holds only 4.  i take it EVERYWHERE.  in stores (especially dressing rooms!!), in my car, EVERYWHERE!  i also found (at walmart) a little fan that looks like...

    RHMLucky777

    Read More

    i found a battery operated fan at walmart -- in the camping department.  they have a larger one that holds eight D batteries, it's pretty heavy.  but there is a smaller one that holds only 4.  i take it EVERYWHERE.  in stores (especially dressing rooms!!), in my car, EVERYWHERE!  i also found (at walmart) a little fan that looks like an big ipod.  it sucks air in the front and shoots it out the top -- you are supposed to wear it around your neck.  it's great except that the cord sweats my neck.  it also has a little stand so you can put it on a table or something to blow on you.  it's small enough to put in your purse and i never leave without it.    i keep one of the bigger fans in the car for whenever i need it.  i ALWAYS have women running up to ask me where i got these things.  good luck.  oh -- and even with being hot, my body temp runs low.  i have thyroid disease and if more people would get to a doctor that deals with bioidentical hormones and not these endos that send you on your way . . . "you're normal -- just go home and suffer! ;) right??"    ARGH!!!

  • Anonymous
    suse
    Aug. 05, 2008

    i've had breast cancer twice, and have had major thyroid issues since radiation 'fried' my thyroid.  i have been attempting to regulate it for 10 years now.  never happens.  i also suffer from severe, chronic pain similar to fibromyalgia.  i have, however, been diagnosed with ankylosing spondylitis (a form of arthritis), and have had cortisone...

    RHMLucky777

    Read More

    i've had breast cancer twice, and have had major thyroid issues since radiation 'fried' my thyroid.  i have been attempting to regulate it for 10 years now.  never happens.  i also suffer from severe, chronic pain similar to fibromyalgia.  i have, however, been diagnosed with ankylosing spondylitis (a form of arthritis), and have had cortisone shots in my hands (they fall asleep at night), knees (including the rooster comb, synvisc), etc.  i live in houston, and have found it impossible to even walk outside.  i used to love the beach, now i can hardly walk to my car and am sopping wet by the time i get it cooled off.  i run the a/c constantly (our bill was $1,300 last month) -- and this has my husband moaning.  of course, in the winter, i absolutely refuse to turn the heat on, and have told him i want my heat savings applied to the a/c bill, but of course it doesn't work that way.  when visiting his sister (wisconsin), it went into the 40's and she blasted the heat.  when i opened a door to get some oxygen and told her it was 'boiling' in here, she said, 'no . . . it's not and slammed the door.'  bottom line?  i want to move to canada.  health care and cold air -- that's my motto.  does anyone else have chronic foot pain?  i feel like i have places in my foot that are just broken.  plus, i cannot stand to be touched on the sides of my thighs, or back side and front side of my  hips.  it's excruciating -- like a 'bruised' feeling.  i've tried lyrica, but i don't see it makinga difference.  i have meds for the pain -- but it's a constant battle, mostly keeping them 'hidden' so as not to be called a drug addict.  i'm furious that they are making people on t.v. (that have supposedly been in accidents, shot in iraq (see lifetime's army wives' husband 'trevor,' the 'cleaner' (where did they come up with that name??), etc.) look like junkies for being in pain and needing to take their meds.  when is 'addiction' going to be just that and 'dependence' on a drug that you NEED be understood?  never as long as it gets this bad rap.  people watch this junk and then apply it to their loved ones (been down that road as well -- while going through 5 surgeries).  again, i'm for moving to canada . . .

  • Anonymous
    Anonymous
    Aug. 05, 2008

    I am just the opposite.  Air conditioning hurts my body.  I can't stand for it to be cold or to have cold air blowing on me.  I need it warmer

     

    Preacher Man

  • Anonymous
    Joanie
    Aug. 05, 2008

    OMGoodness!  I can SOOO relate!  I was diagnosed w/FM back in the '80's, and have been struggling with the many symptoms ever since.  Trouble regulating body temperature has been a MAJOR problem for me all these years!  I HATE feeling like I'm on FIRE the majority of the time!  You can only take off so much clothing before being...

    RHMLucky777

    Read More

    OMGoodness!  I can SOOO relate!  I was diagnosed w/FM back in the '80's, and have been struggling with the many symptoms ever since.  Trouble regulating body temperature has been a MAJOR problem for me all these years!  I HATE feeling like I'm on FIRE the majority of the time!  You can only take off so much clothing before being arrested!  I keep a hand-held fan (like the Spanish women use) in my purse, and am always reaching for it, to fan my dripping face!  I get a lot of looks, but when you're desperate for any amount of relief, you don't care what other people think!Tongue out

  • Anonymous
    Carol
    Aug. 01, 2008

    I never associated my heat to the FM, I just thought it was either pre menopause or menopause itself but I am constantly cooking with the fan going all night and the windows open with my husband freezing under quilts.  I take thyroid medication as well as a study medication for the FM and I have also been diagnosed with connective tissue disorder but after...

    RHMLucky777

    Read More

    I never associated my heat to the FM, I just thought it was either pre menopause or menopause itself but I am constantly cooking with the fan going all night and the windows open with my husband freezing under quilts.  I take thyroid medication as well as a study medication for the FM and I have also been diagnosed with connective tissue disorder but after freezing for years with the thyroid inbalance the heat in a nice cost saver especially with the rising price of gas we use a lot less heat in the winter.

  • Anonymous
    djenkins
    Jul. 31, 2008

    i do understand what your talking about, i just went to the doc today and asked him why i have certain symtoms and its always followed by getting hot and sweating. he then touched different spots and told me its fm. so here i am tonight on this. when it starts my skin feels like its on fire, tingling in hands legs feet with pain in different degrees and then...

    RHMLucky777

    Read More

    i do understand what your talking about, i just went to the doc today and asked him why i have certain symtoms and its always followed by getting hot and sweating. he then touched different spots and told me its fm. so here i am tonight on this. when it starts my skin feels like its on fire, tingling in hands legs feet with pain in different degrees and then the sweating. it gets bad sometimes with sex, but just sitting around it can hit, i get all sweatty and everyone else is ok, sucks but i have to live with it.  

  • Anonymous
    Anonymous
    Jul. 30, 2008

    I used to break out in sweats (horrible plus embarrasing). Can't explain it but the answer was 5Htp. I run a low body temp too. I go back and forth between hot and cold but I can deal with that.

  • Anonymous
    Queenie
    Jul. 30, 2008

    All my life I've been very cold-natured. I was diagnosed with Fibro in 2000 and just recently I have noticed that I'm quite hot quite often. I had initially chalked it up to the fact that I just turned 38 and am possibly entering pre-menopause.  Although I've been dealing with fibro for 8 years, I still have to remind myself to consider fibro as the culprit...

    RHMLucky777

    Read More

    All my life I've been very cold-natured. I was diagnosed with Fibro in 2000 and just recently I have noticed that I'm quite hot quite often. I had initially chalked it up to the fact that I just turned 38 and am possibly entering pre-menopause.  Although I've been dealing with fibro for 8 years, I still have to remind myself to consider fibro as the culprit when things that are going on in my body. It really takes some getting used to.

     

    Would love to get a professional's opinion on this temp regulation.

    Queenie Brown

    http://www.TheSelfLoveMovement.com

     

  • Debralynn
    Jul. 28, 2008

    At first I thought I was over hot compared to my family.  In the summer, I couldn't sleep because I was so hot.  Now I realize it is areas of fever.  You can feel cool areas and hot and burning areas where the flare up is coming or  where I worked the muscles to much.  But it always ends with fevers now.  I can melt two ice packs...

    RHMLucky777

    Read More

    At first I thought I was over hot compared to my family.  In the summer, I couldn't sleep because I was so hot.  Now I realize it is areas of fever.  You can feel cool areas and hot and burning areas where the flare up is coming or  where I worked the muscles to much.  But it always ends with fevers now.  I can melt two ice packs trying to get the fevers down.  Some times I can't sleep with hardly any clothes on because it just holds in the heat more.  At night, it can be on the side against the bed and I have to keep turning over to cool down the skin.  In winter, if I'm in sweats, I will fall asleep only to awake in a few hours with a raging fever and then the skin starts to feel like it is icy hot.  I have to peel off the warm clothes and let my boby cool down before I can go back to sleep.    These last two years, its been the worst.  I have tried to exercise and biuld up my weak muscles which seems to cause more fevers.  It just  repeats every night.  I have lost so much sleep just on the fevers alone.  But yet I have to be very careful about fans and air conditioners.  They can tigger the flu like flare up which makes my muscles weak and in pain from the cold.  And thats an entirely different pain.  I ususally have to go to bed with heavy meds when I have these flares.  But they too, can end with fevers and my skin feeling like it is burining.    I can't win for losing.

  • Debralynn
    Jul. 28, 2008

    At first I thought I was over hot compared to my family.  In the summer, I couldn't sleep because I was so hot.  Now I realize it is areas of fever.  You can feel cool areas and hot and burning areas where the flare up is coming or  where I worked the muscles to much.  But it always ends with fevers now.  I can melt two ice packs...

    RHMLucky777

    Read More

    At first I thought I was over hot compared to my family.  In the summer, I couldn't sleep because I was so hot.  Now I realize it is areas of fever.  You can feel cool areas and hot and burning areas where the flare up is coming or  where I worked the muscles to much.  But it always ends with fevers now.  I can melt two ice packs trying to get the fevers down.  Some times I can't sleep with hardly any clothes on because it just holds in the heat more.  At night, it can be on the side against the bed and I have to keep turning over to cool down the skin.  In winter, if I'm in sweats, I will fall asleep only to awake in a few hours with a raging fever and then the skin starts to feel like it is icy hot.  I have to peel off the warm clothes and let my boby cool down before I can go back to sleep.    These last two years, its been the worst.  I have tried to exercise and biuld up my weak muscles which seems to cause more fevers.  It just  repeats every night.  I have lost so much sleep just on the fevers alone.  But yet I have to be very careful about fans and air conditioners.  They can tigger the flu like flare up which makes my muscles weak and in pain from the cold.  And thats an entirely different pain.  I ususally have to go to bed with heavy meds when I have these flares.  But they too, can end with fevers and my skin feeling like it is burining.    I can't win for losing.

  • Anonymous
    sandy
    Jul. 22, 2008

    I have had FM for nearly 20 years now, and I can not remember what it feels like to be cold. I am always hot and turning my A/C to the coldest setting possible. It's like living in a "deep freeze" my family tells me. I contribute my warm body temp. to my FM and I wish I had an answer about how to control it! I love sweaters and wish I could wear them!!!! Sandy...

    RHMLucky777

    Read More

    I have had FM for nearly 20 years now, and I can not remember what it feels like to be cold. I am always hot and turning my A/C to the coldest setting possible. It's like living in a "deep freeze" my family tells me. I contribute my warm body temp. to my FM and I wish I had an answer about how to control it! I love sweaters and wish I could wear them!!!! Sandy

  • dfoulds
    Jul. 22, 2008

    Wow I thought it was me alone or the menopause but i to have FM and am always HOT, i just can't do anything to help it and i actually perfer cool showers because of it.

  • Anonymous
    Anonymous
    Jul. 22, 2008

    My body temperature wakes me up which is annoying, I usually take a blanket off or PJ's.

    My life has changed so much since developing fibro, the sun was something I always enjoyed. Winters I loved being out in the snow, how I've changed just to accomodate this syndrome. If I overdo gardening, walking, swimming or any repetative...

    RHMLucky777

    Read More

    My body temperature wakes me up which is annoying, I usually take a blanket off or PJ's.

    My life has changed so much since developing fibro, the sun was something I always enjoyed. Winters I loved being out in the snow, how I've changed just to accomodate this syndrome. If I overdo gardening, walking, swimming or any repetative motion, I have a big pay back time that goes on for weeks. I have been to Fibro meetings but these meetings don't address pain per sae, and that is frustrating. I could see others suffering just listening and sitting in one position, how polite we are.

    A from Canada 

     

  • Anonymous
    Rose H. N.
    Jul. 19, 2008

    At one time long ago, I was told that I had fibromyalgia but was never confirmed.  I constantly am in pain (for years) and found that a few years ago, I started feeling very hot and sweaty.  I am constantly dripping from sweat and the doctors do not know what is causing this.  They say that I am going through menopause and I am 72 years old. ...

    RHMLucky777

    Read More

    At one time long ago, I was told that I had fibromyalgia but was never confirmed.  I constantly am in pain (for years) and found that a few years ago, I started feeling very hot and sweaty.  I am constantly dripping from sweat and the doctors do not know what is causing this.  They say that I am going through menopause and I am 72 years old.  I had hysterectomy when I was in my early thirties and never had any problems with menopause.  I am hoping (not that I'm looking for any kind of illness) that this might have something to do with my constant sweating and something can be done to help me.  If any of you out there have any ideas and willing to share with me, please do.  I am at my wits end.  Thank you. RoseSmile

  • Anonymous
    Rose H. N.
    Jul. 19, 2008

    At one time long ago, I was told that I had fibromyalgia but was never confirmed.  I constantly am in pain (for years) and found that a few years ago, I started feeling very hot and sweaty.  I am constantly dripping from sweat and the doctors do not know what is causing this.  They say that I am going through menopause and I am 72 years old. ...

    RHMLucky777

    Read More

    At one time long ago, I was told that I had fibromyalgia but was never confirmed.  I constantly am in pain (for years) and found that a few years ago, I started feeling very hot and sweaty.  I am constantly dripping from sweat and the doctors do not know what is causing this.  They say that I am going through menopause and I am 72 years old.  I had hysterectomy when I was in my early thirties and never had any problems with menopause.  I am hoping (not that I'm looking for any kind of illness) that this might have something to do with my constant sweating and something can be done to help me.  If any of you out there have any ideas and willing to share with me, please do.  I am at my wits end.  Thank you. RoseSmile

  • Susan
    Jul. 18, 2008

    I am 50 years old, just diagnosed with fibro this year and have also tried a variety of meds recently.  So I cannot tell which of these contributes to my hot flashes, but I hate them.  I can suddenly get the sweats especially on my scalp and face.  It can hit anytime, but I really love it (not!) when I am trying to apply make-up in the morning!...

    RHMLucky777

    Read More

    I am 50 years old, just diagnosed with fibro this year and have also tried a variety of meds recently.  So I cannot tell which of these contributes to my hot flashes, but I hate them.  I can suddenly get the sweats especially on my scalp and face.  It can hit anytime, but I really love it (not!) when I am trying to apply make-up in the morning!

     

    So lately I am going around at work in sleeveless blouses while others are bringing their sweaters to combat the a/c.  At home, I range from hot to cold to hot.  So I am really never happy with the thermostat!  I think this has to be the fibro because I can be very sensitive to cold also, which never happened before and doesn't seem likely from menopause or the meds.  It can be frustrating, but I just swing with it and have a variety of clothes on hand for how I'm feeling at the time.

     

    So I don't have the answers, but I hope this helps.

    • tjhelser
      Jul. 18, 2008

      Dear Susan,

      Thanks for sharing. You are someone near my age (I am 53 so older) and it is both validating and reassuring to me that there are others who are unfortunately going through similar things as I am. You know how misery just loves company Laughing

      I too am really have a time with being hot and sweaty (or as my mother used to say, glowing) in the face,...

      RHMLucky777

      Read More

      Dear Susan,

      Thanks for sharing. You are someone near my age (I am 53 so older) and it is both validating and reassuring to me that there are others who are unfortunately going through similar things as I am. You know how misery just loves company Laughing

      I too am really have a time with being hot and sweaty (or as my mother used to say, glowing) in the face, behind my head and back of neck. I had hair to my rear until about three months ago and I cut to above my shoulders for the first time in about 20 yrs hoping for some relief. Not to be had, I am thinking about going shorter much to my husbands sugrin.

       

      I still am unsure whether this symptom is from menopuse or fibro. If you ever find anything supporting either please let me know, I will be eternally grateful

      ~Tj ~

  • Anonymous
    krayonkk
    Jul. 18, 2008

    I have the same problem, however I have terrible sweats since fibromyalgia, only in the face and back of my head no where else. It drives me crazy and it is very embarrassing.

  • Rayne
    Jul. 17, 2008

    YES! I drive people crazy. I am usually hot; no matter what Al Roker says. I can't stand the heat blowing on me in the car or inside. It makes me sick. I can't sleep wearing much of anything. I'd sleep nude, but I'm afraid if there's a fire, I'd scare the neighbors. I dress in layers and always have a sweatshirt with me. I could be in a camisole one minute...

    RHMLucky777

    Read More

    YES! I drive people crazy. I am usually hot; no matter what Al Roker says. I can't stand the heat blowing on me in the car or inside. It makes me sick. I can't sleep wearing much of anything. I'd sleep nude, but I'm afraid if there's a fire, I'd scare the neighbors. I dress in layers and always have a sweatshirt with me. I could be in a camisole one minute or wrapped n a blanket (shivering and complainng about achy joints) the next. I'm a joy to live with. Cool

  • tjhelser
    Jul. 16, 2008

    Hi Tatoo girl~

    Late to this months info and comments but want to share with you that I too have a major problem with regulating my body temp. I am always warm too, a fan even in the winter when it's 30 degrees and below.

    I am a lot older than you (53) and am almost relieved to find that a younger woman with fibro also has this problem. I did have to have...

    RHMLucky777

    Read More

    Hi Tatoo girl~

    Late to this months info and comments but want to share with you that I too have a major problem with regulating my body temp. I am always warm too, a fan even in the winter when it's 30 degrees and below.

    I am a lot older than you (53) and am almost relieved to find that a younger woman with fibro also has this problem. I did have to have a complete hysterectomy in my mid 30's and have used estrogen replacement therapy on & off over the years.The only symptom they have not addressed have been the body temp issue. I have over the years a gamunt of tests ran, had my thyroid checked over & over. I too am convinced it has to do with fibro and reading your comment/question has validated that belief even more.

    One thing I do a lot this time of year to cool myself down is wear a damp cold towell around the back of my neck. Sounds like the greatest news in fashion I know, but there are times when a gal needs a break. I lay down for about 30 minutes with the towell and find that my coping level increases which always helps my pain level. A friend from Georgia here in the states shared this ip with me when I lived in seattle Washington and the humidity was awful.

    Good luck, be good & gentle to yourself

    ~ Tj ~

  • meme5567
    Jul. 15, 2008

    Yes it's true! I have been the same way myself. I'm driving my family nuts with the cold room and sweaty body. I have the AC and THREE FANS going all night. 6yr son sleeps with me at times and wears sweats to sleep.                

  • Anonymous
    Franil
    Jul. 15, 2008

    My husband does the same thing now days, he's on me to turn the air up so it dont run so much .  Im setting there burnning up and sweat rolling off me and he's in a sweat shirt.  They haven't said I have FM yet.  They dont know whats wrong, been at it for a year.  Pain all the time, some days worse then others. 

  • Anonymous
    Anonymous
    Jul. 14, 2008

    Absolutely - it can be irritating for co-workers at the office, too. Wild temperature swings are a common daily occurance for me. 

  • Anonymous
    guppie
    Jul. 13, 2008

    i hate being hot all the time! I hate the pain the docs are worried i will become a addict since i have been on everything and now they put me on tramadol! I have to take alot to dull the pain. How bout you?

  • Bonnie
    Jul. 13, 2008

    Your body temperature is controlled by hormones. Read What Your Doctor May Not Tell You About Fibromyalgia by Paul St. Amand, M.D. and it will explain his theory on why that is happening to you.

    It is the "bible" of FMS.

  • Anonymous
    Linda
    Jul. 11, 2008

    I forgot to add...I also run my air for the same reasons and my husband will tell me he is freezing. There are times the air conditioner will cause me to ache all over. The fatique is relentless. I was an avid camper, gardener, hiker...I can steer you to the proper lab.  Do you experience muscle twitches? Memory loss?  Wierd symptoms???

  • Anonymous
    patricia zammer
    Jul. 08, 2008

    Dear Tattoo girl,

     

    I too have had problems with body temp (warm) .  I have lyme disease for 9 years

    now.  I went four years without diagnosis.  This has manifested in the last 2-3 yrs.

    It is real bad in summer.  I am lucky my lyme dr. in NY has tested me for thyroid,

    and other things that could crop up along the way.  I am a registered...

    RHMLucky777

    Read More

    Dear Tattoo girl,

     

    I too have had problems with body temp (warm) .  I have lyme disease for 9 years

    now.  I went four years without diagnosis.  This has manifested in the last 2-3 yrs.

    It is real bad in summer.  I am lucky my lyme dr. in NY has tested me for thyroid,

    and other things that could crop up along the way.  I am a registered nurse and

    can work.  So you have joint pain, chronic fatigue as well?  I am 53 now so there

    was also the hormone issue to assess but it did not seem to be the cause.  Have

    you had tests for other underlying causes for your symptoms?  I find the overheating

    to be dibilitating at times and cannot stay in sun of do outside activities past May in our area (Newport, Rhode Island).Would love to communicate and share.

    Sincerely yours,  Patricia Zammer

    • Bekah
      Jul. 13, 2008

      We are definitely sure that I have FM and not Lyme, especially since there are no ticks where we live and I had not been in an area where they are when my symptoms started. I had blood work done last week and it all came back A OK.

  • Anonymous
    icegyrrl
    Jul. 07, 2008

    Have your Thyroid checked.  Wink

    • Bekah
      Jul. 13, 2008

      Had it checked last week. Everything is fine.

    • Anonymous
      Anonymous
      Jul. 26, 2008

      Did your tests include FREE T3 and FREE T4?

       

      TSH is not a good indicator as to whether your body has thyroid hormone AVAILABLE to it, regardless of the fact that it is the "standard" test.   TSH test  is a tells  the level to which the pituitary gland is sending a message to the thyroid to "put out."  Thyroid puts out T4...

      RHMLucky777

      Read More

      Did your tests include FREE T3 and FREE T4?

       

      TSH is not a good indicator as to whether your body has thyroid hormone AVAILABLE to it, regardless of the fact that it is the "standard" test.   TSH test  is a tells  the level to which the pituitary gland is sending a message to the thyroid to "put out."  Thyroid puts out T4 which must be converted to T3 for use.  My TSH was normal. Free T4 was at the low end of normal, but Free T3 below normal. 

       

      The norm range for TSH was also adjusted to 0.3-3.0 and many docs/labs still hang on the the old range that goes up to 5.0, thus missing many people who are actually hypothyroid.

       

      There's a site called stopthethyroidmadness.com.  Good info.

       

      I also have FM and also recently had a total hysterectomy (TAH/BSO). so i have hot flashes, but have had low body temp all my life.  99deg = fever and SICK for me!

       

      I'm same with needing a fan on and wearing light clothing when others are pulling on the sweaters and shivering. Have been this way all my life. Very frustrating to be such an oddball!

       

      Vicki

    • Bekah
      Jul. 26, 2008

      Did your tests include FREE T3 and FREE T4?


      YES. Everything is fine.

  • Anonymous
    Becky
    Jul. 06, 2008

    Hi, I also have a whacky thermostat! Mine causes me to be either cold or hot regardless of outside temp. I keep my electric blanket on the bed all year and frequently use it in the summer (Florida). There seems to be no reason for the ups and downs of body temps I experience. To date, I have not been able to find anyone with the answer to this.

     

    Take...

    RHMLucky777

    Read More

    Hi, I also have a whacky thermostat! Mine causes me to be either cold or hot regardless of outside temp. I keep my electric blanket on the bed all year and frequently use it in the summer (Florida). There seems to be no reason for the ups and downs of body temps I experience. To date, I have not been able to find anyone with the answer to this.

     

    Take care.

     

    Becky

  • Olivia hannah
    Jul. 03, 2008

    Hi there,

     

      I have Fibromyalgia and yes I find My self hot and cold. So don't worry your not the other one out there with the same problem. I all ways find it easier knowing that I'm not the only one with the problem.

  • Cheryl
    Jul. 03, 2008

    Mine is just the opposite.  My legs gets so cold, I think they will snap like a twig.  That's where I get the coldest.  And when they are cold, I experience leg weakness and pain.  It takes me forever to warm up, most people are sweating to death waiting on me to warm up.

     

    Another area the causes me a lot of trouble are my arms. ...

    RHMLucky777

    Read More

    Mine is just the opposite.  My legs gets so cold, I think they will snap like a twig.  That's where I get the coldest.  And when they are cold, I experience leg weakness and pain.  It takes me forever to warm up, most people are sweating to death waiting on me to warm up.

     

    Another area the causes me a lot of trouble are my arms.  I don't know if it is Fibermyalgia or Tendenitis.  All I kow is that it hurts.  If you find a cure for the body temperature, let me know.

     

    JCZgirl

  • Anonymous
    Debbie
    Jul. 03, 2008

    Yes, I absolutely have trouble regulating my body temperature.  I use to always be cold.  In the winter I would wear a large jacket in my office to keep warm.  I would die if I did that now.  In fact, heat makes me feel much worse.  I must keep my AC on in spring and summer much lower especially to sleep.  I don't what causes it...

    RHMLucky777

    Read More

    Yes, I absolutely have trouble regulating my body temperature.  I use to always be cold.  In the winter I would wear a large jacket in my office to keep warm.  I would die if I did that now.  In fact, heat makes me feel much worse.  I must keep my AC on in spring and summer much lower especially to sleep.  I don't what causes it but it is not fun is it?  Hope you're having a good day.  Debbie

  • purplerose
    Jul. 02, 2008

    I was DX with FM and since that DX I have noticed each year my tolerance to the heat gets worse and worse.  The heat makes me feel itchy and uncomfortable. I must have a fan on me at all times or I can't stand the feeling.

     

    Prior to my FM DX I was always on the cool side.  Even my body temp was below normal. Now I run fevers very easly, and...

    RHMLucky777

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    I was DX with FM and since that DX I have noticed each year my tolerance to the heat gets worse and worse.  The heat makes me feel itchy and uncomfortable. I must have a fan on me at all times or I can't stand the feeling.

     

    Prior to my FM DX I was always on the cool side.  Even my body temp was below normal. Now I run fevers very easly, and my body temp norm now is above the 98.6

     

    I asked my doctor about it, and he told me, most his patients could not take the cold. Now to be completly honest I cannot take the very cold temps either, however it takes very little to warm me up when I am cold.

     

     

  • Anonymous
    AmericanLadybug
    Jul. 01, 2008

    I've talked with quite a few people with FM that have lower body temperatures. Mine usually runs about 97.5º.  Just another SNAFU in the Fibro world.

  • Tired08
    Jul. 01, 2008

    Yes, I am almost always too warm, and have to be careful not to freeze my husband. He keeps a small quilt at his chair all the time. I am 64 however, and I thought maybe that menopause might have something to do with it. Now, I'm not so sure. Sweat literally drips from my hair at times.

    I guess it's another symptom of Fibromyalgia.  I notice when I'm sick...

    RHMLucky777

    Read More

    Yes, I am almost always too warm, and have to be careful not to freeze my husband. He keeps a small quilt at his chair all the time. I am 64 however, and I thought maybe that menopause might have something to do with it. Now, I'm not so sure. Sweat literally drips from my hair at times.

    I guess it's another symptom of Fibromyalgia.  I notice when I'm sick and feel feverish, my temperature drops to 97 or less instead of over 98.6, so that is again something weird to my notion. Thanks for sharing Tatoo Girl. I am new to this and my handle is tired08.

  • Anonymous
    Kim
    Jul. 01, 2008

    I am from London Ontario and I have MS and fibro. I have severe chronic pain. I accidently came across your post and I read info. You were asking about body temperature. I have a serious problem with body temperature. If I get too hot I feel like I am going to pass out.

     

    Have you ever considered that you have MS? I was diagnosed with MS 2 1/2 years ago....

    RHMLucky777

    Read More

    I am from London Ontario and I have MS and fibro. I have severe chronic pain. I accidently came across your post and I read info. You were asking about body temperature. I have a serious problem with body temperature. If I get too hot I feel like I am going to pass out.

     

    Have you ever considered that you have MS? I was diagnosed with MS 2 1/2 years ago. I had same issues. When I was diagnosed with MS I look back at all the health issues and complaints it was very clear that I had MS. Take a look at information on MS and then look at health problems you currently have. I was 35yrs old when I was diagnosed but looking back I could have been diagnosed with MS almost 8 yrs prior to final diagnose.

     

    Good luck and keep cool!

     

    Kim

    bitz_1224@hotmail.com

  • Anonymous
    Gilda
    Jul. 01, 2008

    I know that for me, the last several years I always feel like I am in a sauna.  I thought it was part of life changes.  But I like the air on 70 degrees and wear shorts in the house.  I sleep with the ceiling fan and a stand up fan at night plus the air is on.  I can be sitting at work and feel the sweat rolling down my back.  So if...

    RHMLucky777

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    I know that for me, the last several years I always feel like I am in a sauna.  I thought it was part of life changes.  But I like the air on 70 degrees and wear shorts in the house.  I sleep with the ceiling fan and a stand up fan at night plus the air is on.  I can be sitting at work and feel the sweat rolling down my back.  So if anyone has any ideas, I would appreciate it and I know that my boyfriend would too.

  • Anonymous
    Nan
    Jun. 30, 2008

    I was always the warm one in the group. Now I am the one who is freezing and just hopes for a hot flash.  I did not relate it to my fm until I found this site. Thanks for the info.

  • ChibiSeira
    Jun. 27, 2008

    Well, I have issues both directions, which is really annoying. Right now I'm freezing, but sometimes I'll be hot to the point of nausea... and it's all with the thermostat set at the same point! I tend to get cold when I'm tired/at night, but otherwise it's pretty much minute to minute. I'm rarely at a comfortable temperature regardless. Meh. Oh, and my mouse...

    RHMLucky777

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    Well, I have issues both directions, which is really annoying. Right now I'm freezing, but sometimes I'll be hot to the point of nausea... and it's all with the thermostat set at the same point! I tend to get cold when I'm tired/at night, but otherwise it's pretty much minute to minute. I'm rarely at a comfortable temperature regardless. Meh. Oh, and my mouse hand always gets freezing even if the other hand is fine! Maybe because it's higher? Anyway. I didn't necessarily put my temperature issues as a fibro thing, but then, almost everything could be it seems like. In any case it's all annoying. Tongue out

  • Bekah
    Jun. 27, 2008

    I'm impressed that this topic  has received so many replies! It's nice to know that I'm not alone in all of this.

    Just wanted to let you all know that I'm seeing my dr. on July 3rd and am going to ask her what she thinks about our heat problem.

    Cheers!

    Bekah

  • Anonymous
    Tranrich
    Jun. 27, 2008

    Yes, ever since I have been told I have FM, my body temp is alway and I mean always on the warm side.  It drives my wife crazy and it is so bad that our next vehicle will have dual control temp controls.

     

  • Anonymous
    Anonymous
    Jun. 26, 2008

    Hello,

        I have had RA and FMS as well as lupus erythematosis and necrobiosis lipoidica (no diabetes either!) for 13years now. I have had the unfortunate luck to develop a form of autonomic disreflexia as well. Therefore my body temp usually cannot regulate itself. We moved from Texas to the Pacific NW and that has helped some but.....if it...

    RHMLucky777

    Read More

    Hello,

        I have had RA and FMS as well as lupus erythematosis and necrobiosis lipoidica (no diabetes either!) for 13years now. I have had the unfortunate luck to develop a form of autonomic disreflexia as well. Therefore my body temp usually cannot regulate itself. We moved from Texas to the Pacific NW and that has helped some but.....if it gets above 70 degrees I'm usually in trouble! My husband teases me about thinking there must have been a sale or bargain buggy on autoimmune disorders! I tell everyone that I don't really have hair, it is my very own black cloud that follows me wherever I go!

  • Anonymous
    Renee
    Jun. 26, 2008

    I know some of these posts are older about body temp, but I just stumbled across them while doing some research on Skelaxin (the newest thing added to my therapy). I find it fascinating that most of the folks here seem to be burning up, while I am freezing most of the time. Now wait, this was not always the case. Over 2 years ago, I swore I was going to spontaneously...

    RHMLucky777

    Read More

    I know some of these posts are older about body temp, but I just stumbled across them while doing some research on Skelaxin (the newest thing added to my therapy). I find it fascinating that most of the folks here seem to be burning up, while I am freezing most of the time. Now wait, this was not always the case. Over 2 years ago, I swore I was going to spontaneously combust if I had to sit in a conference room, where a jacket - ever - (you might have seen me around, the crazy woman in a t-shirt in December). A full-body- meltdown-sweat could be easily produced by showering, getting dressed, laundry, doing the dishes, walking to a meeting, getting the kids to the car, or just wearing my hair down (I think I still have permanent ponytail marks). I couldn't dress the way I wanted or shop where I wanted or even attend the meetings I wanted. I was constantly checking my makeup to see if my 'waterproof' mascara was dripping off my chin.

    Yep, I had the desk fan and sat under the open air duct and was the scurge of the office for having it open in the winter. I 'loved' sitting next to the other women who were wrapped in blankets, wearing turtlenecks under sweaters, under blazers....gross I am having trouble breathing just picturing it.

    Get to the point? What changed? Sleep. WAIT...don't stop reading...hear me out. It's not as easy as it sounds. I went for a sleep study. While for me, I was diagnosed with sleep apnea, there are other sleep disorders and issues related to FMS that can be treated that can help regulate your body temp.

    What my study found was that not only was I not breathing well at night, I was not entering the sleep phase when your body heals itself. I would 'wake' myself dozens of times a night to move, to breathe, to twitch etc. and never entered REM sleep or did not stay long enough for my body to produce enough natural healing to help. During this time my chronic fatigue was at it's worse (of course) where I would have to stand at my computer at work to stay awake. I could no longer drive, and I was in bed at 5 p.m. every night. So why would I think I had a sleep disorder?

    I had night sweats so badly, however, that I would wake up and have to change to be comfortable again.

    After 6 months on a CPAP (breathing machine) I no longer have night sweats. After 8 months on the CPAP I also managed to lose some weight (not all sleep disorders are weight related, so please don't think this cannot be you if you weigh 110). At 10 months so much had changed...I was no longer HOT...that sounds like a long time for relief I know, but it's worth it.

    Let me tell you what has changed: I wore a winter coat last season for the first time in 3 years, I was able to wear a long sleeved blouse and jacket to work, I can use my heating pad for my back, I can wear jeans around the house instead of shorts, I can wear my hair down, I can get dressed up (makeup and all) and go out! I was outside this weekend and it was in the 80's and I was not even sweating!

    Most days I am cold! I have turned the AC up to 72 and am still cold. I have had to put on a sweatshirt while my husband is complaining how warm it is in the house!

    Just think about your sleep habits and if you are really getting sound restful sleep, it is at least worth discussing with a sleep specialist.  You may not need a CPAP machine, but there are other ways to help you fall asleep and stay asleep so that your body can help heal itself.

    • croppled1
      Aug. 16, 2008
      I know sleep makes a big difference . For me what helped was a gift of a 12 inch memory foam mattress . It came in three peices with a cover . It was supposed to be for trucks or boats they sell them on Ebay I would mention the vendor but people would think I am a plant . Anyways I was sleeping in a chair I woke up in so much pain in a bed . My insurance bought...
      RHMLucky777
      Read More
      I know sleep makes a big difference . For me what helped was a gift of a 12 inch memory foam mattress . It came in three peices with a cover . It was supposed to be for trucks or boats they sell them on Ebay I would mention the vendor but people would think I am a plant . Anyways I was sleeping in a chair I woke up in so much pain in a bed . My insurance bought a super cheap hospital bed with a 312 coil mattress and wires for a frame support like a cot . They want to put me in a cronic pain program but I have so many little things I do to cope with my pain to cope I was scared . They required I had to sleep in a bed . People said try memory foam or temperpedic it works for some with FM and or chronic pain . I thought since i sweat at night ( plus I am poor ) there is no way this would work . I sure wasnt going to spend what they want to just try it . To wind this up my family bought me a 12 inch twin xl mattress on ebay it was $184.95 . I was so sick I just threw it on top of the other mattress . I didnt even think the adjustable bed would work . It does . I sleep and have not woke in pain once . I am never hot as long as I keep my bowels working atleast every second day . For me I am suffering the same as you the functions supposed to be occuring in sleep dont work anymore . I used to wake in pain from bowel or colon spasming ..some is drug related too . However that memory foam works for me . They say you could try it for 90 days but you could never send it back if your sick . I am not a plant you can check me out on the net I have 12 years of posting under this alias and being in pain . Its called sleepy mountain mattress for anyone interested . It looks like hell sitting on my bed but I sleep better then I have in years . ITs a longshot but your talking to a guy who bouth the q-ray bracelet . Tried coral calcium , Did the bowel clense , Went to chronic pain school to use imagery , bought a sound machine ( l love buggy ride on the sharper image machine ) Tried inversion , Chiropractic care , accupuncture , Tens units ..You just keep trying you dont care how or why but when something helps your greatful . 12" TWIN XL 5.5 MEMORY FOAM MATTRESS BED SLEEP SYSTEM http://cgi.ebay.com/ebaymotors/ws/eBayISAPI.dll?ViewItem&ih=007&sspagename=STRK%3AMEWN%3AIT&viewitem=&item=170236431230&rd=1 you can check it out its three pieces of loose medium qaulity memory foam with a mattress pad it does shift around . I know many who wouldnt like it but a real temperpedic is 2000 plus . This is worth trying to see if you can sleep on foam you can get it on any bed size and lay it ontop of your regular bed at first . I think it would work best in a wooden homeade frame keeping the edges from squishing out . sleepymountainmattress their really distribute out of Kansas City . It may be second quality stuff I dont know . But yes a big part of this issue has to do with processes that occur when one is asleep , It has ties to hormones too . Very good info is being given here . My Fm started with a car accident though . Narcotic use and medications get into the mix as the years progress . Some in the goverment are studying now that opiates drain adrenal secreations , testosterone or progesterone , and one other hormone I forget thats related . Some people were taking pig adrenalin and hormones this deal with steroids ( HGH ) has made it a area Doctors are scared to discuss at all . If anyone has trouble with opiates I suggest they read Dr Dave Arnesons paper on methadone withdrawl . I know he advocates abstinence from opiates but the supplements he discusses to rebuild a person in detox helped keep me sane on my pain meds and them working again when used with opiate rotation ..again read and you will learn and understand . You almost have to get a phd in personal health along with coping with this . Insurance companies dont want to treat you they want to save $$$ this area is one little is known about .
  • Anonymous
    donny holden
    Jun. 24, 2008

    i feel the same way.i stay real hot on the inside like im burning up and can sometimes feel heat coming off of me.are you always real tired to and think that something is wrong.when i get tested they say im fine but i dont feel fine.i used to have alot of energy ,now i just sitr around.i dont know what fm is,but i take pain pills because im in pain always and...

    RHMLucky777

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    i feel the same way.i stay real hot on the inside like im burning up and can sometimes feel heat coming off of me.are you always real tired to and think that something is wrong.when i get tested they say im fine but i dont feel fine.i used to have alot of energy ,now i just sitr around.i dont know what fm is,but i take pain pills because im in pain always and they give me a little energy back.i live with a fan in every room and freeze my wife and kids to death.ha ha.

    • Bekah
      Jun. 24, 2008

      Hi Donny

      Fibromyalgia does cause chronic fatigue. Chronic Fatigue is also a syndrome of it's own. Fibromyalgia causes (along with fatigue)

       

      • Fatigue that interferes with work and daily activities.
      • Sleep problems (difficulty falling or staying asleep, waking up feeling tired).
      • Morning stiffness lasting less than an hour.
      • Headaches.
      • Constipation or...
        RHMLucky777
      Read More

      Hi Donny

      Fibromyalgia does cause chronic fatigue. Chronic Fatigue is also a syndrome of it's own. Fibromyalgia causes (along with fatigue)

       

      • Fatigue that interferes with work and daily activities.
      • Sleep problems (difficulty falling or staying asleep, waking up feeling tired).
      • Morning stiffness lasting less than an hour.
      • Headaches.
      • Constipation or diarrhea related to irritable bowel syndrome
      • Memory problems and difficulty concentrating.
      • Anxiety or depression.

        I would go and see your doctor, you very well could be dealing with Fibromyalgia and there are many options out there to help with pain control. Best of luck to you!

        Bekah
    • Anonymous
      donny holden
      Jun. 25, 2008

      HAVE YOU NOTICED MOST PEOPLE INCLUDING MESTARTED GETTING THESE SYMPTOMS AFTER A CAR ACCIDENT.THATS WHERE DOCTORS SHOULD START WITH THERE RESEARCH.

    • Bekah
      Jun. 25, 2008

      Hi Donny,

      Fibromyalgia can be triggered after a surgery, physical trauma (like a car accident) or severe illness. My Fibromyalgia was caused by an improperly performed root canal.

    • Anonymous
      donna
      Aug. 05, 2008

      i have done a lot of reaseach on fm and have had it for a number of years. the opinion of the doctors who have studied this all say and believe that STRESS is a major factor in this condition. of course this is the preempting factor in a lot of illness. also not getting the REM sleep worsens the condition. you have to do some exercise not strenous and eat a...

      RHMLucky777

      Read More

      i have done a lot of reaseach on fm and have had it for a number of years. the opinion of the doctors who have studied this all say and believe that STRESS is a major factor in this condition. of course this is the preempting factor in a lot of illness. also not getting the REM sleep worsens the condition. you have to do some exercise not strenous and eat a well balanced diet. there are a few good books out there by a couple of doctors who give many things to help to cope with the fm. of course everyone is different and there could be other problems involved also.  good luck    donna b

  • Anonymous
    Lara
    Jun. 24, 2008

    i appreciate all of your imput regarding heat regulation.  I too experience my environment (no matter where I am) as either too hot or occasionally too chilly.  I have Fibromyalgia and early onset osteoarthritis.  My 5 back surgeries and fusions have left me with chronic pain.  My medications, like many of you, add to the discomfort with...

    RHMLucky777

    Read More

    i appreciate all of your imput regarding heat regulation.  I too experience my environment (no matter where I am) as either too hot or occasionally too chilly.  I have Fibromyalgia and early onset osteoarthritis.  My 5 back surgeries and fusions have left me with chronic pain.  My medications, like many of you, add to the discomfort with heat.  Cymbalta and many of the same types of medications actually list "increased sweating" as a side effect.  Pain medications also tend to make s feel warmer than others.  But I am convinced that since my Fibromyalgia began in 1995 (when I was in a body cast and sustained whiplash in a car accident)my internal "thermostat' has been off- big time!!

    My husband also complains that we live in a freezer, because I tend to run the a/c more than he feels is necessary.  But I rarely find a time of the day that I am actually comfortable.  I go barefoot or wear sandals whenever I can.  I believe that helps.  I also always were my hair up and wear clothes made from natural fibers (cotton, silk...).  My pain management specialist considers this issue minor and not worth much discussion.  But if it was happening to him, I believe he would be keen on finding some remedy.

         As to the comments about pugs, I can assure you that pugs are my favorite breed.  I now have two 8 year old pug sisters, that are my pride and joy.  I encourage anyone who wants a bright, affectionate and loyal companion, to get a pug.  They will never disappoint you.  They however do have a habit of following you everywhere you go.  They are very inquisitive and like to be with their owners. So they tend to often be under your feet. Check your area for a Pug Rescue organization.  They often can offer you an orphaned or lost pug. It is a economical way to get an adult pug.

        To all you who have Fibromyalgia, take solace in the fact that the pharmaceutical companies are finally getting medications past FDA approval (Lyrica and Cymbalta) for treating  Fibromyalgia. Stay cool and stay hopeful. 

  • Anonymous
    K Bates
    Jun. 23, 2008

    Hey here is a very interesting response. I too have FM now just found out recently and im 25 years old so age has nothing to do with it folks. But to ur question I have always had a problem regulating my body temperature like you said u r always burning up i am always freezing cold no matter what and at home it drives my husband crazy.....lol. Well maybe with...

    RHMLucky777

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    Hey here is a very interesting response. I too have FM now just found out recently and im 25 years old so age has nothing to do with it folks. But to ur question I have always had a problem regulating my body temperature like you said u r always burning up i am always freezing cold no matter what and at home it drives my husband crazy.....lol. Well maybe with body temp and FM there is some correlation....who knows guess we have to wait for more research....

  • Anonymous
    hurricane30
    Jun. 23, 2008

    I was diagnosed by my family doctor after a car accident 10 years ago and I have found that my body does not like it cold or hot.  When it is cold and/or drafty I get goose bumps all over and I always make sure I have a coat or sweater with me, even in the summer and if I am cold for more then a few minutes my muscles start to tense up and sometimes...

    RHMLucky777

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    I was diagnosed by my family doctor after a car accident 10 years ago and I have found that my body does not like it cold or hot.  When it is cold and/or drafty I get goose bumps all over and I always make sure I have a coat or sweater with me, even in the summer and if I am cold for more then a few minutes my muscles start to tense up and sometimes it takes days for them to stop aching. I really don't like air conditioning.  When it is hot out ( over 25 celius) I get exhausted really fast and I tend to spend alot of time in my basement then.   But like alot of things with FMS there are no set guidelines for people to help them understand it. No two people are alike when it comes to this curse and that is why alot of doctors scoff at the condition.  All I know is that if something that you are exposed to (be it food, temperature, stress, etc) causes you pain then that is FMS at work. 

  • Anonymous
    Anonymous
    Jun. 22, 2008

    I have had problems regulating both body tempt and diastolic # of blood pressure. I am finding that since I have been diagnosed with hyperactive thyroid, I am doing better with the temperature of my body. I have said for some time my internal thermometer doesn't work. Hopefully, with synthroid, both problems will resolve themselves.

  • Anonymous
    Stella Sinclair
    Jun. 17, 2008

    I was getting hot flashes quite a few nights, and I have been on Estraderm 25 for a number of years. My gynecologist prescribed Clonidine and I haven't been bothered since.  I didn't connect the discomfort to my Fibro.  However, the Clonidine works well.  I take half a 0.1 mg every 2nd night.  It works for me.

  • Anonymous
    ken griffiths
    Jun. 17, 2008

    hi there! i forgot to mention this. I carry a product caled ''creat antiphlogistic capsules'' talk about getting rid of heat! in the Phillipines & Africa whereive been a Missionary i didnt even sweat while taking 4/day  you get 100 for $10.00 Most people need 5-8 pills a day to regulate the temp. I found in tropical countries i only needed it for 5...

    RHMLucky777

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    hi there! i forgot to mention this. I carry a product caled ''creat antiphlogistic capsules'' talk about getting rid of heat! in the Phillipines & Africa whereive been a Missionary i didnt even sweat while taking 4/day  you get 100 for $10.00 Most people need 5-8 pills a day to regulate the temp. I found in tropical countries i only needed it for 5 days then the heat didnt bother me Too many of them can make you feel cold as it rids the body of toxins & heat. You can easily decide for yourself how many you need. Check out a chinese herbalist--if he cant get them, i can.   best of health!    ken [ Sho-tai health care]

    • Anonymous
      Anonymous
      Jun. 18, 2008
      Thank you for the info on the pills. I just ordered some and hopefully they will work for me. My husband complains that I keep it so cold in the house that you could hang meat. But I always tell him that he can add clothes but I can only take off so much. I have also discovered this past winter that I'm extremely sensitive to the cold now. I never had a problem...
      RHMLucky777
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      Thank you for the info on the pills. I just ordered some and hopefully they will work for me. My husband complains that I keep it so cold in the house that you could hang meat. But I always tell him that he can add clothes but I can only take off so much. I have also discovered this past winter that I'm extremely sensitive to the cold now. I never had a problem with cold weather until now. Thankfully I live in Oklahoma so our winters are not too bad ususally. I can't get out too much in the summers due to the extreme heat we have here. It was 96 degrees at 8pm last night and ususally hits very close to the 100's during the daytime. Just can't stand the heat at all anymore. I'm so glad I found these posts, now maybe my husband will understand why I keep the A/C set on 68 -70 degrees. I thought it was just me, but now I know I'm not the only one who suffers with this problem. That really helps a lot. I've had fibromyalgia, with a failed back surgery DDD, and arthritis along with TMJ and tendonitis for 11 years now. Still hoping for a cure for the fibromyalgia, who knows, maybe some day. Thanks again to everyone for making me feel somewhat normal for a person with many problems. Have a great evening Carrie
  • Anonymous
    cookie_duster
    Jun. 17, 2008

    Hello, I am an on-going chronic back pain sufferer. I have a morphine pump inside me and ,like you I am always running on the  Hot side. I can be wringing wet with sweat when everyone else is cold. My pain management  doctor says that there is nothing we can do to alleviate the hot feelings and sweats. It's all part of the medicine and the pain condition....

    RHMLucky777

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    Hello, I am an on-going chronic back pain sufferer. I have a morphine pump inside me and ,like you I am always running on the  Hot side. I can be wringing wet with sweat when everyone else is cold. My pain management  doctor says that there is nothing we can do to alleviate the hot feelings and sweats. It's all part of the medicine and the pain condition. I've tried on and off of different medicines the only thing I've found that even remotely helps me is ( and as a woman you can't do this),,Androgel testosterone  supplement. This slowed down the wild random sweats, but I still feel hot all the time and sweat at the slightest exertion, no matter what the temp. These sweats are a horrid thing, but a fact of life for some of us . Sorry to give you this news , but hope it helps explain that we are not alone with this.  take care,

  • Anonymous
    catt napp
    Jun. 14, 2008

    Diagnosised with fibromyalgia in 1985 after suffering from joint pain since the mid-70s. Always sweaty, even in airconditioning, even when a teenager. Not any better now that I have been menopausal since 1990. On max dose of estrogen and still too hot. Can't keep the AC high due to cost but it sure makes it cheaper in the winter. Kept it about 65 all winter...

    RHMLucky777

    Read More

    Diagnosised with fibromyalgia in 1985 after suffering from joint pain since the mid-70s. Always sweaty, even in airconditioning, even when a teenager. Not any better now that I have been menopausal since 1990. On max dose of estrogen and still too hot. Can't keep the AC high due to cost but it sure makes it cheaper in the winter. Kept it about 65 all winter and was fairly comfortable. There is good in everything. Have more problems than fibromyalgia. DDD, osteoarthritis, failed back surgery x 2, 16 fractures, mostly on left side of body, torn ligaments, both knees, rotater cuff problems in shoulders and none of that is helped because I am also obese, 38 BMI. Finally found a compassionate MD that is trying to control the pain enough that I can function as far as activities of daily living but barring a miracle I doubt that I will ever be able to work again, and I liked my work. Other than enjoy the winter I wish I could give you something that would work in the summer except drink plenty of fluids and stay in the shade. My legal name really is catt napp. I had it changed, trying to improve my outlook on life.

  • Anonymous
    Brynn
    Jun. 13, 2008

    Yes! Yes! Yes! As an FM sufferer since 1999, and diabetic since 2005, summer's heat (of 78 degrees and over) tend to bother me greatly. I swelter, the sun feels like it is burning my skin and I tend to stay indoors (enjoying my AC) only to venture out in the evening air. When I have to go out in the heat, I wear a little battery-operated, (Dollar Store)...

    RHMLucky777

    Read More

    Yes! Yes! Yes! As an FM sufferer since 1999, and diabetic since 2005, summer's heat (of 78 degrees and over) tend to bother me greatly. I swelter, the sun feels like it is burning my skin and I tend to stay indoors (enjoying my AC) only to venture out in the evening air. When I have to go out in the heat, I wear a little battery-operated, (Dollar Store) portable fan around my neck and rely on cool compresses to get me through the day's challenges. I also carry a purfied, cold bottle of water to drink (at all times)to keep from getting dehydrated. In winter, I prefer to sleep in a cool room (65 degrees) and feel absolutely fine and refreshed upon waking. Otherwise, if the room is too warm, I wake up sluggish and feel drained and have difficulty starting my mornings.

    • Anonymous
      Cats5
      Jun. 17, 2008

      I have had problems  with heat since I was in my 20's but wasn't diagnosed with fibromyalgia until in my 40's. It's gotten worse in my 50's. If I'm hot at night I too wake up exhausted. I live in TExas- it's in the 100's now and I am suffering. I used to be able to tolerate going to the store in the day, but I can't stand being in teh sun anymore. I get...

      RHMLucky777

      Read More

      I have had problems  with heat since I was in my 20's but wasn't diagnosed with fibromyalgia until in my 40's. It's gotten worse in my 50's. If I'm hot at night I too wake up exhausted. I live in TExas- it's in the 100's now and I am suffering. I used to be able to tolerate going to the store in the day, but I can't stand being in teh sun anymore. I get sick to my stomach- throw up and have diarrhea!! Weird symptoms from heaat??? But it happens every time. I think I'm going to get the cool neck scarf and the chillow pillow- when I HAVE to be outside- I just dump water on my head and try to stay in the shade- I even carry an umbrella when walking from my car to work.

  • Anonymous
    Matthew
    Jun. 12, 2008

    I really read thoroughly your last paragraphs of your bio and would really like for you to talk to your husband and doctors about getting a full LYme series of tests done. Being originally fron Connecticut, 6 towns away from the town of Lyme I have a lot of friends and family that have been affected by Lyme. The effects of Lyme vary so much that it often gets...

    RHMLucky777

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    I really read thoroughly your last paragraphs of your bio and would really like for you to talk to your husband and doctors about getting a full LYme series of tests done. Being originally fron Connecticut, 6 towns away from the town of Lyme I have a lot of friends and family that have been affected by Lyme. The effects of Lyme vary so much that it often gets overlooked. I have had close personal friends contract Lyme without showing the tell tale bite mark with the circle ring around it. Only a percentage of the population react and show this mark. Do the research for the tests. Even an experienced Dr. misses the diagnoses 30% of the time, that's a lot. For shits and giggles ask your Dr. to go on the ani-biotics for Lyme and see what happens. Either way look into it. BTW FM is a symptom of Lyme!! The symptoms range from aching joints, headachs, swelling of joints, mood swings, neurological issues, insanity, TMJ, weight loss, bells palsey. the list is huge!! Go to http://www.lyme.org you will be amazed and maybe get some more hope!

    • Bekah
      Jun. 13, 2008

      Hi Matthew,

      Thanks for your input but I know that I do not have Lyme.

      1. My Fibromyalgia was caused by jaw trauma. I had a root canal and the dentist popped my right jaw joint also leaving me with TMJ.

      2. I was diagnosed with TMJ by both my dentist and and oral surgeon.

      3. Fibromyalgia/arthritis/chronic pain is very widespread in my family. There are more of us...

      RHMLucky777

      Read More

      Hi Matthew,

      Thanks for your input but I know that I do not have Lyme.

      1. My Fibromyalgia was caused by jaw trauma. I had a root canal and the dentist popped my right jaw joint also leaving me with TMJ.

      2. I was diagnosed with TMJ by both my dentist and and oral surgeon.

      3. Fibromyalgia/arthritis/chronic pain is very widespread in my family. There are more of us with one or more of these conditions than those without.

      4. My doctor does not give medications just for fun. I have had several exams before being diagnosed with Fibromyalgia. If I had Lyme, my medication would not be working. Also, there is no way that my doctor would perscribe Lyme meds for "shits & giggles" They will only perscribe medication for an illness that they know for SURE the patient has.

      5. Where I live there are no ticks nor had I been in any areas where there are ticks before my pain started.

      6. Yes, SOME symptoms of Lyme are similar to Fibromyalgia but there are HUNDREDS more that are not associated with this illness. Not to be rude, but I suggest you learn more about Fibromyalgia before you go telling someone to look into other illnesses. I have researched my illness fully and I fit every category. I trust my doctor and her diagnosis.

  • Anonymous
    matthew
    Jun. 12, 2008

    My mother was diagnosed with FM and had the same problems you were describing. It was also at the same time and age that a woman could normally start menopause. She just chalked it up to that. She went back to the doctor several times and complained later on because the hormone supliments were not working. Long story short she went to a menopause specialist,...

    RHMLucky777

    Read More

    My mother was diagnosed with FM and had the same problems you were describing. It was also at the same time and age that a woman could normally start menopause. She just chalked it up to that. She went back to the doctor several times and complained later on because the hormone supliments were not working. Long story short she went to a menopause specialist, found out that she did NOT start menopause. Test were done and she was diagnosed with something diffferent than FM. After two years of reaserch and multiple doctors she found out that she did not have FM. She fell victim to what a lot of doctors are doing in the past and still today, diagnosing FM when the symtoms seem to fit the bill. My mother had Lyme desiese and even after two false negatives for that she found the right doctor who was a Lyme specialist along with a pain specialist (one who specialized in FM and LYME treatment of dabilitating pain and discomfort) FM treatments can cause exactly what you are going through if you don't have FM. I AM NOT SAYING YOU DON'T HAVE FM!! I am only giving you the experience my family went through for three and a half years. Mom went on the specific Lyme ani-biotics, FM symptoms went away, she turned around 180 degrees and 9 months later went into menopause!!

  • gep
    gep
    Jun. 11, 2008

    I have found this to be true with me as well.  Although, I don't know how much being 2 years post menapause, and the effect of certain medications I am on factor into this heat wave.  It really drives me nuts.  I can tell the difference between a hot flash and the heat wave effect, but I still don't know how much my medications factor in. ...

    RHMLucky777

    Read More

    I have found this to be true with me as well.  Although, I don't know how much being 2 years post menapause, and the effect of certain medications I am on factor into this heat wave.  It really drives me nuts.  I can tell the difference between a hot flash and the heat wave effect, but I still don't know how much my medications factor in.  I have gotten used to carrying around a towel to wipe the sweat off my face when doing even minor work at home.  It really bothers me at night when it keeps me from going to sleep.

    I wish I knew what to do to identify the exact cause of my personal heat wave.  My daughter is amazed when she just happens to stand by me when I am extremely hot and she says that she can feel the heat coming off of my body.  I would love to know if anyone has any ideas about getting to the bottom of this.

    • Anonymous
      prics
      Jan. 17, 2009

      my daughter is of 8yrs is hot in school hours but is not in our home nor in holidays.she also has cold all 365 days.she is hyperactive from childhood.she is very intelligent but she doesnt use in her studies.she writes very slowly.she is gem in maths. she passes her time in seeing tv.what do i do please tell me.

  • Anonymous
    Paula
    Jun. 11, 2008

    Cry Oh yes girl I know where you are coming from with the body temperature.  My husband sets around with his jacket on & I have on shorts & a T Shirt.  And at night it is from hot to cold for me there isn't any happy medium.  Good Luck

  • Anonymous
    Megs
    Jun. 05, 2008

    Like you, I always have my AC on sooner in the year than anyone I know and it stays cooler in my house than most walk in coolers. Now, in the winter time, I often have the opposite problem with really cold extremeties like hands and feet, etc. I also noticed this more often after my diagnosis w/FM. Sometimes when I am shopping in an airconditioned store or...

    RHMLucky777

    Read More

    Like you, I always have my AC on sooner in the year than anyone I know and it stays cooler in my house than most walk in coolers. Now, in the winter time, I often have the opposite problem with really cold extremeties like hands and feet, etc. I also noticed this more often after my diagnosis w/FM. Sometimes when I am shopping in an airconditioned store or sitting in a meeting where everyone else is shivering from the AC, I am sweating and overheated. Good luck... Fall and Winter will be here soon, it's always easier to warm up than cool down.Laughing

    • Bekah
      Jun. 05, 2008

      For sure!! Fall is my absolutle favourite season! It always has been because I'm a horror and Halloween FREAK! Hahahaha but now that I have FM the cooler weather in the fall makes it even better.

  • Anonymous
    Jinxed4ever
    Jun. 04, 2008

    I sweat profusely and part of it is due to my pain meds for fibromyalgia and the rest to perimenopause.  I have my heating pad on my aching joints ( I use an old sock filled with long grain rice- not minute rice, that I heat in the microwave) the air conditioning on 68 and a fan on me at night.  I find the combination works well for me!  Cold...

    RHMLucky777

    Read More

    I sweat profusely and part of it is due to my pain meds for fibromyalgia and the rest to perimenopause.  I have my heating pad on my aching joints ( I use an old sock filled with long grain rice- not minute rice, that I heat in the microwave) the air conditioning on 68 and a fan on me at night.  I find the combination works well for me!  Cold makes my joints ache like crazy and the heat makes me nauseous hot.  Got to make the best of a bad situation. Smile

  • Nicoletti
    May. 29, 2008

    Cool   Hello.I have the same symptoms from a disorder of the spine known as spinal adhesive arachnoiditis.I sometime sweat from the meds,but mostly from the arachnoiditis.My wife is always cold and I am always hot!  We are planning to move to are hometown which is a 2 hr drive and the area has distinct four seasons. The temp is about 10-12 degrees...

    RHMLucky777

    Read More

    Cool   Hello.I have the same symptoms from a disorder of the spine known as spinal adhesive arachnoiditis.I sometime sweat from the meds,but mostly from the arachnoiditis.My wife is always cold and I am always hot!  We are planning to move to are hometown which is a 2 hr drive and the area has distinct four seasons. The temp is about 10-12 degrees cooler there as well.We have  lived  in a desert area for the last 23 years where we had our business until I  became  disabled in Jan.2004.Good luck! Nicoletti.

  • Anonymous
    brandy
    May. 29, 2008

    Coolyes i have the same deal going on and also mastered driving my husband nutts!

  • Anonymous
    Jeanette
    May. 29, 2008

    I have the same problem.  My entire body is warmer but my feet and hands are extremley hot. I have to wear flipflops and can not wear shoes with socks because my feet get soooo hot.  My hands feel like they are on fire as well. The Ac stays on all the time.  Don't know how to treat this. If anyone knows jump on board!

  • Anonymous
    Tammy
    May. 28, 2008

    I cannot warm up.  Most people around here are already using their air conditioners and I am still using my electric blanket.

  • Anonymous
    Joy Jury
    May. 28, 2008

    I am interested in what you wrote.....as a kid, I always had head sweats.  As an adult I would have these off and on; and now I am the same as you with the A/C etc.  Have always felt warmer than most people. I don't think I have FM., but you have caused me to investigate this....appreciate your posting.  I had polio in 1944; & have had limb...

    RHMLucky777

    Read More

    I am interested in what you wrote.....as a kid, I always had head sweats.  As an adult I would have these off and on; and now I am the same as you with the A/C etc.  Have always felt warmer than most people. I don't think I have FM., but you have caused me to investigate this....appreciate your posting.  I had polio in 1944; & have had limb problems all my life....could be linked where I am concerned.  Did you ever have polio??  If so, you will always be sensitive to temperature....feeling the cold and/or the heat worse than most.

    • Karen
      May. 28, 2008

      This topic has been so interesting for me to read because I have always been more "warm blooded" than anyone around me too.  I have had fibromyalgia for the past 27 years and I know I have made those living around me miserable.  I too have a fan I am just so uncomfortable if I do not have air circulating around me at all times.  It is another...

      RHMLucky777

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      This topic has been so interesting for me to read because I have always been more "warm blooded" than anyone around me too.  I have had fibromyalgia for the past 27 years and I know I have made those living around me miserable.  I too have a fan I am just so uncomfortable if I do not have air circulating around me at all times.  It is another way I feel like I don't fit in with the "normals".   Luckily I work in an area that I can keep colder than the rest of my office so I will never leave this job, this alone is a HUGE perk for me.  LOL

      The hardest part is I just began the hot flashes of menopause on TOP of being warm all the time.  It is so embarressing because I am very fair complected and when I get the least bit warm I get beat red.  People at work comment all the time saying things like "you are sooooooooooooo red" and this one girl actually went up to me looked directly at me and said "ooohh that is so ugly".  People are just so mean it just blows me away sometimes.  I think don't they think I know I am sweating like a pig and red.  I finally had to break down and go on hormone therapy because I could not handle it and luckily my body is responding quite well to it.

      I also loved reading about the pugs....I am seriously thinking of going with that breed for my next dog so it was fun to read the posts.

      Thanks for sharing everyone and have a great day!

      Karen

  • Anonymous
    Melissa
    May. 26, 2008

    Hi,

    Just happened upon your post about body temperature.  I have fibro and also have issues regarding my body temperature.  My pain clinic does regular blood work and always checks for the proper nutrients, etc.  Last month they found I was low on folic acid.  I looked it up and that particular vitamin (one of the Vitamin B's) actually had...

    RHMLucky777

    Read More

    Hi,

    Just happened upon your post about body temperature.  I have fibro and also have issues regarding my body temperature.  My pain clinic does regular blood work and always checks for the proper nutrients, etc.  Last month they found I was low on folic acid.  I looked it up and that particular vitamin (one of the Vitamin B's) actually had an effect of improper body temperature regulation when someone is low.  Plus they finally started me on HRT last week.  I'm really hoping that it helps, because, I don't have to tell you how miserable it is to be sweating all the time!  I'd ask your doc to check some of your blood work.  Just a thought.  Good luck with it!

  • Anonymous
    Dorothy
    May. 21, 2008

    yes.  I can't regulate mine at all.  I am always hot as hell and it seems to be getting worse.  When I take a shower it can take a couple of hours for me to "cool down"

    • marylizmo
      May. 24, 2008

      WOW!! I had no idea that so many had the same symptoms as me. After a shower I sit in front of a fan to keep from sweating as I just took a shower. It can take up tp two hours to get cooled off so that I can get dressed and go to the grocery store.

      I usually wear sunglasses alot and when I walk in somewhere I slide them up on top of my head. By the time I leave...

      RHMLucky777

      Read More

      WOW!! I had no idea that so many had the same symptoms as me. After a shower I sit in front of a fan to keep from sweating as I just took a shower. It can take up tp two hours to get cooled off so that I can get dressed and go to the grocery store.

      I usually wear sunglasses alot and when I walk in somewhere I slide them up on top of my head. By the time I leave the store I go to pull them down but they have moisture on them from like steam coming off of my head. I have to wipe them off as I can't see out of them.

      I have been blaming it on my thyroid as I have a goiter right now and doc says its not working properly. I have high bp and take hormones for hot flashes but this isn't hot flashes like I'm used to getting. This is straight out sweating profusely. I thought maybe it was my nerves and anxiety was high but meds for that didn't change a thing. Maybe its the oxy, I have heard complaints from alot of folks that take it too. I've told the doc so many times but he doesn't even look up from the paper he is writing on as if its no big deal. What sort of doctor is one to see for profuse sweating? Have any of you seen a doctor for this? I find it happens most with any sort of movement after about 1 to 2 minutes of standing up in the kitchen preparing to cook dinner or putting clothes in the washer or sometimes just sitting there talking to someone and they always ask "are you ok? you seem sooo hot". I find I am avoiding people and leaving the house is becoming less and less especially with summer and the humidity here now. I use neck coolers all of the time and it helps but I will say that after having that cold wet thing on my neck all day my muscles seem to ache there, stiff. Someone mentioned that it seems to start from the head and go down to the waist, I agree with that, its upper body mostly and my feet can be freezing. I just want some relief. I go to a river bank that you can swim in, I always went there as a child. Its a 4 hour drive from here. If I could just sit in that spring fed river all summer I'd be fine! It shrinks any and all of the inflammation I have in my feet and keeps me cool. I don't know what my normal body temp is but thanks for posting all of yours, i'll be watching that now. Sorry so slong.

    • wanderer
      Jun. 10, 2008

      Fran: It could have been me writing what you did. I never knew what made me perspire as much as I do. I can be sitting there doing nothing and I'll be soaking wet. It always starts with my head, just a slight sweat, then it comes on gangbusters. I too sit in front of a fan - I have one in the living room, the bedroom and the sunroom. I didn't read of any remedy...

      RHMLucky777

      Read More

      Fran: It could have been me writing what you did. I never knew what made me perspire as much as I do. I can be sitting there doing nothing and I'll be soaking wet. It always starts with my head, just a slight sweat, then it comes on gangbusters. I too sit in front of a fan - I have one in the living room, the bedroom and the sunroom. I didn't read of any remedy for this in all the letters, so don't know where to go from here. After a shower, I sweat so much I feel like showering is useless. I'll sit in front of the fan for an hour or more. By the time I've prepared a meal, I'm soaked. Laundry the same. If I walk to fast in the house, the same. We were at the neighbours for a birthday celebration. They had a fan set up, but sweat was dripping off my ears, my chin, my hair and running down my back and down my front. I finally suggested we go back to our house and have a dip in the pool - that helped, so for the rest of the summer, that's where I can be found. At first I thought it was hot flashes, as I had those during menopause, but after my car accident and a failed back surgery, it just got worse and worse. No one at the pain clinic has any suggestions, but I'm going to show the letters to all my doctors.

      Thanks for listening.

  • MSBLANN
    May. 20, 2008

    ME AND COLD DONT GET A LONG MAKES ME ACHE . RAIN AND MOISTER  MORE PAIN SOME OF THE MEDS THE GIVE ME I THINK MAKES ME SWEAT MORE THEN NORMAL.

  • Betty Boop Too
    May. 18, 2008

    Hello Tatoogirl

    It's really nice to see you again!

    I had to laugh when I read your posts, as it was just last week that I was having issues with cold/hot/humid/etc.  and just an all around trouble with regulating my body temp and I too wondered if this was a Fibro issue or another problem all together.

    For me it's a constant problem and I seem to be...

    RHMLucky777

    Read More

    Hello Tatoogirl

    It's really nice to see you again!

    I had to laugh when I read your posts, as it was just last week that I was having issues with cold/hot/humid/etc.  and just an all around trouble with regulating my body temp and I too wondered if this was a Fibro issue or another problem all together.

    For me it's a constant problem and I seem to be working all the time to find a comfortable temp for me.  I have cold sweatie hot flashes and then turn around and I'm freezing.  Sometimes or most times when my FM is flaring and the pain is bad, I feel like it is even worse than at non flare times and even though I've never read any where that a FM patient runs a fever when they have a flare, I still find my self checking my temp at times cuz when the pain is at it's highest, I seem to have a temp with the similiar Flu like symptoms and I don't really understand why.

    Thanks for asking this question and I look forward to reading through all the great replys you've gotten.

    Take Care

    Betty

    PS any new pug pics on (Monti's) I think) myspace page?  We love Pug pics in our family and have tried to check in on Your pug page.

    • Betty Boop Too
      May. 19, 2008

      I wanted to say thank you to everyone who contributed, I've really learned alot of new idea's.  The chillow Pillow one is really great and I'll have to look that up to find one for myself.

      I had to laugh at myself, I've somehow acquired all kinds of quirkie things that I do without even thinking.  I have my own crude chillow invention for bed. ...

      RHMLucky777

      Read More

      I wanted to say thank you to everyone who contributed, I've really learned alot of new idea's.  The chillow Pillow one is really great and I'll have to look that up to find one for myself.

      I had to laugh at myself, I've somehow acquired all kinds of quirkie things that I do without even thinking.  I have my own crude chillow invention for bed.  I have an old day sleepers velcro mask and I take those blue soft gel paks and keep them frozen with a short mens sock on them, when I go to bed I take one with me and put it on my head with the old sleeping mask to hold it on and sleep with these cold paks and then use a heavy winter down comforter to keep my body warm and my head cold.  For some strange reason it helps me sleep and I have so many sleep issues that what ever odd thing I can do to help, I use it.

      I'm normally too embarassed to tell people about it, but though it kind of fit in here.  I did not know there were cooling pillows available.

      Thanks for the great advice here.

      Betty

      PS;  My reg body temp is always 97.4 or even a little lower and this just happened some time right before I had my diagnosis for FM? I did not know others had that problem either.

       

    • croppled1
      Aug. 16, 2008
      simple things work those were good ideas why not just a waterbottle with ice chips in it and tuck it inside your shirt to cool your body core . I have done that . All the pro's from physical therapy say the best pack for muscles is the cheapest bag of frozen peas you can find . Mark it with a big x so you never eat it , Freeze it then when you take it out of...
      RHMLucky777
      Read More
      simple things work those were good ideas why not just a waterbottle with ice chips in it and tuck it inside your shirt to cool your body core . I have done that . All the pro's from physical therapy say the best pack for muscles is the cheapest bag of frozen peas you can find . Mark it with a big x so you never eat it , Freeze it then when you take it out of the freezer drop it on the floor a few times seperating the peas and apply it wherever you want it will conform to any body part area and distribute the cool better then anything else . Just dont leave it out too long without refreezing it . I have used mine for up to a few years before the bag gives out . I have a electric blanket for winter , the best space heater is a suppentown 1508 . I buy them on Ikitchen.com . I learned to shop the internet . I am very ill functioning at a lower level then most but I look 100% healthy just ask anyone ;-(! Doesnt that get frustrating you just want to hide which makes everything worse . God Bless .
    • Bekah
      May. 21, 2008

      Hehehe
      Yes! There are some new pics at Monty's myspace page taken in April on his 2nd birthday.

    • Betty Boop Too
      May. 22, 2008

      Thanks hon, I'll go check your Monti out.  He's really cute!  We love our Duke too.  He's an all black 4yr Pug.  He's my sons & gfriends, but lives with us as they are at college.  My husband loves Duke and I don't know if the kids will get their dog back after there four years of school.  lol

       

      thanks, good to see you...

      RHMLucky777

      Read More

      Thanks hon, I'll go check your Monti out.  He's really cute!  We love our Duke too.  He's an all black 4yr Pug.  He's my sons & gfriends, but lives with us as they are at college.  My husband loves Duke and I don't know if the kids will get their dog back after there four years of school.  lol

       

      thanks, good to see you again

      Betty

    • Karen Lee Richards
      Health Guide
      May. 25, 2008

      This must be pug territory.  Dan, our site's producer, has a pug, too.  They're so cute!  Smile  Karen

    • Betty Boop Too
      May. 26, 2008

      I think Karen needs a pug!

       

      Lol

      Wonderful dogs, tons of personality & Fun

      Betty

      I've seen Dans pug puppy pic, his is a real cutie too

    • Karen Lee Richards
      Health Guide
      May. 26, 2008

      Yes, pugs are cute...but I already have a Shih tzu and three cats so I don't think I'll be adding any more pets for awhile.  My animal kingdom already outnumbers me four to one!  Laughing  (I'm a sucker for furry little critters.) 

       

      Karen

    • Bekah
      May. 27, 2008

      Pugs are the sweetest little dogs! Monty sure is a clown too, he's always making me laugh and he's a real "mama's boy" Hehe. Everywhere I go, there is Monty with me.

      I'm just like you Karen, I have quite the zoo over here. 2 cats, 1 pug, 3 birds, 1 hamster, 1 hedgehog and a tank of fish!

  • Lisa
    May. 16, 2008

    Hi there,

    I too have this side effect of fibro, It seems to be the normal for us. Do however keep track and know what is your normal high temp, because you need to know when you have a real fever with a possible infection.

    As far as your husband is concerned it is easier to put clothes on and keep warm you can only take off so much when your hot.

    lisa

  • Anonymous
    jacquelyn
    May. 16, 2008

    You're not the only one. I have been diagnosed with a fibromyalgia-like illness ( I also have other issues) and I am always burning up. To make matters worse, I live in southwest Florida. I noticed that this issue became worse after I began experiencing the FM symptoms.

  • Anonymous
    Tammy
    May. 16, 2008

    I never imagined this could be related to FM. I was diagnosed with FM about 3-4 yrs ago but the sweating did not started until the last year. I thought it might have been perimenopause, only because I had nothing else to attribute it to. The sweating always starts on my head and then seems to work its way down to my waist. So I have found that wearing...

    RHMLucky777

    Read More

    I never imagined this could be related to FM. I was diagnosed with FM about 3-4 yrs ago but the sweating did not started until the last year. I thought it might have been perimenopause, only because I had nothing else to attribute it to. The sweating always starts on my head and then seems to work its way down to my waist. So I have found that wearing a bandana around my forehead (Charming, eh?) can slow the process down. Thank God I am self employed and can wear a bandana while I work, I can go through 3-4 in an hour !!

    I am definately ordering the "Chillow Pillow" and I`m thinking I will probably just velcro it around my head !!

    I would be happy to hear of any other suggestions and am open to almost anything at this point.

    • Anonymous
      Bandana Grammie
      May. 23, 2008

      There is actually a headband that you can get that "recharges" by soaking it in cool water for a few minutes.  You can google MiraCool bandana.  It looks like they run about $3.00 each.  I purchased my first one at a theme park on vacation and have used it for several years.  They have small microbeads that absorb the water it is being soaked...

      RHMLucky777

      Read More

      There is actually a headband that you can get that "recharges" by soaking it in cool water for a few minutes.  You can google MiraCool bandana.  It looks like they run about $3.00 each.  I purchased my first one at a theme park on vacation and have used it for several years.  They have small microbeads that absorb the water it is being soaked in.  Then, it will go from a flat piece of materal with little hard knots to a swollen fluffy cool relief in a matter of minutes.  I have used one around my head, around my neck and believe it or not, I have used it on my chest to relieve heat that builds up at nightime under my bra-line.  There are some wonderful cooling products on the MS websites as well.  Heat is a real problem for folks with MS, so it has been a wonderful resourse for me.

    • Anonymous
      Tammy
      May. 24, 2008

      Oh thank you so much !!! I am oredering one for sure, thanks for sharing that with me.

    • spideycakes
      Jan. 03, 2010

      Been known to use the miracool under my large "girls" too, because, here in the South...we do NOT perspire, we SWEAT!!!   And you can get that lovely, itchy heat rash under the breasts in the winter, too!  So attractive (not).

       

      Thanks for all the posts on "broken thermostats," I thought I was losing my mind!  I happen to have another,...

      RHMLucky777

      Read More

      Been known to use the miracool under my large "girls" too, because, here in the South...we do NOT perspire, we SWEAT!!!   And you can get that lovely, itchy heat rash under the breasts in the winter, too!  So attractive (not).

       

      Thanks for all the posts on "broken thermostats," I thought I was losing my mind!  I happen to have another, totally unrelated, condition that also can cause heat intolerance.  I sometimes think I am doomed, as now I am entering my menopausal years!  There is no antiperspirant or deodorant strong enough for me NOW!!!  

    • Anonymous
      Marilyn
      Jun. 16, 2008

      bandana grammy.....keep up that great attitude and sense of humor I hear...maybe it will help some of the other gals....LaughingLaughingSmileKiss

  • Bekah
    May. 15, 2008

    Glad to see that I'm not the only one! I'm going to show all these replies to my husband. He thinks that something has to be wrong with me even though I told him that I'm pretty sure it's just the FM making hot all the time. I have an aunt with FM as well and she is always hot too.

    I like the sound of the Chillow pillow, thanks for sharing! I'm definitely going...

    RHMLucky777

    Read More

    Glad to see that I'm not the only one! I'm going to show all these replies to my husband. He thinks that something has to be wrong with me even though I told him that I'm pretty sure it's just the FM making hot all the time. I have an aunt with FM as well and she is always hot too.

    I like the sound of the Chillow pillow, thanks for sharing! I'm definitely going to look that up Smile

    Ah, the crazy things our bodies do to us! Yell

    • manicbeatz
      May. 22, 2008

      NO!!! you are definately not "crazy".  I have trouble with hear AND cold

  • kieda
    May. 15, 2008

    Constantly... I have a hard time with the heat anyway, it makes me physically ill... I'm hot almost always... I'd rather be cold it's easier to deal with... can always pile more on... funny thing is when I was younger I was always cold... but since fibro, life has changed drasticly...

  • Tib
    Tib
    May. 15, 2008

    Hi.  I registered just so I could respond to your question!Smile  I was diagnosed with FM 15 years ago and have noticed a big changed in my body temperature.  Like you, I always feel warmer than everyone else and have the ac turned much lower (which also drives MY husband crazy too).  Interestingly enough, when I'm having a bad flare up of FM,...

    RHMLucky777

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    Hi.  I registered just so I could respond to your question!Smile  I was diagnosed with FM 15 years ago and have noticed a big changed in my body temperature.  Like you, I always feel warmer than everyone else and have the ac turned much lower (which also drives MY husband crazy too).  Interestingly enough, when I'm having a bad flare up of FM, my face feels hot, but I'm having body chills.  I'll be interested to see if anyone else responds and has the same problems.  Good luck!

    • Anonymous
      wanderer
      Jun. 12, 2008

      I often find that my feet and head are burning but I need a blanket for my body. My scalp often is soaked, as if I'd just had a shower, so I sit in front of a fan on my head and stand on the ceramic tile floor in the bathroom to cool my feet.

      wanderer

    • Tib
      Tib
      Jun. 12, 2008

      Me too!!!  It's really strange because I'll have a comforter on my body and a cool cloth on my head!!!  I'm so glad to see all the responses to this question and understand that this is yet another issue to be addressed with FM.

    • Anonymous
      Kitty
      Jun. 16, 2008

      YES! YES! YES! I've got what you have & it's SO debilitating that I've just about given up on my life because of this TORTURE! 

      As well I have unremitting pain, which's the FMS, I guess, no energy-seriously-NONE!  Am very depressed and the mere thought of getting out of bed, showering, dressing & going even to the dr is TOTALLY overwhelming. ...

      RHMLucky777

      Read More

      YES! YES! YES! I've got what you have & it's SO debilitating that I've just about given up on my life because of this TORTURE! 

      As well I have unremitting pain, which's the FMS, I guess, no energy-seriously-NONE!  Am very depressed and the mere thought of getting out of bed, showering, dressing & going even to the dr is TOTALLY overwhelming.  As soon as I start to move round I become EXTREMELY hot and sweat buckets & buckets-my clothes are drenched even before leaving the house.  My upper body, including my arms, neck, chest, etc also turn bright, flaming RED.  This drives me absoluyely NUTS!!!

      I have many other health probs which I don't know if they are related to FMS.

      Also, like you, I have a/c blazing, which freezes my poor husband.

      Have you found ANYTHING that helps?

    • Bekah
      Jun. 16, 2008

      Hi Kitty,

      So sorry to hear that you too are struggling with the heat!

      As for pain control, I take 50mg of Amitriptyline and it has worked fairly well for me. Although, I am seeing my doctor soon to see if I can get an increase because I always have a lot more pain in the summer due to the humidity.

      I haven't found a lot of success with staying cool, other...

      RHMLucky777

      Read More

      Hi Kitty,

      So sorry to hear that you too are struggling with the heat!

      As for pain control, I take 50mg of Amitriptyline and it has worked fairly well for me. Although, I am seeing my doctor soon to see if I can get an increase because I always have a lot more pain in the summer due to the humidity.

      I haven't found a lot of success with staying cool, other than keeping the AC lower than most people. Hubby and I installed 3 ceiling fans upstairs as well last week. Our house is very open concept with a great room on the second floor and we find the upstairs to be much hotter than the rest of the house, especially our bedroom. I tell ya, I LOVE having a ceiling fan over the bed!!!

      I am going to ask my doctor about my (and all of our!) problem with over heating when I see her next.

    • Anonymous
      Nancy
      Jul. 02, 2008

      I'm so glad I went to this site!  I have fibro, chronic fatigue, etc.  My problem with overheating is during the day, whether I'm out shopping or whatever.  I was in a store last weekend and my whole head was dripping wet.  I looked like I just stepped out of the shower!  Also, had a very red face.  When I'm at work, I too, carry...

      RHMLucky777

      Read More

      I'm so glad I went to this site!  I have fibro, chronic fatigue, etc.  My problem with overheating is during the day, whether I'm out shopping or whatever.  I was in a store last weekend and my whole head was dripping wet.  I looked like I just stepped out of the shower!  Also, had a very red face.  When I'm at work, I too, carry my fan from desk to desk.  Co-workers are putting sweaters on and I'm blowing the fan as close to me as I can.

      Has anyone else had the overheating problem during the day while out doing daily chores, etc.?  I sure would like a remedy.  I'm going to check on the chillow pillow, but my real problem is during the day, not for sleep.

      Thanks for any input.

    • Bekah
      Jul. 02, 2008

      I'm with you!!! I overheat SO FAST when doing house work, grogery shopping, etc. So far I haven't found anything that helps to cool me down other than having the AC and ceiling fans on 24/7.

      I'm seeing my doctor tomorrow and am going to ask her about this so keep and eye out for a new share post!

      Hugs,

      Bekah

    • dreamer
      Dec. 04, 2008

      Just wanted to add a short comment.......the way you feel when you wake up sounds exactly like me.  Just the THOUGHT of showering, dressing, etc..........I have no energy.....none.  Have to literally force myself for anything on bad days.  Just know someone else out there relates to you.

    • Rebel
      Feb. 11, 2011

      Yesterday I cried when I saw that Burning Scalp Syndrome is now recognized as a disease.  For the past 20 yrs doctors poo pooed my symptoms...my pain...my burning scalp...the heat/cold intolerance.  Now at 59 my symptoms have gone crazy.  Somedays my joint pain debilitates me.  I can't sleep at night because anything touching my scalp is...

      RHMLucky777

      Read More

      Yesterday I cried when I saw that Burning Scalp Syndrome is now recognized as a disease.  For the past 20 yrs doctors poo pooed my symptoms...my pain...my burning scalp...the heat/cold intolerance.  Now at 59 my symptoms have gone crazy.  Somedays my joint pain debilitates me.  I can't sleep at night because anything touching my scalp is like acid is eatting my scalp...oh please let me give you another antidepressant...must be psychosematic...thankyou DR.

      I have areas of my body with red tapioca size bumps...mostly on my hands. No pain. No itching just bumps along my joints.  Now my face is like parchment paper, red like it has been burned.  My hands and feet get so cold that it is painfull yet I keep my house about 63...can't handle much more...and as hot and burning as my whole body has felt I have become cold intollerant.  When they took my thyroid out my whole body was on fire continously for a month.  I lived with icepacks under my arms,groin,neck and chest.

      I was sent to a new pain Dr after the Drs finally said"Oh my you have fibromyalgia" because she touched me in 10 places which ended up in the fetal position crying.   She started me on lyrica and savella and my pain was gone...traded it for constant nause, headache and worse.  Ok she must be depressed so lets add an antdepressant, zofran for nausea and on and on till I was taking a handfull in the AM and Pm and noon to eventually.  Now the pain is back the bumps are back and everything else.  Oh yes the oxycodone....they give that freely everywhere you go.  I curse the decision to remove darvocet because that was the only thing that help...oxy served only to get me addicted.  I am finally free of that. Today I go see my PA to get help getting off the lyrica.   I cant think or function well right now.   THE NEW PROBLEM...I have gone thru MRIs ///gallons of bloodwork in the past yr.   I have done everything they say and now when a plan fails it is always...oh its your FM!   I have asthma and exzema, both of which are out of control.  So the bottom line is, now that we have a name for it they just use it as an excuse so we are right back to square one aren't wer.  All we ever had is others and hope that they know something that helps.  I moved to NM 2 yrs ago and there seems to be no hope in finding a dr here that listens......so no you are not alone...you just have to take and regulate your environemt as needed.

  • Anonymous
    Sharon Nelson
    May. 15, 2008

    Yes, I am always too warm. I have a little 6 inch fan that I run almost all winter at work. Drives the others crazy. I live alone so I can keep the temp around 63 and no one complains. Good question, I have often wondered this myself.

    • Anonymous
      Anonymous
      Sep. 01, 2008

      I cannot believe anyone keeps the temp. as low as I do!  I have not been diagnosed with anything, but do not know why I am so hot all the time.  In addition, my neck and chest are blazing red all the time, which is very embarrasing.  People always ask if I'm sunburned.  Any help out there!

       

      Thanks,

      Val

    • Anonymous
      leelee53
      Sep. 10, 2008

      Maybe you should talk to your doctor and see if you are menopausal.  I am going through menopause and I've been diagnosed with Fibromyalgia.  I get so hot that I have to change my clothes at least 2 to 3 times a day.  After I shower I feel as if I need another shower.  When I drink my soy milk those hot flashes go away.  I drink an...

      RHMLucky777

      Read More

      Maybe you should talk to your doctor and see if you are menopausal.  I am going through menopause and I've been diagnosed with Fibromyalgia.  I get so hot that I have to change my clothes at least 2 to 3 times a day.  After I shower I feel as if I need another shower.  When I drink my soy milk those hot flashes go away.  I drink an eight oz. glass before I go to bed and I don't wake up soaking wet.  I try to drink at least 4 glasses a day when I remember.  I use vanilla or chocolate.

  • Anonymous
    katy
    May. 15, 2008

    I have the total opposite problem with Fibromyalgia.  I am ALWAYS freezing, and not comfortable unless it is close to 80 F.  I wonder if it has something to do with thyroid and hormone differences and malfunctions?  I do know of other fibro sufferers who are always too warm, so I guess it can hit either way.

  • hollynicki
    May. 15, 2008

    I have been dealing with this for several years, but it has gotten worse in the last year.  I also freeze everyone at home.  In the last year, I have been sweating profusely with sweat running down my face, hair, back, etc.  The only thing my doctor has done is give me an ointment to put on the worse spots at night and then you have to wash it...

    RHMLucky777

    Read More

    I have been dealing with this for several years, but it has gotten worse in the last year.  I also freeze everyone at home.  In the last year, I have been sweating profusely with sweat running down my face, hair, back, etc.  The only thing my doctor has done is give me an ointment to put on the worse spots at night and then you have to wash it off in the morning.  It makes you miserable.  Does anyone have any suggestions on how to deal with this?ajmdogtwo@aool

  • Mark
    May. 15, 2008

    Hi Bekah, I have daily chronic pain but have never been officially diagnosed with FMS--however, I'm always feeling too warm (much the same way as you explained how you feel).

    • Anonymous
      Anonymous
      Aug. 10, 2008

      hi mark

      i think i have fm just in so much pian all day mostly in the morning and i am hot all the time never cold every thinks im mad .

      i can not work with fm can you im on the sick but thats only £65 a week and that dont help

      jenny5019@hotmail.com

      jenny

  • Anonymous
    Anonymous
    May. 15, 2008

    I usually say my thermostat must need to be changedLaughing!  Yes, I have waves of body heat even in the cooler winter months.  I have found some relief sleeping with a cooling pillow called a "chillow" pillow.  It slips under your pillowcase and over your pillow.  The only problem I found was that it has a tendency to slip off the regular pillow...

    RHMLucky777

    Read More

    I usually say my thermostat must need to be changedLaughing!  Yes, I have waves of body heat even in the cooler winter months.  I have found some relief sleeping with a cooling pillow called a "chillow" pillow.  It slips under your pillowcase and over your pillow.  The only problem I found was that it has a tendency to slip off the regular pillow during the night as I am so restless when I sleep.  I simply applied some velcro strips to the back of the chillow pillow and on the top of my regular pillow so they just move together.  You don't need to put the "chillow" in the fridge or anything.  It just stays cool, even when my body temp. feels so hot.

     

    The odd thing is that I feel so hot and sweaty, but my actual body temp usually runs below the 98.6 standard for everyone else.  When I reach 98.6...I am running a fever.  I know this doesn't answer any questions as to why, but maybe you can find some relief if you want to try the "chillow".  It usually runs about $30 and you can just use any search engine for "Chillow Pillow".  It was definately a good investment for me.  Best wishes...I understand.

    • Anonymous
      Chrissie Cronno...
      May. 23, 2008

      Hi, I also bought a 'Chillow Pillow' But unfortunately for me, when I woke up in the night the pillow had absorbed my heat to the extent that it was like was hot like a water bottle! My hair was also wet through and my body drenched. So it doesn't work for me, and after all the reviews I had read before I bought it, I couldn't believe this could happen!...

      RHMLucky777

      Read More

      Hi, I also bought a 'Chillow Pillow' But unfortunately for me, when I woke up in the night the pillow had absorbed my heat to the extent that it was like was hot like a water bottle! My hair was also wet through and my body drenched. So it doesn't work for me, and after all the reviews I had read before I bought it, I couldn't believe this could happen!

       

      Regards Chrissie.

    • Anonymous
      Sue
      May. 23, 2008

      I am so sorry for your negative experience!  That is what makes this horrible nightmare even worse! What is perfect for one person amy just blow out of the water for someone else.  After living with this bad dream for over 22 years, I just go ahead and try something new and if it provide some relief for just a little while...great! ...

      RHMLucky777

      Read More

      I am so sorry for your negative experience!  That is what makes this horrible nightmare even worse! What is perfect for one person amy just blow out of the water for someone else.  After living with this bad dream for over 22 years, I just go ahead and try something new and if it provide some relief for just a little while...great!  If not, try the next suggestion and move on until it stops working or even better...this just might be the one that DOES WORK!  Keep on smiling...it's a great way to hide a grimiceWink!

  • Tammy  Coons
    May. 14, 2008

    I myself am always colder than everyone else. Sometimes to the point of if I get chilled i am in more pain and have to sit under an electric blanket for hours to get warm.

    • Anonymous
      Carrie Weeks
      Jun. 18, 2008
      Thank you for the info on the pills. I just ordered some and hopefully they will work for me. My husband complains that I keep it so cold in the house that you could hang meat. But I always tell him that he can add clothes but I can only take off so much. I have also discovered this past winter that I'm extremely sensitive to the cold now. I never had a problem...
      RHMLucky777
      Read More
      Thank you for the info on the pills. I just ordered some and hopefully they will work for me. My husband complains that I keep it so cold in the house that you could hang meat. But I always tell him that he can add clothes but I can only take off so much. I have also discovered this past winter that I'm extremely sensitive to the cold now. I never had a problem with cold weather until now. Thankfully I live in Oklahoma so our winters are not too bad ususally. I can't get out too much in the summers due to the extreme heat we have here. It was 96 degrees at 8pm last night and ususally hits very close to the 100's during the daytime. Just can't stand the heat at all anymore. I'm so glad I found these posts, now maybe my husband will understand why I keep the A/C set on 68 -70 degrees. I thought it was just me, but now I know I'm not the only one who suffers with this problem. That really helps a lot. I've had fibromyalgia, with a failed back surgery DDD, and arthritis along with TMJ and tendonitis for 11 years now. Still hoping for a cure for the fibromyalgia, who knows, maybe some day. Thanks again to everyone for making me feel somewhat normal for a person with many problems. Have a great evening Carrie
    • Jo
      Jo
      Oct. 13, 2008

      Hi Carrie and to everyone who is talking about regulating body temperature.I have found the same problem.I have to sleep with an electric blanket and go through them all the time.I usually wait til it just starts to get cold and go to Wal-Mart and stock up on the ones just twin size as my husband and I sleep in different beds.Not because we want it that way.But...

      RHMLucky777

      Read More

      Hi Carrie and to everyone who is talking about regulating body temperature.I have found the same problem.I have to sleep with an electric blanket and go through them all the time.I usually wait til it just starts to get cold and go to Wal-Mart and stock up on the ones just twin size as my husband and I sleep in different beds.Not because we want it that way.But between the both of us no one would get what little sleep we get at all.I always have a below normal temp.If my temp is 98.6..I have a fever.I have gone to bed with my electric blanket.We decided on a temp no higher than 74*.But he has slept without a shirt on all of his life.So sometimes he gets cold and just turns it up to 75* and I wake up so soaked I have to change my bedding and pajamas. I am post menopausal and have hypothyroid but take meds for both.Taking a shower is torture to me.As soon as I step out of the shower I am freezing and there fore I get all my muscles start going into spasms.Like a charlie horse.No one believes me when I say it is really painful to get a bath or shower.I too love to work in the yard.I cannot get my temp to stay regulated.I am either too hot or too cold.I always take a scarf with me to doctors offices.As the air is usually colder and my neck seems to hurt from the cold air.My knees too start to ache in the cold.I take my electrick blanket with me where ever I go.So there seems to be something to this if this many people who have commented about body temp.there must be something to it.I like it a little cool in the house with my blanket over me.And if I have a sleeve less night gown my arms start throbbing from the cold.I just can't win.What does everybody think?We all have this in common.But it really isn't something you bring up with your doctor if you are already taking thyroid meds and also premarin.So what do we do......Jo

    • Anonymous
      Elizabeth
      Jun. 23, 2009

      Oh my gosh!! Jo sure has it right...taking a shower is torture!!! For me, I just feel like my internal thermostat is broken. I never know what temp. it really is. I am mostly cold and have cold sweats. I read someone's post that they sometimes soak through their bedding and P.J's. ME TOO!!! Sometimes I have to change my PJ's 3-5 times a night. I ask the...

      RHMLucky777

      Read More

      Oh my gosh!! Jo sure has it right...taking a shower is torture!!! For me, I just feel like my internal thermostat is broken. I never know what temp. it really is. I am mostly cold and have cold sweats. I read someone's post that they sometimes soak through their bedding and P.J's. ME TOO!!! Sometimes I have to change my PJ's 3-5 times a night. I ask the same question...what am I supposed to do?  All hormone levels are fine, my thyroid is fine.  I have been to the Cleveland Clinic and to the Mayo Clinic. NO answers. I just cry. I'm so tired of this life.  Elizabeth

    • Anonymous
      JO
      Jun. 23, 2009

      HI ELIZABETH...IT IS A COMFORT TO KNOW THAT WE ARE NOT JUST CRAZY LIKE OUR FAMILY AND FRIENDS SO EARNESTLY IMPLY.I AM A VERY PATIENT PERSON.BUT ONCE YOU PUSH ME PASSED A CERTAIN POINT I CAN BE VERY VIOLENT ACTING.WHICH IS VERY ALIEN TO MY PERSONALITY.I WAS BEGINNING TO THINK THAT I WAS INDEED MENTAL.

       

      I DO HAVE AN UP AND COMING SLEEP CLINIC.IT ISNT ENOUGH...

      RHMLucky777

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      HI ELIZABETH...IT IS A COMFORT TO KNOW THAT WE ARE NOT JUST CRAZY LIKE OUR FAMILY AND FRIENDS SO EARNESTLY IMPLY.I AM A VERY PATIENT PERSON.BUT ONCE YOU PUSH ME PASSED A CERTAIN POINT I CAN BE VERY VIOLENT ACTING.WHICH IS VERY ALIEN TO MY PERSONALITY.I WAS BEGINNING TO THINK THAT I WAS INDEED MENTAL.

       

      I DO HAVE AN UP AND COMING SLEEP CLINIC.IT ISNT ENOUGH THAT I HAVE HAD 2 ALREADY.THEY SAY THERE IS A PILL CALLED' PROVIGIL'.IT ISN'T ENOUGH THAT I HAVE ALREADY HAD 2 SLEEP CLINICS.NO I HAVE TO GO THROUGH ANOTHER ONE.WE ALWAYS DO DONT WE.THEY CHANGE OUR DOCTORS OR OUR INSURANCE AND EVERYBODY WANTS A NEW TEST.

       

      I AM SURE IF I TOLD A DOCTOR I WAS DIABETIC I WOULD NOT HAVE  TO PROVE IT AGAIN.HAS ANYONNE HEARD OF THIS PILL?MY PSYCHIATRIST WHO I WORKED WITH AT MAYO SAYS IT IS VERY EXPENSIVE UNLSS I CAN PROVE I HAVE SLEEP APNEA.I SAID WELL I HAVE SEVERE SLEEP APNEA.WENT THROUGH ALL THAT.HAD A CPAP MACHINE WENT THROUGH 3 DIFFERENT MASK THAT WERE TORTURE IN THEMSELVES.SO IT ENDED UP ON THE FLOOR USUALLY AFTER I GOT UP SEVERAL TIMES TO GO TO THE BATHROOM.IT JUST WAS NOT WORTH THE EFFORT.

       

      SO I HOPE THIS WORKS.MAYBE I WILL ASK THEM IF I SHOULD INCREASE MY PREMARIN AND JUST MAYBE SOME OF YOU HAVE SUGGESTIONS ON WHAT QUESTIONS TO ASK.I SOMETIMES FORGET.I DID FINALLY HEAR FROM A CO-WORKER FROM MAYO.SHE SAID DID YOU ASK FOR A B-12 INJECTION THAT ALWAYS HELPS ME.I SAID I NEVER THOUGHT OF THAT.SO I GOT ONE LAST WEEK BUT SO FAR I REALLY DO NOT FEEL MORE ENERGY.BUT MAYBE IF I CAN GET ALL OF THESE DOCTORS TO CONSULT WITH EACH OTHER TO ADD THEIR VIEW OR THEIR ANSWERSM,I JUST MIGHT GET SOME RELIEF.ALL SUGGESTIONS WILL BE WELCOMED.I AM GOING TO MY 40 YEAR CLASS REUNION THIS WEEKEND.I NEED TO BE PACKING BUT I AM SO OVERWHELMED.WHEN I STARTED LOOKING FOR OLD CLASSMATES 2 YEARS AGO TO DO THIS.I NEVER DREAMED MY HEALTH WOULD BE WORSE INSTEAD OF BETTER.BUT SOME OF THE WOMEN I TALKED TO SAID MOST OF THEM HAD SIMILAR HEALTH ISSUES.DO YOU SUPPOSE IT IS JUST THE DISEASE OF OUR GENERATION.THE BABY BOOMERS.THANKS FOR YOUR SUPPORT.JO

    • Anonymous
      Sage
      Nov. 16, 2010

      Hi I have taken provigil and now take the newer one nuvigil and if it were not for these meds i could not function to make it through the day.  I do not have sleep apnea i do not think I just do not get any sleep from the Fibro, I am exhausted so this little pill gives me the energy I need to make it through the day.

       

    • itbgct
      Sep. 17, 2009

      I understand completely.  I am new on this post.  I've been dealing with this for over 2 years.  I cannot even dress for a nice occasion and wear make up because I end up ruining my clothing and the make up just runs down my face.  I am completely miserable. I keep the temp. set at 70, and my husband freezes to death. I sit here in short...

      RHMLucky777

      Read More

      I understand completely.  I am new on this post.  I've been dealing with this for over 2 years.  I cannot even dress for a nice occasion and wear make up because I end up ruining my clothing and the make up just runs down my face.  I am completely miserable. I keep the temp. set at 70, and my husband freezes to death. I sit here in short sleeves. It was 62 degrees last week, and I was wearing a sleeveless blouse and sweating profusely with my hair drenched.  Other people had on winter coats and clothing and just stared at me.  I feel like I am a walking freak show.  Also, I am apparently having some type of seizures at night. I jump in bed and react like I've been shot with a gun and then all sort of facial expressions start happening.  Then my eyes roll sideways, but I am still asleep.  I wake up exhausted.  Does any one have anything similiar to this going on.

    • itbgct
      Sep. 17, 2009

      I understand completely.  I am new on this post.  I've been dealing with this for over 2 years.  I cannot even dress for a nice occasion and wear make up because I end up ruining my clothing and the make up just runs down my face.  I am completely miserable. I keep the temp. set at 70, and my husband freezes to death. I sit here in short...

      RHMLucky777

      Read More

      I understand completely.  I am new on this post.  I've been dealing with this for over 2 years.  I cannot even dress for a nice occasion and wear make up because I end up ruining my clothing and the make up just runs down my face.  I am completely miserable. I keep the temp. set at 70, and my husband freezes to death. I sit here in short sleeves. It was 62 degrees last week, and I was wearing a sleeveless blouse and sweating profusely with my hair drenched.  Other people had on winter coats and clothing and just stared at me.  I feel like I am a walking freak show.  Also, I am apparently having some type of seizures at night. I jump in bed and react like I've been shot with a gun and then all sort of facial expressions start happening.  Then my eyes roll sideways, but I am still asleep.  I wake up exhausted.  Does any one have anything similiar to this going on.

    • Anonymous
      Mikie
      Jan. 17, 2010

      I know the feeling.  Tank tops and shorts are my regular wardrobe when I'm not at work.  I, always, use ice packs, not just for my pain, but to cool me down, as well.  Hopefully, somebody will find something to help us overheaters.

    • itbgct
      Jan. 18, 2010

      Mike,

      Mayo clinic is now trying acupuncture for me.  I've only had two treatments, and I have been unable to see any improvement, but they are encouraging me to continue.  Just last week, one physician told me that it was coming from my sympathetic nervous system, and they are targeting that with the acupunture. Will post any positive results that...

      RHMLucky777

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      Mike,

      Mayo clinic is now trying acupuncture for me.  I've only had two treatments, and I have been unable to see any improvement, but they are encouraging me to continue.  Just last week, one physician told me that it was coming from my sympathetic nervous system, and they are targeting that with the acupunture. Will post any positive results that I experience from this treatment.  Just no relief.......... day or night, cold or hot weather.

      Have found that Bamboo clothing and bedding seems to help wick some of the excess moisture.  Also, it is much cooler than other sheeting.  Also, Select Comfort- the air mattress co. has a line of bedding ( mattress, sheets, etc. ) developed by NASA with special fabric that seems to have cooling effect. May want to check it out.  When I placed fabric between my hands, I could detect one side of my body much warmer than the other side.  Try explaining that to the docs!!!!!!!  Husband sits with leather jacket in our den while I am burning up.  Polar vest and neck wrap both have helped a little.

    • Anonymous
      Kimcac99
      Apr. 04, 2010

      I looked on here for any results on chronic body heat... and this is what i found... I am so glad to find that I am not the only one who has this problem... whew... I am somewhat overweight not overly obese but I thought it was my weight that caused me to be overheated all the time... but I have also been recently diagnosed with Fibromyalgia... which now I...

      RHMLucky777

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      I looked on here for any results on chronic body heat... and this is what i found... I am so glad to find that I am not the only one who has this problem... whew... I am somewhat overweight not overly obese but I thought it was my weight that caused me to be overheated all the time... but I have also been recently diagnosed with Fibromyalgia... which now I am finding out that the body heat that I endure is also associated... I am always a wet head (my hair is soaked)... when i sleep i have total body sweat(pj is soaked)... Im so tired of always having this... I freeze my employees out in the office... My husband is understanding and will just adjust to another blanket... but he shouldnt have to ... I want to be normal... Well my doctor has now prescribed Savella to me which is a newer medication out for Fibromyalgia... I will let you all know if there is good results from it or not...

       

      Thanks for listening...

    • itbgct
      Apr. 04, 2010

      So sorry that you are having to deal with this problem. I have gotten a couple of new items which have been of help to me.  I purchased a matttress pad and blanket from " Select Comfort" which has a special type of fabric which was originally invented for use by NASA; however, the fabric has " cooling properties". My sleep quality has improved since I...

      RHMLucky777

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      So sorry that you are having to deal with this problem. I have gotten a couple of new items which have been of help to me.  I purchased a matttress pad and blanket from " Select Comfort" which has a special type of fabric which was originally invented for use by NASA; however, the fabric has " cooling properties". My sleep quality has improved since I have used them as I am not waking up as frequently with the episodes of intense over heating.

       

      The 2nd thing that I have been using quite frequently is a neck wrap from Polar Products ( I believe that is the correct name ).  It has places to insert three ice packs and a velcro closure that holds it in place. The packs last me about three hours and I purchased additional ones and carry them in a little collapsible cooler when I am going to be out and about. It really helps, and I have had a vest from them for a while which also has the inserts for ice packs as well. It has velco adjustable settings and can be worn inside or outside. I usually just wear mine outside because it tends to not allow my clothing to fit as well. I had rather stay cooler than to look fashionable at this stage.  I dread the summer heat, but I have trouble even when it is well below 10 degrees even. Wishing you the best and hoping that the new meds will help.  Please keep us posted as to how you progress. We think that the cause of my problem is coming from RSD.

    • LilOne
      Sep. 25, 2010

      I am glad to read what all of you are saying so I at least know that the low body tempaerature thing and then the running low grade temps is actually part of Fibromyalgia.

      I was diagnosed about 16 yrs ago and my family and friends were so unkind not believing all these things were going on. Like the pain I experience if someone with cold hands touches me and...

      RHMLucky777

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      I am glad to read what all of you are saying so I at least know that the low body tempaerature thing and then the running low grade temps is actually part of Fibromyalgia.

      I was diagnosed about 16 yrs ago and my family and friends were so unkind not believing all these things were going on. Like the pain I experience if someone with cold hands touches me and I jump or scream because it actually hurts. Or waking up in the middle of the night and the heat isn't up high enough and the room is cold. That is torture walking slowly trying not to cause a breeze, as I cry from the pain.And yes the getting out of the shower and trying to dry off well enough not to be cold before getting my clothes on. It's a wacky world living with Fibromyalgia..But I will say the aching and being cold is the absolute worse.

    • Anonymous
      DeeC
      Jul. 20, 2008

      Hi all!

       

      I have to say.. I'm ALWAYS freezing. I go outside and work in my flower bed just to get to a "normal" body temp.  When I have my temp taken it is always a degree or two lower than norm. I find myself crankin up the heating pad or putting my Aromatherapy Relax Wraps in the microwave just to warm me up a bit. If anyone has any meds that seems...

      RHMLucky777

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      Hi all!

       

      I have to say.. I'm ALWAYS freezing. I go outside and work in my flower bed just to get to a "normal" body temp.  When I have my temp taken it is always a degree or two lower than norm. I find myself crankin up the heating pad or putting my Aromatherapy Relax Wraps in the microwave just to warm me up a bit. If anyone has any meds that seems to work well for pain please let me know. My hubby turns the air on and I turn it off.. hehe.  The wrap contains:

      Chamomile: Relaxant
      Cinnamon: Antispasmodic
      Eucalyptus: Eases breathing
      Lavender: Relaxant
      Meadowsweet: Relieves inflammation/swelling
      Peppermint: Relaxant
      St John's Wort: Eases pain
      Rosemary: Relieves spasms/cramps
      Thyme: Antispasmodic
      White Willow: Relieves Aches and Pains

      PLUS warms me! 

    • Anonymous
      Patricia Ellis
      Oct. 04, 2008

      If you are aged over 50 years then you may have Hypothyroid condition- I recognised these symptoms 6 months ago having been a nurse.  My doctor verified by blood test that my thyroid was underactive and immediately I Istarted taking Levothyroxine I got more energy lost a few pounds weight that would not shift before, even though I ate sensibly.  ...

      RHMLucky777

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      If you are aged over 50 years then you may have Hypothyroid condition- I recognised these symptoms 6 months ago having been a nurse.  My doctor verified by blood test that my thyroid was underactive and immediately I Istarted taking Levothyroxine I got more energy lost a few pounds weight that would not shift before, even though I ate sensibly.   I feel a lot more wide awake and energetic and importantly,  I no longer feel abnormally cold all the time! 

    • Rebel
      Feb. 11, 2011

      I too am a nurse and think because of that some drs think I am a hypochondriac.  My thyroid was removed 2 yrs ago.  Did not change my FM for long.  Now I cant regulate it. They change my dose monthly.  Is that FM

    • Anonymous
      Yvette
      Oct. 04, 2008

      Hi DeeC,

       

      I need the Aromatherapy Relax Wrap to help ease my muscle pains.  Can I buy it somewhere or did you do it yourself?   If you did it yourself, what would be the quantity of each ingredient did you put in the wrap?

    • Samantha89
      Feb. 06, 2012
      Thank you, thank you, thank you!  I went to an apothecary near my house and had them blend all of those herbs into a tea and a few topical lotions. My pain medicine from my doctor has only helped (not gotten rid of) my pain, but thanks to you and this herbal tea (and lotions) I feel better than ever! The herbs in conjunction with my pain medicine have gotten...
      RHMLucky777
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      Thank you, thank you, thank you!  I went to an apothecary near my house and had them blend all of those herbs into a tea and a few topical lotions. My pain medicine from my doctor has only helped (not gotten rid of) my pain, but thanks to you and this herbal tea (and lotions) I feel better than ever! The herbs in conjunction with my pain medicine have gotten me pain free, and I haven't felt that way sInce I was about 11 years old, and I'm now 22! So having pain free days for the first time in 11 years is wonderful! I was only recently diagnosed with FM (took so long because they thought everything was from my muscular dystrophy) and this has been the most helpful piece of information that I have gotten, period. Like you, I'm always cold, and this blend of herbs truly does help everything, body warmth included!  So again, thank you very much for sharing this. -Samantha-
    • Anonymous
      BK
      Nov. 15, 2009

      I have had flu like symptoms, Chills, pain, tired.  I was diagnosed this year with Fibro, and I am confused and amazed by how much it affects my body.  This week I have been experiencing tooth and facial pain.  Almost posistve it is the fibro

    • Anonymous
      bamagirl
      Dec. 11, 2009

      I also have been experiencing tooth and facial pain along with tired, brain fog, pain in certain areas over my entire body, and low body temperature (97.6 degrees is my normal temp) dipping down to 93.7 degrees to 95.3 degrees in the last 2-3 month.  I stay hot normally have AC on 68 degrees and if temperature is 72 degrees, I am red faced burning...

      RHMLucky777

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      I also have been experiencing tooth and facial pain along with tired, brain fog, pain in certain areas over my entire body, and low body temperature (97.6 degrees is my normal temp) dipping down to 93.7 degrees to 95.3 degrees in the last 2-3 month.  I stay hot normally have AC on 68 degrees and if temperature is 72 degrees, I am red faced burning hot and get sick to the point I have to go to bed.  I believed my fibromaliaga was the cause. 

      Now my feet and hands turn reddish purple and feel like they have fever (burning and hot to the touch).  My feet have severe pain and it limits my physcial activity.

      Be carefull with your teeth problem.  In 3 months time, I've had 3 teeth removed (top front teeth) and I am still having problems with my teeth and with fascial pain where the teeth were removed.  My dentist had no answers for me but from researching the problem, it maybe dry mouth caused from meds.  Chew gum it your teeth can stand it. Also, use sensitive enamel protecting toothpaste and have your dentist reccommend

      a mouthwash for enamel.

      Rest, sleep, stress free living, and being around family and friends that make you laugh, and remember its ok not to be perfect.

    • Anonymous
      D
      Feb. 13, 2012

      I don't know if this is for you. But the foot problem you have along with your other systoms sounds more like RSD (Reflex Sympothadic Dystorophy). It's a rare dieses that shows up after a accident or even can happen after getting a cut lip from licking an evenlope. You might want to check it out.

       

    • Anonymous
      D
      Feb. 13, 2012

      I don't know if this is for you. But the foot problem you have along with your other systoms sounds more like RSD (Reflex Sympothadic Dystorophy). It's a rare dieses that shows up after a accident or even can happen after getting a cut lip from licking an evenlope. You might want to check it out.

       

    • AN ANGELS MOM
      Jan. 22, 2013

      I was diagnosed with arthritis in the late 90s and have had increasing pain since. Not just in one joint it is ALL OVER. I was diagnosed with fibromyalgia in 2009. I take lyrica for the fibro and havent had much luck with anything for the arth pain as I have so many drug allergies. I feel like Im in a sauna all the time even when its cold. My feet sometimes...

      RHMLucky777

      Read More

      I was diagnosed with arthritis in the late 90s and have had increasing pain since. Not just in one joint it is ALL OVER. I was diagnosed with fibromyalgia in 2009. I take lyrica for the fibro and havent had much luck with anything for the arth pain as I have so many drug allergies. I feel like Im in a sauna all the time even when its cold. My feet sometimes are freezing and sweaty at the same time, and hurt like bones are being crsuched. Taking a shower is a PAIN as my skin hurts to the touch. I feel like a FREAK. I have a sleep apnea machine and trying to get comfortable to sleep is becoming more and more impossible. What the heck is the deal with this fibro----is it a nerve problem--a muscle problem or a bone problem? I have so much going on that I feel like no one really believes me. My daughter had cancer and passed away 4&1/2 yrs ago. I was her sole caregiver. Is this similar to or related to PTSD? THERE IS NOT ENOUGH CALGON IN THE WORLD TO RELIEVE THE FEELINGS MY BODY IS EXPERIENCING-------I've been to so many doctors and am at my witts end.

      To the person who posted about the tooth loss---I too have lost a tooth. My mouth is always dry----one dr says I have SJOGRENS SYNDROME another said tests didnt show it. I have looked up Sjogrens syndrome on internet---I have all the CLASSIC symptoms. Do any of you know what its like to cryand have no tears.  AAAAAAAAAAGH   screaming with pain and anguish  Im EXHAUSTED

    • AN ANGELS MOM
      Jan. 22, 2013

      I was diagnosed with arthritis in the late 90s and have had increasing pain since. Not just in one joint it is ALL OVER. I was diagnosed with fibromyalgia in 2009. I take lyrica for the fibro and havent had much luck with anything for the arth pain as I have so many drug allergies. I feel like Im in a sauna all the time even when its cold. My feet sometimes...

      RHMLucky777

      Read More

      I was diagnosed with arthritis in the late 90s and have had increasing pain since. Not just in one joint it is ALL OVER. I was diagnosed with fibromyalgia in 2009. I take lyrica for the fibro and havent had much luck with anything for the arth pain as I have so many drug allergies. I feel like Im in a sauna all the time even when its cold. My feet sometimes are freezing and sweaty at the same time, and hurt like bones are being crsuched. Taking a shower is a PAIN as my skin hurts to the touch. I feel like a FREAK. I have a sleep apnea machine and trying to get comfortable to sleep is becoming more and more impossible. What the heck is the deal with this fibro----is it a nerve problem--a muscle problem or a bone problem? I have so much going on that I feel like no one really believes me. My daughter had cancer and passed away 4&1/2 yrs ago. I was her sole caregiver. Is this similar to or related to PTSD? THERE IS NOT ENOUGH CALGON IN THE WORLD TO RELIEVE THE FEELINGS MY BODY IS EXPERIENCING-------I've been to so many doctors and am at my witts end.

      To the person who posted about the tooth loss---I too have lost a tooth. My mouth is always dry----one dr says I have SJOGRENS SYNDROME another said tests didnt show it. I have looked up Sjogrens syndrome on internet---I have all the CLASSIC symptoms. Do any of you know what its like to cryand have no tears.  AAAAAAAAAAGH   screaming with pain and anguish  Im EXHAUSTED