Sacroiliitis

Ravin Community Member April 10, 2008
  • Sacroiliitis: The sacroiliac joints (SI joints) connect the spine to the pelvis and lower skeleton. These joints provide minimal movement; approximately two to four millimeters with weight bearing activity, unlike that of the hip or knee. The SI joint's main function is to provide shock absorption for the spine through a gliding-type motion. Sacroiliitis (inflammation of the SI joint) is commonly caused by degenerative arthritis, traumatic injury, motor vehicle accident, or blow to the buttock or pelvic region. Women are at risk for developing sacroiliitis from childbirth, as the female pelvis must stretch enough to allow birth. The ligaments around the joint, which connect one bone to another, may become inflamed or torn. Tearing of these ligaments can lead to too much motion in the joint, causing degenerative changes and chronic pain.

     

    Symptoms: In most cases of sacroiliitis, there is a diffuse pattern of back and pelvic pain that mimic each other. Patients with SI inflammation will generally complain of low back, buttock, and thigh pain. This pain typically becomes worse when sitting for any prolonged period of time.

       Sacroiliitis is commonly confused with sciatica. Many rheumatic diseases aren't limited to inflammation of the joints and extend to other organs of your body, such as your skin, blood vessels, eyes, heart, lungs, kidneys and nervous system.

    Signs and symptoms of sacroiliitis may include: Pain and stiffness in your lower back, thighs or buttocks, especially in the morning or when sitting for a long period of time. Pain affecting your hips and shoulders. Pain that worsens with walking because the swinging motion of your hips strains your sacroiliac joints. Inflammation in one or both of your eyes (uveitis or iritis). Psoriasis, an inflammatory skin condition. Bloody diarrhea. A low-grade fever that appears quickly.

    Causes: A wide range of factors may cause sacroiliitis:

    Heavy lifting, especially if you lift incorrectly or your muscles aren't prepared for the activity.

    A traumatic injury or sudden impact, such as a motor vehicle accident or a fall, affecting your spine, lower back, pelvis or buttocks.

    Spondyloarthropathies, which include ankylosing spondylitis, arthritis associated with psoriasis and others.

    Degenerative arthritis, also called osteoarthritis of the spine, causing degeneration of the sacroiliac joints, which can cause mild inflammation and pain.

    Pregnancy, because the pelvis must stretch to accommodate childbirth. Infection of the sacroiliac joint, sometimes caused by bacteria in food (brucellosis).

     

    Treatment: In most cases rest, anti-inflammatory medication, and physical therapy alleviate symptomology. Physical therapy should focus on mobilization (exercise and manipulation by the therapist), and stabilization (muscle strengthening).

    For pain relief, fluoroscopic guided injections into the joint may be warranted. The SI joint is located deep in the buttock region and is covered by thick muscle. The fluoroscope uses X-rays to help visualize the SI joint. This visualization allows the physician to see on screen the exact placement of the needle into the joint. Cortisone is typically injected into the joint to calm the inflammation and reduce pain.

  •  

    Procedures: Spinal Injections: Spinal injections are used to diagnose and treat spinal conditions. With most spinal injections, a local anesthetic (numbing medication) is injected into a specific area of the spine. The anesthetic is fast-acting, but the effects wear off within about two hours. A strong anti-inflammatory steroid medication, such as cortisone, is usually injected with the anesthetic to reduce inflammation in the affected area. Cortisone is long lasting and can be slow releasing in order to give the best possible benefit of pain relief. Cortisone may take several days to start working, but the effects may last for months.

         Several of the injections given at our office under fluoroscopic guidance include:

    Epidural Steroid Injections - Good for reducing radicular pain caused by nerve root irritation from herniated discs and spinal stenosis. The patient may require a series of several epidural injections over a period of a few weeks.

    Transforaminal Injections - Selective injection around a specific nerve root and into the spinal canal. This is more effective for nerve compression with sciatica.

    Facet Joint Injections - Used to localize and relieve low back and neck pain caused by arthritic facet joints.

    Sacroiliac Joint Injections - Used for pain from an inflamed sacroiliac joint.

    Disease-modifying antirheumatic drugs (DMARDs). These medications include sulfasalazine (Azulfidine) and methotrexate (Rheumatrex). Doctors prescribe DMARDs to limit joint damage. Taking these drugs at early stages in the development of a joint condition is especially important to slow the disease and save the joints and other tissues from permanent damage. Because many of these drugs act slowly - it may take weeks to months before you notice any benefit - DMARDs typically are used with an NSAID or a corticosteroid. While the NSAID or corticosteroid handles your immediate symptoms and limits inflammation, the DMARD modifies the disease itself.

        Tumor necrosis factor (TNF) inhibitors. These therapies, which include etanercept (Enbrel) and infliximab (Remicade), block a cell protein (cytokine) that acts as an inflammatory agent. Blocking the TNF cytokine may help reduce pain, stiffness and tender or swollen joints.

        Physical therapy Treatment may also involve physical therapy and rest to help manage pain and stiffness. Your doctor or physical therapist can help you learn range-of-motion and stretching exercises to maintain joint flexibility, and strengthening exercises to give your muscles additional stability.

    Complications: Delayed treatment of sacroiliitis - either because of an incorrect diagnosis or because you've put off going to your doctor - can cause serious harm to your sacroiliac joints. Sacroiliitis may be part of a larger inflammatory arthritis condition known as ankylosing spondylitis. Ankylosing spondylitis is one of many forms of inflammatory arthritis, the most common of which is rheumatoid arthritis.

    Complications of ankylosing spondylitis can be very serious, including difficulty breathing, spine deformities, lung infections and heart problems.

87 Comments
  • Anonymous
    nikki
    Mar. 18, 2014

    i been going to arthrist doctor for monthsjust keeps saying it my back just stiff  but my pain getting worse cant walk down street without really bad pain in spinebum hipsand bouth legs they just keep giving my exercise its not helping getting more and more pain

    • rawle1171
      Jul. 12, 2014

      Last week I was diagnosed with this issue after over a decade of being told much the same as you were, they kept wanting me to drug up but after two weeks of drugs there was never a change so I stopped the drugs. Some of these doctors are simply shams, finally I have one who is going the extra mile and I have a more accurate diagnosis.

  • aimsie2
    Feb. 07, 2014

    OMG I was diagnosed with sacroilitis in my left side a few months ago from a bone scan.  the pain went after diagnosis ? strange.  but after a month of pain free I started to get pain in my low right back which they kept telling me was muslce spasms.  I kept going back and the orphapedic has said it could possibly be the sacroilitis which has...

    RHMLucky777

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    OMG I was diagnosed with sacroilitis in my left side a few months ago from a bone scan.  the pain went after diagnosis ? strange.  but after a month of pain free I started to get pain in my low right back which they kept telling me was muslce spasms.  I kept going back and the orphapedic has said it could possibly be the sacroilitis which has now spread the the right side.

    I am not in constant pain although my sacrum is tender and my buttock and hip is tender. my illac crest hurts to touch.  my blood work came back normal even the esr.

    I get spasms on and off in my right low back next to my spine and its like a shock pain shooting downwards around the illac crest.

    I have tried acupuncture which takes the intensity of the pain away.

    the spasms are not worsening they just come on through the day it can happen anytime and it lasts for an hour or so.

    its horrible because I just want to be able to go out and do normal things but if i walk to far the spasms and aching starts.

    the actual joint isnt the main problem its the muscles surounding it.

    does anyone else have this problem?????? please let me know because I am so worried its something terrible.

     

  • Anonymous
    jo
    Jan. 29, 2014

    Please help I am in so much pain I am awake every night I am so down I have been to my doctor and then I went to hospital and was told I need facet joint injections and also epidural injection I am on gabapentin 600mg 3 times a day and also dihydrocodeine I take 8 of them a day and also nortriptyline at night please some one help I have never know such awful...

    RHMLucky777

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    Please help I am in so much pain I am awake every night I am so down I have been to my doctor and then I went to hospital and was told I need facet joint injections and also epidural injection I am on gabapentin 600mg 3 times a day and also dihydrocodeine I take 8 of them a day and also nortriptyline at night please some one help I have never know such awful pain I just want to sleep 

    • Anonymous
      danny
      Feb. 12, 2014

      hi yeah i have sympathy for you and anyone else who has sacroilitis as it is surely one of the most painful conditions a person can get. i got diagnosed with it yesterday. with me i am currently having a severe flare up of ulcerative colitis (8 weeks and counting). i also got mild sciatica all throughout this 8 weeks but nothing too bad. i could feel it was...

      RHMLucky777

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      hi yeah i have sympathy for you and anyone else who has sacroilitis as it is surely one of the most painful conditions a person can get. i got diagnosed with it yesterday. with me i am currently having a severe flare up of ulcerative colitis (8 weeks and counting). i also got mild sciatica all throughout this 8 weeks but nothing too bad. i could feel it was there but had none of the sharp pain when the nerve gets trapped. that all changed 5 days ago; excruciating pain in my right buttock/lower back which then a day later advanced to both sides! this resulted in what you and others know all about. hobbling about at snails speed, grabbing on to walls, bannisters, chairs etc for balance. 2 days ago i just stayed in bed all day but i found that this made it worse as it stiffened up, so the next day i made the decision to be active around the house even though it was tough going. this helped and the pain went away from my right side (which is still ok now) but the pain then trebled in my left side. my girlfriend then was curious (to the point of thinking im over reacting the condition) as to why earlier i could move around easier but then just an hour later im stuck on the stairs for 10 minutes unable to move. worried about work also as im a postman. got signed off for 2 weeks but at the moment the thought of doing a delivery again seems impossible. for weeks ive been concerned about going to the toilet 15 times a day but my colitis at the mo is miles behind sacroilitis in terms of concern. was given co codemol for pain relief but they did nothing so i stopped taking them. also was given gabotrepin (?) the tablet you're on. have you had any side effects from this? havent taken any yet. anyway sorry my reply is hardly a positive one :-) i suppose there is some comfort in that there are other people in the world that are experiencing the same as you (not that i want anyone else to have it). all the best with dealing with it and try and stay as positive as you can.  

  • taxpayinghorse1
    Jan. 16, 2014

    I have been disnosed with sacroiliitis.  I have pain in my lower back, all though my hips and pelvic region, that runs down my leg.  I also have spams too. Between the IBS and IC that I have, not a day goes by that I don't want to eat my 9mm.  The IBS is like living with food poison every day and the I.C is like living with the worse bladder...

    RHMLucky777

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    I have been disnosed with sacroiliitis.  I have pain in my lower back, all though my hips and pelvic region, that runs down my leg.  I also have spams too. Between the IBS and IC that I have, not a day goes by that I don't want to eat my 9mm.  The IBS is like living with food poison every day and the I.C is like living with the worse bladder spams you can image. 

    With the sacroiliitis added to this the pain I have is unbearable.  How much worse can the sacroiliitis get?  Will I lose range of motion when I need to walk and go up and down steps?  I am so worried I won't be able to do my job.  If I don't work I don't eat. What are the symptoms of the sacroiliitis when it gets worse?

    • Ravin
      Jan. 18, 2014

      Have you been to a rheumatologist or pain specialist to help with the pain.Exersice helps, strengthening the back muscles. Not an easy task when one lives in pain daily. Starting out slowly & increasing may help some.

    • taxpayinghorse1
      Jan. 18, 2014

      I have tried all that and more.  My main question is how much worse will this get?  Already I have trouble getting out of my chair, walking and have muscle spasms. 

    • taxpayinghorse1
      Jan. 18, 2014

      Can you tell me what to expect...what symptoms will I have when it gets worse? 

    • Anonymous
      Dontgiveup
      Jan. 19, 2014
      Hi I really feel for you. Like you I have ic and a very lazy bowel I had a spinal fusion l5/s1 and disceptomy (excuse poor spelling) sept 2012 and 2 weeks after had infection after this had constant buttock pain and what felt like hip tightening. Surgeon won't have it that I think I have sacrilitus or sacral joint problems and in just 16 short months I can...
      RHMLucky777
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      Hi I really feel for you. Like you I have ic and a very lazy bowel I had a spinal fusion l5/s1 and disceptomy (excuse poor spelling) sept 2012 and 2 weeks after had infection after this had constant buttock pain and what felt like hip tightening. Surgeon won't have it that I think I have sacrilitus or sacral joint problems and in just 16 short months I can only walk a few steps on crutches my buttocks are so painful when I sit on a normal chair I feel I have a pole up my backside running into my spine and the pain is unbearable it runs into my pelvis and both hips down the backs of both thighs and mustn't forget the groin pain When I try to walk as my legs are fine my entire pelvic area tightens so quick my hips seize until I can't step at all. By then I'm a blubbering wreck. This happens several times a day. I'm 44 and have been written off. Just had a second opinion from 60+ Spinal surgeon who said "according to the X-ray's last June everything looks good"!!! When I ask questions as a mere mortal apparently my answer is pain management!!! This was Friday 17th jan 2014 I was told this. My answer has come close many times to suicide but I refuse to go without a fight. Even though I have carers every morning to help me wash myself as I can no longer twist due fusion and due to pain can't wipe my own backside. Due to recent discovery the sacral joints and sacrum does more than many surgeons will agree as it's within 15 years this discovery but I'm sure there are many people wrongly or poorly diagnosed and like myself back surgery has failed to help but has increased pain to a level that's hard to live with. My next step is writing to training hospitals/universities. If I had money I could pay myself or if we had similar insurance system as USA I could choose my own doctors who would perform simple tests to get a correct diagnosis. But until I get the right consultant I will be a drain on sickness benefits as I'm so disabled now, housing benefit as I'm unable to leave my house to work and government finance for carers daily. Some of this will happen to you if you don't keep fighting for better treatment/help. Sorry for the long post but it is very relevant this all happened in 16 months!!!! Take care and keep on keeping on xx
    • taxpayinghorse1
      Jan. 20, 2014

      Thank you a million times for your reply.  It was not too long at all.  I read every word.  It made me so sad for you.  Here I am whining about myself and you are in far worse shape then I am.  I try to be couragous in dealing with these health issues but I have my weak moments.  Between the IBS and I.C and back pain there are...

      RHMLucky777

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      Thank you a million times for your reply.  It was not too long at all.  I read every word.  It made me so sad for you.  Here I am whining about myself and you are in far worse shape then I am.  I try to be couragous in dealing with these health issues but I have my weak moments.  Between the IBS and I.C and back pain there are days it is all I can do to keep going on.  You are an amazing woman.  You are fighting like a tiger.  My main problem is that I must work.  I have been in "survival mode" since September when the I.C. hit me.  I have been on antibotics since then.  Because of the IBS I end up with e-coli based bladder infections.  Often I can't make it to the bathroom in time and when the stool comes in contact with my ureathea it ends up causing the UTI's.  I do my best to clean up as soon as I can but when I am at work I am not able to clean up very quickly and to top it off there is only cold water in the bathroom I have to use.  With winter here, the water is especially cold.   I want to retire this October but if I do I won't make enough to survive.  The thought of eating dog food doesn't inspire me to retire. 

      Thank you so much again for your reply.  I know I will read it many times.  It has given me something to draw strength from.  I hope I hear from you again. 

    • taxpayinghorse1
      Jan. 20, 2014

      Ps... I am having one of the same problems you described.  I get where I can't move my foot forward, I can't place one foot in front of the other without a lot of pain.  The pain is pretty bad, with pain going across my lower back and my entire pelvic region also is full of pain, I guess that is where the hips join the legs is where the pain it..it...

      RHMLucky777

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      Ps... I am having one of the same problems you described.  I get where I can't move my foot forward, I can't place one foot in front of the other without a lot of pain.  The pain is pretty bad, with pain going across my lower back and my entire pelvic region also is full of pain, I guess that is where the hips join the legs is where the pain it..it is hard to describe exactly. 

  • Anonymous
    classik12002
    Jun. 27, 2013

    After receiving a staph infection following a back fusion to my L4,L5, and S1, I developed Bilateral Sacroiliitis. I have had to give up my job, hunting, golf, and hiking, all things I dearly loved. If not for my faith in Jesus Christ, and reading the Word daily, (because I have a lot more time to do so), I would be having a major pity party. I do however so...

    RHMLucky777

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    After receiving a staph infection following a back fusion to my L4,L5, and S1, I developed Bilateral Sacroiliitis. I have had to give up my job, hunting, golf, and hiking, all things I dearly loved. If not for my faith in Jesus Christ, and reading the Word daily, (because I have a lot more time to do so), I would be having a major pity party. I do however so look forward to receiving a RFA, radio frequency ablation, twice a year. That injection brings back the ability to take my grandchildren out in the boat and enjoy the fruits of Gods creations. It also allows me to do a little fishing....... It is short lived however, usually 2-3 months, and then it is back to sitting in my recliner with little or not sleep until the next series of shots 6 months after the 1st one. Just knowing that one day I will be in a new body and standing before my Heavenly Father is the best medicine anyone could take. In the end we win...........God Bless......

  • Ravin
    May. 20, 2013

    So I went to the Arthritis Center on the 29th. He tells me it's most likely Fibromyalgia. Funny thing to me is he didn't search for all the tender points, & I dont have the wide spread pain of FM. I have allot of BACK, HIP, PELVIC pain. They Blood work up & x-rays. Said x-rays are clear, Blood work showed an increase in inflammation. Put me on Savella....

    RHMLucky777

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    So I went to the Arthritis Center on the 29th. He tells me it's most likely Fibromyalgia. Funny thing to me is he didn't search for all the tender points, & I dont have the wide spread pain of FM. I have allot of BACK, HIP, PELVIC pain. They Blood work up & x-rays. Said x-rays are clear, Blood work showed an increase in inflammation. Put me on Savella. I go back in July for another blood work up to find out how the inflammation is & what is causing it.

  • Ravin
    Apr. 12, 2013

    I'm going to a Rheumatologist Center on the 29th. Hopeful they will figure what exactly is going on with me.  Perhaps do blood tests, scans & whatever else needs done. I'm sick of the Pain medication's that only mask things & cause more problems than needed. The Pain Clinic only deals in Pain & not the true issue's. I found if your fighting...

    RHMLucky777

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    I'm going to a Rheumatologist Center on the 29th. Hopeful they will figure what exactly is going on with me.  Perhaps do blood tests, scans & whatever else needs done. I'm sick of the Pain medication's that only mask things & cause more problems than needed. The Pain Clinic only deals in Pain & not the true issue's. I found if your fighting for SSI or SSDI it's better to see a Rheumatologist then a regular CP, Pain Specialist or any other doctor's.

    • Anonymous
      Geri
      Apr. 12, 2013

      I am grateful for this group, though posts are few and far between. I have found nothing anywhere else which honestly discusses any of the real problems and disabilities of this disorder, though none of the posts exactly describe what I have suffered. Good luck Ravin. I may not post again, having problems posting, does not recognize the same email address I...

      RHMLucky777

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      I am grateful for this group, though posts are few and far between. I have found nothing anywhere else which honestly discusses any of the real problems and disabilities of this disorder, though none of the posts exactly describe what I have suffered. Good luck Ravin. I may not post again, having problems posting, does not recognize the same email address I receive email from this site, and can't log in with Facebook anymore.

    • Anonymous
      Geri
      Apr. 12, 2013

      I am grateful for this group, though posts are few and far between. I have found nothing anywhere else which honestly discusses any of the real problems and disabilities of this disorder, though none of the posts exactly describe what I have suffered. Good luck Ravin. I may not post again, having problems posting, does not recognize the same email address I...

      RHMLucky777

      Read More

      I am grateful for this group, though posts are few and far between. I have found nothing anywhere else which honestly discusses any of the real problems and disabilities of this disorder, though none of the posts exactly describe what I have suffered. Good luck Ravin. I may not post again, having problems posting, does not recognize the same email address I receive email from this site, and can't log in with Facebook anymore.

    • Ravin
      Apr. 13, 2013

      I know for one I've suffered a great deal with this & Spondylosis for at least 13 years now. In the beginning it was twinges of pain, burning sensations. Went on to Stabbing & Flaring. It got to a point that when standing for periods of time my entire back hurt, hips excurtiating pain, pelvis & pelvic bones felt as though they'd drop out of me at...

      RHMLucky777

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      I know for one I've suffered a great deal with this & Spondylosis for at least 13 years now. In the beginning it was twinges of pain, burning sensations. Went on to Stabbing & Flaring. It got to a point that when standing for periods of time my entire back hurt, hips excurtiating pain, pelvis & pelvic bones felt as though they'd drop out of me at any moment. I've been on a wide variety of medication's & treatments throught the yrs. they have done nothing but mask the pain. I have hope that by going to a rheumatologist that they will be able to better direct me then this pain clinic i've been going to. I've been disabled many yrs & am fighting for my rights to get ssdi. This same clinic said i had sacrolitis & Lumbar Spondylosis, says I have Fibromyalgia, pirifomus syndrome & when asked last month, what is my actual diganosis, he tells me spinal arthritis. So I told my pcp to refer me to a rheumatologist. Frankly I'm done with a pain specialist that wants to see ya 5 minutes & give you more narcotics. Yell The 29th. can't come soon enough. Smile

    • bipper3000
      Jan. 30, 2014

      you are right ,i have all that and more see a rhum the last 2yr he diag (ankylosing spondylitits) he also fills out a rfc form that describes your limitations you will need that to  help with proving your case  your rhum has too be on boardd . i am still wwwaittn

  • Anonymous
    morales
    Jan. 22, 2013

    well seen like i have the same situation of every one here yeap they put some kind of injection on my spine and lower back areas and doesnt help that much i would said that hurt more now than before i cant even moved sometimes and no matter what meds i take nothing help with my pain.

     

  • Anonymous
    morales
    Jan. 22, 2013

    well seen like i have the same situation of every one here yeap they put some kind of injection on my spine and lower back areas and doesnt help that much i would said that hurt more now than before i cant even moved sometimes and no matter what meds i take nothing help with my pain.

     

  • Laura
    Jan. 12, 2013

    I read the article and then read the responses and realize (already knew though) that there is many people in this chronic pain state from a sacroiliac joint(s).  I am for alot of you all a newbie - I have been dealing with this for 2 years as of 2/2/11.  Yipee!  I hate my life now but love life.  I was rear-ended at a red light going to...

    RHMLucky777

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    I read the article and then read the responses and realize (already knew though) that there is many people in this chronic pain state from a sacroiliac joint(s).  I am for alot of you all a newbie - I have been dealing with this for 2 years as of 2/2/11.  Yipee!  I hate my life now but love life.  I was rear-ended at a red light going to work and haven't been the same since then.  It took 15 months to finally get an Arthrogram that for the first time took my pain away on my left sacroiliac joint that lasted about one month.  I was still grateful.  The second one was the same.  The 3rd & 4th now the stuff leaks out of the joint.  I had an Xray done after the 2nd one and already a bone spur growing on the joint itself.

     

    THIS IS SOMETHING I WROTE ON A PAIN WEBSITE LAST NIGHT BUT ONLY 300 WORDS WERE ALLOWED AND MY ENDED UP BEING 720.  SO, I REALLY NEEDED TO SPEAK OUT TO PEOPLE LIKE ME, SO PLEASE READ, LISTEN TO MY STORY AND OFFER ENCOURAGEMENT OR JUST ACCEPTANCE.  SOME THINGS MAY BE REINTERATED.  I APOLOGIZE AHEAD OF TIME FOR THAT.  THANK YOU ALL.  

    GOD BLESS US ALL FOR A BETTER LIFE.  

     

    Originally went to my family doctor, then chiropractor, then neurosurgeon, then orthopedic and finally a sacroiliac specialist - 15 months later.  He is now retired from surgery.  Even though I only get pain relief for about 2 to 3 weeks, it is like having the opportunity to see the world the way I used to - not being in pain.  

    I suffered from a dura puncture that caused a spinal headache almost 1.5 years ago when had 4-level spinal laser ablation along with 8 epidurals.  I thought at one point during the Spinal Headache episode that I was going to die.  I threw up profusely 3 times & fell to the floor, all alone and thought this was it.  My spinal headache was not medical addressed and for about 5 days, I was in pain directly in my head to about a 15.  There was so much pressure in my head that my ears wanted to explode outwards.  

    Miraculously, my dura healed itself.  Overall now, I have been told that I now need a left Sacroiliac I-fusion plus a 2-level spinal fusion (L4-S1) especially for the added stress from the sacroiliac fusion.  Won't do, don't want to EVER go back to Spinal Headache.  No spinal procedures.  Don't know what to do.

    I take 4 Percocet (5/325) &  4 Somas (350) per day faithfully since laser ablation.  I often wonder if I now have Arachnoiditis.  I definitely have PTSD from Spinal Headache - No spinal procedures ever! 

    Seems like no one appreciates my endurance and experiences (mostly all horrible) from being rear-ended while at a red light going to work.  Love life, but hate mine with the pain but appreciate my opportunity to be alive.  I wish with all my heart that I could get some real help, time, and understanding.  Not addicted to medications but after 4 hours need to take another dose.  Like clock work. 

    I haven't settled in litigation, everyone is ignorant to a SI Joint injury and looks at the MRI that doesn't even show a Sacroiliac area.  They just keep saying about pre-existing minor conditions.  

    It took 15 months to get my injury properly diagnosed when I finally went to a Doctor almost 200 miles from my house.  Imagine this:  Your right foot hurts and they inject the left foot.  Now, both feet hurt.  That is what I went through for the first 15 months. 

    I have also had a baseball & then, a golf ball size hematoma from Caudal Epidurals. 

    I want to settle my case, have less stress, BS, aggravation, and be able to have the time to work harder for myself/well-being and overcome the continuous various degrees of absolute pulsing pain that can start up at any given moment anywhere from a 2 to 9.5.  I call 10 hospital and have felt that way many times but don't go.  I just cry.

    I also now have upgraded to Trochanteric bursitis and I had 2 recent injections in both hips.  When I get pain relief from my hips and Sacroiliac area, I ALSO interestingly enough "my Neck" feels better too.  I wish I could get that relief in 6 month intervals rather than 2-3 weeks.  

    What do I do?  I hate everything but still portray a strong (most of the time) positive attitude towards anyone that I deal with - personal & professional.  Currently, I think that my first course of action is to continue the way that I have been, settle out my car accident case - past, current & future. 

    I want to get my personal life back and then, UTOPIA would be to take one month off from work and completely concentrate on all of the positive things that I want to do to be able to turn around this issue of extreme chronic pain. Believe it or not, I still have faith.  I accept that I am dealing with exaberated conditions both physical and mental.  No one will ever do any procedure in my spinal column.  I know I should get the SI fusion but I am too afraid to become worse especially considering my weakened spinal column.  

    Ironically I know where I am at now and cannot take the chance of another spinal headache, infection, failed back syndrome or I don't think that I can cope if I got any worse.  And yes, I am completely aware of the negative long-term effects from various pain management injections and ablations and/or blocks.  It's already been through so much and I keep telling people that most would not have been able to sustain what I have gone through.  But overall, I have no help. 

    What do I do to get my hard-working personal life back?  I really need a firm helping hand.  I know that I can do it, I have always been independent and now this and it is all snowballing.  

    I need help!  I want help.  Any IDEAS? 

    Thank you for at least listening.  And the best to everyone else.         

     

     

     

    • Mariepi
      Jan. 12, 2013

      Hi.

      I don't know what to tell you .I read your plea and feel really sorry for you. I had and still have  sacroiliitis at times caused by a fall that was not well healed over 40 years ago  but never had it as hard as you do.

      I hope that for you being able to put everything in writing helps a bit. I don't know if you will have many replies...

      RHMLucky777

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      Hi.

      I don't know what to tell you .I read your plea and feel really sorry for you. I had and still have  sacroiliitis at times caused by a fall that was not well healed over 40 years ago  but never had it as hard as you do.

      I hope that for you being able to put everything in writing helps a bit. I don't know if you will have many replies for this one but I wish you well.

       

    • Laura
      Jan. 13, 2013

      Thank you.  Like I said, the acknowledgment means alot to me.  I appreciate you taking the time to respond.  Not alot of people understand what happens to your entire body from this type of instability.  Maybe someone else from a professional standpoint can possibly direct me with some ideas.  But, you reading my thoughts & responding,...

      RHMLucky777

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      Thank you.  Like I said, the acknowledgment means alot to me.  I appreciate you taking the time to respond.  Not alot of people understand what happens to your entire body from this type of instability.  Maybe someone else from a professional standpoint can possibly direct me with some ideas.  But, you reading my thoughts & responding, made my day....Thank you again.  

         

    • Geri
      Jan. 14, 2013

      SI Joints are completely ignored by everyone, yet they are the largest joints in the human body and support large amount of weight. I want to know why SI joint disabilities are ignored by everyone. I have read reports stating there is no real way to diagnose SI Joint disabilitis, so it is denied to exist and ignored. In my case, they have no treatment for it...

      RHMLucky777

      Read More

      SI Joints are completely ignored by everyone, yet they are the largest joints in the human body and support large amount of weight. I want to know why SI joint disabilities are ignored by everyone. I have read reports stating there is no real way to diagnose SI Joint disabilitis, so it is denied to exist and ignored. In my case, they have no treatment for it either. I have seen reports from patients that SI Joint fusions had failed and made problems much worse. It is not common sense to me to fuse the SI jpints.

    • Laura
      Jan. 14, 2013
      Hey jeri. I hope you are hanging in. I just got the news today that my 2nd attorney is not willing to handle my case anymore. He was really nice along with the office staff. I will miss that nice security. I am fine though because all of the issues that I have endured from this accident needs to be acknowledged & they unfortunately didnt understand fully. Not...
      RHMLucky777
      Read More
      Hey jeri. I hope you are hanging in. I just got the news today that my 2nd attorney is not willing to handle my case anymore. He was really nice along with the office staff. I will miss that nice security. I am fine though because all of the issues that I have endured from this accident needs to be acknowledged & they unfortunately didnt understand fully. Not a clear cut issue. Try full body massage. Not with exercises. Just deep tissue, if you can afford at least once a week. My massage therapist is excellent. Did you ever get a sacroiliac injection. I have gotten 4 now. I also had hip injections. I have sinus/ flu and besides being on antibiotic, I am also takin steriod - oral. I was kind of happy to get them for my sinus because in the past I notice they help with the pain. Ad sure enough, 2 days of better alleviation. I also joined the YMCA. Haven't went but they have an extremely warm indoor pool. I gotta go but too much other stuff going on. Just beware of spinal injections. Always read the waiver sheet beforehand & educated yourself fully what risks are included. Someday I hope to buy an inversion table. I also have my own tens unit at my house. It feels like electrical massage/stimulation. I believe already that I have a new attorney. I'll know more in about 2 weeks. Fingers crossed again. My anniversary is coming up. Two years as of 2/2/11. But I have said 2013 will be better than the last 2 years. Figure aim you new friend. Write whenever you need to. I understand. :))
    • Laura
      Jan. 14, 2013
      A well as maripei.
    • Geri
      Jan. 17, 2013

      I do have a Teeter Hang ups inversion table. It is no magic or cure, but I have gotten better results from it than anything else. Results are temporary and do not always get any improvement. It seems to depend on how severe the pain is from other movement I have done. If pain is really bad, I get less result, or no good result. However, as I said, it is the...

      RHMLucky777

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      I do have a Teeter Hang ups inversion table. It is no magic or cure, but I have gotten better results from it than anything else. Results are temporary and do not always get any improvement. It seems to depend on how severe the pain is from other movement I have done. If pain is really bad, I get less result, or no good result. However, as I said, it is the only thing I have ever gotten any good results from, for that I am grateful, for something which just gives some relief, part of the time.

    • Lois A
      Apr. 25, 2014

      If I said "I know how you feel" it would not be an understatement.

       

      I suffered from spinal headache for most of my life, and finally came to understand that other people did not feel the continuous pain and pounding in their heads that I had come to think was "normal".

       

      Sneezing, coughing, straining in any way, and the pressure and pain in my...

      RHMLucky777

      Read More

      If I said "I know how you feel" it would not be an understatement.

       

      I suffered from spinal headache for most of my life, and finally came to understand that other people did not feel the continuous pain and pounding in their heads that I had come to think was "normal".

       

      Sneezing, coughing, straining in any way, and the pressure and pain in my head would drop me to my knees. I (not to be gross) would keep a pillow in the bathroom to cradle my head if I had to push while having a bowel movement. Coughing was excruciating.

       

      I don't have a spleen, and can not count how many times I have had bronchitis, pneumonia and other stuff that causes uncontrolled coughing.I had whooping cough as a kid, and between the coughing, gasping for air, and the spinal headache, my vision would get all static-y and I would pass out. They gave me cough syrup.

       

      Many doctors. Many years. I was told I was dehydrated. That I had goofy sinuses. That I was making it up. That I was looking for attention - that was a good one.

       

      While living in Germany, I had a spinal tap that failed. Ended up hospitalized with the spinal headache and they did a blood patch, which worked momentarily. I tried at that time to tell the doctors that I had pain like that all the time.

       

      They said I was not understanding the difference between a regular headache and a spinal headache.

       

      If I did not have my two little girls, I would have given up.

       

      After 50 years of this, I finally had a doctor listen to what I was saying. They did some kind of back-to-back-to-back MRI, where I was inside of that tube for a total of three hours. Came back and said I had a Chiari Malformation - probably since birth.

       

      Duh.

       

      The Chiari Malformation is where part of your brainstem has extended or herniated into your neck, acting like a stopper. Spinal fluid moves into your skull when you stress your system (cough, sneeze, strain), then can not move back down because the pathway is blocked. The fluid has to seep back down past the malformation. It takes a while, while you writhe on the floor in pain.

       

      A simplified explanation, but very true for me.

       

      FINALLY, after being diagnosed, I found out that the world expert on this problem was practicing out of a city very close to me. Dr. Lawrence Foody in Grand Rapids, Michigan. He normally operates on children with this problem. He did my Chiari surgery - which is called Primary Fossia Decompression - where they sort of tuck your brain back where it is supposed to go, patch the opening and staple you back up again. A nickname for patients who have this procedure is "zipperhead".

       

      I was terrified of the surgery, but could not live with the pain, so I went ahead with it.

       

      I have not had a spinal headache since the surgery. NOT ONE SINGLE TIME.

       

      NOW I have Sacroiliitis. Trying to find relief from the pain. I've been trying to get a proper diagnosis since last July. Doctors came back with Sacroiliitis just this month and sent me for my first pain injection. It worked for a couple of days while the numbing agent was still inplace, but the steriods have not done anything as of yet.

       

      Guess I get to start all over again.

       

      The point of this post is - have they checked you for Chiari? The surgery DID work for me.

       

      Peace be with you, and I hope you get your issues with pain resolved.

       


       


  • Geri
    Sep. 28, 2012

    When my SI joints have become inflammed from work, activity, none of it worked, not the pain pills, not the anti inflammatories, not the muscle relaxers, could not stand up, had to lay flat. They could not give me enough of the steroid injections to get me on my feet. I have personally seen plenty of reason I do not believe any of them when they say they cannot...

    RHMLucky777

    Read More

    When my SI joints have become inflammed from work, activity, none of it worked, not the pain pills, not the anti inflammatories, not the muscle relaxers, could not stand up, had to lay flat. They could not give me enough of the steroid injections to get me on my feet. I have personally seen plenty of reason I do not believe any of them when they say they cannot diagnose this. I absolutely believe they can plainly see arthritis and see when it is inflammed in the SI joints, in x-rays, in MRI's. Only answer I can come to for all the claims they have no way to diagnose this, is, to keep all these people who suffer this and can't even stand up for 6 weeks at a time and more, is to keep us off disability!

  • Ivan
    Jun. 21, 2012

     

    Hi Folks

     

    My wife was diagnosed with degenerative Sacroiliitis aproxamatly 6 years ago. How ever it seems as though her symptoms (the pain) has gotten worse. I would like to firstly understand do you also suffer from extream Headaches that just dont goawayand how do you manage. What do you do and more importantly what can I do to assist if anything....

    RHMLucky777

    Read More

     

    Hi Folks

     

    My wife was diagnosed with degenerative Sacroiliitis aproxamatly 6 years ago. How ever it seems as though her symptoms (the pain) has gotten worse. I would like to firstly understand do you also suffer from extream Headaches that just dont goawayand how do you manage. What do you do and more importantly what can I do to assist if anything. From a spouse point sympathising and empathising just does not do it for me any more. there must be something else we can do.

    • amanda carrigan
      Sep. 26, 2012

      iv had sacroiliitis for 11 years now im only 27 but in severe pain in my front and back of the legs thigh whole spine sholders neck even my feet and bottom its very painfull been given steroid injection put on all anti inflamitories just been for a mri scan that showed i only had it in my left hand side but its on both basicaly at the moment im a humna guinny...

      RHMLucky777

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      iv had sacroiliitis for 11 years now im only 27 but in severe pain in my front and back of the legs thigh whole spine sholders neck even my feet and bottom its very painfull been given steroid injection put on all anti inflamitories just been for a mri scan that showed i only had it in my left hand side but its on both basicaly at the moment im a humna guinny pig as trying to find sumit for the pain is hard i also have a forign doctor witch is hard to understand but im not planning on the op because i would like to keep my legs for a bit longer even tho it hurts to walk would not have the op due to me having alergic reactions to muscle relaxants and anisfetic so its not an option for me from what iv read none of us deserve to be this way but we were given it for a reason so dont give up hope you might find something x

  • Anonymous
    LouiseG
    Mar. 09, 2012

    I started having pain in December 2010, just annoying then. By July the pain had increased so much that I couldn't sleep at night and started falling asleep, which made me fall down and drop things, at work. By August I couldn't walk, so I had to quit my job. I had physical therapy, which increased my mobility but my pain is still quite severe. After reading...

    RHMLucky777

    Read More

    I started having pain in December 2010, just annoying then. By July the pain had increased so much that I couldn't sleep at night and started falling asleep, which made me fall down and drop things, at work. By August I couldn't walk, so I had to quit my job. I had physical therapy, which increased my mobility but my pain is still quite severe. After reading these posts, it  seems that I will never have any relief from this pain, which gets worse daily! There really isn't any hope for this?!

     

    • Teresa
      Mar. 21, 2012

      Hi  everyone, just been reading all your comments  about Sacroilititis, i had never heard of it before, but in October i had a car crash, and my car was a right off.  I had various injuries,  but a few days i noticed  on my right bottom cheek, it was black and blue, i took no notice of it, but after a while i started to get...

      RHMLucky777

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      Hi  everyone, just been reading all your comments  about Sacroilititis, i had never heard of it before, but in October i had a car crash, and my car was a right off.  I had various injuries,  but a few days i noticed  on my right bottom cheek, it was black and blue, i took no notice of it, but after a while i started to get low back pain, i have had lower back problems for many years so took no notice, but it sudden started getting worse, pain in the lower  back, deep inside, i couldnt understand what was wrong. On a visit to the Doctor i was told  it was Sacroilititis, i'd never heard of it. so i came home and looked it up on the internet. I was shocked to see all the problems and the pain it caused. My pain started getting unbearable,  cant sit, stand, lie down, the pain is so bad, you cant get away from it. I am being referred to see a Neuro Surgeon.  I had to have my Doctor come out to see me, i felt so ill, cant sleep, cant eat, sick all the time. and she has prescribe Oramorph, i know its Morphine, but i am so desperate, i will try anything. It took about an hour to kick in, but i lay on my bed, and slowly i felt the pain,ease, for the first time in months i have been able to lie in one place for more than just a few minutes, my  legs went numb, and i was able to relax, it was wonderful,.   Now 4 days on, i have been able to sleep, walk about,do the odd job, and take a little more pride in myself. I dont know if anyone else has tried Oramorph, but its the only thing that has helped me, i dont like taking tablets, but needs must, i still dont know that much about it, how long it lasts,  will it ever go, does it go and come back, or have i got it for life, but at the moment, i feel good, and thats all i care about, hope all you other poor people  who suffer from this horrible pain, find comfort too.

    • Geri
      Mar. 22, 2012

      Teresa, Thanks for info on morphine. I have suffereed this disability for years, using ice, stretching exercises, and living in pain. Have been unwilling to be hooked on pain meds, especially something like morphiine, but it may come to accepting that.

  • cm
    cm
    Feb. 12, 2012

    I have recently been diagosed with possible SI as a result of an MRI scan. Over the last year have had great difficuilty sitting to such an extent that I either stand or lie down on the floor thus very restricted lifestyle. Physiotherapy/exercise sessions have not helped my condition. One of the activities that has helped with mobility is Tai Chi. I cant recommend...

    RHMLucky777

    Read More

    I have recently been diagosed with possible SI as a result of an MRI scan. Over the last year have had great difficuilty sitting to such an extent that I either stand or lie down on the floor thus very restricted lifestyle. Physiotherapy/exercise sessions have not helped my condition. One of the activities that has helped with mobility is Tai Chi. I cant recommend this too highly. It is one of the few things I am able to do without pain.

     

     

  • Anonymous
    John
    Aug. 16, 2011

    This article is very good description of what I have been suffering from for years. Many times the pain has made it very difficult and a few times impossible to walk.

    One thing that has also made a huge difference me, in addition to stretching and exercise (as mentioned) is not keeping my wallet in my back pocket!

    Best wishes,
    John Penn

  • Ryuan46
    Aug. 11, 2010

    From what I've read on the net, in various places, The Sacroilliac joint (si joint) can 'pop' out and go back in in the wrong place, much like flywheel in a car; it feels like my leg will fall off and only hanging on by skin, and a pain in my left buttock, behind the muscle, and in the front, behind my ovaries (on the spine/sacrum).  It...

    RHMLucky777

    Read More

    From what I've read on the net, in various places, The Sacroilliac joint (si joint) can 'pop' out and go back in in the wrong place, much like flywheel in a car; it feels like my leg will fall off and only hanging on by skin, and a pain in my left buttock, behind the muscle, and in the front, behind my ovaries (on the spine/sacrum).  It feels like a fresh bruise every day. The si joint is in the wrong place, creating the hips to be uneven, creating the spine to be crooked, causing pinching of the spinal nerves.

     

    I've done everything that you listed: saw MAPS in chaska and edin prairie, Minnesota for spinal injections and even Radiofrequency.  the best that came out of those appointments was the Gabapentin, 7 times a day, 300mg.  (Tells the nerves to stop talking to each other.) I still feel burning in my low back, from the nerves being pinched.  My si joint pain is constant.  The only Dr addressing that pain is the Osteopath I see, and he diagnosed me, when no one else could figure out why I had pain.  I decided to give my body to science because only 1 dr knew what was wrong with me.

     

     

    • cmblanc2
      Jan. 06, 2011

      For all of you - do you feel the pain throguhout your body, or just the lower half? I feel like my whole body is affected by this. I get regular muscle twitches in the bottom half my body and occasional ones in my shoulder and arm. My eyes are dry all the time and my skin has broken out, especially on my back which ever happened before the sacroiliitis....

      RHMLucky777

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      For all of you - do you feel the pain throguhout your body, or just the lower half? I feel like my whole body is affected by this. I get regular muscle twitches in the bottom half my body and occasional ones in my shoulder and arm. My eyes are dry all the time and my skin has broken out, especially on my back which ever happened before the sacroiliitis. I have convinced myself I have Multiple Sclerosis, which has given me extreme anxiety; however, my doctors have assured me that sacroiliitis can cause all of this. Do any of you get these symptoms? Also for the women with sacroiliitis - do you notice the pain is worse during ovulation and right before your period? Thank you everyone!

    • Anonymous
      Helena
      Mar. 03, 2011

      Hi, yes, sometimes my shoulders and neck are really painful, but it's usually my lower/mid back.  My doctor said it can affect all the muscles connected to this joint.  And yes, it will be worse around ovulation and mensturation because hormones get released that can affect it.  Just another thing we can enjoy about being a woman I guess. ...

      RHMLucky777

      Read More

      Hi, yes, sometimes my shoulders and neck are really painful, but it's usually my lower/mid back.  My doctor said it can affect all the muscles connected to this joint.  And yes, it will be worse around ovulation and mensturation because hormones get released that can affect it.  Just another thing we can enjoy about being a woman I guess. 

    • jen
      jen
      Mar. 22, 2011

      Hi there,

      I realize that this may not help everyone, but I just wanted to say that about 6 years ago my sacralilitis started bothering me. Unbeknown to me at the time I actually have a gene called HLA B27. People who cary this gene are prone to having genetic arthritis type conditions such as spodylitis, sacralilitis and rheumatoid arthritis. After having numerous...

      RHMLucky777

      Read More

      Hi there,

      I realize that this may not help everyone, but I just wanted to say that about 6 years ago my sacralilitis started bothering me. Unbeknown to me at the time I actually have a gene called HLA B27. People who cary this gene are prone to having genetic arthritis type conditions such as spodylitis, sacralilitis and rheumatoid arthritis. After having numerous cortisone shots, and taking every type of pain killer and anti inflammatory my arthritis doctor recommended trying a drug called sulfasalazine, which is commonly used to treat inflammatory disorders such as colitis. I just want to say that after having my blood test and being properly diagnosed I can now move around again normally and have minimal pain. For me, my experience was debilitating, I was unable to sleep and walk normally for over a year, this all began when I was 24 years old. If you haven't had a blood test maybe ask your doctor for one. Ask them about sulfasalazine, ask about having a cortisone shot when you commence these pills. All of this together has given me an Enormous amount of relief!!!! hope this helps.

    • Theresa
      Apr. 08, 2011

      You might want to go to a Rheumatologist....I have sacriolitis....but also have been diagnosed with Ankylosing spondylitis. AS can and will cause pain in the shoulders, hips, knees, neck etc. The breaking out on your back could be Psorisis which is also a symptom of AS.

    • Anonymous
      Abhaile
      Mar. 07, 2012
      So good to know somebody else suffers worse during ovulation and period. My left si joint is far worse and pain radiates up to my head and down to my toes on left side. I have 3 children under 5, normal life with them is impossible with this disease and intimacy with my husband is next to impossible most of the time :(
    • amanda carrigan
      Sep. 26, 2012

      im am commenting on the last part and first part of what you said as i feel it is very much worce when comeing on my period and can sometimes become unmanageable for me anyway and yes i have been proven to have it in only my left side but to i have dry eyes and pain all over my body

  • Anonymous
    Anonymous
    May. 28, 2010

    I had 2 laminectomies, '90 and '96. I've had alot of back pain since, but was able to play tennis and golf again and also walk almost every day. Last May I started having pain iin my left buttocks and have been to 5 doctors to figure it all out. (MRI, exrays, injections, etc)  Finally I was told that it was not my back, but my sacroilitiac joint. I am...

    RHMLucky777

    Read More

    I had 2 laminectomies, '90 and '96. I've had alot of back pain since, but was able to play tennis and golf again and also walk almost every day. Last May I started having pain iin my left buttocks and have been to 5 doctors to figure it all out. (MRI, exrays, injections, etc)  Finally I was told that it was not my back, but my sacroilitiac joint. I am now going to physical therapy 3 times a week and am trying acupunture. So far, no luck. The pain is killing me and and I am not able to do many of the things I love to do. My mood is not good and I'm really at my wit's end. Does anyone have any other suggestions? Thanks.

    • sandy dillard
      Jun. 21, 2012

      i wanted to share with you that I have had back troble since the 80's. Had a laminotomy and disectomy in the 90's. Neither worked and I continued with life...living on 4 Lortab a day and muscle relaxers. at the the time the only thing that really worked was walking which turned to race walking....If I stopped...it would start up again.  I live in Texas...

      RHMLucky777

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      i wanted to share with you that I have had back troble since the 80's. Had a laminotomy and disectomy in the 90's. Neither worked and I continued with life...living on 4 Lortab a day and muscle relaxers. at the the time the only thing that really worked was walking which turned to race walking....If I stopped...it would start up again.  I live in Texas and my Neurologist sent me to Pittsburgh, Dallas, and Houston for further opionions, All the same bulging discs  3,4,5, and s1. I still worked, raised children but lived in pain...did chripractor, massage therapy, physical therapy on a regular basis. Last year I tried accupuncture for the first time and was sobbing within 5 minutes.I was going through PT and they made me quit and said they suspected I had a Tarlov Nerve Cyst(sacral nerve cyst) which nothing can be done about and very few specialist will touch...at least they wouldn't at UTSW . In the interim time I had spent a lot of time in California and found a wonderful Internist there who I had seen for 2 years who also treated me for my back pain. In September, I made my quarterly trip to visit my daughter and DOC in Newport Beach, Cali which is where I stay... and the travel did me in....I went to the Doc and he did a ultrasound and found the Tarlov cyst....the more I cried and more he said he thought I had sacroliitis. I'd never heard of it....he put me on Medrol Dose pack and oxycotin and I had never  been on it before.....the pain never stopped.....Then he started the tests...full body scan, more ultra sound and x-day......I was there a month.....I had 13 injections in my back 2 at once for 4 days and a break and so on.....He started on the right side and as they set in the pain begin ease somewhat...I personally never felt the oxycotin did diddly squat.....finally he told me he was using the change in drugs for a reason the the test on meds was that pain medication really doesn't work on Sacroliitis but does on the Tarlov nerve cyst. I had 13 shots in all and in pretty much pain from them alone.....but where the cyst was controlled from the meds. He put me on another stronger med and It made me loopy, could't talk or make any sense...It's  9 months now, I feel its about time for another trip for California. I was told the injections could last 6-12 months and I am getting there.....the cyst....I take a strong pain med round the clock, seriously and with that I don't feel like leaving the earth anymore. I am a widow, don't work, but I ve set up a mini throne lol... for me and I am most comfortable but no  , stand , walk or lay down for any length of time ( orders from the DOC) He told me that my long years of race walking could'dve done it, many falls, and the possibility that when my husband was ill, I did so much lifting and care for him....which I am now a widow and not doing any physical activity.....I do miss the spring in my step and wonder if I will ever get it back. But I am 58 and may have already lost it.....I just wanted you to know there is hope and  I NEVER thought I would feel like this again. My Doc's combo's have worked and given me some sort of quality of life back since the 80's and it was the injections that did it,

    • Geri
      Jun. 21, 2012

      Thank you. Pain meds never helped my back pain.

       

  • Anonymous
    clare
    May. 08, 2010

    hi there, i gave birth 4 and half years ago, and docs said i split my pelvis. i was  in so nuch pain and literally couldnt put one foot infront of the other!! i had to "shimmy" my feet over the ptep to get into the shower and basically was just given a elastic brace and crutches, i improved a lot but never quite felt the same and went to various docs and...

    RHMLucky777

    Read More

    hi there, i gave birth 4 and half years ago, and docs said i split my pelvis. i was  in so nuch pain and literally couldnt put one foot infront of the other!! i had to "shimmy" my feet over the ptep to get into the shower and basically was just given a elastic brace and crutches, i improved a lot but never quite felt the same and went to various docs and was just perscribed dozens of painkillers. they wouldnt do an x ray on my pelvic region because it would damage my eggs.

     

    Last Sat night i was in work ( in a hotel) and i started getting these unbelievable pains in my hips, lower back and pubic bone region, iy was so bad i couldnt pinpoint where the pain was stemming from!! i was in agony to say the least!

     

    I went to different doc and told him the story and immediately he diagnosed me with sacroilitis. i have to go for mri scan asap, but im so worried about getting pregnant again as i would love another baby? im so scared and im only 29!!

    • painsurviver
      Mar. 11, 2013

      was diagnosed wth sacroiliitis in  after my first was boorn. the pain was so bad I lost feeling in my legs. I couldnt dress myself anymore. i would get up before my husband went to work he would put on my pants and socks for me because i couldnt lift my legs due to pain. he wwould them help me down stairs slowly get me on thhe couch and then bring down...

      RHMLucky777

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      was diagnosed wth sacroiliitis in  after my first was boorn. the pain was so bad I lost feeling in my legs. I couldnt dress myself anymore. i would get up before my husband went to work he would put on my pants and socks for me because i couldnt lift my legs due to pain. he wwould them help me down stairs slowly get me on thhe couch and then bring down our daughter. That is where we stayed until he came home from work. I would have the formula and bottles and diapers and every thing I needed right there so it wouldnt be to much to get around or me trying to carry her.  with much therapy and meds I recovered slowly. talk to doc abt husband wanted to know if we could try for a son. he didnt advise it since i could get better or worse. said better because the hormones of pregnancy are sometimes great for inflamitory diseases. well i was great no pain for all of my pregnancy. my doc and i decided on a csection and best choice ever. we had our baby boy. i didnt fall into the pain rutt right away. it was abt six months later. the pain hasnt not gotten as bad as before but i do have my days. i find that a good exercise program help. yes i know when u exercise u hurt well i know i did i wwould hurt for days after a five min workout but i persisted i know ccan do more than i ever did and i have very few and far inbetween bad days. 

    • painsurviver
      Mar. 11, 2013

      was diagnosed wth sacroiliitis in  after my first was boorn. the pain was so bad I lost feeling in my legs. I couldnt dress myself anymore. i would get up before my husband went to work he would put on my pants and socks for me because i couldnt lift my legs due to pain. he wwould them help me down stairs slowly get me on thhe couch and then bring down...

      RHMLucky777

      Read More

      was diagnosed wth sacroiliitis in  after my first was boorn. the pain was so bad I lost feeling in my legs. I couldnt dress myself anymore. i would get up before my husband went to work he would put on my pants and socks for me because i couldnt lift my legs due to pain. he wwould them help me down stairs slowly get me on thhe couch and then bring down our daughter. That is where we stayed until he came home from work. I would have the formula and bottles and diapers and every thing I needed right there so it wouldnt be to much to get around or me trying to carry her.  with much therapy and meds I recovered slowly. talk to doc abt husband wanted to know if we could try for a son. he didnt advise it since i could get better or worse. said better because the hormones of pregnancy are sometimes great for inflamitory diseases. well i was great no pain for all of my pregnancy. my doc and i decided on a csection and best choice ever. we had our baby boy. i didnt fall into the pain rutt right away. it was abt six months later. the pain hasnt not gotten as bad as before but i do have my days. i find that a good exercise program help. yes i know when u exercise u hurt well i know i did i wwould hurt for days after a five min workout but i persisted i know ccan do more than i ever did and i have very few and far inbetween bad days. 

    • Geri
      Mar. 13, 2013

      Apparently there is a wide range of severity and response to different therapy with this disability.

    • Ravin
      Apr. 13, 2013

      Geri, Apparently there is a certain range & degree's of suffering that goes on with this, in my opinion it also depends on gender, hormones, a person's tolerance to pain even.

    • Anonymous
      Geri
      Apr. 14, 2013

      I agree Ravin. It also appears to make a huge difference what happened to the SI joints that caused them to become disabled, with some of these disabilities becoming less severe over time, or responding better to some forms of treatment.

    • Anonymous
      Geri
      Apr. 14, 2013

      I still have many unanswered questions on the difference in severity of pain and symptoms, as well as response to treatments of this disability. As far as individual pain tolerance being considered a factor, I went through 2 labors and deliveries when I was young with zero of any medication for pain at my own request. I have also known other physical pain in...

      RHMLucky777

      Read More

      I still have many unanswered questions on the difference in severity of pain and symptoms, as well as response to treatments of this disability. As far as individual pain tolerance being considered a factor, I went through 2 labors and deliveries when I was young with zero of any medication for pain at my own request. I have also known other physical pain in my lifetime. Also, when I was in labor, I could still stand and walk. Not so when my SI joints become fully inflammed, cannot bear any body weight, walk at all without supporting myself on walls, furniture, can't possibly stand straight up until that inflammation goes down in those joints.

    • Geri
      Mar. 13, 2013

      Apparently there is a wide range of severity and response to different therapy with this disability.

    • Geri
      Mar. 13, 2013

      Apparently there is a wide range of severity and response to different therapy with this disability.

    • Geri
      Mar. 13, 2013

      Apparently there is a wide range of severity and response to different therapy with this disability.

    • Geri
      Mar. 13, 2013

      Apparently there is a wide range of severity and response to different therapy with this disability.

    • Geri
      Mar. 13, 2013

      I have no idea why my above comment posted multiple times. I only posted it once.

  • WHY ME
    May. 06, 2010

    I tired of my husband not believing that I am in the worst pain in my life. I mean I know that as his wife I am supposed to be there for him, but hell when is he going to be there for me? Sometimes people really get beside themselves, when it is not them in pain. I see from reading these articles, that my pain is getting worse, I have been having high blood...

    RHMLucky777

    Read More

    I tired of my husband not believing that I am in the worst pain in my life. I mean I know that as his wife I am supposed to be there for him, but hell when is he going to be there for me? Sometimes people really get beside themselves, when it is not them in pain. I see from reading these articles, that my pain is getting worse, I have been having high blood pressures, and this excruciating numbness/pain that is now in my left shoulder, I have no clue what it is, but after reading your statements I know that my conditions are getting worse. In fact, I believe its spreading. I too have the worst pain in my thighs, buttocks, down my legs, my legs and shoulders are numb and this hurts like hell, but when does it end? I have taken care of other patients for 16 yrs. and now my biggest fear is that I will be one. I had PT, worked for a min. and then it made it worse. This is really messed up. I can not take the meds because they cause me to eat all the time,and when I am not eating I am sleeping even more, I can't take these meds because I  can lose my job for being at work under the influence of medication. This is terrible. I am a cna and I lift heavy people all the time. I am on my feet all the time. Sometimes I have to do sitter cases and I am sitting for 4-8 hours a shift, by the time I get off I am no good to no one. Sometimes I am at work and I will be walking and out of nowhere I get this stabbing pain in my groin area, its like Micheal Myers had one of his huge butcher knives and pulled back with all of his might and came down as hard as he could and stabbed me in my groin and sometimes this happens all at the same time even the thigh hip and leg pain. Can you imagine walking a patient when this happens? I automatically go down in a limp, I don't want to fall down because I don't want to get sent home, and possibly lose my job because you know when a job knows you can't do a job due to an illness, you can pretty much rest assured that its a wrap for me then. I use to dance all the time but now this too causes great pain. I am not supposed to wear heels, but do you know how degrading this is for a woman, and a woman who loves to dress? OMG, what am I going to do? Some mornings I can barely get out of bed for work but I have to push myself to do so. My attendance is getting out of hand, I am scared to death.  

    • Anonymous
      clare
      May. 08, 2010

      im like ur twin!!! i totally understand that sudden groin pain, it usually gets me when i try to shove something on the floor with my foot omg!! its so painfull

       

      I just wanna say i know what ur going through even with work!!! im in the same boat!

    • Anonymous
      Anonymous
      Apr. 11, 2012

      I know your pain! Mine, though, for the time being is located in my lower back, hip, buttock and front of thigh on the left side. The pain is excruciating and nobody seems to get how much pain you are in. But the thing I am replying about is for you to quit working in the job you are in. I know it sucks but all you're doing is making it worse and setting yourself...

      RHMLucky777

      Read More

      I know your pain! Mine, though, for the time being is located in my lower back, hip, buttock and front of thigh on the left side. The pain is excruciating and nobody seems to get how much pain you are in. But the thing I am replying about is for you to quit working in the job you are in. I know it sucks but all you're doing is making it worse and setting yourself up for  lifetime of pain. I also worked through it for many months until I couldn't do it anymore. If I had stopped at early onset, maybe the pain wouldn't have been so bad. At that time, if a took a couple of days off I felt better until I started into work a couple of days and then it was back. Now, after pushing myself for months I'm in chronic pain all the time. I just wish I could go back and would have known more about this disease to know to stop what is causing my condition and wouldn't have made it worse. For all you sufferers out there, quit trying to push through the pain, you're just making it worse!! Easier said than done but is this job you have reallyy worth the pain for the rest of your life?

    • Geri
      Apr. 11, 2012

      I agree with you on work related causes of this disability. My original cause was bending, lifting, twisting, work related. I kept going back, doing it again and again after bouts of inflammation and being off work for 6 weeks at a time, out of necessity, until I could no longer think about continuing the same work activities. My back pain got worse and worse,...

      RHMLucky777

      Read More

      I agree with you on work related causes of this disability. My original cause was bending, lifting, twisting, work related. I kept going back, doing it again and again after bouts of inflammation and being off work for 6 weeks at a time, out of necessity, until I could no longer think about continuing the same work activities. My back pain got worse and worse, with it taking less time on the job for my back problems to become fully inflammed, and I was completely down again, disabled. I have not seen one person describe fully what I have been through repeatedly for years when my lower back, SI joints become fully inflamed. My entire low back area and around both hips completely lock up with excruciating pain. It is impossible for me to stand up straight, I can't bear my own weight, and can't lift my feet to take steps. Hold onto furniture, walls, counters, bent over, just slowly dragging each foot forward to move around is all I can do for at least 6 weeks at a time, laying on floor at rest is all I am capable of until the inflammation subsides. Afterwards the pain is still too much to live with for a long time, and takes almost a year for pain to subside to about a level 5. Nothing has ever helped me prescription wise. Pain meds only mess up my mind and rest of my body, does not help enough I can stand up. The only thing I have found to be an answer, don't do the things physically which cause SI joints to become inflammed in the first place. I finally had to go on disability.

       

  • Anonymous
    Tammy
    Feb. 03, 2010

    I was just diagnosed with this problem but for 20 years my normal doctor in new mexico diagnosed it sciatic nerve about 20 years ago they want to do the injections to me which i refused my question any of you who took these injections did it cure the inflamation or did it return. My problem started with a shot to begin with when I had my thyroid removed it...

    RHMLucky777

    Read More

    I was just diagnosed with this problem but for 20 years my normal doctor in new mexico diagnosed it sciatic nerve about 20 years ago they want to do the injections to me which i refused my question any of you who took these injections did it cure the inflamation or did it return. My problem started with a shot to begin with when I had my thyroid removed it was during my pre-op they gave me an injection in my right hip which I had severe pain all down the right side of my body since then I have had this problem does not matter if i sit or walk I do have my good days

    • Ravin
      Mar. 02, 2010

      Tammy, I've had the injections for me they didnt work but for a couple days. I've had Radio Frequency done on the mid back & Lumbar. For me it works for at least 6 mos. But it's done nothing for my hips. I go to a pain clinic.

    • bahlee
      Jul. 09, 2010

      Had the cortisone injection and lasted for over a year.  I've had 3 flare-ups since the year-span and am just about ready to request another injection.  The injection area hurt HORRIBLY the next day but settled in within a week or two.

  • Anonymous
    painful74
    Jan. 20, 2010

    I have noticed also that in the morning after waking that my entire backside( from buttocks to shoulder blades) is in pain.  And it takes a pretty good effort to get out of the bed.  I usually have to ry and roll over on my right side and force myself upwards using mi right arm.  If I sit too long, or move around a lot I come into some pretty...

    RHMLucky777

    Read More

    I have noticed also that in the morning after waking that my entire backside( from buttocks to shoulder blades) is in pain.  And it takes a pretty good effort to get out of the bed.  I usually have to ry and roll over on my right side and force myself upwards using mi right arm.  If I sit too long, or move around a lot I come into some pretty severe pain across the top of my buttocks and my low back.  Pain is always present in the left buttocks and low to mid back areas.  I sometimes have numbness in my lower left leg.  Also, I have had matter build up in my eyes from time to time.  Driving to appointments, or to town can cause terrible discomfort and even the numbness in the leg such as where I have to get out and move around a little bit to try and alleviate it.  I only have a very slight limp(no hobbling).  Was in a work related accident which brought on these symptoms and my employer sent me to a doctor and he said there wasn't anything wrong with me.  My legal team sent me to a doctor and he diagnosed me with sacroiliitis(7%).

    • Anonymous
      Cathy Burns
      Nov. 14, 2011

      Do you have psorasis?  This can cause sporiatic Arithritis.  Look it up.

       

  • Anonymous
    Pete
    Jan. 15, 2010

    Hi Everyone.

    I am currently beginning to understand my condition. After a sporting accident in 1982 I have been constantly troubled my lower back pain, especially in buttocks & sacroiliac joint. Underwent a spinal fusion (L5-S1) due to spondylitis but although now well aligned but still have ongoing pain. Getting desperate for some relief having tried...

    RHMLucky777

    Read More

    Hi Everyone.

    I am currently beginning to understand my condition. After a sporting accident in 1982 I have been constantly troubled my lower back pain, especially in buttocks & sacroiliac joint. Underwent a spinal fusion (L5-S1) due to spondylitis but although now well aligned but still have ongoing pain. Getting desperate for some relief having tried medications, physios, chiropractors, massage, yoga, etc...Wouldn't advise opioid medications as they had me with strange thoughts & then eventually suicidal ideations & a visit to the psych ward. So I have an appointment with spinal clinic in Melbourne (Australia) in 2 weeks which I am looking forward to but also fearing a life long diagnosis, which is highly possible. Just wanting to know if anyone with ongoing sacroiliac pain has any luck with particular medications or any other relief technique such as icing. Also interested in any diet regimes or lifestyle changes which have assisted with pain levels. I read your posts with great empathy & understanding. Thank-you..

     

    • Anonymous
      Anonymous
      Jan. 21, 2010

      I was first diagnosed with degenerative arthritis in 1989. When I was about 6-7 y/o I was diagnosed with Leggs Perthes Disease, today they call it avascular necrosis. My right hip was replaced in 2004. Both of these conditions go hand in hand.

       

      In 2007, after falling down my backsteps during an ice storm caused the severe pain in my lower back which radiated...

      RHMLucky777

      Read More

      I was first diagnosed with degenerative arthritis in 1989. When I was about 6-7 y/o I was diagnosed with Leggs Perthes Disease, today they call it avascular necrosis. My right hip was replaced in 2004. Both of these conditions go hand in hand.

       

      In 2007, after falling down my backsteps during an ice storm caused the severe pain in my lower back which radiated into my left hip area and down my thigh. Just a slight twist or movement literally makes me catch my breath and cringe in pain. I went to a bone specialist and all he said was that I had arthritis. He gave me a lidocaine/kenalog shot in the lower back......it did absolutely nothing. I never went back to him. I felt he really didn't believe anything I had to say about the pain. As did my pcp who referred me to him.

       

      When I relocated to a new state and got my medical records transferred I discovered that that specialist actually diagnosed my condition with sacriliitis, as well as chrondoblastomas in my left ilium. The other term for this secondary condition is "Big Cell Tumors". HOW DOES A DOCTOR F-A-I-L TO TELL HIS PATIENT THAT I HAD BOTH OF THESE CONDITIONS???

       

      At least I now have proof that I have a condition that requires pain medication, real pain medication not that tylenol crap. If your doctor has prescribed you darvocet, or any other pain medication with acetomeniphen, find another doctor or get to a pain management clinic. My new doctor told me these types of pain meds are not for arthritic or chronic inflammation issues.

       

      (Great, I finally feel vindicated when I have complained to may old pcp for 7-8 years about my pain)

       

      My current doctor put me on 10mg methadone 2x a day (it's time released), and gave me an rx for Tylenol 4's when the pain is over the top. (this occurs when I get groceries, sit for long periods of time like a movie theater, and bad weather).

      This combination has been the best pain management since I was diagnosed in 1989. The first dose I took I literally slept through the night and did not wake up in pain for the first time in years!

       

      But you have to be very diligent not to over do the Tyl 4's because the mix of the methadone with the Ty4's can cause bad side affects. I was taking them to stop all the pain, but you just can't function like a normal human being this way. Sadly, I had to come to accept that I will NEVER be pain free.

       

      And the excercise..........PLEASE Doctors, this causes me pain and I'm all stoved up for days even weeks after excercises, walks etc.

       

      I am on disability but used to be able to work part-time, but not any more. Since the fall in 2007, I hobble around like an 90 y/o woman and I'm not quite 50. I am not able to return to any work at this point in life. I had to give up things I loved to do for entertainment like fishing and stuff.

       

       

       

    • Ravin
      Mar. 02, 2010

      I like this one Lady. You had me cracking up. Wink

      What I'd like to do is set down & look through my medical record from the pain clinic, that would take awhile it's a huge file. Because one time i'm being told one thing & the next I know it's something different. Dang Foreigh Drs. ya can't understand what they say half the time.

      I just want to feel...

      RHMLucky777

      Read More

      I like this one Lady. You had me cracking up. Wink

      What I'd like to do is set down & look through my medical record from the pain clinic, that would take awhile it's a huge file. Because one time i'm being told one thing & the next I know it's something different. Dang Foreigh Drs. ya can't understand what they say half the time.

      I just want to feel 40 & not 70 Yell. I know the wheel chair is the next option for me.

       

    • Anonymous
      laurnelle
      Feb. 02, 2011

      I have found relief for several days from the TENS electrical stimulation at my physical therapy.  It didn't help so much the first few times, but then one time I had them crank it up really high, and it helped for days.  Hope yours gets better.

    • Geri
      Sep. 28, 2012

      Physical Therapy used a TENS unit on me once, and I had a reaction they said they had never heard of before. After going home, to bed, I felt something happening in the area where the TENS had been attached, and suddenly had a horrible spasm in which my entire body involuntarily snapped jerking my knees and chin together. It was fast, then over. I thought a...

      RHMLucky777

      Read More

      Physical Therapy used a TENS unit on me once, and I had a reaction they said they had never heard of before. After going home, to bed, I felt something happening in the area where the TENS had been attached, and suddenly had a horrible spasm in which my entire body involuntarily snapped jerking my knees and chin together. It was fast, then over. I thought a happening such as that could actually break something in my back. I had no control over this spasm. The TENS did absolutely nothing for my pain.

    • Anonymous
      Reina
      Feb. 02, 2011

      Lyric medication has helped me with the pain. without it, pain killers don't work.

  • Anonymous
    mandy macrae
    Jan. 28, 2009

    You can also have a sacroiliac fusion which i have had but unfortunately it didn't work for me.

     

    I was diagnosed 6 yrs ago but due to the severity i can not be cured and i have been left permanently disabled and requiring a wheelchair to move.

    • Anonymous
      Anonymous
      Jun. 24, 2009

      I would not recommend an SI joint fusion, all the patients that I have seen that have had this performed have increased pain, I have not seen any patients whom this has helped. Cortisone injections under a fluroscope, Radiofrequency lesioning of the SI joint, or Prolotherapy have better outcomes than surgery.

    • Anonymous
      Mandy
      Jun. 25, 2009

      I did have a cortisone injection with the fluroscope into the joint a few months after it started to get worse, but unfortunately as soon as the needle went near the joint my body went into spasm causing my whole body to shake. To be honest it didn't really give me any relief at all.

    • Ravin
      Jun. 25, 2009

      I've also had; fluroscopic Radiofrequency lesioning/ablasion in my Lumbar. It's supposed to work 6 Mos. to a Yr. or so. I've had this proceedure done approx. 4 times. Each time it seems it doesn't last as long as the previous. I would like to try the pain pump but the pain Dr. thinks thats a last resort option. I have a TENs Unit & it seems to help me some,...

      RHMLucky777

      Read More

      I've also had; fluroscopic Radiofrequency lesioning/ablasion in my Lumbar. It's supposed to work 6 Mos. to a Yr. or so. I've had this proceedure done approx. 4 times. Each time it seems it doesn't last as long as the previous. I would like to try the pain pump but the pain Dr. thinks thats a last resort option. I have a TENs Unit & it seems to help me some, as well as medications. Yet I am still in pain daily.

    • Anonymous
      Anonymous
      Sep. 04, 2009

      I agree with this statememnt. I had the SI Joint infusion last Aug 0f 2008 and I am worse off now. I went for the fluroscope injections again yesterday. I was having these injections in 2007 then my Orthopedic thought the surgery may help me, but the pain is now worse after surgery and I am in constant pain.

    • Anonymous
      Stan
      Aug. 03, 2009

      I had a total hip replace, rt side, in March do to a motorcycle accident I had in 1972.

      I have also been diagnosed with a degenerative disc at L5 and buldging disc at L4, nerve damage at L5 S1 with no nerve root compression. I have sinced been diagnosed with sacroillitis, can't sit or stand very long. I had a SI Facet injection on July 28th and so...

      RHMLucky777

      Read More

      I had a total hip replace, rt side, in March do to a motorcycle accident I had in 1972.

      I have also been diagnosed with a degenerative disc at L5 and buldging disc at L4, nerve damage at L5 S1 with no nerve root compression. I have sinced been diagnosed with sacroillitis, can't sit or stand very long. I had a SI Facet injection on July 28th and so far it hasn't done a thing. Percocet 3 times a day takes the edge off but not enough. Not sure what the next step is going to be. Getting tired of this as I have been on disability since April 2007.

    • Anonymous
      Michel
      Feb. 13, 2010

      Sounds like my problem, the pain doctor is currently treating me with epidural injections that are only irritaing the area I believe, I had gotten to where if I sit down before I can stand up something has to "click" VERY PAINFUL" each time,

       

      anyway up in pain and began looking into this diagnosis and am beginning to figure out why I have not been treated...

      RHMLucky777

      Read More

      Sounds like my problem, the pain doctor is currently treating me with epidural injections that are only irritaing the area I believe, I had gotten to where if I sit down before I can stand up something has to "click" VERY PAINFUL" each time,

       

      anyway up in pain and began looking into this diagnosis and am beginning to figure out why I have not been treated properly as of yet.  I believe my sacroiliac joint is the issue not just the DDD lumbar and cervical and the subacute combined degeneration of the spinal chord, its the joint pain

       

       

      I am currently using fentanyl patch 50mcg every 48.  It has its days but overall minimizes the pain levels to basically tolerable.  Hope this works.

    • Anonymous
      Evelyn
      Oct. 10, 2011

      I have been diagnosed with lumbar spondylosis sacrroilitis just  a short while ago.But prior to that i have had 5 injections none have worked .my pain doctor has trieded me on a number of pain meds,nothing seems to help. It only dulls the pain but never goes away.I cant sleep at night my hipps ,thighs,and legs so bad.I don't know what to do.

    • Ravin
      Mar. 02, 2010

      Mandy, Thats what my back is doing this sacroiliac fusion. Do your hips , low back & pelvic area's hurt? I'm guessing your range of motion isn't good because of this.

      Mine hurt all the time & it seems nothing releives the pain. I'm in a constant 5-6 level even with all the meds. When standing I feel like my entire hip area is going to give out, drop...

      RHMLucky777

      Read More

      Mandy, Thats what my back is doing this sacroiliac fusion. Do your hips , low back & pelvic area's hurt? I'm guessing your range of motion isn't good because of this.

      Mine hurt all the time & it seems nothing releives the pain. I'm in a constant 5-6 level even with all the meds. When standing I feel like my entire hip area is going to give out, drop out of me. Have you ever felt this way?

    • mandy macrae
      Jun. 05, 2010

      I am in constant pain in that area but any kind of movement at all seems to trigger intense pain, i'm unable walk very much at all and relieve on a wheelchair to get out of the house

    • peter
      Jan. 17, 2011

      i fell on the stairs with my back heavily and developed back pains which emerges whenever i do exercises after a lumbar sacrol x-ray the conclution was spasm hydrosis sacroiliities present.which treatment is best for me.

    • Anonymous
      Carla61
      Jul. 15, 2010

      I can't believe someone finally said how I feel.  I keep telling doctors  that I feel like my insides are going to fall out, and they just stare at me like I am stupid.  I feel like I have a belt all the way around my hip area and it's 100 times too tight,  and squeesing the pain down my legs, by butt, back, across my pelvic area..etc. ...

      RHMLucky777

      Read More

      I can't believe someone finally said how I feel.  I keep telling doctors  that I feel like my insides are going to fall out, and they just stare at me like I am stupid.  I feel like I have a belt all the way around my hip area and it's 100 times too tight,  and squeesing the pain down my legs, by butt, back, across my pelvic area..etc.  There is so much pressure when I stand up that the only thing that relieves it is to bend over the bed, or to sit back down..and that only lasts a few mins.  My SI joints, both of them, are already fused together, but they tell me its fibro, not AS.  I am so confused, and frustrated, I don't know what to do.

    • Anonymous
      2516
      Nov. 05, 2010

      I was also diagnosed with this five years ago and have done numerous shots and PT.  I had the same results with the shots lasting less time after each one.  I was put on medication and told just to live with it.