SEVERE Transient joint pain

You mentioned that your white blood count is always elevated. Have you been tested for leukemia and other related disorders? Did your body experience a trauma right before these symptoms started? I know it's difficult to accept a multiple diagnosis and then be told that you don't fit the profile of such a patient. I also experience transient joint pain yet mine is always blamed on Fibromyalgia or Chronic Fatigue Immune Deficiency Syndrome or Major Depressive Disorder. I would contact the head of the department of Rheumatology at the nearest teaching hospital and schedule an appointment to see him/her. I hope the doctors are able to reach a diagnosis instead of "guessing".  

I also have pain in joints that moves from one place to another.  I am mid 60's and also test positive for Lupus without other symptoms.  I also tested positive for Gout with high blood levels of uric acid.  Given Allpurinol, seemed to  help for a couple of months then the pain and swelling all over continued.  Have been told it is a combo of Fibro, Autoimmunine, and Metobollic.  On pain meds, ho ho.  Our symptoms are almost exactly the same except for the pain level that I have been able to tolerate thus far with my meds on some days.  I do pray you find an answer soon and please post it.  I will do the same if I am so blessed.  My prayers are with you.

Hi, I have had RA since I was 32 years old. I am 53 and am at the moment going through a major flare up. Many of your symptoms are the same as mine, It picks on certain joints, at the moment its hands wrists and elbows.  I find volterol helps me on a once a fortnight basis, like you I have had to up my steroids to treble today, but hope to get them back down with 2 weeks. I have gained 3 stones in weight as a result. Does your test show RA at all? I am also half way through Retuximab for the third time. Although it helps, it takes along time to work, but I do get relief for a few months at a time. Shame it ended so abruptly. The pain is very intense, I so hope they will find a relief from pain for you, better still a cure, my best wishes. CJ

You sound like I was for about 4 years.  Same thing, doctor, allergist, internists.  The rash got so bad I went to the dermatologists, took culture and I did have a Mercer, but it was on my skin and said it was from scratching.  He prescribed Tetracycline, 2 times a day for 6 weeks.  My rash disappeared and I felt like a new person.  The aches were gone too.  I wondered if I had Lyme.  I have heard you can be tested many times before it shows up.  We summer in the Hamptons and here on Merritt Island there are lots of ticks.

I now keep a supply in and when the rash and aches return I take it until the rash clears.  Sometimes it is only for a week.  I would recommend trying this, still wondering what it is.

MY heart goes out to u and my prayers r with u that the doctors  will find out wut really is go n on. I have Lupus autoimmune connective tissue I truly understand i have ome the problems hair loss rashes achieness. Trust in GOD with all ur heart HE IS A HEALER!

I'm happy to know I'm not the only nut out there...I also tested positive for lupus but was told I don't have lupus. I do however have the severe joint pain that is very dibillitating and changes over a 12 hour period to all parts of my body usually striking 3-4 areas more severly. I have no releif from pain killers either! I'm still searching for help and an answer. My heart goes out to you good luck.