Does anyone have the intrathecal morphine pain pump?

bluesman Community Member March 28, 2007
  • Hi, My name is Bluesman and I am looking to speak with anyone who has the intrathecal morphine pain pump.  I would like to know your experiences.  What should I expect? Is the procedure painfull?(ect.) If you do have the implant please contact me via this sharepost site.  I would greatly appreciate it.  
5 Comments
  • Sharahoughtaling
    Jun. 22, 2011

    I had the pump implanted about a year ago. I was on 800mcgs fentora, 200mcg Duragesig patches, 8 mg Dilaudid and percocet 5/500 for breakthrough pain. They have upped my pump every month and I have the pump running @1.599mg day 25 mcg duragesic patch and dilaudid three times a day as needed (which I'm thinking of having chandes s is not helping much) What I...

    RHMLucky777

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    I had the pump implanted about a year ago. I was on 800mcgs fentora, 200mcg Duragesig patches, 8 mg Dilaudid and percocet 5/500 for breakthrough pain. They have upped my pump every month and I have the pump running @1.599mg day 25 mcg duragesic patch and dilaudid three times a day as needed (which I'm thinking of having chandes s is not helping much) What I love is not having the prain fog everything else gave me.. In Vermont they do not do implants unless you have terminal cancer pain. Did they inform you of the tumors that develop on the tip of the cath?

     

    Shara


    • careyajones.cj
      Dec. 18, 2014
      I made the mistake of moving to Oregon. They have decreased my pump considerably and have eliminated all orAL meds. Does anyone know which States are less conservative?
  • Anonymous
    Wardie
    Feb. 01, 2008
     My wife had this pump implanted in 2000 after suffering a back injury in 1994. In May of 2007 she lost the use of her legs, and it took me until August to get them to do an MRI. Well,it turns out that so much scar tissue grew around the catheter in her spine that it severed the nerves that control her legs, bowels, and bladder.The doctor that installed...
    RHMLucky777
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     My wife had this pump implanted in 2000 after suffering a back injury in 1994. In May of 2007 she lost the use of her legs, and it took me until August to get them to do an MRI. Well,it turns out that so much scar tissue grew around the catheter in her spine that it severed the nerves that control her legs, bowels, and bladder.The doctor that installed the pump would not remove it, so I had to search for another doctor.They removed the pump on 1/28/08, but the doctor said he could not remove much of the scar tissue without doing more damage.We were never warned about this or did anyone suggest an MRI or CT Scan in 8 yrs. Now, at at age 50, my wife is stuck in a wheel chair and had to quit my job of 25 yrs.to take care of her.You may want to discuss this with your doctor and have them keep a closer check on things.Good Luck, and if you talk to anyone who might be able to help my wife, please let me know.  Wardie@woh.rr.com
  • jeff12step
    Apr. 13, 2007
    bluesman , i had my 1st pump-medtronic sync II, put in march of '06, developed infection,had it removed, and put in on other side of abdomen area-to the side a little....as far as the operation, it went great and better than i thought..(hint:i had MAC anesthesia,(with general they use a tube down the throat,and i prefer not to do that) and asked for...
    RHMLucky777
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    bluesman , i had my 1st pump-medtronic sync II, put in march of '06, developed infection,had it removed, and put in on other side of abdomen area-to the side a little....as far as the operation, it went great and better than i thought..(hint:i had MAC anesthesia,(with general they use a tube down the throat,and i prefer not to do that) and asked for some versaid (sp.?) before going down to o.r. and was actually singing and joking with nurses on the way...woke up, of course medicated, but with only a little soreness in the pump area-that's normal...was released next day,w/antibiotics and pain meds....that was in july '06, and my pain mgnt. gfp. are conservative in my increase of the morphine intrathecally, adding only 10%-15% every other week or monthly, which did not hit all my pain, but they kept me on my same oral meds that i was on, to help with the breakthrough pain/spasms....but as we increased my pump, they lowered my oral meds slowly...i am getting near my"baseline" goal at 9 mg. intrathecally, but still need more fine tuning...i wish i had this done 10 years ago..make sure you read medtronics info on going to the hospital and the procedure and then LET GO....i can only say ,that i went thru it twice and they made sure iwas not in pain and you'll make a new friend with the nurse that does your refills-they are dedicated people to see that YOU get better and as pain free as possible...God speed and let me know how it went....jeff m.
    • kristelyne
      Feb. 25, 2012

      I live in Ohio where all of the pain management specialists are in a frenzy over Whitney's recent death and therefore drastically reducing all of their patients' meds.

       

      I am a gastric bypass patient and therefore have trouble absorbing oral meds. As such, I have been on 200mcg of Fentynl (pain patch on the skin) for two years, plus 28mg of Dilauded per...

      RHMLucky777

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      I live in Ohio where all of the pain management specialists are in a frenzy over Whitney's recent death and therefore drastically reducing all of their patients' meds.

       

      I am a gastric bypass patient and therefore have trouble absorbing oral meds. As such, I have been on 200mcg of Fentynl (pain patch on the skin) for two years, plus 28mg of Dilauded per day for breakthru pain. Two days ago, my doctor reduced the Dilauded to 4mg a day (I may as well eat a jellybean, because it does NOTHING), and is taking me off completely next month. It won't be long before she takes away the Fentynyl.

       

      It's only been 3 days and I'm already experiencing horrible, indescribable withdrawal from the Dilauded. Cold sweats, nausea, hallucinations, the works. I believe my only hope is the pain pump. I'm calling Monday to get details to get the surgery scheduled.

       

      I've been a chronic pain patient for 20 years. My maladies are too many to list, but safe it to say I have pain from head to toe, 24 hours a day. Many days I can't get out bed and certainly cannot work.

       

      I am only 46 years old, about 50 lbs. overweight, MILDLY diabetic (controlled with oral meds; sugars run high 90s to low 100s) and have two small children to care for (well, one is small, age 8; the other is 15). Aside from my pain-related illnesses and sissy diabetes, I am in generally good health. 

       

      I have heard of several people in situations similar to mine who had the pain pump installed and were able to go back to work. This is what I want. I am well educated, and if not for the pain, I should be out there contributing to society. Is this really possible or is it just a pipe dream?

       

      I also have a couple of technical questions. I understand that the surgery takes about 1-3 hours, and the hospital stay is about 1-2 days. HOWEVER, I have not been able to find any information regarding the RECOVERY time once you get home. Is the patient bedridden for a certain period of time, or do you just jump up and start dancing the boogaloo? How long after surgery could I go back to work?

       

      I've also read a bit about a pre-screening. What the heck is that? What do they do to you? Why? What's the purpose?

       

      Any information anyone has on surgery time, hospital stay, recovery time, back-on-your-feet time, and/or complications would be appreciate.

       

      Thanks!