Does anyone have the intrathecal morphine pain pump?

bluesman Community Member March 28, 2007
  • Hi, My name is Bluesman and I am looking to speak with anyone who has the intrathecal morphine pain pump.  I would like to know your experiences.  What should I expect? Is the procedure painfull?(ect.) If you do have the implant please contact me via this sharepost site.  I would greatly appreciate it.  
13 Comments
  • girl in pain
    Jan. 10, 2015
    You could not pay me to have a morphine pump inserted into my spine. I have had several surgeries in 9 years time.i am 43 years old.i did the spinal stimulator trial which left me in the fetal position for 6 weeks after the removal...forget about how I was with the wires in me for the 6 days.i have meet alot of people at pain mgt that have had morphine pump...
    RHMLucky777
    Read More
    You could not pay me to have a morphine pump inserted into my spine. I have had several surgeries in 9 years time.i am 43 years old.i did the spinal stimulator trial which left me in the fetal position for 6 weeks after the removal...forget about how I was with the wires in me for the 6 days.i have meet alot of people at pain mgt that have had morphine pump trial and many who have one.none of them recommend it! They say that the pain after surgery is unbelievable and it can take up to 9 months to get the right dosage.i have noticed a change in all of them that I have gotten to know from seeing them every 4 weeks at our appts.some are in terrible pain. .others are so zoned out that it is scary.my heart breaks for them.its no way to live.chronic pain is no laughing matter and trust me..I would love to not have to take any medication and be able to walk and have a normal life but I will stick with the terrible pain I am in then get one of those pumps put into my body.do your research and good luck to everyone going thru this.there are alot of people going thru what we are and my wish is that everyone would one day wake up pain free.
    • dianna.belyea
      Jan. 19, 2015
      I have had the pain-pump for 6 years without any complications. Before the pump I had multiple back surgeries (lumbar fusion L2-L5 & cervical fusion, lamactamy) I was on so many pain medications that I could not leave the La-Z-Boy without assistance. I was driven to my son's college graduation laying on a mattress in the back of a friends SUV. My life was confined...
      RHMLucky777
      Read More
      I have had the pain-pump for 6 years without any complications. Before the pump I had multiple back surgeries (lumbar fusion L2-L5 & cervical fusion, lamactamy) I was on so many pain medications that I could not leave the La-Z-Boy without assistance. I was driven to my son's college graduation laying on a mattress in the back of a friends SUV. My life was confined to my condo with very little hope for a better quality of life. I used Fentynal patches like they were gauze, they had 0 effect. My life was consumed with researching options for reducing, controlling pain. I was very close to losing my position as high school counselor, they held my job for two years while I tried to get better. The pump saved my life. Life without it was not worth living. Following the surgery I was home in one day, I felt better quickly, and the improvement continued for a few months. I worked with the pain specialist to fine the boundary if enough medication, without feeling physically, mentally altered. I have been back to work since the pump was implanted. I do have extra strength Vicodin for break through pain. I try to keep the medication to a minimum at work. As a high school Counselor I need my patience and ability to deflect negative comments. Recently I had a new pump implanted which allows me to give myself a Bolus 3 times daily. This is too much for work. I was very concerned about the negative comments that you posted I felt an obligation to share the otherside. My life was not worth living without the pump. If it somehow shortens my life, it was a good trade. I am attempting to apply for a disability retirement. The amount of medication I need to be comfortable sometimes causes me to loosen my inhibitions when talking to unreasonable parents and juvenile delinquents. I can work part-time and be an active grandmother, socialize with my friends and continue to learn more about helping others in chronic pain. I have an excellent team of professionals that work with me and any concern that I have ever had has been taken seriously. If your quality of life is being negatively impacted by chronic pain, get help! Do not stop until the right help is found for you!
    • christine
      Jan. 20, 2015
      Your post was heart breaking. I have had my pump for 7years and it truly has saved my life. Prior to the pump I would spend a week out of every month hospitalized for pain control and fluids. I had a relatively normal life until 2003 when a genitive anomaly was found and left me with chronic pancreatis and gastroparisis. I was on 300 mgs of fentanyl and liquid...
      RHMLucky777
      Read More
      Your post was heart breaking. I have had my pump for 7years and it truly has saved my life. Prior to the pump I would spend a week out of every month hospitalized for pain control and fluids. I had a relatively normal life until 2003 when a genitive anomaly was found and left me with chronic pancreatis and gastroparisis. I was on 300 mgs of fentanyl and liquid morphine up until the pump was placed. I am pretty certain without the pump I would have left this earth long ago. I am 5'6 and was down to 86 lbs right before the surgery. I weigh 140 now. I did have a few bumps in the road early on and I didnt hold out much faith on the pump being effective however, once the kinks were worked out I feel like a normal functioning human being again. Hallelujah! No, that first year was a little rough but in the grand sceme of things my life is mine again. I have only had to be in the hospital once in the last 12 months, im no longer in a narcotic haze, my pain no longer runs my life. I run it. I did have to try several different meds in the pump before the right combo was found and the first pump planted lasted 3 weeks before the catheter dislodged and I had no feeling below the waist but I had no other choice I plunged forward and had another one placed and that was 7 years ago, I cant even express how blessed I feel. I am so sorry that your experience has been so negative but keep holding on to faith that there is something out there that will work for you as well as this stranger who will be praying for you.
    • girl in pain
      Jan. 20, 2015
      Thank you for sharing your experience. ..I very much appreciate it!..when you are going thru this, you think you are the only one.no one believes the pain your in....unless you are someone that is going thru it.i have had alot of bad experiences. I live in nyc and have access to the best hospitals, surgeons, pain mgt drs..etc and everything I have tried over...
      RHMLucky777
      Read More
      Thank you for sharing your experience. ..I very much appreciate it!..when you are going thru this, you think you are the only one.no one believes the pain your in....unless you are someone that is going thru it.i have had alot of bad experiences. I live in nyc and have access to the best hospitals, surgeons, pain mgt drs..etc and everything I have tried over the past 9 years has ended badly.every surgery..every procedure. .even tests! My body can not take it any longer.last year was bad and I really just wanted to die.i went to bed every night hoping that God would just take me out of my pain. I finally teamed up with my dr and reduced any unnecessary medicine I was on and cleared my head alot! Made me think about my 17 yr old and 4 yr old and gave me the will to live.i wake every morning in pain that I would wish on no one.there are days I can leave the house and others when I can not.i do not have family to help. The family I have ...are basically over it and have had enough of my pain and feel that I have ruined their lives.i live for my kids.i am not at a point where I put myself first.my kids are first.i try to not let them see the pain. .but they know.i can go weeks with pain that is unbelievable. I do not have the family support to do a pump even if I wanted to...I am also very scared to do it because I have no feeling in my right leg and the thought of losing the other one...I do not even want to think about it.thank you for your response and I am so happy that you are doing well.
    • girl in pain
      Jan. 20, 2015
      Christine Thank you and god bless. I appreciate your honesty and sharing
  • Superstar
    Jan. 06, 2015
    I have had the pump in me for 18 months the catheter was put at the c-6 level since then it has fell 3 times to the T-6 level each time it feel I was in the ER all the Maple grove clinic would do is denied it has anything to do with the catheter. The last month I have been trying to get it removed and the Doc is not sure it is a good idea. throughout the 18...
    RHMLucky777
    Read More
    I have had the pump in me for 18 months the catheter was put at the c-6 level since then it has fell 3 times to the T-6 level each time it feel I was in the ER all the Maple grove clinic would do is denied it has anything to do with the catheter. The last month I have been trying to get it removed and the Doc is not sure it is a good idea. throughout the 18 months I have had many side affects that I was not warned about any time I told the staff about them they looked at me like I was the only one having them. I have talked with several people in the clinic having the same issues. Not sure but it seems the staff is directed not to discuss side affects. Some of the issues are sexual dysfunction,Extrem sweeting,Nausia,itching,breathing problems,consintration,tierd all the time. each time the catheter feel the issues changed. THIS IS NOT FOR ME.
    • girl in pain
      Jan. 20, 2015
      Thank you for the honesty.the people in my drs office ..patients...have discussed side effects with me and have basically told me not to do the pump. They have had more problems now then before.i have a 4 year old that needs me.i am like a robot..have our schedules and go day by day.my quality of life stinks but I know there are many more out there that are...
      RHMLucky777
      Read More
      Thank you for the honesty.the people in my drs office ..patients...have discussed side effects with me and have basically told me not to do the pump. They have had more problems now then before.i have a 4 year old that needs me.i am like a robot..have our schedules and go day by day.my quality of life stinks but I know there are many more out there that are worse off then me.its just nice to know that I am not alone battling this ! People do not believe its possible to have such back pain. My own family rolls their eyes.when my pain is bad is is bad.i am actually afraid to leave the house.i am sure you know the deal.you are living it.thank you for sharing..I really appreciate it.i appreciate everyone who has responded....
  • Sharahoughtaling
    Jun. 22, 2011

    I had the pump implanted about a year ago. I was on 800mcgs fentora, 200mcg Duragesig patches, 8 mg Dilaudid and percocet 5/500 for breakthrough pain. They have upped my pump every month and I have the pump running @1.599mg day 25 mcg duragesic patch and dilaudid three times a day as needed (which I'm thinking of having chandes s is not helping much) What I...

    RHMLucky777

    Read More

    I had the pump implanted about a year ago. I was on 800mcgs fentora, 200mcg Duragesig patches, 8 mg Dilaudid and percocet 5/500 for breakthrough pain. They have upped my pump every month and I have the pump running @1.599mg day 25 mcg duragesic patch and dilaudid three times a day as needed (which I'm thinking of having chandes s is not helping much) What I love is not having the prain fog everything else gave me.. In Vermont they do not do implants unless you have terminal cancer pain. Did they inform you of the tumors that develop on the tip of the cath?

     

    Shara


    • careyajones.cj
      Dec. 18, 2014
      I made the mistake of moving to Oregon. They have decreased my pump considerably and have eliminated all orAL meds. Does anyone know which States are less conservative?
    • girl in pain
      Jan. 20, 2015
      Thank you for sharing.i was informed about the tumors and that scares me to death.i do not have much luck.when they say there is a 10% chance or 1% chance that something bad can happen. ..it happens to me! I have no luck.i hate the brain fog and am finally at a place where I do not have it unless I am having a bad spasm that lasts about a week to 3 weeks and...
      RHMLucky777
      Read More
      Thank you for sharing.i was informed about the tumors and that scares me to death.i do not have much luck.when they say there is a 10% chance or 1% chance that something bad can happen. ..it happens to me! I have no luck.i hate the brain fog and am finally at a place where I do not have it unless I am having a bad spasm that lasts about a week to 3 weeks and thats when my brain goes out the window.i am in robot mode with the kids.i keep to their schedule for their well being.i am glad that you are doing well.it does give me hope
  • Anonymous
    Wardie
    Feb. 01, 2008
     My wife had this pump implanted in 2000 after suffering a back injury in 1994. In May of 2007 she lost the use of her legs, and it took me until August to get them to do an MRI. Well,it turns out that so much scar tissue grew around the catheter in her spine that it severed the nerves that control her legs, bowels, and bladder.The doctor that installed...
    RHMLucky777
    Read More
     My wife had this pump implanted in 2000 after suffering a back injury in 1994. In May of 2007 she lost the use of her legs, and it took me until August to get them to do an MRI. Well,it turns out that so much scar tissue grew around the catheter in her spine that it severed the nerves that control her legs, bowels, and bladder.The doctor that installed the pump would not remove it, so I had to search for another doctor.They removed the pump on 1/28/08, but the doctor said he could not remove much of the scar tissue without doing more damage.We were never warned about this or did anyone suggest an MRI or CT Scan in 8 yrs. Now, at at age 50, my wife is stuck in a wheel chair and had to quit my job of 25 yrs.to take care of her.You may want to discuss this with your doctor and have them keep a closer check on things.Good Luck, and if you talk to anyone who might be able to help my wife, please let me know.  Wardie@woh.rr.com
  • jeff12step
    Apr. 13, 2007
    bluesman , i had my 1st pump-medtronic sync II, put in march of '06, developed infection,had it removed, and put in on other side of abdomen area-to the side a little....as far as the operation, it went great and better than i thought..(hint:i had MAC anesthesia,(with general they use a tube down the throat,and i prefer not to do that) and asked for...
    RHMLucky777
    Read More
    bluesman , i had my 1st pump-medtronic sync II, put in march of '06, developed infection,had it removed, and put in on other side of abdomen area-to the side a little....as far as the operation, it went great and better than i thought..(hint:i had MAC anesthesia,(with general they use a tube down the throat,and i prefer not to do that) and asked for some versaid (sp.?) before going down to o.r. and was actually singing and joking with nurses on the way...woke up, of course medicated, but with only a little soreness in the pump area-that's normal...was released next day,w/antibiotics and pain meds....that was in july '06, and my pain mgnt. gfp. are conservative in my increase of the morphine intrathecally, adding only 10%-15% every other week or monthly, which did not hit all my pain, but they kept me on my same oral meds that i was on, to help with the breakthrough pain/spasms....but as we increased my pump, they lowered my oral meds slowly...i am getting near my"baseline" goal at 9 mg. intrathecally, but still need more fine tuning...i wish i had this done 10 years ago..make sure you read medtronics info on going to the hospital and the procedure and then LET GO....i can only say ,that i went thru it twice and they made sure iwas not in pain and you'll make a new friend with the nurse that does your refills-they are dedicated people to see that YOU get better and as pain free as possible...God speed and let me know how it went....jeff m.
    • kristelyne
      Feb. 25, 2012

      I live in Ohio where all of the pain management specialists are in a frenzy over Whitney's recent death and therefore drastically reducing all of their patients' meds.

       

      I am a gastric bypass patient and therefore have trouble absorbing oral meds. As such, I have been on 200mcg of Fentynl (pain patch on the skin) for two years, plus 28mg of Dilauded per...

      RHMLucky777

      Read More

      I live in Ohio where all of the pain management specialists are in a frenzy over Whitney's recent death and therefore drastically reducing all of their patients' meds.

       

      I am a gastric bypass patient and therefore have trouble absorbing oral meds. As such, I have been on 200mcg of Fentynl (pain patch on the skin) for two years, plus 28mg of Dilauded per day for breakthru pain. Two days ago, my doctor reduced the Dilauded to 4mg a day (I may as well eat a jellybean, because it does NOTHING), and is taking me off completely next month. It won't be long before she takes away the Fentynyl.

       

      It's only been 3 days and I'm already experiencing horrible, indescribable withdrawal from the Dilauded. Cold sweats, nausea, hallucinations, the works. I believe my only hope is the pain pump. I'm calling Monday to get details to get the surgery scheduled.

       

      I've been a chronic pain patient for 20 years. My maladies are too many to list, but safe it to say I have pain from head to toe, 24 hours a day. Many days I can't get out bed and certainly cannot work.

       

      I am only 46 years old, about 50 lbs. overweight, MILDLY diabetic (controlled with oral meds; sugars run high 90s to low 100s) and have two small children to care for (well, one is small, age 8; the other is 15). Aside from my pain-related illnesses and sissy diabetes, I am in generally good health. 

       

      I have heard of several people in situations similar to mine who had the pain pump installed and were able to go back to work. This is what I want. I am well educated, and if not for the pain, I should be out there contributing to society. Is this really possible or is it just a pipe dream?

       

      I also have a couple of technical questions. I understand that the surgery takes about 1-3 hours, and the hospital stay is about 1-2 days. HOWEVER, I have not been able to find any information regarding the RECOVERY time once you get home. Is the patient bedridden for a certain period of time, or do you just jump up and start dancing the boogaloo? How long after surgery could I go back to work?

       

      I've also read a bit about a pre-screening. What the heck is that? What do they do to you? Why? What's the purpose?

       

      Any information anyone has on surgery time, hospital stay, recovery time, back-on-your-feet time, and/or complications would be appreciate.

       

      Thanks!