
Hi all,
This is my 1st post and first time here. I have read a few stories already and can relate to almost all and have answers for same!!! I din't even know where to start, am 57 years old, have been disabled for 6 years, this being the result of 2 failed back surgeries from lousy surgeons. I am married 36 years, a miracle in todays world, have 2 grown kids and 2 g-daughters. I have been a jewelry designer for 17 years. I believe at this point that is the only thing that keeps me sane.
Up to 4 years ago I was an atractive, working, happy woman and now I can be in a freak show. This in no form is a pity me post, as I am sure everyone here goes thru bouts of depression, well I have been in a hole so deep for 6 months I cannot get out. Things wrong with me: sciatic nerve is totally compressed by inches of scar tissue, it is 3/4 covered so there is little blood flow and 24/7 extreme pain, have severe (notice everything is severe, I am always told by dr.'s that is the worst I have seen!) RSD, to the point of getting open ulcers that don't heal, have peripheral neuropathy down left side, advanced RH.Arthritis, ulcers/IBS, tumor behind left retina, 3/4 blind, not operable, severe migraines, severe scoliosis, cancer survivor, just had a stroke last month and three minis the past 2 weeks. I am on my 2nd morphine pump, the first became detached, it migrated for 3 months before I could find a surgeon to see me because original surgeon said it was no big deal, well the big deal just happened to rub the muscles between my 1 & 2 ribs to chopmeat, so I now have a huge hole there and constantly fall to the left side. Now this pump, which is also on the recalled list is sticking out like I have a flying saucer ready to burst out. It is extremely painful, also giving me bladder problems, which I already had, and is pressing up against my stomach so I always feel like I just ate a full meal. I have seen another surgeon who wants to put the rod up my back w the electroids, but I am hesitant because she is not sure it will do anything for the nerve pain, it would be for the lower back pain. Now they r putting that off due to the strokes because they do not know what is causing them. Most dr.'s don't want me as a patient because i am allergic to just about every drug known to man! I can take 1 antbiotic, I have been on Endocet for 4 years because everthing else they give me I end up in the e.r., swollen tongue, swollen face etc., so they r actually afraid to give me anything. I was given 10mg. of Soma, I took a 1/2, 45 minutes later I was unconscious on the floor, so I really believe they r afraid of me!
I currently take 7 Endocet 10/325 a day, 4 5mg of Percocet, 3 10mg of Valium and 1 10 mg of Elevil, plus nexium which is a waste w all those pills. I have delaudid and Biprivicaine in my pump, with all that I live a daily 10 pain scale, and that is a good day. I am totally housebound, except for dr.'s, which I have grown to hate-LOL, because I just keep getting worse and worse. Then they have the nerve to ask me why am I depressed????
- Font size
- Email This
- Bookmark
- Thank you for your input
- Save
- RSS
- Report Abuse










