I am in my low 40's looking for answers to an illness I've had for the last 9 years. 5 specialists have narrowed it down to a combination of multiple autoimmune diseases (RA/Lupus/Mixed Connective Tissue), however, they have all said I don't fit those profiles either.
My symptoms have changed over the years but the consistent ones are: SEVERE transient joint pain (usually in only one joint at a time) and the pain feels more like the ligaments rather than the joint itself and like I have brusing in the tissues. It comes on very quickly (sometimes within 1/2 hr) into one joint that becomes so painful I cannot function. It will stay in one joint (say my right knee) for about 8-24 hours and then start to fade in that joint and head into another (shoulder, feet, hips, wrist).
The pain is so severe that I am bedridden most of the time with pain killers not working at all and just sobbing from the pain. When it is in my feet, it feels liek I'm walking on broken bones, if in my shoulder/elbow/wrist it feels like pinched nerves that are so swollen they won't fit thru my carpal tunnel and my fingers go numb without being able to move my fingers.
The Dr's have me take extra prednisone however, I have been up and down on different levels of prednisone now for many years and does not help the pain at all for several hours not to mention the major weight gain, etc.
Most of these occurances happen just before a change in pressure due to a storm.
Other symptoms are: very low energy level, very tired even after sleep, itchy rash/hives if I don't take Zyrtec, hair falling out, elevated white blood cell count all the time
I have been tested for Lymes at least 9-12 times all negative
tested for Lupus and does come back positive but have no other symptoms
I really need help, if anyone out there has experience with this. I cannot cope with this level of pain any longer.
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