Fibromyalgia and headaches

Hi Bekah,

I'm sorry to hear that headaches are giving you a hard time.  Our sister site, MyMigraineConnection.com, has an article about tension-type headaches that might be helpful.  Treatment suggestions are on the second page.

If you have more specific questions that aren't answered in the article, try their Ask a Question feature.  They're very good about making sure all of their questions get answered. 

Hope you find something that helps soon!

Karen

SOUNDS LIKJE MY DAUGHTER.  HAVE YOU HAD A MRI DONE YET?   HERS SHOWED SWELLING IN RIGHT SIDE AND THE MIGRAINES WERE CAUSING IT.  HE GAVE HER TREXIMET...SHE SAYS THIS WORKS AND WHEN MY DAUGHTER SAYS THAT IT WORKS.  SHE IS 27 AND HAVE THESE SINCE SHE WAS THREE.   MOTHER WHO KNOWS WHAT SHE TALKING ABOUT.    NANNY

I have been trying to find out why my daughter, who just turned 16, has had headached for 2 yrs. She cannot even go to school, i know she is lazy but i am very sure that she would rather go to school to see friends than stay at home w/her disabled mother. Anyway along with fibro there is myofascial trigger points on your head, i took her to a doc that was the only one that dx'd me with severe myofascial pain syndrome instead of just saying i was crazy and drug seeking. I feel he truly saved my life. My daughter does not have those trigger points but he did the full exam, he wants to work her up and for her to go to a doc that runs the UNM headache clinic. I never knew there was such an animal. Well we are going to run the gamet again, i feel so bad for her, even with my pain being so bad i feel like i should be able to help her. OK i will shut up i hope that somewhere in this mess of an email there is some help.

Tattoogirl, I too suffer from fibromyalgia and migrains I was diagnoised in the begining of 2007 but have suffered for years  before ecause my old doctoor wasnt listening to me he actually told me that I was just making up all my pai cause he saw othing wrong with me.

      I am seeingfive doctoors to treat my problems. i also have ankle and foot pain as well as scoliosis. I wasnt able to stand up straight of sit up right, go for walk work or perform alot of my daily basis activities. I take alot of meds but the one that helps the most is lyrica this takes away alot of pain and when I get a good amount of sleep I dont get as many headaches and less pain .

 well I just thought that you might find that useful.

Bekah!

Hi! My name is Cindy. I also have Fibromyalgia was dx in 95. I know what you mean about the pain. I take an antidepressent and a muscle relaxer ( Efferor 37.5 mg one at bedtime  and Zanaflex4 mg one at bedtime for the fibro) I also take Ultram(50 mg one at bedtime and one during the day if needed) for the pain, it is the only thing that helps me with the pain. I also use a pain patch ( Duragesic 50 MCG /72 hrs.) I have to use the pain patch because along with the Fibro I have Costrocondritis ( inflamantion and pain in the chest area)I alos take Zonegran 200mg at bedtime for this. I hope all of this helps you.  If you want to you may contact me through email. I will be for than willing to help any way I can. Good Luck and let me know how you are doing.

Cindy

Be sure and rule out any sinus-related problems, as well as TMJ.  Either can be a major contributing cause and, once fixed, could be removed as a trigger for headaches!

Good luck.

Fiorcet is the only thing that works for me.  Take it early though - it has caffiene in it

My neurologist started me on Botox injections every 3 months. I have had migranes and tension headaches for 20 years. I have tried about every med combination they can think of. I am on a daily dose of Topamax and the Botox injections every 3 months and that keeps them pretty much manageable. Before I started this I was at the end of my rope. I have TMJ, arthritis, Raynauds disease, and back problems. Getting my head issues under control has made my life a little more liveable. See if this is an option for you?

I have had headaches since I was 12 yrs old. Actually they are migraines. I have taken just about everything under the sun for them. Now I take Imitrex pills. I also have Imitrex Stat dose for when I just cannot get it to go away. The stat dose is a shot I give myself. I don't like the shots, they tend to make my arm hurt for days after. Never ever take the two for the same headache unless I have at least 8 hours between the two.

The other thing is that it is dangerous for me because I am bipolar, (manic-depressive). The meds I take for bipolar does not like my migraine meds. This can cause bad reactions. I am super careful with them and won't take migraine meds unless someone is home with me. Just in case.

You might ask your Doctor if your headaches are migraines and not just tension type headaches. Maybe you would be surprised to find out that it is. Then there is all kinds of new help out there. When I was younger there was nothing to help. The doctors did not know much back then. Ask lots of questions. It couldn't hurt. Maybe it could help.

Cindy      

I also have bad headaches with the Fibromyalgia,i currently take celexa and ultram for pain,somedays it works ok,some days same ole pain,,, :)

I take Lyrica (pregabalin), Flexaril and Butabyl...on top of several other meds to treat my auto imune disorder. I only take Flexaril at nite to help me sleep and the Butabyl only when the headache gets too bad.

I have had a constant headache for 1 1/2 years now.After many MRI's nothing showed up abnormal. It is a good idea to at least get a CT scan when you have constant headaches. I would also say it is a good idea to get a full blood workup, as well. I went to a Internal Medicine dr. and my bood workup showed the auto-immune disorder (Sjogren's).