Friday, June 01, 2012

recalled metronic pumps

By rezbeader Thursday, November 20, 2008

  My husband deserves Sainthood, if it was someones elses, they would have gone out for a beer 4 years ago and never come back. He is a construction worker, heavy labor, and he gets to come home, vacuum, take care of all the pets, help me w dinner, does the dishs, walks the dogs, washes the floors, does the laundry, food shopping, all errands, cleans entire house, never has a minute to himself and never complains, yet I take my frustrations out on him, which is so unfair, he realizes this but I am sure it still hurts, I try really hard not to but some days it is too overwhelming. I go thru periods where I cry for days, I sleep 3 hours a night for the last 3 years, so that makes me bitchy, and sex life, well that went down the toilet years ago!  I saw someone mention smoking pot, my g.p. actually suggsted it last week, I told her I did try in the summer but I got really paranoid, that is why I stopped eons ago, so that is out , but she swears it helps.

  I have been looking for an RSD support grp. for some time, I love in Central Jersey and unfortunately there are none, I can't even find a chat grp. on liner for it, so if anyone knows of a good one I would love the address. I think out of everything that is wrong w me, I hate that the most. I don'r know how many of u have it really badly,  but appanently when u get a violent sudden onset the #1 side effect is losing your teeth in the 1st 90 days, well that is 100% true, I would bite into a piece of toast and 1/2 my tooth was there, besides that, rapid leg hair growth, at my age I haven't had to shave my legs more than once a month for years, now u can braid it!!! It is truly a horrible disease and I hate it, actually I hate everything that is wrong w me and that is my problem-denial, I refuse to accept that this is the rest of my life, that it is never going to get better, believe me, I do not feel sorry for myself, I know there are millions of people so much worse off, my own g-daughter is terminal, so I do count my blessings everyday, but u don't want to live a life like this either. To feel so useless and inept when  I used to be so outgoing, I was a total hippie, I marched for civil rights, marched on Wash. against the Viet Nam war, burnt our bras in front of city hall for women's rights, I was always a fighter, now at this time I feel no fight left in me.

  Well I think I went way overboard, u  r probably hoping I do not post again for a long time. But I would like to hear from anyone who has RSD or a pump if u r willing to talk.  Thanks for listening.

Anonymous
ladykron
7/30/11 10:15am

Not only do you have to be the one to take the steps but I am thinking of getting this RSD device/pump. I have suffered many years in pain. Having neuropathy as well along with Fibro I have been to 57 Drs in the last 3 years. I would just get up and walk out with in the first 5 minutes of meeting the DR. You are the one who pays them to do a service so treat it like that. Dr.s depend on you and your insurance to make it work honey. Dont be afraid to tell them to set down shut up. dont be afraid of a dr that says I dont have all the answers but we can sure work together to find out. There are many that told me I was just an addict for pain meds well no but when you go from taking one pain pill maybe 1 every 90 days to taking 90 in a two week period somethings wrong.  They want to tell me whats wrong with me, they are not us. So if they cant set and listen to what I have to say and yes make a plan or be willing to try anything at this point, Walk out. I dont care if it take 100 drs in a year. Dont stop hope. We are fighters and looking out to someone to talk to, with no life and caged in your home you feel as if youd be better off gone, so no one has to deal with this crap anymore, easier for everyone. But no we stand and fight so others can be healed as well. Go to the news media start there to see what happens.

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By rezbeader— Last Modified: 07/30/11, First Published: 11/20/08