foot drop sucks

eeyore Community Member June 22, 2007
  • anyone out there have foot drop really sucks!!!!! drs. just shake their heads do not help you but they sure get there money..had total hip replacement one year ago thinking it would help at my job since i do alot of walking it sure did just the opposite....any comments
86 Comments
  • Dannilei85
    Jul. 26, 2014
    Hi! I am seeking a support group of some kind. I have had chronic foot drop August will be 10 years. The symptoms started a few months after having a cesarean, it's is the result Of an epidural, or so the doctors think so MRI and others test havnt shown the cause ad they suggested exploritory surgery BUT there's a 70% chance of being left paralyzed. So needless...
    RHMLucky777
    Read More
    Hi! I am seeking a support group of some kind. I have had chronic foot drop August will be 10 years. The symptoms started a few months after having a cesarean, it's is the result Of an epidural, or so the doctors think so MRI and others test havnt shown the cause ad they suggested exploritory surgery BUT there's a 70% chance of being left paralyzed. So needless to say I'm still walking around with this foot drop. It has kept me secluded. I have anxiety just being around people. I go through constant depression. I hate that I can't run. I feel unworthy of ever having another child because I couldn't chase them or run after them. I dont date im afraid ill never be accepted with my chrinic foot drop so I don't even allow my self to meet a man. And now I find myself so lonely and miserable. Foot drop has caused me to gain lots of weight from the depression. I HATE foot drop its just not fair I am 28 and I've had it since I was 19. Noone understands what I go through. I'm just searching for a support group to talk to people who are going through the same thing. Thanks, Danni
    • bigblue5471
      Jul. 27, 2014

      Ive had foot drop since 1998.  Started with a ruptured disc.. then had surgery, then was re-ruptured by therapist four weeks post op.. work comp dragged it out until my back got worse and now foot drop.  To sum that up.  After years of tripping and falling... I actually found something that works!!  I bought a pair of sneakers that is raised...

      RHMLucky777

      Read More

      Ive had foot drop since 1998.  Started with a ruptured disc.. then had surgery, then was re-ruptured by therapist four weeks post op.. work comp dragged it out until my back got worse and now foot drop.  To sum that up.  After years of tripping and falling... I actually found something that works!!  I bought a pair of sneakers that is raised on the inside.  Kinda like wearing pumps inside a sneaker. I now walk totally normal!!  no limping, no tripping, no falling!!  buy a pair, it will be the best purchase you ever made.  changed my life entirely!  Good luck!

  • Jennifer
    Jun. 21, 2014

    Hi!  I have had foot drop twice.  The first time I recovered completely after a year, but this time, I am not so lucky.  It will be eight years in August.  I have Incomplete Cauda Equina Syndrome.  I am finding that my feet are an absolute mess because of the foot drop.  I wear an AFO, but I have many bad days.  I am...

    RHMLucky777

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    Hi!  I have had foot drop twice.  The first time I recovered completely after a year, but this time, I am not so lucky.  It will be eight years in August.  I have Incomplete Cauda Equina Syndrome.  I am finding that my feet are an absolute mess because of the foot drop.  I wear an AFO, but I have many bad days.  I am finally seeing a podiatrist, and hopefully will get some help to maintain as normal a gait as possible.  Yes, I agree...Foot drop sucks...

  • Permanente disabled
    Jun. 05, 2014
    I went to a hospital (which I will not mention, other then the fact that they use THRIVE in their commercials) Jan 30th 2014 went in to get a total hip replacement on my right leg. I had a local injected anesthesia in the lower back for my surgery, which they said was safer. Came out with the news that everything went well. As I was laying in the bed I thought...
    RHMLucky777
    Read More
    I went to a hospital (which I will not mention, other then the fact that they use THRIVE in their commercials) Jan 30th 2014 went in to get a total hip replacement on my right leg. I had a local injected anesthesia in the lower back for my surgery, which they said was safer. Came out with the news that everything went well. As I was laying in the bed I thought I could dorsiflex my foot and I don't remember feeling any pain maybe because the anesthesia hadn't worn off. 4 hours after my procedure a physical therapist was assigned to help me move and get out of bed, she explained that it was to eliminate the development of any blood clots. I was hesitant because I wasn't ready. She was persistent. When I finally got out of bed I felt a pain shoot down my leg and I told her I had enough and wanted to got back to bed. That night I could feel my leg getting hot and throbbing. In the morning I was in pain and couldn't move my leg. I called to see my surgeon but I was told he was no longer available so an acting doctor came in and reviewed me. She told me that I was going to need physical therapy, even after I said something is wrong with my foot, she said, "don't worry its just swelling and I can see your foot move "( in a condescending way). The sciatic pain was from the knee down to the foot, I didn't realize that I had drop foot and ischemia. I was then shipped a day later to a nursing/ physical therapy home where i was there for 7 days. I was in so much pain that by the 7th day I refused to do anymore therapy because the pain was so severe. I finally got in contact with my surgeon. He then had my brought back via ambulance to get an MRI. He told me that I needed an emergency surgery that something needed to be corrected. I had to return back to the hospital on a sunday early morning, with no one in the surgery room (mind you this is a big hospital, and prior to the first surgery there were several dozen people around). I was so scared, those that did attend my second surgery was a nurse, an anesthesiologist, the Dr and his assistant, it was a far different experience in the first time. The second surgery required that I get local anesthesia. When I came out the Dr said that the nerve was all bunched up and that he had to replace the ball of the hip with a smaller one. He said that my nerve and opening had a lot of scar tissue for the amount of days I had been in recovery. He said he adjusted it the best he could. The pain from the knee to the ankle went away but I still felt the sciatic pain from the ankles to my toes, and I was still experiencing drop foot. I was given to many pain meds, There were giving me all sorts of opiates and having me take Neurontin with each time upping the dose. After two weeks post second surgery I was sent home. I had a nurse come to check up on my for two more weeks. The realization that my life has changed was suddenly hitting me, depression was setting in, the pain was so severe that I was going insane, I couldn't sleep I was exhausted mentally physically emotionally. I kept on asking the Dr's what can I do to fix all this, the reply was, time! Almost a month post surgery I could barely feel my shin. I requested a nerve test, the Dr put in very larger needles to test never, and I couldn't even feel the needles driving into my shin and calf. He said it will be a few days till I get the result. When I called to find out the results of my test, I explained to him that I was experiencing throbbing, swelling, hot and cold near my Pelvis, he suggested I go to the hospital. I found out that I have a blood clot and that I now need to be on Coumadin for six months. I asked why I wasn't put on a blood thinner for several months after my surgery knowing that I had sciatica and drop foot, and that mobility might be an issue, there was no exclamation given. As it stands I am now having to walk with the brace, take 40 mg of opiate a day, take 2700 mg of Neurontin, 5 mg of Coumadin, watch and constrict my diet, not take supplements and other medications that I need for my body. The icing on the cake is I am receiving bills that my insurance and the hospital won't cover for the mistake that was made during the total hip replacement and physical therapy. All I have now is prayer and support from my family and friends and hope that recovery is soon.
  • Anonymous
    amy gimperleg
    May. 04, 2014
    so i've acquired foot drop after my 3 rd back surgery, it took me 4 months to get help to get an AFO and then another 2 weeks to get it so now finally 5 months post op from L4, L5, S1 fusion I can only say...my back still hurts and this foot/leg (asshole leg is my techincal term) are on my last nerve! the AFO is really making a difference for walking and I...
    RHMLucky777
    Read More
    so i've acquired foot drop after my 3 rd back surgery, it took me 4 months to get help to get an AFO and then another 2 weeks to get it so now finally 5 months post op from L4, L5, S1 fusion I can only say...my back still hurts and this foot/leg (asshole leg is my techincal term) are on my last nerve! the AFO is really making a difference for walking and I can actually move around but geez buying shoes is so difficult and trying to adjust it while not being able to bend is also a great time. I can't live with my foot cementing itself to the floor every step I take so I guess i'm gonna have to deal...totally over it!
  • NascarGirl2414
    Apr. 05, 2014

    I have had it for a very long time probably 5-7 years now,I'm not sure mine isn't getting worse.But they haven't found out the real cause for my foot drop yet that I believe,I have foot drop in both feet they first thought it was my back because supposely it was bad enough to have emgerency back surgery well now looks like the doctor did me wrong and I might...

    RHMLucky777

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    I have had it for a very long time probably 5-7 years now,I'm not sure mine isn't getting worse.But they haven't found out the real cause for my foot drop yet that I believe,I have foot drop in both feet they first thought it was my back because supposely it was bad enough to have emgerency back surgery well now looks like the doctor did me wrong and I might not needed the surgery but that is after he did a 2nd surgery to help with back and leg pain witch the pain came back after 2-3 months.I'm still trying to find a doctor to really find out what caused my foot drop cause the surgery didn't help me with the foot drop and it doesn't seem much doctor's know much about foot drop not from where I live anyways.I do know with all the research I have done on foot drop your knee replacement surgeries could had caused the foot drop because they could had pinched a nerve or nerves,if that is the case they can go back in and unpinch it before any real damage accours...Best of luck if you would like to talk about the foot drop more with me cause I really know a lot about it just email me and I'll help as much as I can.... God Bless and yes I know it really really sucks hang in there though!!

  • Linda
    Nov. 11, 2013

    Hi Guys,

     

    I'm a recent graduate of Product Design and Technology at the University of Limerick, Ireland. In my final year of study is was brought to my attention the lack of design in current solutions for foot drop. I have spent over a year redesiging a 'brace' (that no longer looks anything like a brace) to treat the symptoms of foot drop without taking...

    RHMLucky777

    Read More

    Hi Guys,

     

    I'm a recent graduate of Product Design and Technology at the University of Limerick, Ireland. In my final year of study is was brought to my attention the lack of design in current solutions for foot drop. I have spent over a year redesiging a 'brace' (that no longer looks anything like a brace) to treat the symptoms of foot drop without taking away from your comfort or style. 

     

    I cannot continue my work without talking to foot drop users. I want to design something that YOU want so please help me. Please contact me at: lindahiggins4@gmail.com. I would really appreciate any feedback you could give me.


    Thanks and Kind Regards, 

    Linda Higgins 

     

     

  • Anonymous
    jenny
    Aug. 12, 2013

    Jenny

      Hi I have been suffering with foot drop gor 4 years now. I had a nerve graft operation

    Bbut this was not successful.  The pain just seems to be getting worse at the moment 

    And my good foot is slso getting very very painful due to taking all the pressure 

    I am feeling really down at the moment nobody seems to understand what its...

    RHMLucky777

    Read More

    Jenny

      Hi I have been suffering with foot drop gor 4 years now. I had a nerve graft operation

    Bbut this was not successful.  The pain just seems to be getting worse at the moment 

    And my good foot is slso getting very very painful due to taking all the pressure 

    I am feeling really down at the moment nobody seems to understand what its like living

    With this I try yo carry on as normal but its getting harder and harder. 

    • Anonymous
      Gram
      Aug. 18, 2013
      Dear Jenny and all who suffer with foot drop, I, too, have foot drop after hip replacement. In two and a half years since the surgery i have taken most of the meds mentioned in the forum and been on oxycontin the entire time. I have been cutting back on pain meds the past year and hope to continue until i get "myself"back! I have developed CRPS type 2 and I...
      RHMLucky777
      Read More
      Dear Jenny and all who suffer with foot drop, I, too, have foot drop after hip replacement. In two and a half years since the surgery i have taken most of the meds mentioned in the forum and been on oxycontin the entire time. I have been cutting back on pain meds the past year and hope to continue until i get "myself"back! I have developed CRPS type 2 and I have gone through most of the futile programs to escape this fate. I've been told my sciatic nerve was damaged beyond repair and I will never get it back. So I realize that I want to live the best and most productive life I can. Yes, even with the constant pain and aggregation of not being the way I used to be. I finally weighed my options! Further surgery will probably put me at more risk (I'm not very lucky) and so that's out. Lyrica and Nuerontin put me to sleep so I might as well be dead. Oxycodone helps the pain a little but changes who I am so I will be free of that one in 6 months by reducing my prescription by 10 mg a month. By the way, pain narcotics can actually begin causing you some of the pain. At least that's what I learned. I found a brace called Otto Bock that helps me walk. It is my favorite aid having tried a few others. It doesn't hurt my ankle and I wear it most of the day. Yes, it hides under my pants leg and yes, I have to wear walking sneakers but I can walk. It doesn't stop all pain but it sure helps me focus and get somewhere and do something to distract my brain from the pain. I have a little three wheel electric scooter that I use for shopping or trips to the dog park. It disassembles into five smaller parts and fits in the trunk. My angel husband gets it together and disassembles it in a few quick moves. I am trying to Change My Brain and trick it into ignoring the messages of pain and immediately distracting myself with doing something useful and good for someone else. I really enjoy water therepy once or twice a week. You almost forget your disability when you can exercise with the water supporting you. It's hard, you have to be stubborn and persistent. But you can learn a few good tricks and live the best life available. Prayer helps! Let me know if you have any new tricks, I'm always open to learning. Gram
    • frank
      Jun. 03, 2014

      I also have foot drop i am active duty special operations and inured my knee during a static line parachiting full mission profile. the military sent me for a nerve transfer that was not very successful.  I have been through several rehab programs and did not have much luck until i went to the Andrews Institue in Gulf Breeze Athletes Performance Institue...

      RHMLucky777

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      I also have foot drop i am active duty special operations and inured my knee during a static line parachiting full mission profile. the military sent me for a nerve transfer that was not very successful.  I have been through several rehab programs and did not have much luck until i went to the Andrews Institue in Gulf Breeze Athletes Performance Institue in Gulf Breeze, FL.  The progam was for professional athletes but an organizaton called the Eagle Fund paid for my treatment.  My foot drop was not healed but how i strenthened my body to help assist my deficit and learned how to apply didactic techniques to help correct improper gait mechanics helped a great deal.

  • Keshmomof3
    Mar. 03, 2012

    Hi! Im Keisha and I suffer from drop foot as the result of an automobile accident in May of 2008. I also had a hip and knee injury in the same leg. The pain over the yrs is horrible! Ive carried 3 children(was pregnant with the first at the time of the accident) and just the adding weight was too much to bear on that leg! The doctors cant do anything because...

    RHMLucky777

    Read More

    Hi! Im Keisha and I suffer from drop foot as the result of an automobile accident in May of 2008. I also had a hip and knee injury in the same leg. The pain over the yrs is horrible! Ive carried 3 children(was pregnant with the first at the time of the accident) and just the adding weight was too much to bear on that leg! The doctors cant do anything because they dont know what to do! Its hard because i cant even run and play with my children! Im only 26 and I was 22 at the time and I feel like my youth was taken away and my fashion!

  • SerenityChic29
    Feb. 09, 2012

    I had a Tethered cord release in 1987 at the age of 11 and as a result had drop foot. It got so bad that I was walking on the side of my foot.

     

    So I ended up having a Posterior Tibialis Tendon transer (took a muscle from the back of my calf and moved it to the front so I could lift my foot up). But I had walked on the side of my foot so much that I was...

    RHMLucky777

    Read More

    I had a Tethered cord release in 1987 at the age of 11 and as a result had drop foot. It got so bad that I was walking on the side of my foot.

     

    So I ended up having a Posterior Tibialis Tendon transer (took a muscle from the back of my calf and moved it to the front so I could lift my foot up). But I had walked on the side of my foot so much that I was used to it so the surgery didn't matter bc I was still twisting my anke. My ankle wasn't stable no matter how flat the floor was even if I was barefoot.

     

    So the following year I had a Triple Arthrodesis (surgical fusion of the Talocalcaneal, Talonavicular, and Calcaneocuboid joints in the foot/ankle).

     

    Although I can't now or ever wear high heels, I no longer twist my ankle or walk on the side of my foot. I can lift my foot up but I can't push down.

     

    It was a life changing surgery.

     

    Serenity

  • Anonymous
    clyde
    Feb. 09, 2012

    Anyone start getting tingles and pain after urnating. I get tingles, the pain starts from my both my knees goes up my thighs, up the sides of my body and out the sides of my arms to the elbow when I urinate.

     

    Tingles are felt when urinating then it turns to a burninging, it's a icey hot cold feeling, it feels as if it is running thru my blood. Kinda like...

    RHMLucky777

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    Anyone start getting tingles and pain after urnating. I get tingles, the pain starts from my both my knees goes up my thighs, up the sides of my body and out the sides of my arms to the elbow when I urinate.

     

    Tingles are felt when urinating then it turns to a burninging, it's a icey hot cold feeling, it feels as if it is running thru my blood. Kinda like when they say "this will feel cold going in" at the Doctors. This is way more instense and hot more than it is cold.

     

    Now I do have A kidney stone and a hernia I have had for years. Anyways anyone have the above symptoms when urinating?

  • Anonymous
    Eyda
    Nov. 06, 2011

    Hi there, 
    maybe your foot drop issue has been settled by now.
    But in case any of you who wonder how to treat foot drop problem,

    I would like to share my story to you guys.

    I had my total bone replacement surgery of my lef leg due to Osteosarcoma.
    Limb sparing surgery was successfully done however I develop foot drop problem.
    According to my doctor, there's...

    RHMLucky777

    Read More

    Hi there, 
    maybe your foot drop issue has been settled by now.
    But in case any of you who wonder how to treat foot drop problem,

    I would like to share my story to you guys.

    I had my total bone replacement surgery of my lef leg due to Osteosarcoma.
    Limb sparing surgery was successfully done however I develop foot drop problem.
    According to my doctor, there's nothing much he can do to fix it except to provide me AFO to aid me during walking.

    The AFO strap deformed the shape of my shin after using it few months.

    It was by accident that I had my acupuncture treatment for my foot drop problem. Initially, I went to the chinese traditional medical centre to get relief of my stiffed back. Instead of just treating my back, the acupuncturist noticed my walking problem and suggested me to try the treatment for my leg too.

    Suprisingly, not even a day after he poked me with countless needles, my toe started to move upwards. I then continue few more treatments (about 4-5 times) until I can just keep my AFO somewhere I couldn't remember, hehe.

    My point is..as this is something to do with the nerve problem, acupuncture might be the best treatment you can get to be free from dragging your foot while walking! Good luck people! 

    • Anonymous
      karla brown
      Nov. 13, 2011

      hi i think its amazing to hear all these stories... i never heard of drop foot until july 25 2011 after a second hip replacement.. woke up numb from knee down the dreaded drop foot.. and yes same responce from my dr.. well if it dont come back in three years, there are surgiries !! what three years.. iv'e worked in a paper factory for 21 years..  where...

      RHMLucky777

      Read More

      hi i think its amazing to hear all these stories... i never heard of drop foot until july 25 2011 after a second hip replacement.. woke up numb from knee down the dreaded drop foot.. and yes same responce from my dr.. well if it dont come back in three years, there are surgiries !! what three years.. iv'e worked in a paper factory for 21 years..  where a brace.. can i ever do my demanding job again? see a second nuero dr. on the 21 of nov.. another emg.. don;t know what to do... has anyone else gone back to a pysical job.after foot drop.. heavy lifting.. standing and walking a 8 to 12 hour shift 40 to 60 hour weeks.. bending twisting pushing pulling heavy rolls of paper up to 800 lbs... i loved my job.. now i can barley get around ... praying for a miricle.good luck to all with this horrible afliction.............

    • Anonymous
      Anonymous
      Dec. 13, 2011

      Had hip replacement on Oct 7, 2011.  Woke up with drop foot.  Hip is great but foot and ankle pain is unbearable.  Wearing AFO part time.  Full time makes the foot very heavy and sore.  Just started neurontin this week to see if it will help the nerve pain. I have had a total life change.  I cannot sit comfortably to watch...

      RHMLucky777

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      Had hip replacement on Oct 7, 2011.  Woke up with drop foot.  Hip is great but foot and ankle pain is unbearable.  Wearing AFO part time.  Full time makes the foot very heavy and sore.  Just started neurontin this week to see if it will help the nerve pain. I have had a total life change.  I cannot sit comfortably to watch tv or read because of the constant pain or sleep well at night without taking pain meds which I try not to do.  Orthopedist just keeps telling me foot will come back but nerve damage takes a long time to heal. Nobody understands the pain I am in! This is a nightmare!!!

  • Jessica
    Sep. 07, 2011
    I have been in contact with several people from the forum and would like to ask that anyone interested please take our survey.  
    We are a company that is currently developing a new brace for foot drop and would appreciate feedback on your experiences so far, what is important to you in a brace, and other important information...
    RHMLucky777
    Read More
    I have been in contact with several people from the forum and would like to ask that anyone interested please take our survey.  
    We are a company that is currently developing a new brace for foot drop and would appreciate feedback on your experiences so far, what is important to you in a brace, and other important information (you don't have to share any personal information at all - if you wish you have the opportunity to leave your email address, but that is optional, of course.
    Please help us create a brace that is better than what is currently available.  Thank you!
    If you know anyone else, personally or online, that also has foot drop please ask them to complete this survey as well. We're trying to get as much information before we prototype our brace.
    Thank you,
    Jessica
    footmind@gmail.com
    jessica@footmind.com
  • Jessica
    Aug. 15, 2011

    I accidentally found this discussion board and am so glad I did.  

     

    I work for a medical device company and we are developing a new brace for drop foot that will allow for users to wear it under the shoe, with sandals, and even barefoot and still provide the lift and support required. 

     

    Like I said, we're in the process of refining the...

    RHMLucky777

    Read More

    I accidentally found this discussion board and am so glad I did.  

     

    I work for a medical device company and we are developing a new brace for drop foot that will allow for users to wear it under the shoe, with sandals, and even barefoot and still provide the lift and support required. 

     

    Like I said, we're in the process of refining the product right now - but it is scheduled to be ready for release by the end of this year!  If you'd like to email me your contact information I would be happy to get ahold of you when it's ready.  If others on this board - or if you know others who have drop foot - would like to do the same I would love to help out.  

     

    I really hope that this new design helps out those that have to struggle and be in pain.

     

    Thanks,

    Jessica 

     

    My email is footmind@gmail.com

  • Anonymous
    julie
    Dec. 14, 2010

    My Mom has foot drop associated to her ALS disease and the fact that we weren't told about exercise just fitted for braces. They re-made her braces twice and never mentioned Physical therapy. Now hers is very severe, the doctors and nurses during an inpatient stay earlier this year said it's the worst they've seen. she has trouble falling asleep at night...

    RHMLucky777

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    My Mom has foot drop associated to her ALS disease and the fact that we weren't told about exercise just fitted for braces. They re-made her braces twice and never mentioned Physical therapy. Now hers is very severe, the doctors and nurses during an inpatient stay earlier this year said it's the worst they've seen. she has trouble falling asleep at night even with sleeping pills because we can't get her comfortable. it is very sad. They say there's no need in surgery so she just suffers and nobody has offered her any suggestions for relief. Isn't there some medicine or something? She's way beyond braces and PT.

  • Anonymous
    Jani
    May. 16, 2009

    Hi I have drop foot and would really like to talk with someone.. One on one but am not sure how to get to that point considering they dont want you to put email addys  on here... Really need some one on one time about drop foot think im goin insane most of the time from the different feelings... Not to sure how to get back here either... lol

     

    • Anonymous
      Diarmuid
      Jun. 25, 2009

      Hi everyone. Right ive had a right foot drop for over 10 years after a very bad accident. I have taken all the tablets going Lyrica Neurontin, Ampitripiline had nerve blockers, had a pain management course and now finally i'm getting a device called a spinal cord stimulator implanted into my spine from a pain management specialist. After this I am getting a...

      RHMLucky777

      Read More

      Hi everyone. Right ive had a right foot drop for over 10 years after a very bad accident. I have taken all the tablets going Lyrica Neurontin, Ampitripiline had nerve blockers, had a pain management course and now finally i'm getting a device called a spinal cord stimulator implanted into my spine from a pain management specialist. After this I am getting a tendon transplant so I can finally lift my foot. There is also a new thing out called a neve transplant maybe check that out. If you want to contact me you will find my email address at the bottom of this page http://www.orielzone.com/form.html

    • Anonymous
      Anonymous
      Sep. 01, 2009

      Hi there! Been suffering for footdrop since 1996 due to a vehicular accident. My left foot is almost paralyzed. Numbness & pain keep me awake at night most of the times. I've seen a lot of doctors, been to ortho, neurologists but did not get a lot of help to ease the pain. Been advised that there is nothing they can do as nerves have been damaged and...

      RHMLucky777

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      Hi there! Been suffering for footdrop since 1996 due to a vehicular accident. My left foot is almost paralyzed. Numbness & pain keep me awake at night most of the times. I've seen a lot of doctors, been to ortho, neurologists but did not get a lot of help to ease the pain. Been advised that there is nothing they can do as nerves have been damaged and repaired.

       

      Been trying to think of going to acupunctr? I am always searching for an answer...for a cure, for all this pains. I am only 30 years old and I believe someday, I will find an answer. I will also discuss the options to my doctor mentioned on your email. Thanks!

    • Anonymous
      tumburra
      Oct. 28, 2009

      I have foot drop from hip replacement May 2009. Can walk with a brace and am doing hydrotherapy twice weekly. Does the sciatic nerve heal? Apparently the nerve was stitched during operation, but I was taken back to theatre two days later - reopened and the nerve released. 6 months on I am not noticing any changes.

    • Anonymous
      angie
      Jul. 17, 2010

      Hello,

        my husband had a right anterior hip replacement march of 2009.  He has drop foot also from the Ortho Dr over streching the siatic nerve.  we have been told that it ''should repair itself" because nerves regenerate over a looong time period, ruffly 1mm each month.  I hope your condition improves.  Keep me posted as I will...

      RHMLucky777

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      Hello,

        my husband had a right anterior hip replacement march of 2009.  He has drop foot also from the Ortho Dr over streching the siatic nerve.  we have been told that it ''should repair itself" because nerves regenerate over a looong time period, ruffly 1mm each month.  I hope your condition improves.  Keep me posted as I will you if we discover any new info.  All the best to you!!

    • tumburra
      Jul. 18, 2010

      Almost fifteen months now since surgeon damaged my sciatic nerve resulting in drop foot. Nerve conduction tests show very little improvement in past six months and have been told if no further improvement by January, 2011 I have a choice of tendon tightening to keep toes off the ground - no more brace - maybe a nerve operation or his advise - accept it and...

      RHMLucky777

      Read More

      Almost fifteen months now since surgeon damaged my sciatic nerve resulting in drop foot. Nerve conduction tests show very little improvement in past six months and have been told if no further improvement by January, 2011 I have a choice of tendon tightening to keep toes off the ground - no more brace - maybe a nerve operation or his advise - accept it and get on with it!!!!. Easy for surgeon to say.  I am doing hydrotherapy twice a week to keep other muscles moving but really no improvement. The brace (afo) was custom made and fitted for me three weeks after surgery but without it can only hobble around. Still haven't come across anyone who has healed.

    • Anonymous
      cat
      Oct. 15, 2010

      Hi,

       

      I had a hip replacement in Feb 09 which caused complete foot drop in my right leg. It was very painful at first. Tramadol really helped for the nerve pain. I found my ankle started hurting a lot and would recommend a good pair of insoles, this really helped. I noticed while on holiday in July this year that my foot looked like it was lifting up (a...

      RHMLucky777

      Read More

      Hi,

       

      I had a hip replacement in Feb 09 which caused complete foot drop in my right leg. It was very painful at first. Tramadol really helped for the nerve pain. I found my ankle started hurting a lot and would recommend a good pair of insoles, this really helped. I noticed while on holiday in July this year that my foot looked like it was lifting up (a tiny amount, like 2mm.) in the space of three months i can now walk without my foot support. my foot wont life as high as the other and i cannot raise my toes but i dont use an AFO now unless i am going out on the town! i can see it getting better all the time.

       

      I could not move my foot at all for 18 months. nerve conduction tests showed it was severly damaged however MRI didnt pick up anything. they think it was probably stretched.

       

      I just wanted to give people some hope, i had given up hope!

    • Anonymous
      rockdan
      Nov. 04, 2010

      February 2009 must  be the month for orthopedics to get careless!! I had a total hip done and the moment I came out of surgery I had pain beyond belief. It is now 18+ months later and I still cannot lift my foot. The pain is from my knee down. The only medications that can possibly help leaves me like a zombie. If you want to live anywhere near normal,...

      RHMLucky777

      Read More

      February 2009 must  be the month for orthopedics to get careless!! I had a total hip done and the moment I came out of surgery I had pain beyond belief. It is now 18+ months later and I still cannot lift my foot. The pain is from my knee down. The only medications that can possibly help leaves me like a zombie. If you want to live anywhere near normal, the pain has to be dealt with. This has changed my life drastically. I was always active and now I am sedentary. I have to decide whether I want to suffer the consequences of activity or pass it up.

      Brace wise I have gone from a AFO to a dosi brace but I have to be very careful walking. Since my surgery I have fallen, sprained my ankle twice, had 2 foot fractures and a nearly knocked myself out falling into a wall. Noone knows what it is like to have to "think" where your foot is everytime you move. My neurologist says I probably will never get use of my foot back due to the damage. I am currently looking into acupunture. Anyone had any luck with it?

    • tumburra
      Nov. 04, 2010

      My surgery was in May 2009 still no improvement but sciatic nerve was sewn through by surgeon. did hear of person recently who had been in excruciating pain for 18 months after surgery finding a doctor who released his nerve which was caught in the hip joint - instant relief from the pain although still has drop foot. I feel that maybe in some positions I can...

      RHMLucky777

      Read More

      My surgery was in May 2009 still no improvement but sciatic nerve was sewn through by surgeon. did hear of person recently who had been in excruciating pain for 18 months after surgery finding a doctor who released his nerve which was caught in the hip joint - instant relief from the pain although still has drop foot. I feel that maybe in some positions I can lift my foot from the ankle off the ground slightly but can't lift the toes - hopefully this is the start of something good.

    • rockdan
      Sep. 07, 2011

      has anyone of you considered amputation above the ankle? I'm 2 1/2+ years of not having even 1 good day!

    • Jeanne  Sumstine
      May. 25, 2011

      How long ago has it been?  Has it come back as I was told the same thing and it has been 14 years.  I just had a 7 hour surgery (done right!)  Point being did he lie to you.  My doc did, 14 years ago.

    • Anonymous
      Anonymous
      Nov. 23, 2009

      Hi, I also have drop foot for a few years now after an accident. Wondering if you had your surgery and if its working out for you?

    • Jeanne  Sumstine
      May. 29, 2010

      Hi Jani my aname is Jeanne and I used to be a TaeKwonDo Instructor. I had my own school and before that taught for the YMCA. Until the fateful day I had  a one level L4/L5 fusion. The one decision in my life I wish I could reverse. This was 13 years ago. I came out of surgery in severe pain not my back but my right leg. The surgeon cut the nerve as...

      RHMLucky777

      Read More

      Hi Jani my aname is Jeanne and I used to be a TaeKwonDo Instructor. I had my own school and before that taught for the YMCA. Until the fateful day I had  a one level L4/L5 fusion. The one decision in my life I wish I could reverse. This was 13 years ago. I came out of surgery in severe pain not my back but my right leg. The surgeon cut the nerve as best we can tell. At that time You could not find anyone who shared the same nightmare. My dream was to find a website such as this that we who had a common thread could talk to each other. I am writing to you Jani, because you mentioned meeting someone face to face, I too wanted the same thing. No one talked of the problem in 1997 but we are not coming speaking out.  We tried suing which went no where. The dr who butchered not just me but many others moved from KS City to New York.  I feel very alone my family does not understand (except one sister and my husband) He has put up with 13 years of worry about me. What state are you in Jani? I think it would be great if we could possibly get a support group going? A forum is nice, but putting the blame on the drs who do the damage and just walk away not helping a soul for fear of a lawsuit or just hurting their practice, as it should.  I would be interested in what others thought.  It is done with MS, cancer well I could go on, I think many just suffer in silence since there is no cure for nerve damage done by a careless dr.  What happened to "FIRST DO NO HARM"?  I will now be silent and God Bless all of you, we deserve it. Jesus did heal the lame and the paralyzed. Prayer is a terrific method of calming and letting others know we care.  Sincerely, Jeanne

    • Lucy
      Jul. 01, 2010

      Hello, I am in pain one year after back surgeon and foot drop. My surger- buther cut sensory of nerve L5 and my foot drop. Surger- butcher hided, promised improvement after 6 months. Until now I still have foot drop and more pain then before surgery also I can not to find orthopedic who  could make  for...

      RHMLucky777

      Read More

      Hello, I am in pain one year after back surgeon and foot drop. My surger- buther cut sensory of nerve L5 and my foot drop. Surger- butcher hided, promised improvement after 6 months. Until now I still have foot drop and more pain then before surgery also I can not to find orthopedic who  could make  for my leg AFO to support. Usually suggest prefabricate AFO  same as amazon sale, only for 5 time more expensive then amazon sale. No groupp support, no pain medicine,no pain management. I help myself mentally,spiritually, physically. Inflammation reduce garlic, canyon paper, turmeric

      I am doing research according my condition nothing so far, stem cells is not in my case after butchery, if some body have foot drop in other case there a lot of options for treatments.

       

      I still praying, praying..

    • angie
      Jul. 17, 2010

      i wish i had advice for you.  I hope your drop foot will improve.  My husband had hip surgery a year and four months ago and now has drop foot.  I am so devestated, upset, fustrated and wish it would heal.  We have had no help with DR except they keep saying that nerves repair themselfs in time. I hate what my husband is going through...

      RHMLucky777

      Read More

      i wish i had advice for you.  I hope your drop foot will improve.  My husband had hip surgery a year and four months ago and now has drop foot.  I am so devestated, upset, fustrated and wish it would heal.  We have had no help with DR except they keep saying that nerves repair themselfs in time. I hate what my husband is going through and I feel for everyone that has drop foot.  All the best. 

  • Anonymous
    Janice M Kilgore
    Apr. 04, 2009

    Hello, I have had an unfortunate accident that also left me with a dropped foot. February 12th is a date that I will always remember. I too for weeks screamed and cried due to the pain and constant burning in my foot. I have found that a constant regimeine of Lyrica, Keppra and a new machine called Empi has changed everything for me. I can move about without...

    RHMLucky777

    Read More

    Hello, I have had an unfortunate accident that also left me with a dropped foot. February 12th is a date that I will always remember. I too for weeks screamed and cried due to the pain and constant burning in my foot. I have found that a constant regimeine of Lyrica, Keppra and a new machine called Empi has changed everything for me. I can move about without pain and the best part is that my quality of life has greatly inproved. Check theses things out and I hope that it will be a blessing for you bas well.

    MG

  • Anonymous
    happyfoot
    Jul. 31, 2008

    Hi, I just found your comments last week.  You may not be checking in anymore.  Just wanted to see how you've progressed since your last posting.  I've been dealing with foot drop for the past year and 1/2, caused in the exact same manner (Hip Revision), but have learned so much and am well on my way to recovery. 

     

    I sincerely hope...

    RHMLucky777

    Read More

    Hi, I just found your comments last week.  You may not be checking in anymore.  Just wanted to see how you've progressed since your last posting.  I've been dealing with foot drop for the past year and 1/2, caused in the exact same manner (Hip Revision), but have learned so much and am well on my way to recovery. 

     

    I sincerely hope you are as well.  Please write if you would like to share experiences.

  • Anonymous
    Joann
    Apr. 20, 2008

    Hi

    I am 36 years old and I have had a left foot drop for just over a year.  It started one day when I had to walk about 2 miles ( I was also about 5 mos. pregnant) but then it went away.  It came back though right after I delievered my daughter, last february, and has not gone away.  I have had a total of 6 MRI's, 3 of my lower back, 2 of my...

    RHMLucky777

    Read More

    Hi

    I am 36 years old and I have had a left foot drop for just over a year.  It started one day when I had to walk about 2 miles ( I was also about 5 mos. pregnant) but then it went away.  It came back though right after I delievered my daughter, last february, and has not gone away.  I have had a total of 6 MRI's, 3 of my lower back, 2 of my sciatic nerve ( to rule out any nerve tumors) and 1 of my brain.  Everything is coming back NORMAL.  I really am glad that everything is coming back normal but I get very depressed and aggravated because it is just so annoying!!!! Also, I've had NO pain, (except for maybe a little twing in my big toe) some tingling and numbness in my toes.  Doctors, I beleive are stumped.  They have said I have idiopathic nerve damage (meaing no reasoning) or sciatic neruopathy is the latest.  I have two young children and I just want to be able to walk normal again!  I guess I should count my blessings that it is not serious, yet.  I was thinking about acupuncture, herbal or vitamins.  Has anyone every had any luck.  God Bless and Good Luck to everyone.

    • Cassie
      Jun. 24, 2013

      Hi Joanne!  I hope you are doing okay.  You posted back in 2008 so I'm not sure how you're holding up..  My heart goes out to those who suffer from drop foot/foot drop and I wish I could personally do something to help.  The best I can do is tell people about a brace I've seen around recently called the Elevate Drop Foot Brace.  It...

      RHMLucky777

      Read More

      Hi Joanne!  I hope you are doing okay.  You posted back in 2008 so I'm not sure how you're holding up..  My heart goes out to those who suffer from drop foot/foot drop and I wish I could personally do something to help.  The best I can do is tell people about a brace I've seen around recently called the Elevate Drop Foot Brace.  It seems so much better than all the typical plastic AFOs out there.  Anyway, you should check it out!  

       

      Sincerely,

      Cassie

  • Anonymous
    Shirley
    Apr. 16, 2008
    My Sister-in-Law had hip replacement surgery over a year ago. she is living in excruciating pain in her right leg and foot. She does have drop foot too. What kind of pain medications and how much are you taking? She cries all the time and is afraid to be alone. It is aweful. Please, if anyone has completely recovered, especially from the pain, after a year,...
    RHMLucky777
    Read More
    My Sister-in-Law had hip replacement surgery over a year ago. she is living in excruciating pain in her right leg and foot. She does have drop foot too. What kind of pain medications and how much are you taking? She cries all the time and is afraid to be alone. It is aweful. Please, if anyone has completely recovered, especially from the pain, after a year, please respond to this. I feel horrible for her. Thanks, Shirley
    • Anonymous
      angie
      Jul. 17, 2010

      Hello I hope this post finds you.  My husband has had foot drop for the last 1 and 4 months resulting from having had anterior hip replacement at the age of only 27.  We are completley fustrated becasue no one ever has any answers.  We are hopeful that the nerves will regenerate and heal as they are supposed to, but who knows.  I wonder...

      RHMLucky777

      Read More

      Hello I hope this post finds you.  My husband has had foot drop for the last 1 and 4 months resulting from having had anterior hip replacement at the age of only 27.  We are completley fustrated becasue no one ever has any answers.  We are hopeful that the nerves will regenerate and heal as they are supposed to, but who knows.  I wonder if anyone has had drop foot for years and saw some slight improvment.  Let me know how your cousin is doing.All the best

    • Judy Kamps
      Nov. 05, 2010

      Hi....Unfortunately I've had drop foot for over 4 years.  I had emergency back surgery living in Dubai and came out of this with my back better but left with

      drop foot. The doctor said in time the nerve would come back but after 4 years

      nothing has changed.  I was a very active athlete and unfortunately this has hurt me playing sports. ...

      RHMLucky777

      Read More

      Hi....Unfortunately I've had drop foot for over 4 years.  I had emergency back surgery living in Dubai and came out of this with my back better but left with

      drop foot. The doctor said in time the nerve would come back but after 4 years

      nothing has changed.  I was a very active athlete and unfortunately this has hurt me playing sports.  Some sports I can't do at all.   I've also been to several neurologists, pain management doctors, orthopaedics and acupuncture and nothing has helped.  I stay busy during the day which helps not to think of the  pain but I dread bedtime as that's when my leg and foot flare up the most and I can't sleep.  My heart goes out to each of you dealing with this problem.  Praying for you all. 

      Judy

    • lady
      Sep. 04, 2011

      I had a total hip replacement and when i woke up after the surgery my right leg was numb from the knee down.  i was told by the dr, that a nerve was over stretched and it would heal in time. i have so much pain and some days it is unbearable. It never lets up and i get little sleep, my pt says the nerves are coming back thats why all this pain.. right...

      RHMLucky777

      Read More

      I had a total hip replacement and when i woke up after the surgery my right leg was numb from the knee down.  i was told by the dr, that a nerve was over stretched and it would heal in time. i have so much pain and some days it is unbearable. It never lets up and i get little sleep, my pt says the nerves are coming back thats why all this pain.. right now the bottom of my feet hurt so bad. its hard to even wear my afo or put pressure on it.. i take nuerontin but it does little good.. i wish they would find some thing to help it. my foot swells up and makes things even worse. i wish i could sue.. it makes me so mad.

    • rockdan
      Sep. 05, 2011

      Wish I could give you good news but I have been 2 -1/2 years trying to get through 1  day without pain much less the nights. Doctors offer you narcotics but all that does make you a zombie. My choice is to live as good a life as I can and deal with the pain. Trust me some days it is not the easy. Especially if I have been up all night trying...

      RHMLucky777

      Read More

      Wish I could give you good news but I have been 2 -1/2 years trying to get through 1  day without pain much less the nights. Doctors offer you narcotics but all that does make you a zombie. My choice is to live as good a life as I can and deal with the pain. Trust me some days it is not the easy. Especially if I have been up all night trying to find some way to sleep. Getting out of bed in the morning knowing that I will have to find a way to move beyond the pain and try to be productive. Shame on the medical field for allowing a procedure that cripples people.

       

  • Anonymous
    Christine
    Apr. 08, 2008
    I am suffering from drop foot due to disc herniation as well.  Happened a few months ago.  Just had a hormone injection directly in my lower back.  They are hoping that it will reduce the swelling of the disc and take pressure off the nerve.  I don't know what I will do if this does not improve.  It's difficult to even walk...
    RHMLucky777
    Read More
    I am suffering from drop foot due to disc herniation as well.  Happened a few months ago.  Just had a hormone injection directly in my lower back.  They are hoping that it will reduce the swelling of the disc and take pressure off the nerve.  I don't know what I will do if this does not improve.  It's difficult to even walk and just a few months ago I was playing tennis and completely active.  Anyone try acupuncture?  Physical therapy?  I am willing to do anything that will help!
  • Anonymous
    Amy
    Jan. 22, 2008
    I got foot drop last summer from disc herniations at L5/S1.  I designed my own "brace" because that awful plastic afo the neurosurgeon prescribed made my ankle even weaker and was painful/uncomfortable to wear.  Has anyone looked at Dr. Nath's website or talked to him?
    • Anonymous
      Craig
      Dec. 02, 2008

      Try looking into a device called walkaide at www.walkaide.com

    • Cassie
      Jun. 24, 2013

      I've heard of a brace called the Elevate Drop Foot Brace and people seem to be raving about it.  You should check it out!  Hope you're doing better:)

  • Anonymous
    carrie
    Jul. 29, 2007
    HI i have just got this. Doctors wo'nt help meI HAVE HAD CT SCAN M.R.I.you name it i have had it. Ican't work.please help.
    • eeyore
      Aug. 08, 2007
          hi carrie,  so sorry to hear you have foot drop is it aresult of surgery?  i know exactly how you feel. your whole life is turned upside down and worse yet the drs. and theripists know nothing and have no answers for us. i am now having accupuncture but that is not helping either do you have a brace you can wear?  take care...
      RHMLucky777
      Read More
          hi carrie,  so sorry to hear you have foot drop is it aresult of surgery?  i know exactly how you feel. your whole life is turned upside down and worse yet the drs. and theripists know nothing and have no answers for us. i am now having accupuncture but that is not helping either do you have a brace you can wear?  take care and god bless....bonnie
    • Anonymous
      carrie
      Aug. 09, 2007
      I DONT NO WHAT IT IS FROM.It hit me out of the blue.I have it in both legs. All i no is i have a damage nerve . i can not work and i do have a brace. I need help but none yet. I have had it for  over a month . what about you ?
    • Anonymous
      carrie
      Aug. 09, 2007
      I DONT NO WHAT IT IS FROM.It hit me out of the blue.I have it in both legs. All i no is i have a damage nerve . i can not work and i do have a brace. I need help but none yet. I have had it for  over a month . what about you ?
    • Anonymous
      carrie
      Aug. 09, 2007
      I DONT NO WHAT IT IS FROM.It hit me out of the blue.I have it in both legs. All i no is i have a damage nerve . i can not work and i do have a brace. I need help but none yet. I have had it for  over a month . what about you ?
    • eeyore
      Aug. 10, 2007
         dear carrie, i have had foot drop for over a year in my left foot as a result of hip replacement surgery. so sorry to hear you have this in both feet. i wish i could help you!!!! i do know how you feel... do you have feeling or tingling in your legs or feet? do you have someone close you can talk to about this?  it is so sad the medical profession...
      RHMLucky777
      Read More
         dear carrie, i have had foot drop for over a year in my left foot as a result of hip replacement surgery. so sorry to hear you have this in both feet. i wish i could help you!!!! i do know how you feel... do you have feeling or tingling in your legs or feet? do you have someone close you can talk to about this?  it is so sad the medical profession just does not seem to care and they sure do not know what to say to us..please take care   god bless bonnie
    • Anonymous
      carrie
      Aug. 10, 2007
      Yes I have feeling in both legs . its like their a sleep. My daughter moved back to help me out.
    • eeyore
      Aug. 10, 2007
      hi carrie,  glad to hear your daughter is helping you out. we need loved ones near at this time.  i would think that if you have feeling that is good to me the side of my left leg and top of foot feels like my mouth does after the dentist deadens it to do dental work..best of luck to you and god bless
    • Anonymous
      becky
      Jul. 19, 2009

      Hi Carrie, 

      I just found this web site and wanted to know if you still have neuropathy in both legs and if you ever found out what you have?  I started getting drop foot in 2003.  The doctors didn't know what caused it so after many test they ruled out MS, cancer, and many other type diseases, and they said I had C.I.D.P.  I dealt with it...

      RHMLucky777

      Read More

      Hi Carrie, 

      I just found this web site and wanted to know if you still have neuropathy in both legs and if you ever found out what you have?  I started getting drop foot in 2003.  The doctors didn't know what caused it so after many test they ruled out MS, cancer, and many other type diseases, and they said I had C.I.D.P.  I dealt with it for the next 3 years wearing uncomfortable braces or walking with a cane.  In 2006 my liver and spleen became enlarged they thought I had Lymphoma or leukemia, again after many test no cancer was found.  Meanwhile my whole body was taken over by neuopathy, I couldn't walk or use my hands or even breath. I was put in the hospital for a month and they finally diagnosed me with P.O.E.M.S syndrome/Castleman's Disease.  They said it was all related to what started in 2003.  Castleman's Disease is a pre-lymphoma, so they treated it like cancer so after 8 rounds of chemo and a stem cell transplant in August 07 I am much better. I still have major drop foot in both feet, but I can walk again.  I found these great braces called the dorsistrap, google it.   My case is very rare and hopefully you are better and didn't have to go through what I did. 

      Best regards, Becky

      .

  • Anonymous
    David
    Jun. 29, 2007

    My mother had hip replacement recently and has a dropped foot. She is in major pain. What do you do for the pain. I have been using heat pads and ice packs and alcohol - drinks.


    She is unable to sleep and doctors just say it will get better. U said you've had surgery 1 yr ago, are you still experiencing pain? Able to walk?


    Hope ya feel better.


    David

    • eeyore
      Jul. 12, 2007
      dear david,  thank you for e-mailing me.  sorry to hear about your mother. i have started accupuncture for the pain this has helped some i have only had a few treatments  he has faith that he can help me. so far he has done more for me than md s have! the pain is awful!!!  i just try to deal with the pain which is hard. i have found...
      RHMLucky777
      Read More
      dear david,  thank you for e-mailing me.  sorry to hear about your mother. i have started accupuncture for the pain this has helped some i have only had a few treatments  he has faith that he can help me. so far he has done more for me than md s have! the pain is awful!!!  i just try to deal with the pain which is hard. i have found that heat or ice does not help me. please let me know how things are going. best of luck.. god bless bonnie b.
    • eeyore
      Jul. 12, 2007
      dear david, i do walk i work as a nurse in a nursing home so i do alot of walking i have fallen and it is so hard but i. have  to try. i do worry about losing my job. i have had 3 braces for my left foot. i am now using a dosi strap i found on the internet . i also have an otto bock brace this can be seen on the internet but i can not wear it ,,, due to...
      RHMLucky777
      Read More
      dear david, i do walk i work as a nurse in a nursing home so i do alot of walking i have fallen and it is so hard but i. have  to try. i do worry about losing my job. i have had 3 braces for my left foot. i am now using a dosi strap i found on the internet . i also have an otto bock brace this can be seen on the internet but i can not wear it ,,, due to hurting my foot worse this is very expensive  1300.00  does your mom have tingling when she touches her leg or foot? 
    • Anonymous
      david
      Jul. 13, 2007
      yes, tingling, shock, & intense pressure. thus far, she still has great diff falling asleep. i have found a brace from amazon that keeps the toes up --- this has helped a bit --- search(foot brace) cst around $60. Do have prod nme on hand, but it claims most comfortable on market. hope u feel better and appreciate yr response.
    • eeyore
      Jul. 13, 2007
      hi david, in my mind i think the symtoms your mom has is a good sign. it may mean the nerves are trying to come back. she may want to look into accupuncture.  i feel your frustration no one has answers. i feel so alone trying to deal with all of this!!!!  i am sorry she is having problems sleeping.. i look forward to your next e-mail... i think i...
      RHMLucky777
      Read More
      hi david, in my mind i think the symtoms your mom has is a good sign. it may mean the nerves are trying to come back. she may want to look into accupuncture.  i feel your frustration no one has answers. i feel so alone trying to deal with all of this!!!!  i am sorry she is having problems sleeping.. i look forward to your next e-mail... i think i will try to find that brace on amazon take care and thank you
    • Anonymous
      david
      Jul. 19, 2007
      Hi, sorry I haven't posted ...the brace that i mentioned,provides a little relief, but after a short while, she has to take it off from the pain. It's a brace for laying in bed. How is acupuncture going? I'msure insurance doesnt pay. what do u do for the pain??she still is having difficulty sleeping and takes several pain killers (mixd) to ease...
      RHMLucky777
      Read More
      Hi, sorry I haven't posted ...the brace that i mentioned,provides a little relief, but after a short while, she has to take it off from the pain. It's a brace for laying in bed. How is acupuncture going? I'msure insurance doesnt pay. what do u do for the pain?? she still is having difficulty sleeping and takes several pain killers (mixd) to ease the pain. Even with all the drugs, still painful. Ihope u are doing better. this is a nightmare! My aunt, my mother's sister is a PT (over 30 yrs exp) and says she has never seen a drp foot case in result of total hip replacement until recently. The surgeons are getting sloppy on account of greed and doing many procedures in a short duration. hope to hear from u. Feel better.
    • eeyore
      Jul. 20, 2007
      hi david, the pain is still there but not as bad as it was the first 6mo. after my surgery. and yes this is a nightmare!!!! and no one has any answers. accupuncture is going ok i do not have movement back to my left foot i guess i want a miracle...i agree with your aunt drs. do this and do not have to answer to anyone because of the paper you sign before...
      RHMLucky777
      Read More
      hi david, the pain is still there but not as bad as it was the first 6mo. after my surgery. and yes this is a nightmare!!!! and no one has any answers. accupuncture is going ok i do not have movement back to my left foot i guess i want a miracle...i agree with your aunt drs. do this and do not have to answer to anyone because of the paper you sign before surgery. they also do not care (i feel) but they sure get their money...i am very bitter..i am so glad i found you finally someone who understands  thank you  take care, hope to hear from you again  bonnie b.(eeyore) 
  • Anonymous
    kwimbi
    Jun. 24, 2007
    My back went out real bad a year ago and got foot drop.Went to ER and had emergency surgery to correct the problem.
    Nuerologist said it was the only way to get it back. I still have it a year later. I have been to 4 doctors who say there is nothing they can do.I walk alot to, its part of the job.I hurt all the time, and fall down all the time.I'm 35 yrs...
    RHMLucky777
    Read More
    My back went out real bad a year ago and got foot drop.Went to ER and had emergency surgery to correct the problem.
    Nuerologist said it was the only way to get it back. I still have it a year later. I have been to 4 doctors who say there is nothing they can do.I walk alot to, its part of the job.I hurt all the time, and fall down all the time.I'm 35 yrs old, I can't be falling down all the time. Boots help alot and exercise to.
    Hope you feel better
    • eeyore
      Jun. 24, 2007
      thank you for e-mailing me sometimes it helps to know i am not alone. i do not know what to do anymore it is hard to adjust. i miss not wearing sandals or cute shoes. also afraid of losing my job. take care and good luck eeyore
    • Judy Kamps
      Nov. 05, 2010

      Hang in there.  I know drop foot hurts and I miss wearing cute shoes.  But after having this for over 4 years I've managed to move past the shoes, I just

      look forward to the days when the pain isn't so bad.  Unfortunately its something doctors don't seem to know enough about and many don't care.  But people with drop...

      RHMLucky777

      Read More

      Hang in there.  I know drop foot hurts and I miss wearing cute shoes.  But after having this for over 4 years I've managed to move past the shoes, I just

      look forward to the days when the pain isn't so bad.  Unfortunately its something doctors don't seem to know enough about and many don't care.  But people with drop foot need to stick together and help each other work through those hard days.  So if you ever want to talk I'm here.  God Bless You.  jk

    • Angelgirl
      Jun. 21, 2011

      I feel the same way...I miss wearing flip flops and nice shoes, heels....I hate having foot drop big time and now I also have a neurological pain disorder called RSD now know as CRPS (type II)...good luck to you!!

    • Anonymous
      byeager
      Sep. 22, 2010

      I had to have emergency back surgery lumbar infusion about 4 years ago when I came out of surgery I had foot drop. Doctor said it would come back will 4 years later and I still have it. Now I have what feels like a spranged ankle and hurts like you know what after I have been on it for a while. Cannot walk long distance or stand for long periods of time and...

      RHMLucky777

      Read More

      I had to have emergency back surgery lumbar infusion about 4 years ago when I came out of surgery I had foot drop. Doctor said it would come back will 4 years later and I still have it. Now I have what feels like a spranged ankle and hurts like you know what after I have been on it for a while. Cannot walk long distance or stand for long periods of time and I too fall, it is really frustrating.

    • Jeanne  Sumstine
      Dec. 12, 2010

      The worst part of foot drop goes beyond the mounds of shoes I've collected but the constant fear of falling.  I have tripped in the most of public places and hate it.  I had a surgery and could walk fine up to the surgery itself.  When I got out 13 years ago I could not move my foot up.  The doctor ran... he never told me what happened....

      RHMLucky777

      Read More

      The worst part of foot drop goes beyond the mounds of shoes I've collected but the constant fear of falling.  I have tripped in the most of public places and hate it.  I had a surgery and could walk fine up to the surgery itself.  When I got out 13 years ago I could not move my foot up.  The doctor ran... he never told me what happened. Tried to sue no luck.  I feel for all of you who are dealing with this.  For those who it just happened to, keep up the hope   Jeanne

    • Deb
      Deb
      May. 25, 2011

      I also had surgery ( back ) , woke up with a dead foot. I was told it was foot drop and came out of the hospital wearing an AFO. The AFO kept my ankle from turning and kept my toes lifted somewhat but the brace itself caused me more pain as I developed Complex Regional Pain Syndrome ( CRPS )

    • Angelgirl
      Jun. 21, 2011

      Hi,

      I'm Carol, I got foot drop first and than I got CRPS II...they still don't know why but I have had multiple hip replacement surgeries and they said I had Peroneal Neuropathy. How is your foot drop and CRPS?  Are  you getting any special help for either?

       

    • Deb
      Deb
      Jun. 22, 2011

      I am being told repeatedly there is nothing that can be done for either problem. I just go to pain mngt. and get hard core drugs that only take the edge off, I am never without pain. I did finally talk them into a different kind of brace which elemenated a lot of the pain the old AFO caused. With the CRPS it sometimes mirrors itself. I am a lucky one (sarcasim)...

      RHMLucky777

      Read More

      I am being told repeatedly there is nothing that can be done for either problem. I just go to pain mngt. and get hard core drugs that only take the edge off, I am never without pain. I did finally talk them into a different kind of brace which elemenated a lot of the pain the old AFO caused. With the CRPS it sometimes mirrors itself. I am a lucky one (sarcasim) the 1st 3 toes on my right foot is almost as bad as my "bad foot" .Life isn't always fair and I am one to testify to that. I hope you are getting some relief.

      Deb

    • Angelgirl
      Jun. 24, 2011

      Hi again Deb,

      Thank you...I'm actually going into the city to Hospital for Special Surgery to see a RSD Pain Mgmt. doctor...I was going to get Ketamine...low dose infusion and than long story short that didn't happen.  I have a Dynamic Walk brace (AFO) by fillauer, it's way better than the plastic white afo's...they're awful and this one I can flex my...

      RHMLucky777

      Read More

      Hi again Deb,

      Thank you...I'm actually going into the city to Hospital for Special Surgery to see a RSD Pain Mgmt. doctor...I was going to get Ketamine...low dose infusion and than long story short that didn't happen.  I have a Dynamic Walk brace (AFO) by fillauer, it's way better than the plastic white afo's...they're awful and this one I can flex my foot down with, so I love it.  Thanks for getting back to me. Btw, are you on facebook?

    • Deb
      Deb
      Jun. 25, 2011

      Sounds like our braces may be similar. I went in and told them what I had in mind and they did it. It only has the 2 steel rods up each side , with a velcro closing on the top. it attaches to the shoe with the anklr hinges. To insure my foot dosen't turn they put a narrow leather band that closes with a buckle. It is much more comfortable and MUCH cooler than...

      RHMLucky777

      Read More

      Sounds like our braces may be similar. I went in and told them what I had in mind and they did it. It only has the 2 steel rods up each side , with a velcro closing on the top. it attaches to the shoe with the anklr hinges. To insure my foot dosen't turn they put a narrow leather band that closes with a buckle. It is much more comfortable and MUCH cooler than the plastic AFO. I do wish Dr.'s/ Reseachers  would put a little more time and effort into Foot Drop. As far as technology has come, seems there would be a solution and aslo for the RSVP. I almost got a stimulant implant put on my spine but after much testing I wasn't a candidate a nd not sure I would have done it anyways. Just thing how many ways that could go wrong! I hope you find relief and pass it along. Yes I am on Facebook but I am not good at finding people and not sure I want my full name here but you can try my email addy dibber_dabber@yahoo.com.There is an underscoer between the two words. Just let me know in the request who you are so I don't delete you. If friending me is why you ask, I may be way off base...lol.I am a lot.

       Best of Luck,

       Deb

    • Jessica
      Aug. 15, 2011

      Hi Deb!  I was doing some research about drop foot braces and came accross this discussion board.  

       

      I work for a medical device company and we are developing a new brace for drop foot that will allow for users to wear it under the shoe, with sandals, and even barefoot and still provide the lift and support required. 

       

      Like I said,...

      RHMLucky777

      Read More

      Hi Deb!  I was doing some research about drop foot braces and came accross this discussion board.  

       

      I work for a medical device company and we are developing a new brace for drop foot that will allow for users to wear it under the shoe, with sandals, and even barefoot and still provide the lift and support required. 

       

      Like I said, we're in the process of refining the product right now - but it is scheduled to be ready for release by the end of this year!  If you'd like to email me your contact information I would be happy to get ahold of you when it's ready.  If others on this board - or if you know others who have drop foot - would like to do the same I would love to help out.  

       

      I really hope that this new design helps out those that have to struggle and be in pain.

       

      Thanks,

      Jessica 

       

      My email is footmind@gmail.com

       

       

    • Deb
      Deb
      Aug. 16, 2011

      Jessica, YES please send me any info you can. This sounds like an answered prayer.

       

      Anxiously awaiting,

      Deb

    • Jessica
      Aug. 16, 2011

      Deb,

       

      I just talked to the owner of the company about you and we'd love to have your help in testing of the brace when it is ready.  Would you be willing to give it a try and give us as much feedback (positive and negative) so we can make sure the product is the best brace available?

       

      Please email me at jessica@footmind.com. 

       

      Thanks,...

      RHMLucky777

      Read More

      Deb,

       

      I just talked to the owner of the company about you and we'd love to have your help in testing of the brace when it is ready.  Would you be willing to give it a try and give us as much feedback (positive and negative) so we can make sure the product is the best brace available?

       

      Please email me at jessica@footmind.com. 

       

      Thanks,

      Jessica

    • Deb
      Deb
      Aug. 16, 2011

      Oh My Yes I would love to if there isn't a great deal of cost to me. If I can help find something to help not only myself but probably millions of others I am more than willing to give it a shot.

       

      Thank you so much,

      Deb

    • Anonymous
      starfishe1
      Jun. 23, 2013

      i would love to know about the brace

       

    • Anonymous
      starfishe1
      Jun. 23, 2013

      i would love to know about the brace

       

    • Cassie
      Jun. 24, 2013

      Wonderful!  Please e-mail me at cassie@footmind.com :)

    • Anonymous
      d
      May. 09, 2012

      painful days, sleepless and even more painful nights, this is what footdrop is made of...i dont like this at all nor the dr. who "overstrtched" the sciatic nerve,,i thought they were supposed to protect this nerve! then to act as if he did no wrong, no help at all, doesnt know how to treat it! had ity not been for a relative telling the dr. what could help,...

      RHMLucky777

      Read More

      painful days, sleepless and even more painful nights, this is what footdrop is made of...i dont like this at all nor the dr. who "overstrtched" the sciatic nerve,,i thought they were supposed to protect this nerve! then to act as if he did no wrong, no help at all, doesnt know how to treat it! had ity not been for a relative telling the dr. what could help, id be in worse pain! There has to be help for this disabiling thing callled footdrop i so hurt, and angry! i just dont understand how this happened! why ??? carelessness is all i can say, and at this point i stil dont know who perforned the surgery the dr. or his assistant?/ they mnake fun and say my "butt was to big! whoa, I hope we all can find at least a happy median to this problem! pain stinks  i walked in to the hospital and its ashame i couldnt walk out! two hip surgeries one in 2009 in nc,thumbs up Dr. p, one in savannah ga, thumbs down Dr. MW...

    • Anonymous
      DDDD
      Jan. 05, 2013

      What kind of brace is it?

    • Cassie
      Jun. 24, 2013

      The brace is about 3.5 inches high and wraps around the ankle.  It has cables that connect to the eyelets of the shoes and, using Boa Technology, you are able to adjust the lift of your foot to whatever is most comfortable for you!  If you would like to know more, please e-mail me at cassie@footmind.com.

       

      Thanks!