Friday, June 01, 2012

s robinson

By stephen robinson Monday, February 09, 2009
ive lived with cps 4 years now,my doc just told me a week ago,im 39,with a family,been a strugle,meds, r lyric,duro pats,trams,diazs,sleeps,wud like 2 make friends 4 chat
im told after 4 yrs of pain i have cps
2/ 9/09 10:46am

hi, i am new to the site and also would like to chat with people who are going thru this horrible pain. i was hit by a car as i was walking across the street and have been going to a pain clinic ever since. the pain clinic seems to be somewhat cold and very strict about rules. i understand there has to be rules w/ pain meds, but sometimes i just don't think they know what kind of pain i am in, they had first prscribed 150 mg. fentynal patch, 180mg. oxycontin, which all i did was lay in bed, i was like a zombie, so i stopped taking the oxy and boy were they upset, it seemed to me they thought i was SELLING it, but when the doc started writing out a script for oxy for me i told her i stopped taking it, they were going to drop me from the program, instead started weaning me offf the fentanyl and i was in soo much pain, i could not function, i did nothing but cry i was in so much pain, so they started theinjections again , which i have had 9 to no avail. they will not give me any more pain meds except for the patch and when i ask for more, i feel they think i am "drug seeking"...ah, as you i am just so tired of being in pain, write to me if you would like, i know as all these people on here how hard it is to have cps. best to you, cindi

2/16/09 5:42pm
hi,cindi,first of all,thank u 4 writin 2 me so much,and really sori u havin such a hard time urself,cps really is such a struggle,its really hard 2 speak 2 ppl,family,m8,s and even docs,as they arent goin thro this nitemare themsels,thank god there not,so chattin 2 ppl like u,helps no end,it was g8 2 hear from u but not the struggle ur going thro as well.my life used 2 be,drink,drugs n mny other problems n,ireland brung with it,but after many years of trying 2 get clean,and my life sorted,i did,then bang,i took ill,ended in hosp,docs said i was drying,cancer,chrissos of liver,massive infections in my body,but 6 months in hosp i was gettin home,amazing turn of events really,since then have got married,a son, n life was g8,apart from this pain i thought was part of my liver n other damage i caused my body and thought things wud go thro time,but no,after lots of scans,tests n docs after docs,i was told it was cps,i was gutted,2 say the least,read up on it on web on this site n seen ppl spoke 2 each other here about it n here i am,my doc has since said he sentin me 2 england 2 a clinic 2 try 2 help with how 2 live with this nitemare of living with pain and hopefullness i feel,dont think my doc has me on right meds,but do think,lyrica n fentynal pats do help,so spk,ing 2 ppl like u can only help,hope i havent went on 2 much here,but just letting u know what has happened so far, n wont have 2 say it all again,thank god,ur thinking,ha,ha,well,cindi,i hope maybe we can help support each other,thro are hardships,and become good friends,bless u,n hope things can get better 4 u,best wishes n thoughts,stephen robinson
2/ 9/09 11:35am

Hi! You have alot of friends here, that suffer from chronic pain. I've been suffering for 5 yrs. now. I take morphine slow release and fast acting, vicodin, neurontin and celebrex. Also I take number of other meds too. I suffer from neurophy, arthritis, osteroporsis, lower back pain, bad left knee, bad legs, toes and hands. 5 yrs. ago I got e-coil and suffer chrorisis of the liver. They gave me 6 mos or less to live.  I was bedreddin for 2yrs. So went they got me up on my feet the nerves we're damaged. It's taken a lot of therapy to get me walking again. I started out in a wheel chair, then walker, now I use a cane. Still can't walk but a short distance. Bones in legs are weak. They say, they'll never get back the strength, so they can't do the knee replacement in the bad left knee. Whenever you feel like talking, just write, everyone will listen. Write soon and take care your friend donna

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By stephen robinson— Last Modified: 12/18/10, First Published: 02/09/09