Visit this website   www.fibrocoalition.org   for support and to find the lastest alternative treatments for this condition. There is an annual conference in May or June,  in the Kansas City area every year.  I have attended it 2 years and it is a fantastic place to find the latest treatments and support.  There are various support groups around the country as a result of this coalition that was started 10 years ago. There are also many individuals who have found a great deal of help and relief through this coalition.  It takes a lot of determination and a willingness to seek alternative treatments.  The run of the mill pharmaceutical treatments DO NOT work, they are a bandaid on the situation. 

There are several doctors who now treat FMS/CF, but one of the problems is they do not usually take insurance and they are very expensive. They are doctors who have stepped outside of the "regular" way to treat patients. The mainstream doctors are not allowed to spend enough time with patients to truly treat this condition.  Plus they are not taught how to deal with most conditions that do not fit the "typical textbook" guidelines.  We need to demand better care and more coverage for this horrible condition.  WE NEED TO DEMAND THAT WE CAN GO TO DOCTORS WHO TRULY KNOW HOW TO TREAT THIS IN PARTICULAR AND HAVE IT COVERED!!  The western world treatment is not always the only way nor the best treatment.