Friday, June 01, 2012

What you see is not what you get.

By expatchad Tuesday, September 04, 2007
My name is Chad Merritt and my wife has had fibromyalgia for 6 years now and I am her caregiver. it is a difficult and sleepless job that I wouldn't give up for the world. She is one of the worst case scenarios you hear about that only get worse as time goes by. She is only 30 years old but has seen a lifetime of pain. I created this picture as she was getting worse after a brief respite from the pain. She always said that the worst part of her problem was that she doesn't look sick. It is a picture of how she looks as compared to how she feels. At this point in my career (when I made this picture) I was just learning photo manipulation and graphic design but it was from the heart and I think that this exhibition is a great idea. I feel it my duty to submit something (and I think if it was printed out on a textured paper it would gain a good deal [if you guys like it I or you can do it]). Awareness promotes innovation and development. Thanks for making a difference.
chad

9/ 4/07 12:36pm
 Couples When a couple stick together in sickness and health is more important than you could know. God has bless you both with a love that is true. There is so many marriage that end in divorce because one or the other can't handle the pain.  The one that is sick ends up alone and hurt even worse. I know because my husband left me and children. He couldn't handle it anymore.  He had a mistress that told him I was faking it to get attention.  I have ms and I had it for over 17 years.  My family and God has gotten me though it.  God has given you your soul mate for life and you are both are a good  couple to follow. Thanks for caring about wife so much. I wish There was away I could take away her pain. I will pray you both. God bless and have a great day.
9/ 4/07 1:44pm
Thank You for the compliments and well wishes, I am deeply flattered.  I think that isn't right, your husband leaving you.   I personally bear a few grudges against the allmighty (hence the knee jerk religion question, my apologies) but am glad that it brings you comfort.  That, I believe, is key to dealing with pain on a daily basis.  My best to you and your family.
9/ 4/07 3:26pm
I know what you mean. I had doubts and I pray harder to try and save my marriage. I even pray that he wouldn't turn his back on his children. We don't know God's plan for us. We will go though trails and tribulations but that is what makes stronger. It is working for you and your wife. I still thank God for what has happen, cause I found out who would stand with me and who wouldn't. It was the hardest time for me but it has made me stronger and a better mom. I will still pray for you both. God loves us all no matter what. Thank you for your honesty it's great to know I'm not a lone on what happen. Oh and no I 'm not pushing God on you too so don't worry.
9/ 4/07 1:07pm
Is this a religious website?
9/ 4/07 3:33pm

 Shy Whistler No, it is not a religious site. It is  just my way of doing things I didn't mean to affine you. Please for give me. He is the biggest part of my life and I will not push him on others. Please don't let this interfere with you coming to this site.

9/ 4/07 4:11pm
I just had to let you know what a wonderful sharepost you have created! I am 23 and have Fibromyalgia as well. I was diagnosed in September of 2006. Let me tell you, it was not easy trying to plan my wedding (hubby and I married July 8th 2006) with all the pain and not knowing what the heck was wrong with me!

You sound like the ideal husband and your wife is truly blessed to have you. Chronic pain definitely is not easy on marriage but it is the devotion our husbands have for us, their love and help that really does make all the difference. All of us ladies out there with chronic pain need more wonderful men like you!

I understand how your wife feels about having so much pain but still looking fine on the outside. That is one of my biggest gripes as well. It makes it VERY difficult for others to really understand what we go through.

Thanks for sharing your pictures with us. They're fantastic!

Bekah
9/16/07 2:37am

Chad,

You're one of the good ones. I do PT in a Pool and hear of spouses who split at the first signs of a chronic condition, especially pain because "they must be okay because the look just fine.

 

I'm in a unique marriage. My wife was diagnosed with Multiple Sclerosis in 1991. I was active duty Air Force and we got super care for her until I retired in 2000. I retired partially because I hit the 20 year mark and partially because I'd been having Migraine Headaches since 1991. I was also diagnosed with Peripheral Neuropathy in 2002.

 

I did what I could for her because she was doing fairly well and I was fighting chronic pain and working my way up in corporate America. Instead of hitting six figures in 2005 I hit the ER on November 6th. I had trouble breathing that afternoon, hit the ER and the first thing I remember after that was December 12th--I'd had a little "nap" in the interim and woke up not having to breath through my mouth or nose because a machine was doing it for me through my throat.

 

I'm disabled now and she does more caregiving for me than I do her. But we understand. People can't figure out why you had to skip the party down the street. Where where you at the company Christmas (sorry, I meant "Holiday Party). No I didn't I meant Christmas Party. Anyway, they don't understand your wife, and they probably don't understand you either. "Just bring her along..."

 

Keep fighting the good fight! Enought about me. Here's the suggestion. I've been tossing narcotics down my throat for sixteen years with unacceptable results. Mixed it with a lot of booze too--and cigars (just not since Nov 6th of '05). The squeaky wheel finally got the grease in March of this year and I had an Intrathecal Pain Pump surgically implanted. Oh yea, this is the suggestion part. It is implanted in the abdomen, a catheter is fed from it directly into the spine and pain medication is infused and bathes the spine attenuating a lot of pain impulses.

 

Do a search in this website on"Deb50" I happened across her posting and this website looking for information on a drug change in my pump. I gave her some information that you and your wife might be interested in. If you have a pain specialist, talk to him or her about your wife's candidacy for a pump. Deb50 went into the hospital for the trial, which is a three day process where they do a spinal tap and simulate the implanted pump with an infuser. Deb50 found out, probably the hard way, that she was alergic to morphine. There are alternative therapies which I mentioned to her.

 

The pumps are about the size of a hockey puck, they refill it every month or so with a hypo right through the skin and into the pump and they're supposed to be good for seven years and then the do a "remove and replace." It's given me a fair portion of my life back. I suggest you find out if your insurance will cover it. If not, shoot your resume out to companys who's insurance do and join at the first possible open enrollment period. Buy a gap insurance to cover the copays too. My monthly refills are one grand. Whatever she does recover of her life would be a great gift for her.

 

I hope this doesn't sound like preaching, but I do understand chronic pain. It's the gift that keeps on giving--maybe. I'm actually starting to let myself think about believing I can have a SOMEWHAT normal life, although I'll most likely never get back to work.

 

I hope this helps,

Rick

 

9/16/07 2:51am

Chad,

When I made the remark, "Just bring her along...." I meant to convey that others might be thinking that.

 

Rick

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (9769) >
By expatchad— Last Modified: 10/15/10, First Published: 09/04/07